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Ni la thèse ni des extraits substantiels de celle-ci ne doivent être imprimés ou autrement reproduits sans son autorisation. 0-612-62538-9 CanadS APPROVAL Name: Christine James Degree: Master of Education Thesis Title: HIV/AIDS EDUCATION FOR WORK PLACE AND PERSONAL CHANGE Examining Committee: Chair: Dr. MaxBlouw Professor, Vice-President (Research) UNBC Supervisor: Dr. Paul Madak Professor and Chair, Education Program UNBC Committee Member: Dr. Peter MacMillan Assistant Professor, Education Program UNBC Committee M e n ^ r : Lela Zimmer, BSN, PhD (c) Assistant Professor, Nursing Program UNBC External Examiner: Dr. Theresa Healy Adjunct Professor, Women’s Studies Program UNBC Date Approved: p ^ X Il ABSTRACT Education for adults, or andragogy, can improve the knowledge and skill base o f employees. Adults bring a huge variety in personal backgrounds, family experience, religion, education and expertise to their work place. A disease like HIV/AIDS stigmatizes those it affects, and barriers can arise in health and service delivery consciously or unconsciously. Work place education or "training" can address such issues. This research investigated the effects o f participation in the "Reducing Barriers by Building Partnerships" HIV/AIDS education program through a descriptive, quantitative research process. A survey was distributed through health and social service agencies whose staff or volunteers had taken one to five o f the modules during the past five years. The return rate was 45.2% and resulted in feedback from 16.4% o f the population o f past participants. The survey respondents were primarily women, ranging in age from 21-61. Most attended voluntarily and most were paid for their attendance time. The highest degree o f changes occurred in the area o f gain in knowledge. In the attitude and behavior questions, the majority responded that they remained "about the same" and a minority reported positive change. The textual responses indicated that positive change did occur exemplified by "Ran across homophobic people and tried to change their opinions" and "I speak with knowledge and therefore pass on what I learned to stop stigma o f stereotyping". Education did result in positive rather than negative transfers in knowledge, attitude and behaviors. The learning environment was strongly praised, indicating an andragogical approach and the successful implementation o f a transformative learning experience. Ill The implications for practice and the recommendations include the necessity o f a strong theoretical base in the implementation o f adult learning opportimities, the recognition that work place training situations can include transformational learning experiences to not only improve service delivery but to strive for a socially responsible society, the need to encourage attendees o f multi-module training to complete their involvement, and the need to disseminate the research information. The "Reducing Barriers by Building Partnerships" HIV/ADDS program exemplified a successful adult training initiative. TABLE OF CONTENTS ABSTRACT................................................................................................................................... n TABLE OF CONTENTS..............................................................................................................v/ LIST OF TABLES......................................................................................................................... vt ACKNOWLEDGEMENT............................................................................................................ viii DEDICATION............................................................................................................................... Lx I. INTRODUCTION.............................................................................................................. 1 IL PROBLEM Statement o f the problem.................................................................................... 4 Significance o f the problem.................................................................................9 Definition o f terms................................................................................................ 11 Summary............................................................................................................... 13 III. LITERATURE REVIEW HIV/AIDS education........................................................................................... 14 Adult education and transformational learning................................................ 21 Attitudinal and behavioral change......................................................................29 Contribution o f this research...............................................................................33 Summary............................................................................................................... 35 IV. METHODOLOGY Methodology.........................................................................................................36 Target population................................................................................................. 37 Instrumentation.....................................................................................................38 Pilot project...........................................................................................................39 Distribution.................................................................................................... 40 Summary............................................................................................................... 41 V. RESULTS Data Collection.....................................................................................................43 Demographic Data................................................................................................ 47 Data on BCnowIedge Change................................................................................ 50 Data on Attitudinal Change................................................................................. 51 Data on Behavioral Change................................................................................. 55 Data firom Concluding Comments..................................................................... 62 Representativeness and Validity........................................................................ 69 Volunteer Bias.........................................................................................69 Representativenes................................................................................... 70 Validity.....................................................................................................71 Summary............................................................................................................... 72 iv VI. CONCLUSIONS Conclusions...........................................................................................................74 Has participation resulted in change?....................................................75 Knowledge...................................................................................75 Knowledge and understanding..................................... 75 Previous knowledge.......................................................77 Attitudes.......................................................................................77 Attitudes and confidence levels....................................78 Behaviors..................................................................................... 79 Empathy.......................................................................... 80 Communication..............................................................81 Service provision............................................................82 Advocacy........................................................................ 83 Work place changes.......................................................84 Summary.....................................................................................86 Was the change positive, neutral or negative?..................................... 87 What is the impact o f participation?......................................................89 Analysis o f the learning environment..................................... 89 Was this andragogy?......................................................90 Was this transformative learning?............................... 92 Determinants o f health..............................................................93 Original goals.............................................................................94 Social learning theory............................................................... 96 Impacts beyond past participants.............................................97 Implications for practice.....................................................................................98 Was change necessary?......................................................................... 98 Andragogy...............................................................................................101 Transformational learning..................................................................... 102 Module attendance................................................................................. 102 Delimitations and Limitations........................................................................... 105 Deliminations......................................................................................... 106 Limitations.............................................................................................. 109 Suggestions for further research....................................................................... 111 Recommendations...............................................................................................I l l Summary..............................................................................................................114 BIBLIOGRAPHY....................................................................................................................... 117 APPENDICES Appendices A - Q............................................................................ 119-145 VJ LIST OF TABLES Table 1: Persons Testing Newly Positive for HIV by Health Region and Year............6 Table 2: AIDS Case Reports by Health Region and Year o f Diagnosis.........................7 Table 3: A Comparison of Assumptions and Designs o f Pedagogy and Andragogy.. 22 Table 4: Survey Distribution Statistics............................................................................... 44 Table 5: Modules Attended..................................................................................................47 Table 6: Year Last Attended................................................................................................ 48 Table 7: Age.......................................................................................................................... 49 Table 8: Knowledge Learned...............................................................................................50 Table 9: Change in Understanding o f Client Situation.....................................................5 1 Table 10: Changes in Attitude Regarding Situation o f (Client) Groups...........................52 Table 11 : Thoughts at Work: Textual Responses................................................................ 53 Table 12: Thoughts Outside o f Work: Textual Responses.................................................54 Table 13 : Changes in Confidence Level............................................................................... 55 Table 14: Changes in Empathy Demonstrated at Work...................................................... 56 Table 15 : Changes Regarding Discussion o f (Client) Groups at Work: Textual Responses................................................................................................. 57 Table 16: Changes in Service Provision at Work: Textual Responses............................. 58 Table 17: Changes in Advocacy at Work: Textual Responses...........................................59 Table 18: Changes in Work Place due to Staff Participation: Textual Responses...........60 Table 19: Changes Outside o f Work Place Regarding Discussions o f (Client) Groups: Textual Responses.................................................................... 60 Table 20: Changes Outside o f Work Place in Personal Advocacy: Textual Responses................................................................................................. 61 Table 21 : Most Liked Aspects o f Woricshops: Textual Responses....................................63 vu Table 22: Least Liked Aspects o f Workshops: Textual Responses.................................. 64 Table 23: Usefulness o f Workshops in Work Place: Textual Responses.........................65 Table 24: Usefulness o f Workshops in Personal Life: Textual Responses......................66 Table 25: Other Comments Regarding the Workshops: Textual Responses................... 67 Table 26: Category Totals for All Textual Responses........................................................68 Table 27: Grouping o f Textual Comments: Summary....................................................... 68 Vllt ACKNOWLEDGEMENTS I would like to gratefully acknowledge the many individuals who have supported and assisted me in the completion o f this thesis, and in the attainment o f my Master’s Degree. First o f all, thank you to my committee for your sharing o f your expertise and knowledge. As my advisor, Paul, you gently and specifically steered my progress. Peter - your statistical, software, and specific research knowledge were very helpful. Lela - your commitment to the “Reducing Barriers by Building Partnerships” program, both in its development and in this research has been so positive. Thanks also to my external examiner, Theresa, for your insightful direction. Many, many thanks to AIDS Prince George for encouraging this research to occur. Olive - your role was a key. Your belief in my abilities and your commitment to investigation through research helped greatly. Mary - your contribution to this AIDS Education program is reflected in the positive comments from participants. Gail - your assistance was invaluable, many thanks for your patience and your humor. Thanks to all !! To Joyce o f Bellamy Road Day Care: your love for my children, and your flexibility in the arrangement o f their care was also a key aspect in the completion o f this research and degree. Thank you for your very special work. The contribution o f my friends to the care o f my children during classes, meetings and homework has left a deep impression with me. To Ann (and Dougie !), to Pat (miss you !!), and especially to Sandra (miss you so much !!): thank you for the loving care and time you gave to us. Thank you also for your ongoing support and friendship. A heartfelt thanks to my co-workers at Rainbow Adult Day Centre and Parkside and Rainbow Intermediate Care Homes, and to my “boss” Tim for your interest in, patience and flexibility with, and support o f me during not only this research but throughout this Masters program. Thanks especially to my job partner Carla, for your belief in and advocacy for our job share position - 1 couldn’t have done this without you. Thank you to Julie Anne in the Office o f Social Research at the University o f Northern British Columbia for your assistance with the data entry, and your patience with all my questions and requests. Many thanks to my husband Lome for his ongoing support, time, (finances!!) and everything during these past five years. And thank you to my parents for bringing me up in an environment that modeled and encouraged both lifelong learning and reaching for one’s dreams. LX DEDICATION In an environment o f lifelong learning, and In the spirit o f working towards positive change in our world, I dedicate this work to my children. CHAPTER I: INTRODUCTION Epidemics have far-reaching social consequences. Public knowledge that an invisible microbe is causing illness and death can bring irrational fears and widespread panic... The social sanctions suffered by victims o f disease fît well under the broader rubric o f social stigmatization... The social construction o f HIV/AIDS ... has made it among the most stigmatizing medical conditions in modem history. (Kalichman, 1995, p.191-192) The acronmyms HIV and AIDS evoke an emotional response. We respond internally to the fear associated with the disease process and with fear in our varied understanding o f the transmission process. We respond to the stigma associated with this disease, and we consider the potential sources o f infection in each individual. Sometimes we respond externally through our behavior, ranging from changes in our communication style to responses as severe as ridicule, assault and abuse. As a society, we have difficulty in coping with this medical condition. For an individual with HIV or AIDS, societal response can result in many challenges. Tross and Hirsch’s (1985) study (as cited in Kalichman, 1995, p. I l l ) found that “A positive HIV antibody test result can lead to loss o f employment, the threat o f eviction, denial o f health and life insurance, refusal o f professional services, and denial o f health and dental care”. Although this quote is fifteen years old, these challenges still remain. The challenges exist not only for the individual, but also for his/her family, fiiends and significant others. Stigma exists, and can have a disturbing and negative impact on many aspects o f their lives. In the central interior region o f British Columbia, the number o f individuals who have tested positive for the HIV virus continues to grow. As a region, we have a commitment to supporting individuals in remaining within their community. Individuals with HIV/AIDS need access to a wide variety o f services to address the changing aspects o f their medical condition. This may involve the services o f a number o f health and social service agencies, and may involve dealing with many professionals and front-line staff throughout the course o f their disease process. Health and social service agency employees are members o f the broader community, and as such they are often a reflection o f their community. As adults, they bring to their workplace a great variety in background experiences, education, family upbringing, religious viewpoints, and communication skills. This range results in a broad spectrum o f professional behaviors in working with clients who have or are impacted by HIV/AIDS. Positive and unfortunately some negative interactions can occur. These interactions can have an impact on an individual’s ability to maintain themselves in our community. The interactions also can impact an individual’s ability to live a life o f dignity. In 1993, AIDS Prince George developed a proposal to encourage social change through education. They received funding through the federal AIDS Community Action Program (ACAP) to design, develop, implement and evaluate an educational program designed for employees o f health and social service agencies. The program became the fifteen hour, five module series entitled “Reducing Barriers by Building Partnerships”. The modules are a) “HIV/AIDS lO l”, which introduces the disease and its transmission; b)”The impact o f HIV/AIDS on those infected and affected”, which explores the needs o f victims as well as their families and friends in preparing and dealing with the disease and death; c) “Homophobia, heterosexism and HIV/AIDS ”, which explores the feelings, attitudes and stigmas associated with the gay and lesbian portion o f our population; d) “HIV/AIDS and First Nations people”, which provides historical and current information on the rising rates o f HIV/AIDS among this population; and e) “HIV/ADDS in a diverse community”, which mentions other populations such as intravenous drug users and encourages us to accept the diversity which exists within our communities. The titles and objectives for each module are listed in Appendix A. The program is unique in a number o f ways: it addresses not only the technical or medical aspects o f the disease but also the social and emotional impacts, it provides information on marginalized groups in society which have either been associated with HIV/AIDS or are currently at greater risk o f transmission o f the disease, it encourages participants to examine their attitudes and values towards this disease and towards marginalized groups, and it examines the role that the social determinants o f health play in the constellation o f factors associated with HIV/AIDS. The program has been offered only within the central interior region o f the province o f British Columbia and during the last five years. The program has been hosted through health and social service agencies to their staff and volunteers as a work place education initiative. The education o f adults, or andragogy, is an intrinsic component o f most work places. Workshops and inservices assist in not only the ongoing training o f adults to achieve the best service possible, but also assist in ensuring that the social climate, philosophy o f operation, and policies and procedures are shared by all employees and associated volunteers. Education can also be a process for change. Transformational learning is the process o f educating for personal change and for external change in relation to improving the society around us. In this case, the core content o f the educational program is HIV/AIDS. However, the program moves far beyond this topic in addressing emotional, social, cultural, and historical factors. This thesis research will examine the impacts o f the work place educational program, "Reducing Barriers by Building Partnerships". CHAPTER 0: THE PROBLEM Statement o f the Problem There are a variety o f factors that influence the health o f a population. These include income and social status, social support networks, education, employment and working conditions, social environment, physical environment, personal health practices and coping skills, healthy child development, health services, gender and culture. Health should therefore not be viewed exclusively in terms o f illness and death but rather as a dynamic state that individuals and communities strive to achieve and maintain. Information on the major social and economic trends and variations in health status and understanding o f health issues is important. This information provides a better understanding o f health issues so the changing needs o f services can be anticipated and new strategies developed to improve health. (Northern Interior Regional Health Board, 2000, p. 6) "Information on and understanding o f health issues is important" (NIRHB, 2000, p. 6). These key words set the stage for this thesis research, "HIV/AIDS Education for Work Place and Personal Change". Service providers need current, applicable, non-judgmental knowledge and understanding o f health issues in order to provide the best service possible to their clientele. Individuals with HIV or AIDS, families and friends o f individuals with HIV or AIDS, and members o f marginalized groups in society deserve the best service possible in order to address their health needs. As mentioned above, the social determinants o f health encompass a variety o f factors. This section o f the thesis will examine a number o f the social determinants characteristic o f the central area o f British Columbia, establish that HIV and AIDS continue to arise, explore the historical process which led to the establishment o f the workshop series "Reducing Barriers by Building Parmerships", describe the problem which led to the development o f this study, and begin defining the research and its variables. The Health Services Plan 2000-2003 for the Northern Interior Regional Health Board (NIRHB) identifies this region as accounting for 3% o f the province’s population (p. 6 - 7). Thirty-one percent o f this population is under the age o f 19, and 63% falls between the ages o f 20 and 64 years. The portion o f the elderly o f 65+ years (7%) is lower than the provincial average o f 13%. In terms o f education, the report stated that “In 1996,4% o f the NIHR population had a trade level education, 28% had a non-university level education, and 16% had a university level education” (2000, p. 7). The last statistic for university level education is far less than the provincial average o f 25%. The Northern Interior portion o f British Columbia is a resource based area, with a population that is traditionally working class. The economy relies heavily on the forestry sector, with mining, manufacturing and tourism being significant employment areas (2000, p. 5). The aboriginal population totals 9% o f the regions’ population, and “Aboriginal persons have a considerably stronger representation in the Northern Interior Health Region than throughout British Columbia (British Columbia Aboriginal population, 4%)” (NIRHB, 2000, p. 7). The British Columbia Center for Disease Control publishes statistics on HIV and AIDS. The past participants o f the “Reducing Barriers by Building Partnerships” modules have come primarily from the Northern Interior Health Region’s communities o f Prince George, Vanderhoof and Bum ’s Lake. The workshop series was also offered once in the Cariboo Health Region’s community o f Williams Lake and associated rural areas. As well. Prince George is recognized as a regional referral center for health issues for the entire northern portion o f the province. Therefore, the tables below contain information from both the Northern Interior and the Cariboo Health Regions plus information from British Columbia as a whole. Table 1 identifies the number o f persons who newly tested positive by health region from 1994 to 1999. However the totals may be misleading. “An HTV positive test report is designated to the appropriate HEALTH REGION according to the location o f the phvsician/clinic site where the person was tested” (MacDougall, Rekart, Knowles, Spencer & Elliot, 1999, p. 37). Therefore, if an individual is concerned about stigma, lack o f privacy, lack o f services, or any other real or perceived barrier, they may travel to another region o f the province to be tested. Their test and their result will then be tallied within the region where the test occurred. Regardless, the following table indicates that positive tests for HIV continue to occur within the two local health regions. In Table I, the “Rate” rows are the rate per 100,000 population. The “Tests" rows are the number o f HIV tests performed at the provincial laboratory including positive and negative results. The Total column is cumulative from 1989 - 1999, although amounts for 1989 - 1993 are not shown. Table 1 Persons Testing Newlv Positive for HIV bv Health Region and Year Health Region HIV 1994 1995 1996 1997 1998 1999 TOTAL Northern Interior persons 8 5 2 4 2 4 52 rate 6.47 3.95 1.55 3.03 1.50 3.00 tests 3426 3989 4034 4099 3981 3700 persons 2 2 3 2 1 rate 2.90 2.82 4.09 2.64 1.3 tests 1,088 1627 1738 1979 1861 persons 840 690 714 561 482 427 rate 22.82 18.23 18.39 14.17 12.02 10.55 tests 104,118 130,338 138,250 140,278 137,701 135,284 Cariboo British Columbia 33,027 18 12,729 7283 1,085,630 (MacDouga 1, Rekart, Knowles, Spencer & Elliot, 2000, p. 37) Table 2 shows the AIDS case reports by year o f diagnosis. In this table, the report is “designated to the appropriate HEALTH REGION according to the patient’s place o f residence at the time o f his/her diagnosis o f AIDS (ie. first disease indicative o f AIDS)” ( MacDougall et al, 2000, p. 11). This information is, then, more specific to the region the individual lives in. However, it does not account for information should an individual chose to move upon diagnosis or at any point in the disease process. Individuals may chose to return to their home community or to a community with strong familial or friendship supports, or move for any other reason. The information below therefore does not provide us with data on the number o f individuals with AIDS who are living within a region at any given time. Table 2 is structured in approximately the same format as Table 1, using the terminology o f cases instead o f persons, and eliminating the tests row. Table 2 AIDS Case Reports bv HEALTH REGION and YEAR OF DIAGNOSIS Health Region HIV Northern Interior Cariboo British Columbia 1994 1995 1996 1997 1998 1999 TOTAL cases I 2 5 3 2 19 rate 0.79 1.55 3.78 2.25 1.50 cases 1 I rate 1.36 1.31 cases 292 252 154 138 133 103 rate 7.93 6.66 3.97 3.49 3.32 2.55 7 2880 (MacDougall et a ,2 0 0 0 , p . 11) AIDS/HIV is a medical condition which carries with it associated stigma unprecedented in this century (Kalichman, 1995, p. 192). For those living with or impacted by HIV/AIDS, this stigma can add challenges to the already existing difficulties in living with the physical disease process. All o f us in society have the right to live and die with dignity. For those with HIV/AIDS, this has not always been easy. The Prince George AIDS Society embarked on a series o f community and consumer consultations in 1993 in order to determine the future direction o f the organization, and the service needs o f consumers. In 1995, they applied for AIDS Community Action Program (ACAP) federal funding to further assist with the development and evaluation o f a project entitled “Reducing Barriers by Building Partnerships”. In their application, they stated that “We have identified the many barriers to service for people living with HIV/AIDS as the need to be addressed at this time” (AIDS PG, 1995, p. 3). This statement was clarified further on page 7, in saying “We will address the barriers to equitable service for people living with HIV/AIDS such as stigma, ignorance and fear by workers in the human services”, and on page 8 with “Local people living with HIV/AIDS (PLWHIV/AIDS) are articulating their desire and need to remain in their home community and to be able to access the support and services they need to ensure a good quality o f life”. The project initially aimed to assist in developing stronger communication channels between service providers, and to strengthen the social community within the service agencies through the education process. The goals were further refined in the statements “to provide knowledge and foster insight in health care and social service agencies in order to ensure sensitive, adequate, accessible service and care for those living with HIV/AIDS in Prince George” (Walmsley & Keith, 1998, p. 4). The second goal was “to strengthen social environments in social and health service agencies for persons living with HIV and AIDS” (Walmsley & Keith, 1998, p. 4). This thesis research investigated the impacts o f participation in this educational program, and explored the participants’ perception o f personal and work behavior change. Research to investigate the results o f an educational intervention helps in understanding the benefits and drawbacks o f the educational process. The “HIV/AIDS Education for Work Place and Personal Change” research investigated the effects o f participation by health and social service agency employees in the AIDS Prince George’s “Reducing Barriers by Building Partnerships” educational program. As such, I looked for specific information based on specific questions. As this was a descriptive study it sought to answer research questions rather than to test an hypothesis. This inquiry targeted past participants o f the workshop series in the investigation o f three research questions, “Has participation in the 'Reducing Barriers by Building Partnerships' program resulted in changes in your knowledge, attitudes, beliefs and/or actions on a personal level and in your workplace?” The second question was “Has your participation resulted in a positive, negative or neutral transfer or change?” This second question will be further clarified in the literature review section o f this proposal. The final summarizing question was as follows “What is the overall impact o f participation in the 'Reducing Barriers by Building Partnerships' program?” Significance o f the Problem The “Reducing Barriers by Building Partnerships” educational program series pilot project ran &om 1996-1998. The evaluation plan was designed in advance o f the implementation o f the sessions. AIDS Prince George gathered quantitative data in a pre-test and post-test format as well 10 as qualitative data to evaluate the program. The pre-test and post-test questions asked participants about changes in knowledge and attitudes regarding the technical content and the population groups discussed in each module. Each module was analyzed statistically using the software program "Statistical Package for the Social Sciences" (SPSS), with Module One information at a nominal level and performing two-way chi-square tests, and Modules Two through Five analyzed using the Mann Whitney U test for ranked or ordinal data for non-paired results (Walmsley & Keith, 1998, p. 13). The qualitative evaluation component included questions such as “The most important thing I learned today w as...”, “As a result o f this workshop I w ill...” and “What would you change about this module...” (Walmsley & Keith, 1998, p. xvi-xvii). The evaluation was compiled in 1998 and included the summary statements as follows: “It appears that in general, the learning objectives for each module were met. It was evident that the program participants were extremely positive about the modules and there were very few negative or critical comments” (Walmsley & Keith, 1998, p. 5). The report suggested further evaluation o f the “Reducing Barriers by Building Partnerships” program using a qualitative research design. The “HIV/AIDS Education for Work place and Personal Change” thesis research addressed the suggestion for follow-up inquiry into the program. It was determined that a quantitative and descriptive research design would provide further information from a greater number o f past participants than a qualitative research design. The initial evaluation had provided surface input on whether the participants enjoyed the program and learned from the program. From this initial information, several areas for further investigation arose. Did the workshop series make a difference in the personal lives and work lives o f the program participants in the months and years following the workshops? Did the educational program results in changes in attitudes Il and/or changes in behavior? How did this gain in knowledge translate into changes in the work place? What aspects o f the learning environment contributed to the participants' enjoyment o f the program? Further evaluation and inquiry would provide deeper insight into the effects o f this educational program. Nationally, the AIDS/HIV health community has recognized the need for more evaluation and research in its programs. AIDS Prince George staff members are currently participating in both provincial and national committees to assist in developing frameworks for research and evaluation. This study is timely in that it contributes to the knowledge base at a time when the importance o f such inquiry is recognized among the HIV/AIDS health community. The information in this research will be disseminated not only locally but also provincially and nationally through a variety o f academic means. Definition o f terms The “HIV/AIDS Education for Work Place and Personal Change” thesis research involved the use o f a survey (see Appendix B) to gather input from past participants o f a workshop series. This section will define the basic concepts and terms in relation to the process o f the inquiry and the content o f the survey instrument. This inquiry examined the process o f change through education. The term education refers to “the act or process o f acquiring knowledge” and “the knowledge or training acquired by this process” (Collins, 1995, p. 409). Change is defined as “to make or become different; alter” and 12 “the act or fact o f changing or being changed” (Collins, 1995, p. 221). As the participants o f this program were adults, the framework o f this educational opportunity falls within the field o f adult education, or andragogy. The goals o f the “Reducing Barriers by Building Partnerships” program were to strengthen social environments, and to provide knowledge and foster insight within health and social service agencies. The challenge was to operationalize these goals into identifiable and measurable variables. To do so, this research focused on some work place and personal experiences which respondents could self-measure. The concept o f change can be defined as any movement, whether positive or negative, as reported by the programs’ past participants. The survey opened with a section on demographics, in order to gather generic information. The survey’s three central sections consist o f sections entitled knowledge, attitudes, and behaviors or actions. Broadly speaking, these are the three variable areas. The dictionary defines knowledge as “the facts or experiences known by a person or a group o f people” (Collins, 1995, p. 724). The word attitude is defined as “the way a person views something or tends to behave towards it, often in an evaluative way” (Collins, 1995, p. 78). The term behave is listed as “to act or function in a specified or usual way” (Collins, 1995, p. 114) while behavior is defined in psychological terms as “the response o f an organism to a stimulus” (Collins, 1995, p. 114). These variable areas were further considered in terms o f knowledge, understanding, confidence level, empathy, discussion o f clients and client groups, advocacy, service provision, and work place changes. Additional categories o f usefulness, helpfulness, and situational reflection provided data relating to the impact o f participation in the workshop series. This study requested that respondents measure their own changes in the above areas, through a process o f self-reflection. Respondents were asked to decide themselves what the impact o f their own participation was. This research did not 13 set standards or use external measurement processes. The methodology section will further clarify the research procedures. Summary Living with dignity, access to services and the ability to remain in one’s own community are issues which face individuals infected with and impacted by HIV/AIDS in the central interior o f British Columbia (AIDS PG, 1995, p. 3 ,7 ,8 ). The non-profit organization AIDS Prince George developed and implemented an education program directed towards health and social service agency employees and volunteers in order to provide knowledge and foster insight into HIV/AIDS. The program has been in existence for five years. The “HIV/AIDS Education for Work Place and Personal Change” research investigated the impacts o f participation in the “Reducing Barriers by Building Partnerships” education program. The research explored the knowledge, attitudinal and behavioral changes in relation to personal and work place change. The inquiry requested infomiation based on the perceptions and self-reflection o f the workshop series' past participants. The provision o f such education and the implementation o f this research are vital components in the process o f education for social change 14 CHAPTER ni: LITERATURE REVIEW The process o f personal and professional change through education is the primary concept explored in this thesis. However, the topic area is multi-disciplinary in nature due to a number o f factors. The provision o f opportunities for learning places the primary focus in andragogy, or adult education. The provision o f services to individuals with or associated with HIV/AIDS places the setting in both health care and social services. The examination o f stigmas and attitudes or beliefs touches upon sociology, the process o f attitudinal and behavioral change falls within psychology, and the implementation o f work place training is most often encountered in business literature. In order to examine the basis or need for both the provision o f the educational program and for the research itself, this section will first explore education in health care settings, beginning with HIV/AIDS education. HIV/AIDS education Professional, non-judgmental and timely service provision will affect not only the client's health and social situation, but will also assist in reducing real or perceived barriers to the access o f service. However, service providers are also individual adults with a variety o f historical influences including education, religion, family upbringing, culture, and other factors which impact their actions consciously or unconsciously. Staff who work with HIV/AIDS clients and families can themselves have complex emotional reactions. 15 Nurses, for example, may experience conflicts between their personal mores about sexuality, homosexuality, and drug use, which are based on religious beliefs and upbringing, and their professional responsibilities. Phobias about becoming infected with HIV, combined with fear o f death and dying, cause considerable stress on the job, adding a dimension that must be addressed by educators.... An organization focused educational program approach can go beyond changing individual professional attitudes and utilize peer influence to create positive group norms. (Dworkin, 1992, p. 673) Literature in HIV/AIDS education speaks to the need for the ongoing education o f service providers. In AIDS Education for Health Care Professionals in an Organizational or Svstems Context. Joan Dworkin (1992) explained that: ...health care for persons with acquired immunodeficiency syndrome (AIDS), and members o f their families, mainly is delivered within health and human services organizations Addressing organizational, community and health care delivery system issues as part o f an education program provides a forum for defining problems and a basis for uniting professionals and developing solutions, (p. 668) Dworkin points out that administrators and front line staff are actually gatekeepers in terms o f service provision, and that one o f the goals o f education is to “change or improve attitudes and behavior toward affected persons” (Dworkin, 1992, p. 670). There is a need to “prepare health professionals to care for persons affected by HIV” (Dworkin, 1992, p. 670). She also reminds us that HIV/AIDS affects not only the identified patient but also the entire family. Dworkin further explored this topic in relation to the larger community in which health and social service agency personnel work and live. Many o f the organizations in which they work are microcosms o f their communities, reflecting the diversity o f attitudes, beliefs, fears, and misinformation found in the general population. Some professionals share the views o f their community; others do not and attempt to change those around them; others must work in a hostile environment (p. 674). 16 Dworkin concluded by encouraging the sharing o f knowledge, and the development o f a multi­ disciplinary approach in the provision o f services to individuals infected with and affected by HIV/AIDS. This article was by far the most comprehensive and the most relevant to this research as it speaks to the need for education o f health care professionals on preparation for caregiving. As well, the article addresses societal and personal attitudes and emotions as does the “Reducing Barriers by Building Partnerships” program. The right to refuse to provide services to clients is an issue that one does not expect will arise in health or medical services. However, the nature o f HIV/AIDS and its associated stigmas have resulted in documented situations o f this attitude and behavior. Randall, Bryce, Bertler, Pope and Lawrenchuk (1993) investigated “knowledge and attitudes related to human immunodeficiency virus (H IV )... among 807 state and 2797 local public health personnel in Michigan” (p. 127). One o f their findings was that “32.4 percent believed that they should have the right to refuse treatment, and 9.4 percent reported that they would not be willing to provide routine public health services to an HIV-infected client”(Randall et al, 1993, p. 127). They concluded that “... public health personnel are in need o f HIV education that focuses on... the development o f appropriate attitudes toward persons infected with HIV” (Randall et al, 1993, p. 127). The results o f this study are quite shocking, and greatly reinforce the need for health and social service personnel oriented education programs such as the “Reducing Barriers by Building Partnerships” program. The above resource items described HIV/AIDS education directed towards the same target population as this research, which was service providers in health care with the purpose o f education for social or work place change. The field o f HIV/AIDS education often focuses on the 17 area o f prevention. Education for prevention teaches individuals about the disease itself, the means o f transmission, strategies for reducing this transmission and the associated behavior changes which are needed. For this review o f the literature, I perused thirteen resource items including journal articles, a conference proceeding, and a 300 entry bibliography. The vast majority o f these (twelve out o f fourteen resources) explored education for prevention among various members o f the public. However, many o f the resources addressing education for prevention did discuss attitudinal change, behavioral change and research characteristics that are relevant to this thesis research. The literature overwhelmingly speaks to the positive results of education in affecting knowledge levels about the topic o f AIDS/HIV, as shown in Dworkin (1992), Randall et al (1993) and Strauss et al (1992). Strauss, Corless, Luckey, van der Horst & Dennis, 1992 explored the impacts o f education on future community and professional leaders in an HIV/AIDS prevention education program for students at the University o f North Carolina. The authors stated “AIDS was dealt with in this course not only as a disease, but also as a case study o f how societies deal with contagion, stigma, disability, death, social stratification, and access to scarce resources” (Strauss et al, 1992, p. 569). The research used pre-test and post-test methods to examine attitudinal and cognitive changes over the period o f the course. They state “the literature on the impact o f AIDS education suggests that knowledge and attitude changes do occur over the course o f educational programs” (Strauss et al, 1992, p. 570). Again, the right to refuse to provide care arose. Attitudes toward the rights o f health workers to refuse to care for persons infected with HIV changed over the course period. There was a significant reduction in the percentage o f those who indicated that physicians (-13.7%) and nurses (-13.5%) had such a right. Attitude changes were found, demonstrating by the course end increased understanding and tolerance for persons who are HIV positive” (p. 571). 18 Does the process o f education always result in positive changes? One o f the literature resources used an electrifying title to draw attention to its content. In AIDS Education may Breed Intolerance Yam (1991) quoted organizational behavior researchers at the Georgia Institute o f Technology who state that “a little education may be worse than no education at all” (Yam, 1991, p. 30). The author suggests that programs which are less than 45 minutes in length can result in workers being less tolerant o f individuals with or impacted by HIV/AIDS. He goes on to state that “In contrast, longer programs, those lasting more than two hours, improved the attitudes o f employees” (Yam, 1991, p. 30). This article did not specify the occupations o f the employees, nor the research setting, methodology or reference information. However, this was also a very short article o f six paragraphs only. The distinction in the length o f presentations needed does provide some positive reinforcement for the “Reducing Barriers by Building Partnerships” program, as it consists o f five modules which are each three hours in length. The next two literature resources focus on education for prevention (Kirby, Short, Collins, Rugg, Kolbe, Howard, Miller, Sonenstein and Zabin, 1994) and (WHO, 1990). These articles refer to changes in various public groups regarding transmission, whereas this research deals with staff members and volunteers who work with individuals infected by or affected by the disease. However, the articles do contain several relevant points. In School-Based Programs to Reduce Sexual Risk Behaviors: A Review o f Effectiveness, authors Kirby, Short, Collins, Rugg, Kolbe, Howard, Miller, Sonenstein and Zabin (1994) reviewed 23 studies o f school-based programs in order to investigate the distinguishing characteristics o f the programs they deemed effective in reducing sexually risky behavior. The researchers identified six characteristics, the majority o f which deal with specifics on sex education which are not applicable here as this research focuses on changes in knowledge, attitudes and behaviors in the work place and in personal life. 19 However, the second characteristic is relevant, and is as follows: “In general, the effective programs were based upon theoretical approaches that have been demonstrated to be effective in influencing other health-risk behaviors: for example, social cognitive theory, social influence theory, social inoculation theory and cognitive behavioral theory” (Kirby et al, 1994, p. 353). The marked need for education o f health care professionals regarding HIV/AIDS, and the ongoing need for appropriate evaluation o f HIV/AIDS programs are the most important issues for this research. The proceedings document from the World Health Organization 1990 Consultation on the Monitoring and Evaluation o f AIDS Education/Health Promotion Programs contains the following item: Attitudes toward people with AIDS reflect mixed sentiments. While most people have expressed feelings o f compassion, many would not work with a person with AIDS. There is some evidence to suggest that accurate knowledge is associated with less stigmatizing attitudes and fewer unnecessary personal anxieties. (p. 5) This again speaks to the not only the stigmatization that occurs with HIV/AIDS, but also to the outcomes o f an educational process in terms o f attitudes and emotions. The report encourages A continued investment in national educational programmes for the general public....in order to maintain high levels o f awareness about HIV/AIDS....correct widely prevalent misinformation and myths, and counteract discrimination and stigmatization. .. And improve the quality and depth o f people’s knowledge... (p. 6) The World Health Organization's 1990 consultation included thirteen representatives from eleven countries, whose purpose was to “examine the practical relationship between monitoring and evaluation studies and decisions concerning the development and implementation o f health education and health promotion programs for AIDS prevention” (WHO, 1990, p. 1). The consultation team discussed the conclusions and lessons learned from existing programs, examined and listed the technical challenges inherent in the evaluation and monitoring processes, 20 considered a number o f means of addressing organizational barriers to monitoring and evaluation, and developed 10 recommendations for national and regional WHO programs. The report also stated that: The evidence o f behavioral change in the general population is weak. Educational programmes for the general public can be made more effective if messages and materials are pretested on representative members o f the target audience and supported by the provision o f adequate and accessible services... (p. 5) This report reinforces the need for research examining the effects o f an HIV/AIDS educational program, in order to further develop the knowledge base on attitudinal and behavioral change. This also speaks to the need for educational opportunities which are well planned and implemented. This inquiry will investigate the learning environment o f the "Reducing Barriers by Building Partnerships" workshop series, in order to learn about the successful and the unsuccessful factors in the implementation o f the program. Although this report is speaking to national and regional AIDS/HIV programs, the above quotes again reinforce the goals o f our local workshop series by reinforcing the role o f education in changing attitudes and in increasing accessibility to services for individuals with and impacted by HIV/AIDS. The report continues in stating that: Monitoring and evaluation can help those concerned to track progress, assess effectiveness, measure impact, calculate cost efficiency and improve the planning o f programmes. They also disseminate information about the experience gained, (p. 6) The report therefore provides support for the need for research such as this thesis: research that examines the effects o f education. The first research question "Has participation in the 'Reducing Barriers by Building Partnerships' program resulted in changes in knowledge, attitudes, behaviors and/or actions on a personal level and in the work place" speaks directly to the 21 problem areas identified in working with individuals infected or affected by this disease and with associated and other marginalized groups in society. Adult education and transformational learning. The field o f adult education recognizes that adults are different from children in their learning needs, situations and processes. This section o f the thesis will introduce the concept o f adult education, define and describe this field o f education, introduce the category o f transformational learning, and explore several frameworks for positive and productive adult learning environments. Throughout history, the word education has been viewed more in terms o f children than in terms o f adults. The theory o f education was known as pedagogy. "The label 'andragogy'... is based on the Greek word aner... meaning 'man not boy' or adult (Knowles, 1980, p. 42) was developed in Europe. Researcher Malcolm Knowles first introduced this term into North America in 1968. The comparisons between pedagogy and andragogy are shown in Table 3 on the following page. 22 Table 3 A Comparison o f Assumptions and Designs o f Pedagogy and Andraeoev ASSUMPTIONS Self-concept Experience Readiness Time perspective Orientation to learning DESIGN ELEMENT Climate Pedagogy Andragogy Dependency O f little worth Increasing self-directedness Learners are a rich resource for learning Developmental tasks o f social roles Biological development, social pressure Postponed application Subject-centred Authority-oriented Formal Competitive Planning Diagnosis o f need Formulation of ob jectives Design By teacher By teacher By teacher Logic of the subject matter Activities Evaluation Transmittal techniques By teacher Immediacy of application Problem-centred Mutuality Respecthil Collaborative Informal Mechanism for mutual planning Mutual self-diagnosis Mutual self-negotiation Sequenced in terms of readiness Problem units Experiential techniques (inquiry) Mutual re-diagnosis o f needs Mutual measurement o f program (Reprinted with permission from Knowles, M. (1984). The Adult Learner: A Neglected Species ed.), Houston: Gulf, p. 116, and as cited in Spencer, 1998, p. 17) The field o f adult education itself is still a relatively new and undefined field within education. In what is considered the starting point o f many modem developments in adult education, the 1919 Report to the British Ministry o f Reconstruction by its Committee on Adult Education defined adult education as... all the deliberated efforts by which men and women attempt to satisfy their thirst for knowledge, to equip themselves for their responsibilities as citizens and members o f society or to find opportunities for self-expression. (Selman & Dampier, 1991, p. 3) Currently, the definition o f adult education most frequently cited is that which was contained in the Recommendations on the Development o f Adult Education prepared for UNESCO and approved formally in 1976. Adult education is: 23 . . .the entire body o f organized educational processes, whatever the content, level or method, whether formal or otherwise, whether they prolong or replace initial education in schools, colleges and universities as well as in apprenticeship, whereby persons regarded as adult by the society to which they belong develop their abilities, enrich their knowledge, improve their technical or professional qualifications or turn them in a new direction and bring about changes in their attitudes or behavior in the twofold perspective o f full personal development and participation in balanced and independent social, economic and cultural development.... (cited in Selman & Dampier, 1991, p. 3-4) The diversity suggested above remains one o f the challenges in attaining a clear and concise definition. “The field o f adult education and training remains broad, fractured and amorphous, differently understood, labeled and defined in different countries and by different interests” (Tight, 1996, p. 3). The first research question will provide direct and relevant feedback regarding the effectiveness o f this adult learning opportunity to the various stakeholders o f this process, including the health and social service agencies, the past participants, the host agency AIDS Prince George, and the academic community. Earlier in this thesis a question was posed: "Does the process o f education always result in positive changes?" The reference Developing and Training Human Resources in Organizations by Wexley and Latham (1991) addresses this question. In Chapter Four, the authors discuss the retention and transfer o f learning, and provide interesting information applicable to this study. Transfer refers to the extent to which what was learned during training is used on the job. Three transfer possibilities exist: Positive transfer: Learning in the training situation results in better performance on the job. Negative transfer: Learning in the training situation results in poorer performances on the job. Zero transfer: Learning in the training situation has no effect on job performance. (Wexley & Latham, 1991, p. 96) This description o f possibilities relates to this study’s second research question, “Are these changes o f a positive, negative or neutral nature?” The “Reducing Barriers by Building 24 Partnerships” program was designed as a work place training initiative, with an end goal that was to improve environments and access to service for individuals with or impacted by HIV/AK)S. It would be helpful to know if participation in the educational program has resulted in a positive, negative or neutral transfer situation. The third research question, "What is the overall impact o f participation in the 'Reducing Barriers by Building Partnerships' program?" leads to an examination o f the learning environment in relation to the goals o f this educational program. These goals involve the strengthening o f social environments by providing knowledge and fostering insight. The specific educational term for this is transformational learning. Adult education is primarily interested in people, the changing o f people to become better citizens, better workers, better contributors to society. .. Education for transformation, however, is intentionally towards a vision o f society that is socially responsible, for those work situations that promote humanization and freedom for creativity. (Scott, 1998, p. 186) Scott (1998) explained that within adult education, there are two primary kinds o f transformation, social and personal and a third type known as change in knowledge. Specifically, The aim o f the change is to catalyze a fundamental shift in people’s beliefs and values and must include a social vision about the future based on a value system that includes the struggle for freedom, democracy or equity, and authenticity. (Scott, 1998, p. 178) In order to assess if a change is transformative, Scott provides four criteria: 1. there must be structural change, 2. the aim or intention must be grounded in a future vision that includes freedom, democracy and authenticity, 3. there must be a shift in what counts as knowledge, and 4. the change must be based on conflict theory (Scott, 1998, p. 179) 25 One o f the primary theorists in transformative learning is Mezirow. Cranton (1998) explores Mezirow’s ideas in the article Transformative Learning: Individual Growth and Development Through Critical Reflection. Mezirow’s theories are summarized as follows: Transformative learning theory draws on research and ideas from philosophy, psychology, sociology and education.... Meaning schemes are our expectations o f what will happen, based on what has happened. Meaning perspectives are the broader views we hold about the world around us. We have meaning schemes and perspectives about knowledge, culture and ourselves, ...Often our perspectives have gone unquestioned. We do not know where they came from and have never examined their validity. When we are led to question our assumptions, critical reflection, the central process in transformative learning takes place. (Cranton, 1998, p. 198) Transformative learning is a process which encourages social change. Social change has also been suggested in the "Reducing Barriers by Building Partnerships" goals through the process o f strengthening the work environment. Although the field o f adult education is fractured and differently understood, there exists a considerable body o f research which speaks to positive and productive learning environments for and with adult participants. In Adult education: Helping adults begin the process o f learning. Campbell (1999) explores the role o f nurses as educators in their work places. She defines adult education as “a cognitive process influenced by a variety o f elements such as prior learner knowledge, learner attitudes, and beliefs toward the source, content, topic, and mode o f presentation, and state o f the learner”. Campell further states “As a noun, learning refers to the phenomenon o f internal mental change characterized by a flash o f insight or rearrangement o f neural paths. It can be seen externally in the form o f permanent behavioral change” (p. 31). Campbell translates her theory into twelve instructional methods adapted from Galbraith’s (1990) book Adult Learning Methods: A Guide for Effective Instruction. The methods are 26 learning contracts, lecture, discussion, mentorships, computer assisted, distance learning, case study, demonstration, simulation, forum, panel and symposium. Galbraith uses the terminology "adult learning transactional process" (1991, p. 1) to describe the learning situations discussed here. He states that the following six principles should be present: 1. An appropriate philosophical orientation must guide the educational encounter. 2. The diversity o f adult learners must be recognized and understood. 3. A conducive psychosocial climate for learning must be created. 4. Challenging teaching and learning interactions must occur. 5. Critical reflection and praxis must be fostered. 6. Independence must be encouraged. (Galbraith, 1991, p. 16) Galbraith further defines the most common elements as being "collaboration, support, respect, freedom, equality, critical reflection, critical analysis, challenge and praxis" (1991, p. 3). He is insightful in recognizing that theory and reality do not always match, in stating that When the vast array o f settings in which adult learning occurs and the reasons for the learning, whether it be for personal, social, professional, recreational, or political, are considered, it is rather naive to think that all elements o f the transactional process that will be incorporated. However, it does not eliminate our responsibility in the teaching and learning encounter to put forth the effort. (Galbraith, 1991, p. 3) Galbraith continues by suggesting "seven adult learning methods that seem most appropriate for the transactional process: discussion, simulation, learning contracts, inquiry teams, case method, critical incident and mentoring" (1991, p. 103). Galbraith's theoretical framework is therefore applied through specific learning method suggestions, which provide a good basis for planners and presenters o f adult learning situations. Work place educational opportunities such as the "Reducing Barriers by Building Partnerships" program can be described as health and social service education or inservicing, according to the 27 fields o f employment o f the participants. The program can also be described as training, which is the generic term for employee learning opportunities. Tight (1996) defines training as “preparing someone for performing a task or role, typically, but not necessarily, in a work setting” (p. 18). As such, literature on training is usually located in the field o f business. Such inconsistencies are common within the field o f education, and are just one example o f not only the complexity o f the field but the incongruities within the terminology. Regardless o f the positioning o f the field, this educational opportunity was designed as a work place education program. Tight provides an historical framework to the specific Reid o f training and development in the following information: It is quite common to recognize four waves o f change in training and development practice since the Second World War. The first wave focussed on job skills training; the second, from the 1970’s onwards, on management and supervisory training; and the third, in the 1980's on organizational development and performance technology. We are now, supposedly, dealing with the fourth wave, the focus o f which is on information, knowledge, and wisdom. (1996, p.20) Training can be further defined as "the systematic acquisition o f skills, rules, concepts or attitudes that result in improved performance in the work situation" (Goldstein and Gessner, 1998, p. 43 as cited in Tight, 1996, p. 19). This information is particularly relevant to this research as it mentions concepts, attitudes and performance and mirrors our discussion o f knowledge, attitudes and behaviors. Tight provides a further quotation in saying "As a result o f training we are able to respond adequately and appropriately to some expected and typical situation" (Deardon, 1984, p. 59 as cited in Tight, 1996, p. 19-20). This reflects the underlying reason for offering educational programs in the work place, the development and reinforcement o f the abilities o f the employees to deal with the challenging situations arising firom HIV/AIDS and in working with the marginalized groups identified in the modules. 28 In the late 1980's, the concept o f the "learning organization" arose as an international concept. "The learning organization concept may provide the catalyst which is needed to push forward, in an holistic way, the many strands, ideas and values with which organizations must now concern themselves" (Jones and Hendry, 1992, pp. 58-59 as cited in Tight, 1996, p. 45). It is interesting that the aspect o f ideas and values is mentioned here as a function o f an organization. The concept o f the learning organization specifies that learning is more than just individual or group learning, but rather that systematic learning is needed as well. This reflects back to Dworkin's suggestions that learning must be addressed at the organizational level. Tight suggests that "it represents an interaction between the organization's component parts, and the outside environment, to the benefit o f the organization as a whole" (1996, p. 40). A learning organization is one that has a climate that accelerates individual and group learning. Learning organizations teach their employees critical thinking process for understanding what it does and why it does it. These individuals help the organization itself learn from mistakes as well as successes. As a result, they recognize changes in their environment and adapt effectively. Learning organizations can be seen as a group o f empowered employees who generate new knowledge, products and services; network in an innovative community inside and outside the organization; and work towards a higher purpose o f service and enlightenment to the larger world. (Marquardt and Reynolds, 1994, p. 22 as cited in Tight, 1996, p. 43) Tight does mention that the concept o f a learning organization has been criticized, with suggestions that it may be "diaphanous and unrealizable" (p. 44), there are "substantial variations in practice and experience" (p. 44), and there is a lack o f research establishing links between the concept and the success o f the organization. However, the concept is now a part o f the international community o f business and adult education. There are elements o f this concept which are laudable, and which can have a positive impact on not only the work place but the provision o f services as follows: 29 Benefits for customers include... making available products and services that meet their evolving requirements....the rate o f iimovation, not just in products and services, but in process adaptability and responsiveness... Benefits for employees include. .. the ability to enhance both internal and external employability.... the opportunity for better job security.... a sense o f self-respect...the availability of the right people with the right skills in the right place at the r i ^ t time. (Mayo and Lank, 1994, pp. 9-13 as cited in Tight, 1996, p. 44) The thesis survey provided respondents with an opportunity for input on the organization and presentation o f the workshop. The final research question, "What is the impact o f participation in the 'Reducing Barriers by Building Partnerships' educational program" will provide insights into both the learning environment and the applicability and usefulness o f the content and presentation o f this workshop series. Attitudinal and behavioral change The concepts o f attitudinal and behavioral change are also a key component o f this thesis inquiry. This portion o f the Literature Review will provide brief information on these extensive and complex fields. The goals o f the “Reducing Barriers by Building Partnerships” workshops include the strengthening o f social environments within health and social service agencies, and the fostering o f knowledge and insight within such agency employees. The ACAP funding application identified the need to address barriers to service such as stigmas and attitudes o f health employees. This literature review assists in understanding what attitudes are, how they are formed, how they are interrelated with behavior, and how they are related to adult learning. 30 Attitude is defined as “an evaluative disposition toward some object... an evaluation o f something or someone along a continuum o f like - to - dislike or favorable - to - unfavorable.” (Zimbardo & Leippe, 1991, p. 31). The authors point out that attitudes are learned, and are influenced by society and its behaviors and rules. Similarly, “An attitude is a relatively stable opinion containing a cognitive element (your perceptions and beliefs about the topic) and an emotional element (your feelings about a topic, which may range from negative and hostile to positive and loving)” (Wade & Tavris, 1998, p. 667). The basis for attitudes is varied, including “thinking, conformity, habit, rationalization, economic self-interest, and many subtle and environmental influences” (Wade & Tavris, 1998, p. 668). One o f the initial North American researchers in the measurement o f attitudes was Thurstone (1928). “His work, based on the methods and theories o f the psychophysicists, provided the foundation for the modem techniques o f attitude measurement” (Eiser, 1994, p. 3). Eiser (1994) summarizes Thurstone's work as follows: The principal question which Thurstone himself addressed was that o f how favorable or unfavorable an individual or group could be said to be towards a given issue. He was not especially concemed with a person’s reason for holding a given position, but simply locating that position on an ‘attitude continuum’ ranging from extreme unfavorability (anti) to extreme favorability (pro). The assumption o f continuity here is very important. It leads us to thinking in terms o f degrees o f favorability rather than looking for dividing points between different ‘sides’. (Eiser, 1994, p. 4) Eiser continues by saying “Not all attitude measurement restricts itself to Thurstone’s single continuum o f opposition/support” (1994, p. 4). However, this research is designed to be descriptive in examining the level o f change in variables such as attitude, and will not investigate the reasons for or factors affecting these changes in an individual. 31 The impact o f feelings or the emotional element, as identified in Wade and Tavris above, is a primary factor in learning. The motivational theories o f Wlodkowski (1985) in terms o f the interaction o f learning and feelings are summarized here: Affect or the emotional feelings, concerns, and passions o f the adult are a major motivational factor while learning is taking place. Most psychologists accept the idea that thinking and feeling interact or influence one another as well as to lead to changes in behavior. It is important to note the degree or intensity o f feeling may be most influential on immediate behavior. Harmony between thinking and positive feelings sustain motivation, involvement, and interest in the subject. (Campbell, 1999, p. 34) Learning is impacted by feelings, feelings are a component o f attitude. Attitudes affect behaviors and behaviors affect attitude. The interrelationship o f these facets o f human beings is extremely complex, and provides insight into the variety and the uniqueness o f the adult learning situation. As human beings, many o f our behaviors are not consciously considered acts. We react based on our internal beliefs, attitudes, histories and experiences. As mentioned earlier, the term “behave” is defined as “to act or function in a specified or usual way” (Collins, 1995, p. 114). In terms of stigmatizing situations, we may behave in manners which are not morally appropriate but which are at the same time socially appropriate. The “Reducing Barriers by Building Partnerships” program recognizes that social behavior changes according to society’s mores, and provides a learning experience with the purpose o f changing the experiences o f individuals with and associated with HIV or AIDS in terms o f health and social service agency interactions. “Ultimately, the goal o f an influence agent is to change the target’s behavior” (Zimbardo & Leippe, 1991, p. 30). The workshop series also attempts to sensitize service providers to more morally appropriate behavior. Zimbardo and Leippe provide an interesting distinction through asking “has an influence attempt totally failed if the target’s behavior does not change? Not by a 32 long shot. The influence eflbrt may have succeeded in changing the target’s beliefs or attitudes” (p. 31). The “Reducing Barriers by Building Partnerships” program was designed to educate employees in the hopes that their behaviors and/or their attitudes may be influenced by increased knowledge and understanding o f the issues and challenges faced by individuals with and associated with HIV or AIDS. The relationship between attitudes and behaviors is not always clear cut. Wade and Tavris (1998) point out that Although it is commonly believed that the way to change behavior is first to change attitudes, it also works the other way around: Changing behavior can lead to a change in attitude because the new behavior alters our knowledge or experience, (p. 668) This thesis inquiry requested that the workshops' past participants reflect on changes in attitudes and changes in behaviors within separate sections in the survey, inviting both numerical and textual responses. This research does not attempt to impose a direction upon the change, or even necessarily to link the attitudinal and behavioral changes. It is valid to acknowledge that change does occur in both directions. This would especially be applicable in work place settings, as the impacts o f an individuals' attitude and/or behavior can be reflected back to that individual based on interactions with clients and co-workers. Psychologist Albert Bandura has been a primary researcher and developer o f Social Learning Theory. Social Learning Theory stresses the interrelationship between people, their behavior, and their environment in a process called reciprocal determinism. While the environment may determine or cause certain behaviors, a person may act in ways to change the environment. The theory states that behavior depends on a person’s self-confldence and outcome expectations. (Campbell, 1999, p. 34) 33 More specifically,“...This approach focuses on how people learn behavior patterns both fi'om being directly reinforced and from observing the consequences that follow the actions o f other people” (Zimbardo & Leippe, 1991, p. 44). In social learning theory, “...the person, the behavior, and the environment all interact to change one another” (Zimbardo & Leippe, 1991, p. 44). The Building Partnerships program hoped that by training a number o f individuals from a workplace, changes would occur both initially following the training and on an ongoing basis through personal and workplace readjustments in attitudes and behaviors. This research questioned past participants about changes in self-confidence, which Campbell states is a factor in the potential for change in behavior. This research inquired into the effects o f participation on service provision, and asked about changes in the work place due to staff participation in the workshops. As discussed in the AIDS Education portion o f this Literature Review, Dworkin (1992) refers to the need to address the organization and organizational issues in the education process. The name o f the workshop series itself, “Reducing Barriers by Building Partnerships” reflects this approach, as the name can refer to building and strengthening systems both internally within an organization and externally between organizations. Contribution o f this Research The literature review, particularly in the area o f education for HIV/AIDS, highlighted a number o f gaps. These gaps are the lack o f research on education for social change rather than education for prevention, the lack o f research with Canadian content, the lack o f research addressing interdisciplinary populations in health care service providers and the lack o f research oriented 34 towards social service agency staff. This thesis research, “HIV/AIDS Education for Work Place and Personal Change”, will be a start in addressing some o f these areas. Most HIV/AIDS education in the literature is oriented towards prevention o f the transmission of the disease. This literature review did discuss two articles that addressed education for change in health and social service staff (Dworkin, 1992) and (Randall et al, 1993), and one which was oriented towards post-secondary students (Strauss et al, 1992). The reference lists in the three resources, as well as the text Understanding AIDS: A Guide for Mental Health Professionals do give further sources on education for work place change. However, most o f these research studies were targeted to one field o f health care only, for example to nurses or to physicians. This inquiry is the only one involving a multi-disciplinary population, that o f staff and volunteers in a number o f health and social service agencies in the community. The literature reviewed also highlighted a lack o f reference material with Canadian content. All o f the items reviewed here were American. This study adds a Canadian component to the literature, one that is uniquely northern in its perspective, and representing Prince George and several surrounding communities specifically. This thesis inquiry will contribute to the body o f knowledge involved in the fields o f adult education, and the associated fields o f psychology, sociology, business and health care because it is investigating the relationship between education and attitudinal and behavioral change in the work place and in personal life. The information will provide insight into the effects o f an educational process. 35 Summary Living with HIV/AIDS requires the accessing o f health and social service systems to address physical, financial, social, emotional and other personal needs. The literature indicates that personnel in health and social service agencies are a reflection o f their communities. As HIV/AIDS is one o f the most stigmatizing disease processes o f this century, individuals impacted by this disease will understandably encounter a broad range o f attitudes and behaviors within health and social service agency staff. Research in HIV/AIDS education has primarily focused on education for prevention. A number o f sources discuss education for transformative learning, the process o f developing a more socially responsible society through individual learning. Changes in attitude and behavior can be a component o f this learning process. This chapter explored the literature in relation to this study's three research questions: the need for HIV/AIDS education for health and social service agency personnel will be addressed in the first question, “Has participation in the 'Reducing Barriers by Building Partnerships' program resulted in changes in knowledge, attitudes and behaviors or actions on a personal level and in the workplace?” The theory o f attitudinal and behavioral change also applies to this research question. The field o f adult education or andragogy provided information on the educational setting, resulting in the second question “Has participation resulted in positive, negative or neutral transfer or change?”. The sub-field o f transformative learning, and theory on the learning environment are reflected in the third and summarizing research question, “What is the impact o f participation in the 'Reducing Barriers by Building Partnerships' program?" 36 CHAPTER IV: METHODOLOGY Methodology The research project “HIV/AIDS Education for Work Place and Personal Change” explored the effects o f participation in an educational program through a quantitative and descriptive research process within a postpositivist framework. Specifically, a quantitative approach is "a research method that emphasizes numerical precision; a detached, aloof stance o f the researcher's part; ...and, often, a hypothetico-deductive approach" (Palys, 1997, p. 423). The goal in descriptive research is "to accurately portray the characteristics or a particular individual, situation, group, sample or population" (Palys, 1997, p. 77). A postpositivist framework is: A theoretical tradition that reflects classic positivism but differs in two ways. First, it is less rigidly realist, acknowledging that we may not be able to know things with certainty; knowledge may end up being probabilistic rather than certain. Second, postpositivists show considerably less hostility toward metaphysical concepts like attitudes and beliefs, and now believe that verbal reports can include valid and reliable data. (Palys, 1997, p. 423) The decisions made in the planning o f this research methodology are reflected in the above definitions. In positioning this research within the postpositivist approach, a balance is maintained between the use o f an aloof approach involving a survey and the compilation o f numerical information, and the acknowledgement that my interest in this research was stimulated by my own past participation in these modules. However, this participation predates the development o f this research project. I am therefore familiar with the module content and presentation style, but chose to use a questionnaire to maintain an appropriate distance from the areas examined, and to gain information from the past participants to research this project. 37 The survey (Appendix B) and a covering letter (Appendix C) were distributed to past participants of the "Reducing Barriers by Building Partnerships" workshops inviting them to provide scale and textual feedback on the educational program. The survey, therefore, invites respondents to describe their own insights into their own change process rather than observing them through an external, positivist research process. The scale and textual information provide reliable and valid input relating to the three research questions. Target Population AIDS Prince George received funding for the project that became the “Reducing Barriers by Building Partnerships” workshop series in 1994. Staff members conducted focus groups, literature reviews and associated research in the process o f developing the content for the workshops. AIDS Prince George staff and volunteers began presenting the workshops in 1996 to staff and volunteers o f health and social service agencies. By the year 2000,27 agencies from four communities in the central interior o f British Columbia had participated in the workshops. The agencies provide a variety o f services including counseling, parenting skills, public health services, transition services, long-term care, acute care, palliative care, living expense funding, home support, addictions services, needle-exchange and many other services. D ie clients o f these agencies represent the full spectrum o f the population including babies, children, teenagers, young parents, adults, and seniors. A brief review o f that attendance lists indicated approximately 457 different individuals had participated in between one and five o f the modules. The gender breakdown o f these participants was 368 women (84.5%), 67 men (15.4%) with 25 38 names being indecipherable or gender unknown. The first few workshops offered did not record participant names, so it was not possible to determine an exact number o f individual participants. This did not, however, affect this research as the particular agencies initially involved invited all staff members who participated in a workshop to complete a survey. This research targeted the entire population o f past participants o f the workshop series with the exception o f present and past staff o f AIDS Prince George as well as student participants o f a local training agency. Instrumentation This research was conducted through the use o f a quantitative survey (Appendix B). The research proposal and a draft o f the survey were reviewed by the Ethics Committee at the University o f Northern British Columbia during the summer o f 2000. The survey was designed to be completed anonymously and confidentially. Informed consent was implied through the process o f including a covering letter, through the anonymity, and through the voluntary nature o f the response process. The survey was organized in five sections which were as follows: demographic information, knowledge, attitudes, behaviors and/or actions, and concluding comments. The questions numbered twenty, although many questions had more than one part. The survey resulted in 45 variables and a further 14 opportunities for textual input. Questions included closed questions such as age and gender, tables with Likert type selections, yes/no questions, comments, and open ended questions. The survey was preceded by an attached covering letter which explained not only the background o f the research, but gave agency 39 specific information on due dates and drop o ft points for the completed questionnaires (see Appendix C). Pilot Project The survey was pilot tested in advance o f its finalization. A draft o f the survey, along with a covering letter, a feedback sheet, and a second copy o f the survey was distributed to six past participants o f the “Reducing Barriers by Building Partnerships” workshops. All six individuals were ftom differing agencies, and had participated in a range o f module amounts. Some o f the individuals had participated recently, others in years past. The pilot project respondents were asked to fill out the survey, to time themselves in doing so, and then to provide input via the feedback sheet as well as to make any suggested changes to wording, content or format on the second copy o f the survey. Four o f the six pilot project participants provided feedback. The completion time varied from 1040 minutes. The respondents felt the wording and the content were fine, but suggested that the length o f time since their participation atlected their ability to fill out the survey. There were several comments requesting clarification o f wording, and questioning potential breaches o f confidentiality. Based on their feedback, changes were made to the content o f the survey. In a number o f the questions which invited comments, a statement was added requesting general information and asking respondents not to include confidential client/staff information. The headings were changed to be more specific in identifying the marginalized groups being 40 discussed in a module, to ensure individuals commented on their feedback regarding groups in society such as the gay and lesbian population and the First Nations population. I ran a second pilot project in distributing the revised survey to two individuals. Both felt that the changes enhanced the clarity and reduced the intrusiveness o f the survey, and felt this final version would provide the needed input based on the research’s purpose. Distribution AIDS Prince George provided a list o f the 27 participating agencies, their primary contact names where available, addresses and phone numbers. As mentioned previously, one agency was eliminated because its participants had been short term students who would no longer be involved with the agency. I contacted each agency by telephone in advance to ask they distribute the survey to their employees and volunteers who had participated in the education. Ten agencies requested a list o f their past participants, and AIDS Prince George faxed these out as requested. Approximately 75% o f the agency contacts were very helpful in reviewing the participant lists, in providing me with an estimate o f the numbers o f surveys to provide to them, and in distributing the surveys to their employees and volunteers. Some o f the agency contacts were not reachable despite numerous phone calls. In those situations, we communicated via answering machines. In three cases, communication was via electronic mail. Following these initial contacts, an appropriate amount o f surveys were hand delivered to the specific contact person at each organization. I mailed the surveys to the contact person in agencies located in towns other 41 than Prince George. Most o f the agencies then distributed the surveys to the specific individuals on the participant lists. The agency contacts were predominantly female (21 out o f 26 or 80.8%). The “Reducing Barriers by Building Partnerships” workshops have been offered since 1996. In any workplace, there is a change o f employees and volunteers over time. All o f the workplaces had names, on the lists o f participants, o f individuals who were no longer working or volunteering with them. This resulted in a reduction in the number o f potential respondents. The amount o f attrition varied from one hundred per cent in two o f the agencies, to only a few o f the names in other agencies. In order to address this attrition, the research was publicized in the Northern Interior Regional Health Board’s employee newsletter, in the Prince George Citizen newspaper, in the University o f Northern British Columbia’s graduate newsletter, and through Bruce Strachan’s talk show on the Prince George radio station CJCI. Two individuals came forward as a result o f this public relations process. Following the collection o f the surveys, a thank you card with preliminary information on response rates was sent to all o f the participating agency contact persons. Summary The “AIDS/HIV Education for Work Place and Personal Change” research investigated the effects o f participation in the educational program “Reducing Barriers by Building Partnerships” through a quantitative, descriptive research process within a postpositivist f ir e w o r k . The target population was all o f the past participants o f this workshop series with the exception o f myself. 42 the students from a local training agency, and present and past staff o f AŒ)S Prince George. The research was approved through the University o f Northern British Columbia's Ethics Committee. The study was conducted using a quantitative survey which was initially piloted to six individuals, with four o f these providing input. The survey was distributed through 26 agencies whose staff and volunteers had participated in the educational program. The agency contacts were key in the distribution and collection o f the surveys. 43 CHAPTER V: RESULTS Data collection The thesis research “HIV/AIDS Education for Work Place and Personal Change” asked respondents to analyze the impact o f their own participation in the “Reducing Barriers by Building Partnerships” HIV/AIDS education program. The survey was distributed through 26 health and social service agencies in the central interior o f British Columbia. Each agency received surveys with covering letters containing due dates and collection locations specific to their agency. 1 hand collected the completed surveys as well as the remaining blank copies from each local agency shortly after their due date, and left a note with each requesting the mailing o f any further surveys directly to my home. The out o f town surveys were mailed directly to my home, and I communicated via telephone or electronic mail with the contact persons. Table 4 (on the next page) provides statistics on the distribution and collection process. O f the 325 surveys initially handed out, 166 surveys were actually distributed to potential respondents. A total o f 161 blank surveys were either returned directly to me, destroyed at the agency (destroyed copies are indicated with a D in Table 4) or in the case o f agency #9 the fate o f the surveys is unknown. A Public Relations campaign through various local media was conducted to reach individuals who may have changed employment or volunteer situations since participating in the workshops. The media campaign resulted in two individuals coming forward, and are shown as line 28 (PR for Public Relations) in Table 4 on the next page. 44 Table 4 Survey Distribution Statistics Agency 1 2 3 4 (Elim)* 5 6 7 8 9 (Elim)*** 10 11 12 13 14 15 16 17 18 19 20 (Elim)* 21 (Elim)** 22 23 24 25 26 27 28 (PR) Totals Participants 14+ 11 11 8 7 24 16 59 28 22 20 14 20 8 72 20 4 6 3 3 13 6 14 3 8 9 34 N/A 457 Total surveys distributed Returned undelivered Net surveys distributed 15 9 10 3 5 20 20 45 25 20 15 26 15 8 15 20 4 5 3 3 0 6 15 3 6 4 5 2 327 12 4 2 (3D) 0 16 13 5 (25?) 17 12 (160) 9 2 0 (50) 3 0 (20) (30) 0 (30) 6 0 1 0 (20) N/A 161 3 5 8 0 5 4 7 40 ') 3 3 10 6 6 15 15 1 5 1 0 0 3 9 3 5 4 3 2 166 Surveys turned in/completed 2 4 2 0 2 1 3 8 0 0 3 6 3 5 11 6 1 1 1 0 0 2 4 3 3 1 1 2 75 In calculating distribution and response rates, several agencies were eliminated. Two agencies reported 100% attrition in the staff which had participated in the AIDS Education workshops (see Table 4, agencies numbered 4* and 20*). One agency had been previously eliminated as it was a student training center (Table 4, agency number 21**). I eliminated one further agency, (Table 4, number 9***), as 1 was not able to determine if their surveys were ever distributed. 1 did not receive a single completed survey from this agency, and was not able to reach the contact 45 person despite numerous attempts. With the exception o f this one agency, all o f the other 25 agencies were helpful in distributing and returning the surveys, or in providing information on non-distributed surveys. O f the 166 distributed surveys, a total o f 75 were completed or partially completed and returned to me. This resulted in a 45.2% return rate (surveys divided by distributed surveys). The amount o f surveys in relation to the total population o f past participants is 75 out o f 457 or 16.4%. The surveys were given a code number as they were turned in, with a separate list recording the code number and the agency from which the completed survey derived. The returned surveys were screened before data entry. The participants had been asked to fill in the sections o f the questions relating only to the modules they had attended. Not all respondents followed these directions, however, the inappropriate data was screened out and not entered in to the software program. Also, not all o f the respondents answered all o f the questions. Although the survey returns numbered 75, the total for each question may not total 75. Some o f the tables indicate the number o f missing responses, while others indicate only the data that is relevant to the question. This is especially applicable in the textual responses (Appendices D through Q). The appendices list the total number o f responses at the bottom o f each list o f comments. The data was entered into the computer using the Excel software program. The textual comments were entered directly into the software Work and as shown on the surveys, including any grammatical or spelling errors but excluding any words or phrases that may have identified a specific work place such as a Health Unit, or a specific learning institution such as the name o f a university. Many o f these responses are quoted in the Results and Conclusions portions o f this 46 thesis, and all responses are listed in the appropriate appendix. The order o f entry o f the textual comments was changed in each o f these appendices, to ensure that any one individual’s responses could not be tracked throughout the appendices. The content o f each appendix was categorized and included in tables throughout this chapter. Comments that did not provide meaningful information (for example, “probably” in Appendix F) are not included in the category counts. As the majority o f the textual responses were positive in nature, I have included a count o f the negative responses within the textual tables mentioned above. The textual response categories are summarized at the end o f this chapter. The Office o f Social Research at the University o f Northern British Columbia assisted with the entry o f the numerical variables. The research assistant analyzed numerical variables using Excel for frequencies and percentages, and developed tables in the Word software program based on my suggestions. The research assistant entered the numerical data on a single-entry basis, and I randomly checked these entries to ensure accuracy. This chapter presents the results obtained from the 75 completed and partially completed surveys that were returned. The information is organized according to the major sections in the survey: demographics, changes in knowledge, changes in attitude, changes in behavior, and the concluding comments section. The numerical information will be presented in the form o f tables and within the text throughout Chapter Five. Appendices D through Q contain the textual comments, and relevant comments and categorical tables are included in this chapter. The results will be summarized briefly. 47 Demographic Data The first section o f the survey provided information on the modules the respondents attended, their last year o f attendance, gender, age, and attendance arrangements. The respondents were health and social service staff and volunteers fi’om 22 agencies (Table 4). The “Reducing Barriers by Building Partnerships” educational program has five different modules (Appendix A). Question A asked the participants to indicate which modules they attended. The majority o f respondents (67 out o f 75 or 89.3 %) had attended Module 1: HFV/AIDS 101 (Table 5). Participants were not required to attend the modules in order, however they were encouraged to begin with Module One and progress through to Module Five. Table 5 Modules Attended Surxcys (N) Yes Module Attended Module 1(Mod-1) HIV/AIDS 101 75 67 (89.3%) 56 (74.7%) Module 2 (Mod-2) Impact o f HIV/AIDS on Those Infected & Affected 75 75 51 (68.0%) Module 3 (Mod-3) Homophobia, Heterosexism, and HIV/AIDS 75 50 (66.7%) Module 4 (Mod-4) HIV/AIDS & First Nations People 44 (58.7%) Module 5 (Mod-5) HIV/AIDS in a Diverse Community 75 A definite trend is indicated as the attendance decreases throughout the series. The percentages in Table 5 above are calculated as attendees over respondents as all responded to this question. Question B asked participants to indicate the year they last attended a module. A significant portion (17 out o f 75 or 22.7%) could not remember the year that they had last attended. The 48 remainder o f the respondents were spread out over the years 1996-2000, although there were fewer respondents from the early years o f 1996 and 1997 (see Table 6). Table 6 Year Last Attended Year Frequency Percent 1996 1 1.3 1997 11 14.7 1998 18 24.0 1999 2000 15 20.0 13 17.3 dk 17 75 22.7 Total 100.0 Question C asked participants to indicate their gender. Health and social service agencies traditionally are staffed primarily by women. The survey respondents were primarily female (64 out o f 74 or 86.5%). Ten o f the respondents (or 13.5%) indicated that they were male. The next question in the demographic data section asked participants to write in their age. In total, 68 o f the 75 respondents filled in this question. The ages have been summarized in 5 year categories in Table 7. The mean o f the ages was 42.78, the mode o f the age ranges was 46-50 with 17 responses. Twenty-seven (39.7%) o f the respondents were between 21 and 40, while 41 (60.3%) o f the respondents were between 41 and 61 years o f age indicating that the distribution o f the ages was skewed to the older age range. However, there were respondents across the broad range o f 21 to 61 years o f age. 49 Table 7 Age o f Survey Respondents Age Frequency 2 1 -2 5 5 2 6 -3 0 6 3 1 -3 5 8 3 6 -4 0 8 4 1 -4 5 8 46 - 50 17 5 1 -5 5 9 5 6 -6 0 6 6 1- 6 5 1 Total 68 Missing 7 Mean 42.78 The final question in this section o f the survey asked participants about their attendance situation. Almost two-thirds (46 out o f 66 or 69.7%) o f this question’s respondents indicated that their attendance was voluntary with 20 individuals (30.3%) stating that their attendance was mandatory. The second portion o f the question E asked if participants were remunerated, with the options of “paid”, “non-paid”, or “other with an explanation” requested. Most o f the respondents (46 out o f 66 or 69.7%) were paid for their attendance time, with 18 individuals (27.3%) indicating that they were not paid for their attendance time. Two individuals chose the “other” category, and provided explanations such as “Hospice training” or “both paid and unpaid” (Appendix D). To summarize, the demographic information provides us with insight into the respondents. The majority o f respondents (89%) attended Module One, with a decreasing amount attending each o f the further modules. Some respondents (23%) had difficulty remembering their last year o f 50 attendance. Respondents were primarily female (86.5%), with mean age o f 42.78. Most respondents (69.7%) attended the sessions on a voluntary basis, and most were paid for their attendance (69.7%). Data on Knowledge Change The next section o f the survey asked respondents to explore the amount o f learning that occurred by providing a rating o f (1) none, (2) very little, (3) little, (4) medium, and (5) lots. Question F asked respondents to rate the amount o f knowledge learned in each o f the modules they had taken (Table 8). The total number o f respondents for each module is listed in the “N” column. Two columns have been combined into the “Med+Lots” column, showing a range between 68% and 81.3% o f respondents indicating they had learned either a medium amount or lots during these workshops. Table 8 Knowledge Learned iVbdule Mod-1) AIDS/HIV 101 Mod-2) Impacts o f AIDS/HIV Mod-3) Homophobia/Heterosex Mod-4) First Nations Mod-5) Diverse Comnunity None Very Little 0 (0.0%) 7 (11.3%) 1 (1.9%) 5 (9.3%) 2 (4.0%) 5 (10.0%) 1 (2.1%) 3 (63%) 1 (2.4%) 3 (73%) (MedfLots) Lots Uttle Medium 12 (19.4%) 21 (33.9%) 22 (35.5%) 69.40% 75.90% 7 (13.0%) 21 (38.9%) 20 (37.0%) 68.00% 9 (18.0%) 20 (40.0%) 14 (28.0%) 8130% 5 (10.4%) 19 (39.6%) 20 (41.7%) 78.00% 5 (12.2%) 14 (34.1%) 18 (43.9%) N 62 54 50 48 41 The second knowledge area question asked respondents to rate the changes in the amount o f understanding toward the situation o f client groups in the modules. Table 9 indicates that respondents reported changes across the hill range o f possibilities. The percentage o f individuals 51 reporting “medium” or “lots” o f change ranges from a high o f 73.8% for Module 5 to a low o f 60.8% for Module 3. Table 9 Change in Understanding o f Client Situation Module Mod-1) Individuals with HIV/AIDS Mod-2) Fantities/fhends o f ...... Mod-3) Gay and lesbian people Mod-4) First Nations people Mod-5) Other marginalized/diverse people Lots (MedfLot) 17 (27.9%) 72.20% 9 (16.7%) 68.80% 12 (23.5%) 60.80% 12 (24.5%) 69.40% 7 (16.7%) 23 (54.8%) 8 (19.0%) 73.80% None Very Little Uttle IVIedum 1 (1.6%) 6 (9.8%) 10 (16.4%) 27 (44.3%) 2 (3.7%) 5 (93%) 10 (18.5%) 28 (51.9%) 3 (5.9%) 4 (7.8%) 14 (25.5%) 19 (37.3%) 2 (2.1%) 4 ( 8.2%) 9 (18.4% 22 (44.9%) N 61 54 51 49 1 (2.4%) 42 3 (7.1%) Data on Attitudinal Change The attitudinal change section o f the survey asked respondents to report any changes in attitudes or beliefs that may have occurred as a result o f their participation in the “Reducing Barriers by Building Partnerships” workshops. This section introduces a new rating scale. The scale relates to the potential for positive, negative or neutral transfer due to an educational experience, as described in the Literature Review. Each o f the remaining scale questions is based on a five point system, with the ratings o f (I) lots more negative, (2) more negative (3) about the same, (4) more positive and (5) lots more positive. The wording for each o f the scales changes according to the question’s content, but the categories remain the same. 52 The first question in this section asked respondents if there have been changes in their attitudes toward the situation o f any o f the client groups (Table 10). The majority o f respondents in each module reported that their views remained the same (53.2% to 60.5%). However, the totals o f the “more positive” and the “lots more positive” columns indicated a range o f 34.9% (for Module 5) to 45.1% (for Module I) did indicate positive changes in their attitudes towards the situation o f client groups. The largest change was found for “individuals with HIV/AIDS”, while the smallest change was for the “other marginalized/diverse people” category. Table 10 Changes in Attitude Regarding Situation o f (Client) Groups Lois more Module negatiw Mod-1) Individuals with HlV/AlDS 0 (0.0%) Mod-2) Families/friends of..... 1 (1.8%) Mod-3) Gay and lesbian people 1 (1.9%) Mod-4) First Nations people 1 (1.9%) Mod-5) Other marginalized/diverse 1 (2J%) people Lots more (More + lots iVlore About the More positive more) negative same positive 1 ( 1.6%) 33 (531%) 18 (29.0%) 10 (16.1%) 45.10% 1 (1.8%) 32 (57.1%) 14 (25.0%) 8 (14.3%) 3910% 1 (1.9%) 30 (56.6%) 13 (24.5%0 8 (15.1%) 39.60% 1 (1.9%) 29 (55.8%) 13 (25.5%) 8 (15.4%) 40.90% 1 (13%) 26 (60.5%) 8 (18.6%) 7 (161%) 34.90% N 62 56 53 52 43 The following questions I and J asked for a “yes or no” response, followed by a request for textual input if the initial response had been “yes”. The first question was “Have there been times at work when something has happened which made you think about what you learned or talked about during the Building Partnerships workshops?” The responses were fairly evenly split, with 34 (50.7%) indicating “yes” and 33 (49.3%) reporting “no”. 53 The respondents provided written examples o f situations at work in which they had thought o f the workshop information (Appendix E). The textual responses to this question are categorized in Table 11 below, with the first column indicating the frequency o f each category’s response and the second column indicating the nominal ordering o f the response category. The comments included 17 responses on knowledge learned such as “wearing gloves all the time”, “requests for finances not previously understood”, “switching from mugs to disposable cups to cut back on colds and flu germs”, as well as 7 comments on attitudes o f self and other staff such as “Not specific story but it makes me stop and think about my values so 1 can provide a more nonjudgmental service”. Respondents also provided 6 comments on impacts on their organization such as “we need more workshops and education”, and “being able to pass on the knowledge gained ... to staff if questions arise”. Table 11 Thoughts at Work: Textual Responses Category Knowledge learned (including changes) Attitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Frequency 17 7 0 I 6 1 I 1 1 0 O rder I 2 4 3 4 4 4 4 The next question asked the same content but in the context o f situations outside the work place. 33 (or 50.8%) indicated “yes” and 32 (or 49.2%) indicated “no” to this question. A total o f 31 respondents provided textual information (Appendix F). The written comments again included a high number o f examples o f information learned (11 responses), such as “ .. .ink 54 bottles used in tattoos should be changed between clients, needle change is not enough”, and “a general discussion about contraceptives with friends” (Table 12). Attitudinal change responses numbered 7, and included comments such as “Generally, I have become a more inclusive/openminded individual”. This time the responses included advocacy (7), with examples o f the ways in which survey participants had responded to issues o f racism or discrimination. These are exemplified in the comment “uniformed or rude comments, racial, sexist jokes etc - 1 leave or speak up stating I don’t agree or appreciate or want to hear that”. These comments also address one o f the original goals o f this educational program, that o f social change through education. Table 12 Thoughts Outside o f Work: Textual Responses Category Knowledge learned (including changes) Attitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Frequency 11 7 0 0 0 0 1 7 0 1 O rder 1 2 3 2 3 The final question in the section on attitudinal change asks respondents if there have been changes in their confidence levels in working with individuals in the client groups (Table 13). The majority indicated their confidence levels remained the same, as the results range firom 53.5% to 61.4%. However, the totals o f the “more confidence” plus the “lots more confidence’ columns range from 36.9% to 45.9% with the highest change for the “individuals with HIV/AIDS” and the lowest change for “ families and fiiends o f HIV/AIDS”. 55 Table 13 Changes in Confidence Level Lots less Less About the More Module confidence confidence same confidence Mod-1) Individuals with HIV/AIDS 0 (0.0%) 0 (0.0%) 33 (54.1%)! 22 (36.1%) Mod-2) Fairaiies/friends of..... 1 (1.8%) 0 (0.0%) 35 (61.4%) 16 (28.1%) Mod-3) Gay and lesbian people 1 (1.9%) 0 (0.0%) 28 (53.8%) 17 (32.7%) Mod-4) First Nations people I (1.9%) 0 (0.0%) 28 (53.8%) 17 (32.7%) Mod-5) Other marginalized/diverse 1 (2J% ) 0 (0.0%) 23 (53.5%) 14 (32.6%) people Lots more (More + confidence lots more) 6 (9.8%) 45.90% 5 (8.8%) 6 (11.5%) 6 (11.5%) 5 (11.6%) 36.90% 44.20% 44.20% 44.20% N 61 57 52 52 43 Data on Behavioral Change The behavioral change section o f the survey asks participants about any possible changes in their behavior or actions both inside and outside of their work place. This section contained one scale question, and six “yes or no” questions all o f which invited further textual comments. Question L asked respondents to rate the amount o f change in the empathy they demonstrate when working with any o f the client groups. Table 14 summarizes the responses according to the modules. Once again, the majority o f the respondents (between 53.8% and 60.4%) responded that their level o f empathy demonstrated at work has remained the same following participation in the modules. However, the combination o f the “more” and the “lots more” columns reported a range o f 35.8% to 44.1% indicating a positive change in the levels o f empathy they demonstrate in the work place. 56 Table 14 Changes in Empathy Demonstrated at Work Lots less Module empathy Mod-1) Individuals with HIV/AIDS 1 I (1.7%) Mod-2) Families/friends of..... 2 (3.5%) Mod-3) Gay and lesbian people | 2 (3.8%) Mod-4) First Nations people 2 (3.8%) Less empulhy 0 (0.0%) 0 (0.0%) 0 (0.0%) 0 (0.0%) Mod-5) Other marginalized/diverse people 0 (0.0%) 2 (4.9%) About the same 32 (54.2%) 33 (57.9%) 32 (60.4%) 28 (53.8%) 23 (56.1%) Lots more (More + empathy lots more) More empathy 21 (35.6%) 16 (28.1%) 13 (24.5%) 17 (32.7%) 5 (8.5%) 6 (10.5%) 6 (113%) 5 (9.6%) 44.10% 38.60% 35.80% 42.30% II (26.8%) 5 (12.2%) 39.00% N 59 57 53 52 41 Questions M, N and 0 contained three options for answering; yes, no, and not applicable. These questions asked if respondents had noticed changes in the way they carried out their work. The purpose o f the “not applicable" answer was to screen out individuals who may not have been in a position to appropriately answer a question. For example, participants may not be dealing with any o f the client groups in their work places or they may no longer be working or volunteering in a health or social service agency. The calculations for the percentages for these questions screen out the not applicable answers. The question “Have you noticed any changes in the way you discuss any o f the (client) groups with co-workers” resulted in a total o f 15 out o f 41 respondents (29.4%) indicating they had changed the way they discussed any o f the client groups with co-workers, and 16 "not applicable responses. The majority (70.6%) reported that “no” change had occurred. The 17 textual responses to this question are in Appendix G. Respondents commented on knowledge learned (4 responses), attitudes (2 responses) and advocacy (3 responses) (Table 15). 57 This question resulted in the first responses in the area o f “knowledge learned and passed on”, exemplified in “By being better informed I am able to discuss the situation and ask more informative questions”, and “I think we all have a better understanding and therefore can now speak with knowledge and not from assumptions”. However, most o f the comments (6 o f 17) clarified their existing and previous frameworks, in “have always supported clients regardless o f health issues”, and “ 1 have always been careful about confidentiality and shared information” Table 15 Changes at Work Regarding Discussion o f (Client) Groups: Textual Responses Category Knowledge learned (including changes) Attitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Frequency 4 2 0 3 0 0 0 3 0 6 Order 2 4 3 3 1 When asked if they have changed the way in which they provide services to the client groups, 19 out o f 51 individuals (37.3%) indicated that they had changed, with a further 16 indicating that this question was not applicable to them. However, 32 (62.7%) indicated that they had not changed. In reflecting upon changes at work regarding the provision o f service, 6 individuals gave specific examples o f behaviors or actions including “I am more aware o f my body language - how I ask questions etc - more sensitive to their experiences”. O f the six responses, four individuals used the terminology “more empathetic” to describe their behaviors. Again, individuals made comments (2) reflecting their past and present philosophy, such as “I consider myself to be empathetic and work diligently in my care delivery”. This question engendered the 58 new response category o f “Resources - including networking” which speaks to the increased knowledge regarding resources in the community and includes networking. Three individuals commented on this, including one who addressed accessibility in the comment “More aware o f making services more accessible”. Eighteen individuals provided textual responses to this question (Appendix H and Table 16). Table 16 Changes in Service Provision at Work: Textual Responses Category Knowledge learned (including changes) Attitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Frequency 4 4 6 3 0 3 0 0 0 2 O rder 2 2 1 3 3 4 Respondents were asked if they had noticed any changes in the amount o f advocacy they do for and with a client or group. Seventeen out o f 47 (36.2%) indicated that they had noticed changes, 18 indicated "not applicable, and 30 (63.8%) stated that they had not noticed changes. Seven individuals again commented that advocacy had always been an important facet o f their jobs. The remainder o f the respondents clarified their experiences increasing usage o f resources (2) such as “more calls to community agencies”, “connecting people to other support systems”, and changes in behaviors (2) such as “able to explain need better and necessity o f item required” (Appendix I and Table 17). 59 Table 17 Changes in Advocacy at Work: Textual Responses Category knowledge learned (including changes) Attitudes (including changes) Behaviors (including changes) knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Frequency 0 1 2 I 0 2 0 0 0 7 Order 3 2 3 2 I Question N asked if participants had noticed any changes in their work place as a result o f staff member participation in the workshops. The number o f “yes” responses remained about the same as the above questions, as 24 out o f 62 individuals or 38.7% indicated that they had noticed changes. Thirty-eight o f the respondents (71.3%) indicated that they had not notices any changes in their work place. Appendix J lists the comments from the 28 textual responses to this question. The greatest number o f responses fell in the category o f “Knowledge learned”, with 12 responses including “using universal precautions”, and “A better more accurate knowledge base”. Attitudes were identified by 7 respondents with statements such as “Everyone seems more open minded”, and “Greater understanding and knowledge, less prejudice”. Eight respondents discussed behavioral changes including “A bit less o f off-color joking”. This question engendered two negative responses regarding the content o f some o f the modules, such as “Many co-workers resented the tone o f the First Nations component....ears were shut and important information was not internalized”, and “most staff members not pleased with the training content”. 60 Table 18 Changes in Work Place due to Staff Participation: Textual Responses Category Knowledge learned (including changes) Attitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Frequency 12 7 8 0 2 0 0 0 2 0 Order 1 3 2 4 4 Question O addressed social change in asking participants if they had noticed any changes in their personal lives, outside o f the workplace, in terms o f the way they discussed any o f the marginalized groups. Twenty-four o f the 65 respondents (36.9%) reported that they had noticed changes in this area, with 41 (63.1%) indicating no changes. The 20 comments (Appendix K) included a high o f 11 responses regarding advocacy, such as “Over the last few years I find myself trying to educate people I come in contact with, because I find most people very stuck on old beliefs” . Two individuals commented on the learning and passing on o f knowledge, in “Share HIV information with family/fnends” and “Let people in my life know what I learned” . Table 19 Changes Outside o f Work Regarding Discussion o f fClientl Groups: Textual Responses Category Knowledge learned (including changes) Anitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Frequency 2 1 3 2 0 0 0 II 0 0 Order 3 4 2 3 I 61 The final area o f information requested in this section asked for changes in the amount o f advocacy (outside o f work) that participants are doing for marginalized groups. Only 9 out o f 56 respondents (13.8%) indicated there was a change in their advocacy, with the majority o f respondents (56 or 86.2%) indicating that there was no change. The 10 textual responses (Appendix L) include the comment “Knowing the history ie. Aboriginals, you can begin to understand why they may be there, as well as how the systemic marginalization is embedded into our society, and everyone deserves equality” which is indicative o f knowledge learned and understanding gained. The single item in the “knowledge gained and passed on” contains a recommendation, “People judge out o f ignorance, I just pass on what I learned. My suggestion to all is to take modules”. O f the five individuals who indicated they continued their practices according to prior experiences, two o f these related back to their work. An example o f this is the statement “ Like I said before I have advocated for clients for a long time. That is part o f my job”. Table 20 Changes Outside o f Work Place in Personal Advocacv: Textual Responses Category Knowledge learned (including changes) Attitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Frequency 1 0 0 1 0 0 0 1 0 5 O rder 2 2 2 1 62 Data from the Concluding Comments Questions The concluding comments section o f the survey was designed to allow general feedback on the workshops, and to allow respondents to sununarize the impacts o f their participation. This section also provides information on the presentation and organization o f the workshops. The first two questions asked individuals for comments on what they liked most and what they liked least about the workshops. These questions resulted in more comments than any other questions as 58 individuals provided information on what they most liked (Appendix M) and 33 individuals commented on least liked aspects (Appendix N). Table 21 and the remaining tables includes an expansion o f categories due to the content o f the comments. Eighteen respondents reported that they most liked the workshop content. Comments included general statements such as “Basic easy to understand info”, as well as statements mentioning specific content areas such as “The First Nations workshop was a real ‘eye’ opener” and “How issues o f racism and homophobia are brought forward”. The second highest category was the 13 responses regarding the workshop facilitators, including “The humanness and realness o f the facilitators and the knowledge they shared”. Workshop participants listed the participatory environment in 11 responses, including the statements “Information was given in fun with demonstrations and interactive exercises” as well as “A lot o f good discussion was generated. I liked the high interactive environment immensely” . They also commented on the learning environment (8), with five individuals using the word “open”. This question also engendered 6 statements relating to the transformative learning process, with examples such as “I enjoyed the knowledge from experts and the chance to examine my feelings”, and “The way it was presented 63 allowed me to see where I needed work because my values and beliefs play a part in how I analyse and then work with my clients” (see Table 21). Table 21 Most Liked Aspects o f Workshops: Textual Responses Category Knowledge learned (including changes) Attitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Participation/Discussions Facilitators Environment: Opeimess, sharing Transformative learning Positive comments- no specific area More anendance opportunities Content Frequency 1 I 0 0 4 4 0 0 0 0 11 13 8 6 0 0 IS O rder 7 7 6 6 3 2 4 5 1 In terms o f the areas that participants liked least, 8 comments identified specific content areas. Examples o f content areas that were not liked include "The fact that the workshop commenced with an exercise that indicated/accused all participants as homophobic and racist”, “the approach and tone o f the First Nations content”, “A large part appeared to be political indoctrination”, and “A slightly condescending attitude towards certain groups (eg. Church) - there should be no labeling o f other beliefs”. Three comments expressed concern that the participant was not able to take more or all o f the workshops, resulting in the new and positive category o f “More attendance opportunities”. Four individuals provided information that they did not have a least liked area with comments such as “I appreciated it all”. There were no responses in the categories o f facilitators, environment, and participation. Three individuals commented on the 64 length o f the workshops, including “Having 5 parts may mean people are unable to commit for the entire series and so miss out on information” (see Appendix N and Table 22). Table 22 Least Liked Aspects o f Workshops: Textual Responses Category Knowledge learned (including changes) Attitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Participation/Discussions Facilitators Environment: Openness, sharing Transformative learning Positive comments- no specific area More attendance opportunities Content Length Frequency 0 5 0 1 0 0 2 0 0 0 0 0 0 0 4 3 8 3 O rder 2 6 5 3 4 1 4 Question R asked participants if they thought that the workshops were useful to them in their work place. This question resulted in the highest positive response o f any o f the yes/no questions, with 51 out o f 63 (79.7%) responding “yes” to this question and 13 individuals (20.3%) responded “no”. This question also engendered a high rate o f comments with 48 individuals providing written information (Appendix 0 ). The strongest result came in the category o f “knowledge learned”, with 31 responses. Again, there were general statements such as “At the time they increased my knowledge” as well as specifics such as “Better understanding o f how HIV/AIDS affects people”. The next highest category was that o f impacts upon the organization or the work place, with 8 people providing responses exemplified by “Ensured we all had a similar base o f info” and “Made us realize that we need separate policies regarding 65 HIV. Also brought forward how much work needs to be done on the ‘isms’ in our place”. The one negative comment crossed a number o f categories such as content, facilitators and environment with the statement “Partially - good and relevant info was negated in parts due to ‘accusatory’ tone”. Table 23 Usefulness o f Workshops in Work Place: Textual responses Category Knowledge learned (including changes) Attitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Participation/Discussions Facilitators Environment: Openness, sharing Transformative learning Positive comments- no specific area More attendance opportunities Frequency 31 3 3 2 8 1 1 Order 1 3 3 4 2 5 5 I I 5 5 1 I 0 0 0 5 5 Participants were next asked if the workshops were useful for situations outside o f work. Again, the result was higher than many o f the previous yes/no questions, as 39 out o f 61 respondents (or 63.9%) indicated “yes” and 22 individuals (36.1%) responded “no”. The highest response category was “knowledge learned and passed on” with 9 responses in total (Appendix P). Five o f those individuals mentioned that the impact o f their participation was expanded to include their families, as exemplified in “So I had educated information that I could pass on to family, friends and others”. Advocacy was again a result o f participation, as four responses provided examples such as “Provide me with more info for people who don’t know or understand (eg. Its NOT only gay people who get HIV)”. Three individuals hinted at their previous knowledge base, such as “a 66 good review and update in some areas and learned new information in other areas”, and “It did not expand my knowledge nor change how I viewed the issue”. This question resulted in two negative responses, including the “I have discussed the teachings o f AIDS PG with friends and family members and the slant that is portrayed by AIDS instructors and the filthy graphic comments made by them”. Table 24 Usefulness o f Workshops in Personal Life: Textual Responses Category Knowledge learned (including changes) Attitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Participation/Discussions Facilitators Environment: Openness, sharing Transformative learning Positive comments- no specific area More attendance opportunities Frequency 5 0 0 9 0 0 0 4 2 3 0 0 0 0 0 0 O rder 2 1 3 5 4 The final question allowed for any fiirther input from respondents. Appendix Q contains the list o f comments from 37 individuals, however some o f these comments originate in portions o f the survey that did not request comments and have been typed in here. For example, the comment beginning with (G*) was written in beside the scale Question G. The category o f “positive comments” had 9 responses, with examples including “ ...these workshops should be mandatory for all medical workers, helping profession, general public...”, and “excellent information given in an open way” . The 10 comments on the passage o f time included “it has been so long it would be nice to be refreshed to some degree on these”, and “the workshop was over three years ago - 67 very difficult to remember specifics”. Six individuals commented on their past life experiences or educational experiences, with “I am not trying to be negative, I spent 10 years in LA, lost many fhends to AIDS - so my awareness and education were more advanced than most o f my co-workers”, and “these workshops are valuable - they didn’t significantly impact my knowledge and skill base only because I have previously done... training”. The one negative response was “It was a disgusting experience for me and many others who left the modules or never returned. Problem is they left with more negatives then when they started”. Table 25 Other Comments Regarding the Workshops: Textual Responses Category Knowledge learned (including changes) Attitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Participation/Discussions Facilitators Environment: Openness, sharing Transformative learning Positive comments- no specific area More attendance opportimities Frequency 3 3 I 0 0 0 10 0 1 6 0 I I 0 9 3 O rder 4 4 5 1 5 3 5 5 2 4 The textual comments throughout the survey provided us with insight into the impacts o f participation in the “Reducing Barriers by Building Partnerships” HIV/AIDS education program. The categories o f the textual comments are summarized and totaled in Table 26 as follows 68 Table 26 Category Totals for All Textual Responses Category Knowledge learned (including changes) Altitudes (including changes) Behaviors (including changes) Knowledge learned & passed on Organizational impacts Resources (including networking) Time since participation Advocacy Negative comments (Miscellaneous) No changes (Prior knowledge etc) Participation/Discussions Facilitators Environment: Openness, sharing Transformative learning Positive comments- no specific area More attendance opportunities Content Length Frequency 91 41 23 23 20 11 15 27 7 31 11 15 10 Order 1 2 6 6 7 10 s 6 4 12 3 10 8 11 13 13 3 18 + 8 3 14 5 14 9 The categories can be grouped to provide us with a summarization o f the comments according to change and content areas, as shown in Table 27. Table 27 Grouping o f textual comments: Summary Content Grouping Knowledge Total frequency 97 Behaviors 84 Learning environment 65 Attitudes Organizational impact Attendance 41 20 18 Positive comments Negative comments No change Total 13 7 31 376 Includes variables (frequency) Knowledge learned (91) Transformative learning (6) Behaviors (23) Knowledge learned/passed on (23) Advocacy (27) Resources (11) Participation/discussions (11) Facilitators (15) Environment ( 10) Length (3) Content (18 + 8) Attitudes (41) Organizational impact (20) Time since participation (15) More attendance opportunities (3) Positive comments (13) Negative comments (7) No change (31) 69 Representativeness and validity The purpose o f descriptive research is to adequately represent or describe a population. As this research process involved the completion o f a survey in a voluntary nature, the issues o f bias and representativeness need to be addressed to explore if there has been an impact on the results. Secondly, this section will explore the validity o f the research, in determining if the content asked what it meant to ask. Volunteer bias The issue o f volunteer bias arises when surveys are distributed through the mail or by being dropped off to a potential participant or organization. In this case, the surveys were distributed through a key individual within the health and social service agencies. However, their means of distributing the surveys onwards to potential participants did vary. Some distributed the surveys directly to specific individuals, others mentioned the surveys at staff meetings and encouraged individuals to pick up a survey from a central location, and others communicated the information via posters or other non-personal means. The completion o f the surveys was designed to be voluntary and confidential. The surveys were not numbered or tracked or matched to individual's names. This process was followed to ensure that there was no misuse o f the survey information within the agency, and to ensure that respondents felt safe and anonymous in order to encourage the most open and honest responses possible. However, as Palys (1997) indicates. Volunteers are often different firom non-volunteers in ways that may affect the results o f your research. A variety o f studies, for example, have shown that people who participate in social science research tend to be more highly educated, politically more liberal, less authoritarian, more in need o f social approval, more intelligent, and most interested in the issue being addressed than those who don't, (p. 147) 70 Palys suggests using return graphs to track the frequency o f returns, and compare the first wave against a second wave o f returns. However, logistically this was not possible for a number o f reasons. Firstly, the surveys were distributed through 26 different agencies. Secondly, the surveys were collected in a central location in each agency after a staggered response period that averaged 2-3 weeks. It was simply not logistically appropriate to try and encourage a second wave and a second round o f responses for this varied group o f organizations. It is possible that volunteer bias exists within these results, however the area o f representativeness does provide reassurance as follows. Representativeness Representativeness is "a term used to describe how well a sample represents the population from which it's drawn. A sample is considered representative when the distribution o f characteristics in the sample mirrors the distribution o f those characteristics in the population" (Palys, 1997, p. 425). This research invited participation from staff and volunteers in 26 health and social service agencies in four communities. Beyond the names o f the agencies, there is little information on the characteristics o f the population o f past participants. However, the data does provide us with some examples and insights in four areas. O f the 26 agencies, surveys were completed by staff or volunteers in 22 o f the agencies (see Table 4). Therefore, the vast majority o f the agencies (84.6%) were represented in the data collection. The survey respondents were primarily female (86.5%), while the count o f the past participants had shown that females constituted 84.6%, and the percentage o f agency contacts which were females numbered 80.8%. Therefore, the responses were definitely representative according to gender and host agency. On an observational basis, the gender results mirror the 71 make-up o f staffing in most health and social service agencies, as they are predominantly staffed by females. The respondents ages reflected almost the complete range o f possibilities, as the ages ranged from 21-61. The mean o f the respondents was 42.78, which is close to the midpoint o f the range o f the ages. However, the majority o f respondents or 41 out o f 68 individuals, are over the age o f 40. Again, by observation it can be noticed that our work force is aging. The textual comments throughout the survey also provide us with information on the population. Examples o f positive comments on the workshops such as “Enjoyed the workshops and feel they were/are worthwhile for our community” as well as negative comments such as “It was a disgusting experience for me and many others who left the modules and never returned” indicate that the survey did reach a cross-section o f the population, both those who were interested in the modules and the research, and those who were certainly not interested in the content o f the modules. Finally, the surveys which were partially or fully completed did number 75 returns. An aggregate o f 75 responses helps in reducing individual propensities in self-reporting, and trends can be identified across the returns. The above points and the amount o f returns provide the rationale that the results are representative o f the population surveyed. Validitv Palys defines validity in "the most general sense, to whether research measures what the researcher thinks is being measured". As the instrument was designed specifically for this research project, relating to this educational program's content, it is not an instrument that has 72 been used or tested elsewhere. However, both the pilot project and the textual results indicate validity exists in this research. The instrument was piloted through four individuals, all o f whom were past participants o f the workshop series. As reported in the Methodology section, all tested the survey, reviewed the content and the structure, and gave suggestions for change. The survey was then re-distributed to two o f pilot participants, who reported that the changes improved the survey and that the survey would provide the information sought through the research questions. The content o f the textual results provide an interesting insight that also shows validity does exist. Table 26 provides a summary o f the categorization o f the textual responses. These categories were inductively derived once the comments had been entered into the Appendices. These comments derive from two types o f open-ended questions; broad questions such as "What did you like most (or least) about the workshops?" and more specific questions such as "Have you noticed any changes in the way.... you discuss any o f the (client) groups with co-workers?" The comments derived from the open-ended questions mirrored either the questions themselves or the Literature Review content areas. Categories such as knowledge learned, attitudes, behaviors, organizational impacts, networking, time since participation, and advocacy reflected the question areas. Categories such as participation/discussions, facilitators, environment, transformative learning reflected the Literature areas. Because these inductively developed categories do not contain any other content areas, the validity o f the survey is shown in the responses to these open-ended questions. The survey measures what is was supposed to measure. 73 Summary The results o f the “AIDS/HIV Education for Work Place and Personal Change” research survey provided information on the demographics o f the respondents, their self-reported changes in knowledge, attitudes and behaviors, and their insights into the presentation o f and the usefulness o f the “Reducing Barriers by Building Partnerships” workshops. Although each question requested information on a specific variable, the textual responses contained information relating to a number o f the variables. Therefore, the textual responses for each question were categorized and counted, and the frequencies o f the categories were reported in table form. The category totals were summarized at the end o f this chapter. The survey may have some volunteer bias, although the returns are representative in terms o f gender, derive from most o f the host agencies, mirror the age o f the general work force, and number 75 in total. Based on the pilot information and the analysis o f the textual responses, content validity appears to be high. 74 CHAPTER VI: CONCLUSION The “HIV/AIDS Education for Work Place and Personal Change” thesis research has been based upon three research questions; Has participation in the “Reducing Barriers by Building Partnerships” program resulted in changes in knowledge, attitudes, behaviors and/or actions on a personal level and in the work place? Has participation resulted in a positive, negative or neutral transfer or change? What is the impact o f participation in the “Reducing Barriers by Building Partnerships” educational program? Chapter Six will discuss the conclusions drawn from, and the implications o f this research. The delimitations and the limitations o f this research will be examined, suggestions for further research will be proposed, and recommendations arising from this research will be presented. The chapter will conclude with a summary o f this research. Conclusions In this portion o f the chapter, conclusions will be drawn from the research in relation to each o f the three research questions. This information is derived from the results relating to each content area, regardless o f the source o f the information in the survey. For example, the discussion o f changes in knowledge will draw numerical information from survey Questions F and G, but will draw textual information from any o f the appendices which contain information on knowledge learned. 75 Did participation result in changes? The first research question was “Has participation in the ‘Reducing Barriers by Building Partnerships’ program resulted in changes in knowledge, attitudes, behaviors and/or actions on a personal level and in the work place?” The results have shown that the answer to this multi­ faceted question is “yes” in all areas, although the changes in knowledge were numerically much stronger than the changes in attitude or the changes in behavior. The areas o f knowledge, attitude and behavior will be addressed separately in the following sections. Changes in Knowledge Survey questions F and G requested information on changes in knowledge and changes in the understanding o f client situations. These numerical variables are supplemented by 97 textual comments, not including the 23 responses in the "knowledge learned and passed on" category. Knowledge was the only item that was mentioned in all o f the textual response appendices. Knowledge and Understanding The results o f Question F indicated that most o f the respondents experienced an increase in their knowledge base, with between 68% and 81.3% reporting medium to lots o f learning firom the modules taken. This was essentially an introductory question, as the initial evaluation (Walmsley & Keith, 1998) provided detailed information on the learning that occurred in each module. The survey’s second question in the knowledge section began laying the groundwork for social change. The question asked if respondents experienced a change in their understanding o f the client groups discussed in the modules. The literature has shown that changes in knowledge 76 about and understanding o f an item or an idea can positively influence attitudes and behaviors toward the item or idea being considered. The number o f participants who reported medium to lots o f change in their understanding o f client situations ranged from 60.8% to 73.8% o f respondents. This again is a positive result. Between these two results, it is evident that the primary impact o f these workshops has been in the area o f knowledge gained. The survey respondents indicated that they had increased their knowledge in technical or medical areas such as details on the progression o f the disease, in personal health care practices such as universal precautions, in historical contexts such as First Nations history, in their understanding o f the social and emotional needs o f clients and their families, in their awareness o f community resources, and in many, many other associated areas. This knowledge base forms a framework for an understanding o f an issue in the broad perspective, and has moved the participants beyond the narrow framework o f dealing only with the disease. This constitutes an holistic approach to health and social service delivery, encompassing a model that is socially rather than medically driven. The social model o f service delivery is critical in addressing the needs o f the whole person, rather than only addressing the needs o f a component o f an individual's issues. The Literature Review identifled knowledge as being a factor in an individual's attitudes. Wade and Tavris (1998) described an attitude as having a cognitive and an emotional component. As one survey respondent stated: “Knowledge and understanding equal less discrimination and fear”. The development o f a solid knowledge base is then an important factor needed in encouraging change in attitudes and behaviors. This is reinforced by the comment "Greater understanding and knowledge. Less prejudice". It would be very difficult to encourage a shift in 77 attitudes and a shift in work place behaviors without first addressing the knowledge needs o f the staff and volunteers. The importance o f learning opportunities in the work place can not be overstated. Simply the act o f providing or encouraging such opportunities sends a message to the staff and volunteers that their professional development is encouraged; there is confidence in their ability to learn; their personal learning needs are important; and, that there is a recognition that as the world changes, so do the skill and knowledge areas needed to cope with these changes. The offering o f educational opportunities by employers expresses a belief that the employees themselves are very important in the delivery o f service. Tight spoke to the recent fourth wave in training and development, focusing on "information, knowledge and wisdom" (1996, p. 19). The recent concept o f the learning organization has at its core the development o f individual, group, and systemic knowledge and skills to address the needs o f today's work place. The development o f knowledge is a critical component in the functioning o f today's health and social service organization. As one respondent indicated, "We need more education and workshops". Previous knowledge. Table 26 provided the total figure o f 31 comments relating to "No change (Prior knowledge etc)". Respondents wanted to reassure us that their lack o f change was not due to the content or presentation o f the workshops, but due to the fact that they were already knowledgeable about these topic areas. Examples include ‘T o clarify - It’s not that the modules weren’t informative, its just that I already knew a lot o f it” and “I don’t believe my understanding has changed. I have always had an appreciation o f groups listed from a S. W. perspective”. 78 Changes in attitude The Literature Review section on attitudinal and behavioral change defined attitude as having an evaluative component. Both Thurstone (1928) and Zimbardo and Liepe (1991) discussed the continuum o f like - to - dislike or favorable - to - unfavorable which defines the continuum. This research asked respondents if they experienced any changes in their attitudes or beliefs as a result o f their participation in the “Reducing Barriers by Building Partnerships” workshops. This section will discuss the two numerical variables, changes in attitude regarding the situation o f (client) groups, and changes in confidence levels regarding working with the (client) groups as well as examine the textual feedback regarding attitudinal change. Attitudes and confidence levels. The results for Question H, requesting a rating o f the changes in attitude and Question K, requesting a rating o f the changes in confidence levels, are remarkably similar. The changes in attitude question had a majority o f responses (53.2% to 60.5%) in the “about the same” category. The combination o f the “more positive” and the “lots more positive” categories ranged from 34.9% to 45.1%. The changes in confidence level responses also had a majority o f responses (53.5% to 61.4%) in the “about the same” category, with the two categories o f “more confidence” and “lots more confidence” ranging from 36.9% to 45.9% o f responses. These results are numerically substantially lower than the results firom the knowledge category questions. Appendices F and G contain 14 comments categorized as attitudes, with 8 o f these reporting positive changes. Examples o f these include “It helped me be more open and aware o f the higher risk activities and diverse people I come in contact with”, “Generally I have become a more 79 inclusive and open-minded person”, and “A close friend revealed his sexual preference and I think I was more open-minded”. These examples speak to the original workshop goals o f fostering insight and strengthening social environments, and show us that the workshops have resulted in changes in attitudes among some o f the participants. As presented in the Literature Review, the original definition o f change stated that change is any movement, whether positive or negative, as reported by the program’s past participants. These responses indicate that change has occurred. As expressed in the above example regarding sexual preference, the attitudinal change o f being more open-minded will have been resulted in a less judgmental, more accepting interaction. Such a change can be very meaningful, and is an expression o f a more accepting relationship. Each small change such as this gives hope for the development o f a kinder, more understanding community and society. The textual responses discussing attitude numbered 41 in total. The category o f “Attitude” shows comments in 11 out o f the 13 questions inviting textual input. Question N-b, inviting input on changes in the work place due to staff participation also resulted in 7 responses on attitudes. Examples o f comments included “Everyone seems more open-minded” and “less prejudice”. Again, these are very important pieces o f information as one o f the original goals o f the workshops was to strengthen social environments in health and social service agencies. Attitudes underlie our actions, and if we can continually strive to become more open and accepting, then our clients will have more o f a chance to receive equitable and accessible service. As adults, we bring to our work places a variety o f background experiences and knowledge based on familial upbringing, religious background, education and life experience. Any positive change in our attitudes will affect the work we do. 80 Changes in behavior The area o f behavioral change was operationalized in the following five variable areas: changes in levels o f empathy demonstrated at work, changes in discussions o f (client) groups both at work and outside o f work, changes in service provision at work, changes in advocacy regarding (client) groups both at work and outside o f work, and changes in the work place due to staff participation in the workshops. Numerically, the data indicates that between 38.6% and 44.1% of participants reported medium to lots o f change. O f the 110 comments in Appendices H through M, 79 comments gave examples o f positive changes, 21 responses indicated that they had not changed in the areas discussed, two o f the responses indicated a change to the negative, and seven o f the responses did not provide us with useable information. Barriers to equitable service such as ignorance, fear and stigma were identified earlier in this paper. This workshop series has resulted in positive changes in all areas, as the discussion o f these five variable areas will show. Empathv. Question L used a scale to request information on changes in empathy demonstrated at work. The responses to this question are similar to the attitudinal scale questions. Between 53.8% and 60.4% o f the respondents reported that their behaviors are about the same. The combinations of “more empathy” and “lots more empathy” categories resulted in a range o f 35.8% to 44.1% reporting changes. Therefore, the results are positive in that between one-third and one-half o f the respondents are translating their participation into actual changes in the work place. The expression o f or use o f an empathetic approach in dealing with clients is further described in textual comments such as “I feel I gained more o f an understanding as to what the client faces, so I would be able to work with the client in a more nonjudgmental way, to deal with what faces them instead o f focusing on the horrible disease”, and “Being more empathetic, less critical o f 81 their choices - more supportive - more focused on the need to teach people - knowledge that will help them increase their choices”. Stigmas are one o f the primary barriers to service, and the judgmental approach o f a case worker can have an impact on service delivery. Education that results in changes in the empathy demonstrated can potentially have a positive impact on the lives o f individuals with or impacted by HIV/AIDS. Communication. Appendices H and L provide textual input on changes regarding discussion o f (client) groups in the work place and in personal life. Five o f the comments can be categorized as “Knowledge learned and passed on”. The following comment is interesting because it indicates the connection between knowledge, attitudes and communication: Being able to make others aware o f the issues that impact people’s life and the choices they are able to make with the knowledge they have - Being so aware o f people’s needs and share that with others before judgements take place. This quote as well as the comment “Let people in my life know what 1 have learned” speak to the broader impact o f the workshops, indicating the content did not just remain with the participants. This is a very positive statement as it indicates that the content has been accepted and internalized, and that the participant feels strongly enough about the information that he/she wants others to be aware o f it as well. In Appendix H, the category o f “Knowledge learned and passed on” once again provides interesting insights especially with the statements “Giving information in a fun way. Also using the modules to give clients small pieces o f information over time for learning that meets their learning needs” and “More focused on the need to teach people - Knowledge that will help them 82 increase their choices”. Marginalization o f groups in society can result in a decrease in choices in a variety o f ways, including lack o f choices due to lack o f knowledge or education and lack o f choices due to inherent program or service barriers. Empowerment is the concept o f enabling others to make their own choices, rather than the process o f making a choice for someone. This study indicates that the workshop series has significant potential to empower clients within our communities. Appendix J provides more information on changes in communication. The comments “More awareness o f conversation and who might be around”, “One co-worker acknowledged his inappropriate vocabulary around clients” and “A bit less o ff color joking” speak to the strengthening o f social environments through increased care in communication. Our society’s mores are often reflected in the language that we use, the assumptions we make, even in the jokes we communicate. Stigmas are reinforced through our language usage. As one o f the original funding applications listed a goal o f enabling individuals to remain in their home community, the community in general needs to exhibit an open and accepting environment for all peoples. Language usage is a key to this. Service provision. The third behavioral change variable area for discussion is that o f change in service provision at work. Appendix H contains 18 responses to this request for information. Some o f the responses identify content areas discussed previously, such as increases in knowledge and changes in attitudes, but also changes in approach such as being more empathetic as well as teaching others the module information. The issues o f resources and o f networking are addressed here for the first time. It is very important for service providers to have knowledge o f and encourage use o f 83 the services that exist in a community, keeping in mind that each community has differences in availability and structure o f services. This also reduces the need for any one provider to attempt to address all needs, which is generally a difficult or impossible task. Service providers also have differences in their points o f entry, and in their client definitions. Knowledge o f one's own community can enhance the range o f service options for a client, and, as one respondent indicated, "More aware o f making services more accessible". Advocacv. Numerically, the advocacy change frequencies numbered 36.2% for work place advocacy, and 13.8% for personal advocacy. Twenty-seven o f the comments from the survey identified the learning o f strategies that could be termed as advocacy, although only one o f these was written down as a response to the two questions concerning advocacy. The Collins Concise Dictionary (1995) defines the term “advocate” as “ 1. to support or recommend publicly, 2. a person who upholds or defends a cause, and 3. a person who intercedes on behalf o f another” (p. 17). Examples o f advocacy from other appendices include “How to comment when negative comments made regarding First Nations people, homosexuals were discussed” and “When topic came up in conversation was more assertive about cutting o ff negative talk”, and “Ran across homophobic people and tried to change their opinions” yet these are not identified by the respondents as advocacy. I would conclude that the meaning o f the term “to advocate” is not necessarily understood by many o f the participants in terms o f their personal roles. The respondents indicate that there is some understanding o f their professional role as an advocate for clients in their comments on advocacy at work. Examples include "I have always tried to advocate for ALL o f my clients" and "We were strong advocates before the training" and 84 are included in the "No change" frequencies. The ability to advocate for and with one's clients is an essential function in a health and social service agency, especially in terms o f working with individuals who face stigmas due to health, race, sexual orientation, age or any other marginalizing factor. It can be very challenging to be an advocate for a client with personal aspects that one doesn't respect, or like, or agree with. The purpose o f this educational program was to develop knowledge and foster insight among employees, as well as to strengthen social environments within agencies to encourage and ensure that the needs o f a client are addressed in the most professional maimer possible. Advocacy can play a strong role in service provision. The following comment addresses not only the individual’s advocacy but also his/her approach with “The biggest change in fact I almost never let a negative statement re: HIV/AIDS, gays/lesbians/IDU’s etc go by without ‘gently’ commenting on a more generous point o f view’’. The use of the word “gentle” is evocative o f positive yet persistent encouragement for social change. Imagine what society would be like if each o f us did not allow negative comments to continue about individuals or groups based on race, sexual orientation, health, economic factors or any other discriminatory aspect! In summarizing this area o f change, it is very positive to see the increase in understanding and action regarding marginalized groups. Work place changes. The final variable area in the broad category o f behavioral change is that o f changes in the work place due to staff participation in the workshops. Appendix J provides the 28 textual responses to this question. Eight o f these responses are categorized as “Behavior”. 85 The statement “Knowledge o f issues helps the work team work in consistent manner with our clients” introduces the area o f operational procedures. Consistency is important for many reasons: it ensures that clients are treated in the same manner in each interaction; it ensures that service provision does not vary due to outside factors such as time, location or knowledge; and it ensures staffing changes do not result in service changes. In order for this to occur, it is helpful if the staff receive the same or similar training, and that procedures are formally or informally communicated. The specific category “Organizational impacts” includes two statements. The first expresses positive results in saying “Brought us closer together as a result o f shared experience" which addresses the need for teamwork and mutual support in a work environment. The second comment identified an area o f concern in saying “Most o f staff still do not want to talk about issues o f marginalization”, indicating some frustration with co-workers. However, the act of participating in the module may have opened the door for enhanced communication on the issue. The following comment touches on “Knowledge learned”, “Attitude” and “Behavior” in stating “Increased knowledge and confidence among my co-workers. This created a more supportive atmosphere for both clients and myself (when in need o f a second opinion or someone to ‘vent’ to)”. These responses speak to Dworkin’s (1992) statement that “An organization - focused educational program can go beyond changing individual professional attitudes and utilize peer influence to create positive group norms” (p. 673). As stated previously, an organization is often a microcosm o f society. Therefore, it follows that not only the clients need a respectful service area, but all workers need to be part o f a respectful working environment. The employees and volunteers themselves will also reflect their environment, there may be individuals as described in the modules’ client groups who are working within these health and social service agencies. 86 Positive changes in an environment will especially assist marginalized individuals to feel more comfortable and potentially more effective if their working environment supports them as well. Summarv The research question “Has participation in the ‘Reducing Barriers by Building Partnerships” program resulted in changes in knowledge, attitudes, behaviors and/or actions on a personal level and in the work place” has been answered in this portion o f the chapter. This research was designed to question the individual participant on their internal knowledge and attitudinal changes, and their external behavioral changes, and not to externally observe or test these changes. The research has given us a large number o f examples o f these changes: examples internally in knowledge gained, examples internally in attitudes that have shifted, and examples externally in behaviors and actions both in the work place and in their personal lives. The process o f social change through education is ultimately displayed through external attitudes and behaviors. Numerically, the change figures were not as strong as the textual examples sometimes indicated. This reflects one o f the challenges o f adult learning situations: that participants come to the situation with differences in backgrounds, experiences and knowledge. This research did not presume a level playing field within the adult participants, hence the approach in requesting the individual analyze himself regarding his/her perceived change levels rather than imposing an external measure o f change. The numerical results also reflect the previous knowledge that the population had come with, knowledge that may have been gained through college or university experiences, through the popular media o f television, newspaper and radio, and through previous workshops or seminars in content area the same or similar to this educational program. Such knowledge becomes ingrained, and it is difficult to ascertain the original source o f the 87 knowledge and o f the attitudes and resultant behaviors. The research does indicate that change did occur in all o f the areas investigated. Has participation resulted in positive, neutral or negative transfer or change? The second research question, “Has participation resulted in positive, negative or neutral transfer or change?” draws us back to Wexley and Latham (1991) in the Literature Review. It is easy to presume that any learning situation will result in an increase in, for example, the knowledge base o f an individual participant. Wexley and Latham, as well as Yam (1991) state this is not necessarily so. There are a number o f reasons why a learning experience could result in a negative transfer. If the content o f an education session is controversial, if the presentation or the learning environment is less than optimum, if the participants are not motivated, if the information is not applicable, or if the information provides too little content, then negative transfers may occur. The “Reducing Barriers by Building Partnerships” workshops are based on a medical topic that raises fears in the general population. The workshops challenged individuals to examine their beliefs and value systems. The content included taboo topics such as gay and lesbian li festyles and issues, and the historical marginalization o f First Nations people. The workshops discussed stigmas, morality, disease, sex, addictions, racism, sexism and many associated topics that some individuals are simply not comfortable with. There was a risk that the workshops could have resulted in a negative change, with a resulting decrease in the openness and increase in the stigmas expressed professionally and personally in our communities. A negative transfer or change would be a disastrous result for any educational situation. The possibility o f a zero or neutral transfer or change is also an area that we tend not to consider when reviewing educational opportunities. A zero transfer would indicate that the workshop content was not relevant to people’s needs, that the participants did not care about the information presented, and that the educational opportunity did not challenge its participants in any way. The zero transfer could occur if the participation did not result in any difference in the lives o f the workshop attendees. This would have an impact on employee training, in that employers are most certainly not willing to support a training opportunity which, in essence, is not meaningful. A neutral or zero transfer or change would also be a disastrous result for an educational situation. The research results show that all o f the variables measuring change have scored in the range o f positive change. The knowledge area resulted in the highest positive gains, while the attitudinal and the behavioral change responses showed lower rates o f positive transfer and higher rates of neutral or "no change". Negative transfers did exist, with frequencies o f 1-2 individuals in total. The results indicate the “Reducing Barriers by Building Partnerships’’ workshops were definitely a success in terms o f the transfer to the work and personal situations o f participants, especially in the area of creating change in the knowledge base o f respondents. A number o f the questions asked respondents to provide "yes", "no" or "not applicable" answers, and to add comments following any "yes" answers. For example. Question M asked "Have you noticed any changes in the ... way in which you discuss any o f the (client) groups with co­ workers". These open-ended questions did not specify if the responses should be positive or negative changes, yet o f the 376 textual responses only 7 responses described negative situations. A further 3 1 responses indicated "no changes", leaving a grand total o f 340 statements 89 expressing positive feedback. These figures indicate a very strong case for the positive effects o f the "Reducing Barriers by Building Partnerships" educational program. What is the impact o f participation? The third research question, "What is the impact o f participation in the "Reducing Barriers by Building Partnerships' educational program" will be addressed by examining the participants' analysis o f the learning environment, the strengthening o f the social determinants o f health through the participation in these modules, evaluating the results in relation to the original goals o f the workshop series, addressing the existence and impact o f Social Learning Theory, and acknowledging the impacts to individuals beyond the past participants. This final research question therefore pushes the boundaries beyond personal and work place change to look at the broader change issues involved in education for social and community change. Analvsis o f the learning environment One o f the impacts o f participation in the workshops and in this research process has been the analysis o f the learning environment by the respondents. The concluding section o f the survey asked for input on most liked aspects o f the workshops, least liked aspects o f the workshops, applicability o f the workshops to both work place and personal life situations, and any other areas the respondent wished to comment on. The purpose o f these questions had been to provide insight into the factors influencing the success o f these workshops. The primarily textual input again provides positive results overall, and provides some very specific input important to adult learning situations. 90 Was this andraeoev? The respondents provided the information that the learning environment was a key factor in the success o f these workshops. The “Reducing Barriers by Building Partnerships” workshops reflect the andragogical approach in that participants stated the workshops were participatory, relaxed, worthwhile, provided opportunities to explore issues, provided a good and current knowledge base, provided factual information, were interactive and intimate, and left participants feeling good (see Appendix M and P). The participants are adults who experienced the opportunity to learn about the content in an atmosphere o f mutuality, respect, inquiry, and informality. The word “open” was used by five respondents in this section o f the comments. Reflecting back to Knowles’ Comparison o f Assumptions and Designs in Table 1, the feedback indicates that the workshops encouraged learners to share their knowledge, provided information with immediate application, were problem and reality centered, allowed for mutual self­ negotiation in the time lines o f the modules, were respectful, collaborative and informal in their presentation style, and encouraged self-diagnosis. The workshops also used six o f the twelve strategies suggested in Campbell (1999): lecture, discussion, case study, demonstration, forum and panel. The variety o f presentation methods, the resources o f the guest speakers, the participation o f the group members, the collaboration between teachers and learners, and the challenge and critical reflection that was encouraged resulted in the wide variety o f positive comments from the survey respondents. The “Reducing Barriers by Building Paitnerships” program incorporated many o f Galbraith's (1991) characteristics in its five modules by providing lecture material, reading material, discussion, demonstration, guest speakers, collaborative group work, questioning, selfexamination, learning objectives, case examples and many other techniques in its presentations. 91 The aim o f the learning opportunity was to encourage individuals to learn, enjoy, reflect, consider and perhaps change through their participation in this program. The content and presentation structure therefore addressed all six o f the guiding principles for the transactional learning experience as identifled in Galbraith's theories. Throughout the survey, the respondents commented on the provision o f workbooks for each o f the modules. Comments such as “Being able to pass on the knowledge gained (using the resource material) to staff if questions arise” from Appendix E, “I used words/examples the instructor had used in our modules - 1 passed on booklet to person” in Appendix F, and in Appendix M “Resource material. Provided a good knowledge base re: meaning o f acronmyms, transmission, protection and definitions”. The workbooks were helpful to adult learners because they allowed participants to review the material at a later time if they chose, they provided written information and reduced the need to take notes, they included exercises which could be useful and applied outside o f the workshops, and they provided an opportunity for the learning to be further disseminated after the workshops. The participants identifled the andragogical approach that was the underpinnings o f this educational program. The participants responded very positively in their analytical comments. It then follows that the andragogical approach was a key factor in the success o f these workshops. Was this a transformational learning opoortunitv? In Scott (1998), transformational learning was defined as encompassing three aspects: social, personal and knowledge transformations. Respondents commented that “I enjoyed the chance to examine my feelings”, it was an “open atmosphere exposing o f myths and taboos”, “the way it 92 was presented allowed me to see where I needed work because my values and beliefs play a part in how I analyse and then work with my clients”, and the “content on marginalized people was thought provoking”. As Cranton (1998) stated “When we are led to question our assumptions, critical reflection, the central process in transformative learning takes place” (p. 198). Question Q asked survey participants to identify their least liked aspects o f the workshops. Interestingly, a number o f comments reflected people’s discomfort with this type o f discussion as suggested by the following quotes; “The section on homophobia - thought the (perceived) goal o f exercise reached a little high. Education does not always bring ACCEPTANCE”, “would have liked more emphasis on people confronting, acknowledging bias, prejudice”, “A large part appeared to be political indoctrination”, and “The fact the workshop commenced with an exercise that indicated/accused all participants as homophobic/racist” . The process o f considering one’s own beliefs and attitudes, and the identification o f the source o f these is not always an easy or a comfortable process. For some individuals, it can not only be very uncomfortable but also not acceptable: The thought that we were asked if OUR attitudes towards homosexual people had changed. I think most people’s beliefs are entrenched and as long as everyone we affect is treated with respect and consideration - no one can ask anyone to change their beliefs and attitudes. (from Appendix P) Cranton (1998) discussed Mezirow's theories o f transformational learning. These theories are reflected in the goals o f the “Reducing Barriers by Building Partnerships” program, specifically by encouraging individuals to add to their knowledge base, to explore their beliefs and assumptions, and to consider applying these transformations to the behaviors and attitudes they bring to and use in their work settings. Transformative learning stresses the need for learners to be reflective about their learning. 93 The learning environment in the “Reducing Barriers by Building Partnerships” workshops exemplified the philosophy o f adult education and was a strong example o f a transformational learning opportunity. Question R asked respondents if the workshops were useful to them in their work and in their personal lives, and in both situations the participants answered overwhelmingly “yes” (79.7% and 63.9%). This indicates that the workshop series has been a valuable experience in the educational lives o f its participants. The program meets the four criteria for transformational learning as identified by Scott (1998, p. 179). These workshops therefore exemplify the successful implementation o f a transformational learning opportunity due to the positive results and positive feedback on the discussion o f attitudes, beliefs and values and their relation to daily work and personal behaviors and actions. Determinants o f health The Northern Interior Regional Health Board’s Health Services Plan: 2000 - 2003 identified ten o f the key determinants o f health. This workshop series addressed six o f these determinants: social support networks, (employment and) working conditions, social environment, personal health practices and coping skills, health services, and culture. The results o f this research have indicated that changes in knowledge have been significant, knowledge that relates to health and social service employees' and volunteers’ understanding o f the broader issues affecting health and health services. The issues o f marginalization, stigmas, historical context, and discrimination impact on the social environment, employment and working conditions, and culture. The goals o f the program had identified the strengthening o f partnerships between service agencies, which speaks to the determinant o f social support networks. The technical knowledge will assist in the instruction o f personal health practices and coping skills. This research resulted in the 94 documentation o f change due to this educational program. It is evident that the "Reducing Barriers by Building Partnerships" was not just a prevention education program, nor was it solely focused on technical health issues. The mandate and the resulting impact o f this educational program have resulted in a strengthening o f six health determinant areas, a strong achievement to be recognized and celebrated. Original goals o f the educational program The original goals o f the “Reducing Barriers by Building Partnerships” HIV/AIDS education program were listed as “to provide knowledge and foster insight in health care and social service agencies in order to ensure sensitive, adequate, accessible service and care for those living with HIV/AIDS in Prince George” (Walmsley & Keith, 1998, p. 4) and “to strengthen social environments in social and health service agencies for persons living with HIV and AIDS” (Walmsley & Keith, 1998, p. 4). The results have indicated that there was a strong change in the knowledge level o f participants in the workshop series, with 60.8% to 81.3% o f respondents reporting medium to lots o f change in their knowledge levels. The goal o f fostering insight relates to not only the changes in knowledge but also the changes in attitudes. About half o f the respondents reported that their attitudes remained the same, with a number o f individuals commenting in an overall manner that they came into the workshop with previous standards o f compassion and understanding. Additionally, 34.9% to 45.9% o f the respondents reported changes in attitudes regarding the situation o f the client groups and changes in confidence levels regarding working with the client groups. These results indicate that there was some progress made in terms o f fostering insight in the health and social service agency employees. The goal o f ensuring sensitive, adequate, accessible care for those living with HIV/AIDS was not directly 95 addressed within this research, as the research focused on the employees rather than the clients. However, as the research did ask for information on changes in the behaviors o f employees, information was collected that relates to the goal even if it does not directly address the goal. This research asked respondents if there was change in the empathy they demonstrated at work, and 38.6% to 44.1% indicated that they were more or lots more empathetic in their work places. This addresses the aspect o f sensitive provision o f service. The anecdotal or textual responses provide a number o f important examples o f changes in actions in the work place, changes that would have a positive impact on the clients' access to adequate service and care. Examples of these comments include “Obtained a better understanding o f the resources available, at the local level, therefore able to provide the best possible treatment for the client”, “more calls to community agencies”, and “connecting people to other support systems”. This research provides information that the knowledge and abilities o f health and social service agency employees and volunteers have improved as a result o f the HIV/AIDS education program. The second goal o f strengthening social environments within health and social service agencies is also addressed by the above numerical changes in attitudes and behaviors. The yes/no questions did result in lower percentages o f change information, as their percentages ranged from 29.4% to 38.7%. The above discussion on the internalization o f new information, the amount or lack o f reflection in the completion o f the surveys, and the length o f time since participation would also be relevant to these results. The textual information does indicate some important examples o f changes, and these validate the achievement o f the second goal. The questions regarding changes in the discussion o f (client) groups at work and the changes in the work place due to staff participation especially speak to this goal. Comments such as “way less politically incorrect comments and/or jokes”, “brought us closer as a result o f shared experience” and 96 “more understanding coworkers” indicate that changes have occurred regarding social environments in the work place. Our work places are microcosms o f our community. This research also addressed the strengthening o f social environments outside o f the work place, as a recognition that the greater community is also a very important facet in meeting the needs expressed in the original funding application by AIDS Prince George. Social learning theorv The Literature Review addressed the aspect o f direction in terms o f attitudinal and behavioral change. Wade and Tavris (1998) state that changes can occur in both directions. This research addresses changes in attitude first in the survey, then requests information on changes in behavior. However, this was the order o f the survey and not an imposed order regarding the direction o f change. Although it may appear that this research addressed changes in knowledge leading to changes in attitude leading to changes in behavior, this is not the only progression addressed. The overall impact o f the workshops is far beyond that as identified in this research, as individuals will learn firom the changes in the behaviors o f their co-workers and from the changes in the environment on an ongoing basis. This speaks to the impacts o f advocacy as discussed above. Differences in the way workshop participants communicate will lead to differences in the way their co-workers, clients, friends and families think and perhaps result in changes in their attitudes and behaviors. Examples o f these comments include “Over the last few years I find myself trying to educate people I come in contact with, because I find most people very stuck on old beliefs”, and “I speak with knowledge and therefore pass on what I have learned to stop stigma o f stereotyping”. These actions will potentially result in a snowball effect 97 o f change. If past participants work towards addressing stigmas and negativity, they will educate others who will also potentially begin to work towards a more equitable and accepting society. These comments and ideas are reflective o f Bandura's Social Learning Theory (Campbell, 1999), the recognition that change may come from within or as a result o f direct interaction, but may also come from the observation o f or interaction with the environment. This also indicates that the change process will be ongoing, and not end simply because the educational participation has ended. This workshop series has been well grounded in theory, and as such, exemplifies the second characteristic identified in Kirby et al, that is " the effective programs were based upon theoretical approaches" (1994, p. 353). Impacts bevond past participants The impacts o f participation in these workshops also extends to individuals associated with participants, individuals who may be employees or volunteers themselves, individuals who may be clients, and individuals who may be family members or fnends o f the participants. This information is derived from the 23 textual responses relating to “Knowledge learned and passed on” (see Table 26). Examples o f the above situations are provided by respondents in saying “1 share the information learned with co-workers who are working with HIV individuals or couples” (Appendix G), “Perhaps increased comfort, confidence client groups/volunteer service people seem to ask educative questions that 1 answer and can provide direction for more info/services” in Appendix H, and “Share HIV/AIDS information with friends/family”. This indicates that the impacts o f participation are exponential, affecting a much broader range o f individuals than just those who participated in these workshops. As this research defined its population as only those who participated in the workshops, it is therefore not possible to measure or even to speculate on the expanded impacts o f the “Reducing Barriers by Building 98 Partnerships” program. However, the notion o f the broader range o f impacts is truly exciting to envision. Implications for practice The implications for practice portion o f this thesis will move the conclusions further into the area o f applicability. This section will first address the question "Was change necessary" for the participants o f the "Reducing Barriers by Building Partnerships" workshop series, and the implications o f this discussion. This section will also consider implications regarding andragogy, transformational learning, and module attendance. Was change necessarv? The research results have indicated that over 50% o f the respondents reported "no change" in their attitudes and beliefs. O f the 376 textual comments, 31 responses addressed the issue o f no change due to prior knowledge, attitudes and behaviors. O f these responses, 17 provided information that they had previously provided service in a positive manner with comments such as “Like I said before, I have advocated for clients for a long time. That is part o f my job”, “I have always been careful about confidentiality and shared information” and “Have always supported clients regardless o f health issues”. The question which then arises can be stated as “Was change necessary?” 99 The positioning o f this research needed to be very carefully addressed as it was very important the participants did not feel that they had been judged, or provided with an implied message that change was needed. It was critical to the ongoing provision o f services in this sector that the implementation o f this research project did not result in negative connotations towards service providers. It was also critical that the research not result in negativity towards AIDS Prince George, the host o f the ongoing workshop series. The development o f the research instrument, and the implementation o f the research process were intended to gather information in a nonjudgmental and welcoming manner, in order to provide insight and understanding into the research question areas. The Literature Review provided information that organizations are a microcosm o f our communities. The definition o f attitude included the information that an attitude is a point on a continuum from very positive to very negative. The “Reducing Barriers by Building Partnerships” workshops address the aspect o f continuum in a number o f their content areas, including the continuum o f personal sexuality and the continuum o f attitudes towards the gay and lesbian population. Given the aspects o f the microcosm o f our community, and the continuum o f attitudes, it was reasonable to expect that participants in the workshop would reflect their communities and represent the full spectnun o f the continuum. Some individuals will have been enlightened, empathetic, respectful and flexible in their provision o f services before the workshops. It then follows that some participants will fall at the other end o f the spectrum in a variety o f areas. The results o f this research confirm that this spectrum does exist. The comment “Just reiterated what I already knew. I’m empathetic and understanding and open - minded” provides an example o f an individual with positive attitudes and behaviors, while the comment “About how it is normal to be gay and everyone should embrace their lifestyle: 100 ABNORMAL. AIDS PG mandate seems to be acceptance o f the gay lifestyle, and if you don’t, YOU ARE THE ODD ONE OUT” is a strong example o f an individual who is on the negative end o f the spectrum regarding attitude toward the gay and lesbian population. Therefore, the assumption was not that all participants should experience changes in all areas. The workshops and the research recognized that there was probably room for change in some individuals in some areas as investigated. The existence o f the spectrum also presents the need for modification in viewing the numerical results. Given that some individuals entered the workshop series with previous knowledge, the fact that 60.8% - 81.3% reported "medium to lots" o f learning is that much more positive. Given that some individuals entered the workshops with a positive attitudinal and behavioral base, the fact that 34.8% - 45.9% o f respondents reported "medium - to -lots" o f change in the attitudinal and behavioral variables is again much more positive. Given that with the existence o f the full spectrum, it was possible that some individuals are the far negative end o f the scale would probably not have been influenced to change through this relatively short workshop series, the results again appear in a more positive light. Therefore, this educational program did initiate change to many o f the individuals within the middle portion o f the spectrum. Andragogy In the Literature Review, Scott's comment “Adult education is primarily interested in people, the changing o f people to become better citizens, better workers, better contributors to society” (1998, p. 186) provided a basis for the implementation o f this adult education opportunity. In the 101 Conclusions portion o f this thesis, the results indicated that the educational approach was andragogical in nature, and that this was a key factor in the success o f the workshops. The implications for practice that arise from these conclusions provide direction for planners and practitioners for and o f adult learning situations, and can be very simply stated as follows. Adult learning opportunities need to be well grounded theoretically. Planners need to be respectful o f their audience, develop the material and the presentation style to reflect the needs of the learners, and allow learners to contribute their own rich body o f knowledge to the learning experience. The power o f the instructor needs to be shared: the facilitation o f input from the participants; the sharing o f the instructional role with individuals who speak from a different voice such as guest speakers or panel members; and the implementation o f instructional strategies in a variety o f mediums to address the range o f learning styles. Examples o f this include visual learners who can benefit from written materials in workbooks, aural learners who can benefit from lecture or taped materials, and kinesthetic or experiential learners who can benefit from hands • on work or exercises. Adult learners come from a wide variety o f backgrounds, with varying knowledge, skills, family or religious experiences, work or life experiences. An andragogical approach is critical to the effectiveness and acceptability o f an adult learning opportunity. Transformational learning The Conclusions section stated that the "Reducing Barriers by Building Partnerships" program was an example o f a transformational learning experience. The results and textual information proved the workshop series was successful. What are the implications for practice? 102 The participants o f this educational program were health and social service agency staff and volunteers. This program was a work place training initiative. Participants began by learning the technical details o f HIV/AIDS, and moved on to addressing difficult and challenging issues, yet their feedback was positive! This strongly indicates that it is possible to provide work place education with a transformational learning component. It is possible to challenge people, gently and carefully, to consider their attitudes and beliefs and the impacts these have in their work places. It is possible to encourage social change through a work place education program, and it is possible to present "a social vision about the future based on a value system that includes the struggle for freedom, democracy or equity, and authenticity" (Scott, 1998, p. 178). Practitioners need to learn from these results and conclusions, and should not fear the inclusion o f transformational learning opportunities within their training situations. Module attendance The “Reducing Barriers by Building Partnerships” workshop participants were health and social service agency employees and volunteers. Respondents were then, by definition, presently or previously employed or volunteering in these agencies. The respondents’ participation in the modules ranged from 67 out o f 75 (89%) in Module One, to 44 out o f 75 (58.7%) in Module Five. This question helped in defining the attendance population in each module, and a definite trend is indicated. The decline in the attendance numbers as participants moved through the modules reflects the original encouragement to begin attendance at Module One and work through them in order whenever possible. However, these figures also indicate that there is a large body o f individuals who were not able to complete their attendance o f all five modules. This dilutes the effectiveness o f the workshop series, and leaves the sense o f an unfinished 103 opportunity among a considerable body o f individuals. Practitioners need to consider means to address this within the ongoing planning and promotion o f the modules. Encouragement needs to be given to health and service agencies to track the attendance o f their employees, to provide a variety o f opportunities for access to the modules in recognition o f the variety o f work schedules which exist today, and to lengthen the contact with an educational agency in order to accommodate the needs o f the employees. Use o f technology such as electronic mail to publicize workshops, and spreadsheeting software to track participation will potentially lessen the work load o f this function. It was noteworthy that many individuals (17 out o f 75, or 23%) could not recall their last year o f attendance in a module. This is further reflected in the written comments about the difficulty o f remembering content and details when a workshop occurred two or three or more years previously. The bulk o f the attendees in 1998 and 1999 may reflect the busiest years in terms o f the hosting o f the workshops by AIDS Prince George, but also may reflect the unwillingness or inability o f potential respondents to recall workshops held a number o f years previously. The survey was distributed in the fall o f 2000, and the lower number o f respondents fi’om 2000 may reflect the timing o f the distribution (part way through the year) as well as the reduced staffing at AIDS Prince George during that year. Respondents provided textual information on the challenges o f remembering content and its impact due to the length o f time since participation. These comments are dispersed throughout the results, including comments in Appendix E, “I’m sure there have been times at work when something has happened, but the workshop was 3 years ago”. Appendix H, “Hard to remember”, the comment “Can’t remember” once in Appendix M and twice in Appendix N, the comment “I 104 can’t remember much o f what we did, its been a long time” in Appendix P, and nine comments in Appendix Q as summarized in the results section. The challenge o f presenting a workshop series is to make the information interesting, relevant, current, memorable and integrated into practice. As adults, these participants came to the workshops with varying learning needs, interest areas, and previous knowledge. One individual commented “It’s been many years since I’ve taken the workshops, but the information learning has stuck with me, unlike many other workshops”. Evidently, for this individual, the information’s relevance made it particularly memorable. Because o f the diversity inherent in adult learners, there are no easy solutions to the dilemma o f the passage o f time. There will also not be a single solution in the length o f time that individuals will remember a workshop, as this too will vary from person to person. The demographic information in Question B and the textual responses from the participants clearly indicate that the passage o f time was a difïiculty for approximately 5 -1 0 out o f the 75 survey respondents. Practitioners need to be aware o f the differing situations o f participants, and solicit their input to ensure that the content is current, relevant and memorable. Participants may be able to provide suggestions for follow - up mechanisms, and ongoing consultations with sponsoring agencies may provide insights into the effectiveness o f the learning experience. The final section o f the demographics requested information on the attendance situation o f respondents. It is very positive that over two-thirds o f the participants (46 out o f 66 or 69.7%) reported that they voluntarily attended the workshops. It can be surmised that this means they attended because they chose to, that they were interested in increasing their knowledge in the content areas, and that they were willing to commit time and energy to their learning process. It is interesting that although only one-third o f the attendees were present on a mandatory basis, almost two-thirds o f attendees were remunerated. Generally speaking, when an employer 105 requires a staff member to attend a workshop, union contracts require that the employee’s time be considered work time and the individual’s wages must be paid. Therefore, the twenty mandatory attendees would probably have been paid for their time, and over half (26 out o f 46 or 56.5%) o f the voluntary attendees must also have been paid their wages. This indicates a willingness by the remaining voluntary attendees to attend workshops without receiving remuneration, possibly as a means o f professional and/or personal development. These figures also indicate employer support for educational experiences in the workplace. Because this research has identified very positive effects o f participation in this workshop series, it would be important for this research information to be disseminated to the health and social service agencies. Practitioners also need to encourage organizations to recognize the value o f ongoing training opportunities, and be prepared to defend and advocate for the continuation or expansion according to identified training needs. Delimitations and Limitations The delimitations o f a research plan are those areas that are under the control o f the researcher, while the limitations are areas not under the researcher's control. In this research project, there were a number o f both. This section will briefly explore these. 106 Delimitations The delimitations o f the research “HIV/AIDS Education for Work Place and Personal Change” can be categorized into three areas; the operational definitions, the research instrument, and the generalizability. It was a challenge to operationally define the change process in a manner related both to personal change and to work place change in sensitive yet realistic language, as discussed in the Definition o f Terms portion o f this thesis paper. I consulted with present and past AIDS Prince George staff in assisting in the process o f refining the survey questions, and in operationalizing the definition o f change. This was accomplished through several consultation meetings. As also mentioned previously, these operational variables needed to be positioned in a way that invited personal reflection on change without alienating the participants through implying that they needed to change. The range of information received provides the feedback that the operationalization o f the variables was successful. The second delimitation o f this research relates to the design o f the survey instrument. As this was original research relating to a unique educational program, there was no existing survey instrument. I created this instrument based on the research questions, and on feedback during the consultation process. While the survey did provide a large amount o f information, the process o f implementing and evaluating the instrument resulted in the identification o f several areas for change or improvement. The survey was distributed through the health and social service agencies that had participated in the “Reducing Barriers by Building Partnerships” workshops. The contact person in each agency was responsible for distributing the surveys to their agencies’ past participants. The success o f 107 this distribution process varied (see Table 4 for numerical information). In retrospect, I would recommend a change in the covering letter (see Appendix C). The covering letter should have had a section for the past participants’ name to be written in, with accompanying instructions that the respondent tear o ff the covering letter before turning the survey in to ensure the anonymity o f responses. This would have encouraged the contact persons to directly distribute the survey to all remaining past participants within the agency. Also, the covering letter o f the survey asked respondents to “please fill in the survey question areas that relate to the modules that you have taken”. Some respondents missed this piece o f information, and filled in portions o f the tables for modules which they had not taken. These data pieces were eliminated prior to the recording or entry o f the data in the software programs so there was no actual impact on the results. The content o f the survey instrument could have been improved. The demographics section did not include a question on previous formal education levels. This was a drawback, as such a question could have provided valuable information on not only the amount o f prior education but also the professional or non-professional status o f respondents. Three o f the respondents referred back to their university or their professional training. A second question could have inquired about previous training in HIV and AIDS diseases and associated processes. Three o f the comments refer to such previous educational experiences, as mentioned in Appendix Q “Have been to other HIV/AIDS workshops”. A third question for inclusion could have been “Why did you take these workshops?” This question could have provided information on areas such as personal motivation for attendance, the individual’s learning needs, and the success o f public relations strategies. A fourth question could have asked if participants had previously had education in AIDS/HIV, in First Nations history, in gay and lesbian issues, and in regards to other marginalized groups such as intravenous users. A further change would involve the use o f 108 numbers instead o f letters in defining each question on the survey. The capitalized letters proved to be confusing because o f the use o f letters to define each appendice. The survey change scales asked respondents to rate their level o f change. This resulted in trend information. Another way o f structuring this might have been to use two scales for each variable, the first asking the respondent to assess their level prior to the module and the second for their level following the module. This would have provided more specific information on not only the levels o f change, but also the positioning o f each individual on the spectrum both prior and following their educational experience. However, this would have lengthened the survey. The survey would also have been more difficult for the respondents to fill out in relation to each o f the modules, but may have provided a much better picture overall o f our respondents. The third delimitation o f this research relates to generalizability. The investigation o f the AIDS Prince George’s educational program, “Reducing Barriers by Building Partnerships program” was carried out within a constructivist framework, using quantitative research methods. Constructivist thought recognizes that “individuals perceive or construe the same event in different ways” (Cranton, 1998, p. 194-5). This reflects the views in adult education that individuals vary in their backgrounds, experiences and knowledge. Therefore, their perspective on an educational experience will also vary. This thesis research used a quantitative methodology to reach past participants o f a specific educational program, in order to both hear their unique perspectives as well as look for patterns in responses and in impact statements. The “HIV/AIDS Education for Work Place and Personal Change” research was also very specifically contextual relating only to the delivery o f these program modules in the specific location o f this region o f the province o f British Columbia. Therefore, only portions o f this research are generalizable to other work place education programs. The numerical results and the specific comments belong to this offering o f this program. The implications for practice are generalizable to other adult 109 education opportunities. The recommendations are both specific and generalizable according to their identified audiences. Limitations The limitations o f this thesis research also fell into several categories: the response procedures, the definition o f change, and the meaningfulness o f the change. In terms o f response procedures, the survey was o f a voluntary nature, and was distributed in work place settings. The attrition o f staff and volunteers has been addressed in the Distribution section. The second limitation was that the survey asked for people’s perceptions o f their own change, rather than observing the change itself. Participants were asked to engage in self-refiection, and to provide honest responses based on their own self-knowledge and insight. Not all individuals are comfortable with self-reflection. The returned surveys certainly showed a great variety in the depth o f the responses. Some individuals chose to write lengthy, thoughtful comments while others chose to only complete the closed questions. While this limitation may have influenced the response rate and results, the process o f participation did add to the benefits o f the original participation in the program, thereby continuing the original goal o f strengthening social environments. The meaningfulness o f the change, as expressed by respondents in the survey process, needed to be analyzed and applied carefully. For the respondents who indicated that change has occurred, it must be noted that we can only apply this information in the context o f the staff and volunteers o f the health and social service agencies. In other words, we cannot extrapolate this to mean that 110 the individuals with and impacted by HIV/AIDS will therefore also have experienced changes in their experiences with agency staff and volunteers. It must be emphasized that this research does not speak to the experiences, past or present, o f individuals with/or impacted by HIV/AIDS. It was beyond the scope o f this research to address the impacts on the clients themselves. This research speaks only to the self reported experiences and self-perceptions o f the staff and volunteers who provide services to individuals with or impacted by HIV/AIDS. The survey's concluding section asked respondents to indicate if the workshops were useful to them in the work place and in their personal lives. These results were quite strong as 79.7% said the workshops were useful for work, and 63.9% indicated the workshops were useful outside o f w ork. This is a stronger response than a similar but related earlier question set, and presents a bit of a contradiction. The results o f previous questions asked if participants thought o f the workshops while at work (50.7% said yes) and outside o f work (50.8% said yes). While the two questions sets differ slightly, they are related. One can surmise that since the process o f learning in adults builds upon previous knowledge and experience, the addition o f new knowledge or changes in attitudes can sometimes occur subconsciously. Adults may internalize information without consciously recognizing this process. Therefore, the respondents may have been able to acknowledge that the workshops contained relevant and useful information but not necessarily be able to specifically identify the application to either work or personal situations. A potential second factor lies within the process o f completing a survey. Some respondents may have carefully considered each question and taken the time to think through and record their thoughts. Others may have quickly written their responses and not had or taken the time to reflect on each question. The third factor has been discussed previously: the length o f time since participation in the workshops has affected the conscious memory o f the workshop content and impact. Some I ll respondents indicated that it was difficult to recall specific information after the passage o f time since participation. Regardless o f the speculations regarding the difference in the results o f the two questions, the respondents have strongly indicated that the workshops were useful to them in both their work and their personal lives. Suggestions for Further Research The thesis research “AIDS/HIV Education for Work Place and Personal Change” has examined the impacts o f participation by health and social service agency staff and volunteers in a work place educational program. This research has shown that the participation has resulted in significant changes in knowledge, and some changes in attitude and actions. The research leaves a number o f areas for further exploration and possible research questions; a) Do people with/impacted by HIV/AIDS report changes in health or social service agencies? b) Have individuals with/impacted by HTV/AK)S benefited from changes in staff/volunteers? c) What are the attitudes o f health and social service agency staff towards the client groups before the workshops, immediately following the workshops, and at six month and one year intervals following the workshops? d) How can retention o f knowledge be improved? e) How can changes in attitudes and actions be reinforced and encouraged? f) What are the barriers to creating attitudinal and behavioral change? 112 In adult learning situations, each individual brings a unique history o f educational experiences, family environment, religious participation, personality and many other factors. It would be interesting to explore, via a qualitative approach, the following questions: g) What are the components in the workshops, and what are the personal factors which resulted in positive changes in a select few individuals in knowledge, attitudes and behaviors? h) What are the components in the workshops, and what are the personal factors which resulted in negative changes in a select few individuals in knowledge, attitudes and behaviors? Recommendations The "HIV/AIDS Education for Work Place and Personal Change" research has resulted in insights into the changes in knowledge, attitudes and behaviors among past participants o f the "Reducing Barriers by Building Partnerships" workshop series. The conclusions and implications for practice have solidified the findings and translated them into a path for the future. The following recommendations provide specific direction to three categories: the field o f adult education and training, the area o f health and social service agency organizations and specifically those whose primary function is addressing HIV/AIDS, and the specific organization AIDS Prince George. Adult education and training I) It is recommended that organizations planning and implementing adult education or training opportunities ground their approach theoretically in the principles o f andragogy. The diversity o f 113 the adult learner demands that their uniqueness be considered philosophically, strategically, and practically. 2) It is recommended that organizations planning and implementing adult education or training include the opportunity for transformational learning theory where appropriate. 3) It is recommended that any implementation o f a multiple-module educational program give careful consideration to the encouragement o f participants to complete the full series. Given the unique needs and schedules existing in today's work place, this may involve creative management o f workshop scheduling and ongoing repetition o f the offerings o f various components. It is recommended that usage o f current technology be improved to address these scheduling and public relations needs. Health and social service agencies, specificallv HIV/AIDS organizations 4) It is recommended that the "Reducing Barriers by Building Partnerships" educational program be considered for implementation in communities throughout British Columbia and Canada. As the module content and the presentation style are both critical components in the effective realization o f the goals o f the program, it is recommended that they be emulated in any new offering o f this workshop series. AIDS Prince George 5) It is recommended that AIDS Prince George further develop the component of, and understanding o f advocacy within the "Reducing Barriers by Building Partnerships" program. Given the implications o f Social Learning theory, and the ongoing possibilities for change, this will strengthen the overall impact o f this educational program. 114 6) It is recommended that AIDS Prince George implement a process to follow up on the number o f past participants who did not complete the module series, in order to ensure that the maximum impact o f the educational program is achieved. 7) It is recommended that AIDS Prince George develop strategies to inform the community o f the results o f this research, to consult with the community on the implications o f this research, and consult with the community on the future development o f the "Reducing Barriers by Building Partnerships" educational program. Summarv This thesis research was a wonderful opportunity to investigate an existing educational program. The program is strongly grounded in theory, strongly supported by its developers and host, strongly supported by the body o f past participants, and now strongly documented through this research. The "Reducing Barriers by Building Partnerships" program exemplifies a successful work place educational initiative. 115 BIBLIOGRAPHY AIDS Prince George (1999). Reducing barriers bv building partnerships: Participants manuals Modules One through Five. Prince George, B. C.: AIDS Prince George. Babbie, E. (1983). The practise o f social research (3rd ed.V Belmont, CA: Wadsworth Publishing Co. Campbell, K. N. (1999). Adult education: Helping adults begin the process o f learning. AAOHN Journal 47. (1), p. 31-41. Collins concise dictionary (3rd ed.). (1995). Aylesbury, Eng: HarperCollins Publishers. Cranton, P. (1998). Transformative learning: Individual growth and development through critical reflection. In Learning for life: Canadian readings in adult education. 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New York, NY: McGraw-Hill Inc. 117 APPENDICES Appendix A Reducing Barriers by Building Partnerships Modules and Descriptions Appendix B Survey Appendix C Survey Covering Letter Appendix D Question E-b: Attendance Explanation Appendix E Question 1-b: Thoughts at Work Regarding Learning Appendix F Question J-b: Thoughts outside o f Work Regarding Learning Appendix G Question M-a-2: Changes at Work Regarding Discussion o f (Client) Groups Appendix H Question M-b-2: Changes at Word Regarding Provision o f Services Appendix 1 Question M-c-2: Changes at Work Regarding Advocacy Appendix J Question N-b: Changes in Work Place due to Staff Participation Appendix K Question O-a-2: Changes in Personal Life Regarding Discussion o f (Client) Groups Appendix L Question O-b-2: Changes in Personal Life Regarding Advocacy Appendix M Question P: Most Liked Aspects o f Workshops Appendix N Question Q: Least Liked Aspects o f Workshops Appendix O Question R-b: Usefulness o f Workshops in Work Place Appendix P Question S-b: Usefulness o f Workshops in Personal Life Appendix Q Question T : Other Comments Regarding the Workshops 118 Appendix A REDUCING BARRIERS BY BUILDING PARTNERSHIPS MODULES AND DESCRIPTIONS The following lists the titles and subsequent learning objectives for each o f the "Reducing Barriers by Building Partnerships" modules. A) HlV/AIDS 101: Upon completion you will: 1. Understand the significance o f the acronyms HIV and AIDS. 2. Know how HIV is transmitted and understand the components o f the Transmission Equation. 3. Know the components of the HIV Continuum and how the infection progresses fi’om HIV to AIDS. 4. Be able to state how to protect yourself from HIV infection B) The Impact o f HlV/AIDS on Those Infected and Affected: Upon completion you will be able to: 1. Identify and respond to common emotional reactions o f individuals infected and affected by HIV/AIDS along the HIV continuum. 2. Recognize the physiological manifestations o f the virus along the HIV continuum and be able to respond to the effects o f these health problems on accessibility o f service. 3. Respond to the needs o f those infected and affected by HIV/AIDS who are experiencing grief, loss, and the necessary preparations for anticipated death by exploring your own feelings and thoughts around these issues. 119 Appendix A continued C) Homophobia. Heterosexism and HIV/AIDS: Upon completion, you will have: 1. Explored the basis for your own sexuality and your values about sexuality. 2. Explored your personal feelings and attitudes about sexual orientations different from your own. 3. Examined how the stigma o f homophobia creates barriers which affect interactions with people living with HIV/AIDS and their significant others. D) HIV/AIDS and First Nations People: In this workshop you will; 1. Examine the effects o f colonization on First Nation health. 2. Begin to understand the multiple losses experienced by First Nations people and how these losses relate to increased risk o f HIV infection. 3. Examine how culture could shape the delivery o f service to First Nations people living with HIV/AIDS. E) HIV/AIDS in a Diverse Community: Upon completion you will: 1. Understand the concepts of diversity and marginalization. 2. Examine your assumptions about others, what you base these assumptions on, and how they affect your interactions with others. 3. Practice techniques that challenge habitual assumptions. (AIDS Prince George, 1999) 120 Appendix B Reducing Barriers by Building Partnerships AIDS/HIV EDUCATION W ORKSHOPS Participant Survey DEMOGRAPHIC INFORMATION A) Please check off the Building Partnerships modules which you attended: Module Attended? Module I (Mod-1) HIV/AIDS 101 Module 2 (Mod-2) Impact of HIV/AIDS on Those Infected & Affected Module 3 (Mod-3) Homophobia, Heterosexism, and HIV/AIDS Module 4 (Mod-4) HIV/AIDS & First Nations People Yes No Module 5 (Mod-5) HIV/AIDS in a Diverse Community B) Please check the year that you LAST attended a Building Partnerships module: Year (check one) 2000 1999 1998 1997 1996 Don't know 0) Please place a check mark beside your gender: Female_ Male D) Please write in your current age: E) Please place check marks b eside your attendance options (in both a and b questions). a) Mandatory attendance OR Voluntary attendance_____ b) Paid attendance time OR Non-paid attendance time OR other (explain)____ 121 Appendix B continued KNOWLEDGE: This section explores the amount of learning that occurred. F) Please place a check mark in the square that rates the amount of knowledge you learned in each of the Building Partnerships modules. Module Mod-l)AlDS/HIV10l Mod-2) Impacts o f AIDS/HIV Mod-3) Hotnophobia/Heterosex Mod-4) First Nations Mod-5) Diverse Conminity None Very Little Uttle 1 Medium Lots j 1 G) As a result of taking the module, do you feel there have been ch an ges in the amount you UNDERSTAND about the situation of any o f the client groups (listed below)? Please check the amount of change._______________________________________________________________________ None iVlodule Mod-1) Individuals with HIV/AIDS Mod-2) Families/friends o f ...... Mod-3) Gay and lesbian people Mod-4) First Nations people Mod-5) Other marginalized/diverse people Very Little Uttle Medium Lots 1 ATTITUDES: This section asks vou about anv chances in attitudes or beliefs that mav have occurred. H) A s a result of taking the module, do you feel there have been ch an ges in your ATTITUDES towards the situation of any of the client groups (listed below)? Please check the amount of change. Lots more negative Module Mod-1) Individuals with HlV/AlDS Mod-2) Families/lriends of..... Mod-3) Gay and lesbian people More negatlw About the same More positlw lAts more positive Mod-4) First Nations people Mod-5) Other marginalized/diverse people I) Have there been tim es at work when som ething has happened which made you think about what you learned or talked about during the Building Partnerships w orkshops? a) Y es. No b) If Yes, then please write down what happened/what you thought about (write in a general way: please do not include confidential client/staff information) 122 Appendix B continued J) Have there been tim es outside of work when som ething has happened that made you think about what you learned or d iscussed during the Building Partnerships workshops? a) Yes_ No b) If Yes, then please write down what happened/what you thought about. K) Have there been changes in your own CONFIDENCE level in working with individuals (in the client groups) a s a result of your participation in the Building Partnerships workshops? Please check the amount o f change. Module Mod-1) Individuals with HIV/AIDS Mod-2) Families/friends of..... Mod-3) Gay and lesbian people Lots less confidence Less confidence About the same More confidence Lots more confidence j j Mod-4) Fiist Nations people Mod-5) Other marginalized/diverse people BEHAVIORS 8J0R ACTIONS: This section asks about any possible changes in your behavior or actions both within and outside of your work place. L) Do you feel there have been changes in the amount of EMPATHY that you demonstrate when you are working with any of the client groups (listed below)? Please check the amount. Lots less IVlodule Mod-1) Individuals with HIV/AIDS I Mod-2) Families/friends of..... Mod-3) Gay and lesbian people Mod-4) First Nations people Mod-5) Other margmalced/diverse people i Less About the same More Lots more M) Have you noticed any changes in the way you carry out your work in any o f the following areas...? a) The way in which you d iscu ss any o f the (client) groups with co workers 1) Yes_ No N/A 2) Please comment (please write in a general way: do not include confidential client/staff information) 123 Appendix B continued b) c) The way in which you provide services to the clients/groups? No______________ N/A___ 1) Yes_________ 2) Please comment (please write in a general way: do not include confidential client/staff information) The amount of advocacy you do for/with any of the clients/groups: 1)Yes ___________ No___________ N/A__________ 2) Please comment (please write in a general way: do not include confidential client/staff information) N) Have you noticed any changes in your work place a s a result of staff member participation in the Building Partnerships workshops? No__________ a) Yes_________ b) P lease com m ent (please write in a general way: do not include confidential client/staff information) 0 ) Have you noticed any changes in your personal lives (outside o f work) in any of the following areas...? a) The way in which you d iscu ss any of the marginalized (client) orouos ? 1) Yes___________ No__________ 2) P lease comment: b) The amount o f advocacy you do for/with any o f the marginalized (client) orouos? 1) Yes___________ 2) Please comment: No__________ 124 Appendix B continued CONCLUDING COMMENTS: This section asks you some general questions about the Building Partnerships workshops. P) What did you like the MOST about the Buiiding Partnerships w orkshops you attended? Q) What did you like the LEAST about the Building Partnerships w orkshops you attended? R) Were the Building Partnerships workshops usefui to you in your workpiece? a) Yes___________ No__________ b) Piease com m ent (please write in a general way: do not include confidential staff/client information) S) Were the Building Partnerships workshops helpful to you for situations outside of your work place? a) Yes___________ No__________ b) Please comment: T) Are there any other com m ents that you would like to make about the Building Partnerships workshops? THANK YOU for taking the time to fill in this survey-------- PLEASE place your completed survey in the envelope/box described in this survey’s covering letter. Thanks 125 Appendix C Reducing Barriers bv Building Partnerships HIV/AIDS Education Workshops Survey Covering Letter Dear Survey Participants: This covering letter will give you a brief overview of the research "HIV/AIDS education for work place change”. I hope you will take a few minutes to read this information, and then fill out the attached survey. My name is Christine Jam es. This survey is my thesis research for my Masters in Education degree at UNBG. I wanted to do a project that would be helpful to the community, and I am very interested in training that is related to our work places. The purpose of this research is to find out if your knowledge, attitudes, beliefs or actions changed after you took part in any of the “Reducing Barriers by Building Partnerships" workshops offered by AIDS Prince George. Everyone who took anv of the modules is asked to please fill out this survey. It is being distributed to all of the health or social service agencies that encouraged their staff to take these workshops. Your participation is CONFIDENTIAL, ANONYMOUS, and VOLUNTARY. The only people that will see your survey are myself and my committee at the University. The surveys will not be looked at by staff at your agency or at AIDS PG. Please do not discuss your survey with anyone else, as it might influence their answers. This survey will take you 10-20 minutes to fill out. Please fill in the survey question areas that relate to the modules that vou have taken. Whether you have taken one or all five of the workshops, your comments are still needed. The questions ask you to think about the course, and to give us your thoughts on how the workshops affected you. This survey will help to understand what (if any) changes have occurred within people, within your workplaces, and within our community as a result of the Building Partnerships workshops. Have they m ade a difference? If so, what? If they haven’t, then we also learn from your answers. Please fill in this survey by: ______________________________________________________________ Please put your completed survey in the brown envelope (marked AIDS/HIV Education Survey) that is I will analyze the results, and send out a summary copy of the research information to your agency/work place. You will also be welcome to view a copy of my thesis in the library at UNBC next year (hopefully II), or contact the AIDS Prince George office a s I will also give them a copy of the completed thesis. For further information, please feel free to contact me (Christine Jam es) at: (Home phone) 250-962-8645 (e-mail) CLJames@telus.net If you have any questions about this research, please contact the Chair of UNBC Education, Dr. Paul Madak at 960-5555. If you have any concerns or complaints about the research, please contact the Office of Research and Graduate Studies at UNBC, phone: 250-960-5555. THANK YOU FOR YOUR PARTICIPATION IN THIS SURVEY III! 126 Appendix D Question E-b: Attendance Explanation Hospice training (paid) by agency Recommended (attendance) paid and unpaid Both-attended on days worked/days off Total: 5 responses 127 Appendix E Question I-b: Thoughts at Work Regarding Learning Staff feel prepared re precautions (general conversation) Wearing gloves all the time We face situations on daily basis in which we have to use our knowledge o f social issues & the skills to provide the support and understanding that people need to get through difficult situations. It is difficult to point out at a one situation in particular. Sexual health, resources & testing, symptoms - identifying How to comment when negative comment made regarding First Nation people, homosexuals were discussed That we do not have specific policies in place in regards HIV/AIDS. It seems many in our workplace do not want to discuss issues impacting on HIV ie. Racism, homophobia, etc A negative response/amusement with tact taken - everyone is homophobic & racist Attitudes of some human/social service workers/professionals towards marginalized groups-lack o f understanding about systemic discrimination Switching from mugs to disposable cups to cut back on cold & flu germs that could put clients who are infected HIV &/or AIDS at risk Not specific story but it makes me stop to think about my values so I can provide a more non-judgemental service Just questions re: how HIV is contacted Being able to pass on the knowledge gained (using the resource material) to staff if questions arise Client questions When clients divulge the fact to me that they have to be diagnosed with AIDS/HIV or Hep. I thought- I'm glad I had the training as am better informed to their situation. Requests for bed covers for night sweats. Transportation for Vancouver counselling sessions Uninformed comments from other staff .Joint mtg with participants & AIDS Society. When participants request assistance with items not usually requested (frequency) Requests for finances for needs previously not adequately understood Medical professionals using word "contamination" Do not touch or go near person. Very uneducated as to the transmittal o f HIV/AIDS. Also numerous professionals don't understand the difference between HIV &AIDS - How can people be uneducated in this day & age? I'm sure there has been times @ work something has happened, but the workshop was 3 yrs ago. I think we all think about things we learn from the workshops we attend. We need more education & workshops I paid more attention in general to handling blood. More aware o f the risks Have not had direct patient contact (hands on) In working w/a client who had just been diagnosed I used what I had learned about what the impact/grieC'stigma was for that person & examples given in helping deal w/feelings & social judgements Attitudes o f myself and others Knew someone with HIV - more understanding Work together to achieve a common goal How great to see so many community members in attendance I am more aware o f making judgements about how some contracted AID/HIV Better understanding o f IV drug users & the issues that arise w/their rigs when shooting - also don’t hold back from giving out needles when doing needle exchange program I work in a Health Unit as a Public Health R N I test for HIV. It helped me be more open & aware o f the higher risk activities & diverse people I come in contact with I felt more comfortable & confident when interacting with high-risk youth, in particular one individual who suspected that she may be HIV positive On a regular basis -with clients 128 Appendix E Continued Very important to disinfect the dishes, wear gloves when changing bandages, do A needle-stick injury to self (Lancet) could have been from one o f five people - thought about the consequences of worst scenario - reaction from other staff if I had contacted HIV Total: 33 responses 129 Appendix F Question J-b: Thoughts outside o f Work Regarding Learning Can’t remember Speaking o f STD's & HIV-someone made a comment o f it just being a "gay" disease ! was shocked Discussing information w/friends who are also front line professionals & frnding out that many have misinformation. I have loaned my modules out on many occasions When topic came up in conversation was more assertive about cutting off negative talk In Amnesty International work with Gay Pride parades other Gay related events in the region When discussing the Gay & Lesbian lifestyles & how AIDS PG AGGRESSIVELY “promotes the gay lifestyle” by teaching that sexual behavior & lifestyles are not different than anyone else's. And should be accepted. This is pushed big time Listening to people use homophobic & racist language. How some people in larger community still see HIV as a "gay disease or punishment for immoral behavior" Ran across homophobic people & tried to change their opinions Same as above Same as I A general discussion about contraceptives with friends Probably Discussion with own children Not worrying about physical contact w/'"street"people. Having a daughter w/a condition had more impact on my understanding & empathy Same as 1 b While working in food distribution (voluntary) services the issue has arisen. Questions about risk Uninformed or rude comments, racial, sexist jokes etc-I leave or speak up stating I don't agree or appreciate or want to hear that Discussions with people about perceptions relating to people with HIV/AIDS When some "friends" heard where 1 volunteered ,they asked my husband "Aren't you worried she'll bring AIDS home?" These "friends" are fairly educated, hold fairly high positions in the community, & I was appalled at their reaction at first, then I proceeded to education them with the right type of info on HIV/AIDS The people who live in neighbourhoods near Queens way (particularly children) where prostitution and drugs are prevalent In both scenarios, the 1 thing I learned was how sexuality is more o f a spectrum than black & white straight/bi/gay/lesbian. This helped my general understanding of many who are in between these points. Otherwise I didn't feel I learnt a lot. Based on my attitudes before the course Info that ink bottles used in tatoos should be changed between clients, needle change is not enough. Info that HIV test may not show positive until up to 6 months past exposure. In speaking about HIV/AIDS w/someone who was judging with no awareness o f facts. I used words/examples the instructor had used in our modules (I passed on booklet to person) Attimdes o f my self and others Don't pass judgements as above Generally...! have become a more inclusive/open-minded person. A close friend revealed his sexual preference, & I think I was more open minded An overall greater understanding of those people marginalized by society Increased empathy & understanding o f an individual's plight with HIV. I did not know this person directly, however, I was familiar w/his spouse Friend with Hep C - precautions he is taking to protect his (family...) in his care - re: cleanliness practise - use of bleach, sharing o f razor, toothbrush: Discussion/education with this individual Total: 31 responses 130 Appendix G Question M-a-2: Changes at Work Regarding Discussion o f (Client) Groups Yes in general concern, re HIV transmissions If HIV is present I bring it forward as a piece o f the work We have a fairly aware workplace w/lots o f discussion. We're sensitive regarding marginalization. As well we are a feminist organization. We carry out discussion w/the same amount of empathy & awareness as before the BP workshops Increased confidence in approaching subject o f HIV/AIDS and what may be perceived as supportive vs not supportive interventions By being better informed I am able to discuss the situation & ask more informative questions I share the information learned with co-workers who are working with HIV individuals or couples Have explained 'truth' vs. myth that come out in conversations Hasn't changed as a result of this workshop I have always been careful about confidentiality and shared information I have always tried to advocate on behalf o f ALL o f my clients - wherever indicated I think we all have a better understanding & therefore can now speak with knowledge & not from assumptions I orient new & existing staff-it helped Expressed more confidence in my ability to work with, and if possible, relate to the client Have always supported clients regardless o f health issues I am very open minded about clients etc Being able to make others aware o f the issues that impact people's life and the choices they are able to make with the knowledge they have- Being so aware o f people's needs & share that with others before judgements take place. Total; 17 responses 131 Appendix H Question M-b-2: Changes at Work Regarding Provision o f Services Just that my information on AIDS is more correct Perhaps increased comfort, confidence client groups/volunteer service people seem to ask educative questions that I answer & can provide direction for more info/ services More caring A clearer understanding has helped me be more empathetic 1 feel 1 gained more of an understanding as to what the client faces, so I would be able to work with the client in a more nonjudgemental way,to deal with what faces them, instead of focusing on the horrible disease. Use more empathy with client and family 1 consider myself to be empathetic and work diligently in my care delivery Same as above. I have more confidence in what I am speaking about NEEDLE EXCHANGE CLlENTS.l do not feel 1 have to give needles on a 1-1 basis. If someone only brought in 2 needles & wanted 10 needles- that's OK 1 am more aware o f my own body language- how I ask questions etc- more sensitive to their experiences Obtained a better understanding of the resources available, at the local level, therefore able to provide the best possible treatment for the client Hard to remember. We have used universal precautions since day 1- however staff may have relaxed in attitude re:stigma attached to individuals ??'? Being more empathetic, less critical o f their choices- More supportive- More focused on the need to teach peopleKnowledge that will help them increase their choices. Giving information in a fun way. Also using the modules to give clients small pieces o f information over time for learning that meets their learning needs Have a greater knowledge base More empathetic More aware o f making services more accessible HIV/AIDS has never been an issue. We treat them the same as any other client. We have always had open discussions on the topic Total: 18 responses 132 Appendix I Question M-c-2: Changes at Work Regarding Advocacy Easier to talk with people about HIV and AIDS as I feel I know more 1 always advocate for clients This has not changed for me 1 grew up with 1st Nations people & I did a research paper on HIV/AIDS in university so my knowledge & acknowledgement level was probably OK before the course More calls to community agencies We try to do relative to family need Not my job Connecting people to other supportive systems A strong belief in advocacy has always been an active part of my work w/families In general conversation Especially with staff I do this anyway, their HIV status is not a factor in this We were strong advocates before the training. We have always been conscious o f helping to give voice to persons who are marginalized in our society. Our clients are a marginalized group Not r/t this workshop Perhaps more response to questions of service providers and low (no) health risk in providing food (volunteer work) But not in the sense o f legal advocacy or as an associate at a meeting Able to explain need better & necessity of item required 1, at one point requested a specialized caseload for persons living with HIV/AIDS I am part of an AIDS support/Ed group & have also been involved in developing many community events about HIV/AIDS Total: 17 responses 133 Appendix J Question N-b: Changes in Work Place due to Staff Participation More knowledge & comfortable More understanding coworkers I think that initially staH' in general are more aware &om what they learn. People remind each other to use gloves more than we used to I admired those who admitted & confronted their issues over homophobia. It took courage in todays’ political climate. Those from my workplace who went probably weren't the ones who had the most homophobia issues. I'm not sure who attended. I suggest nursing staff would benefit from these work shops Using universal precautions more Knowledge o f issues helps the work team work in consistent manner with our clients More awareness and '’sharing? See previous page (Needle Exchange program a t ) Increased knowledge & confidence among my co-workers. This created a more supportive atmosphere for both clients & myself (when in need of a second opinion or someone to "vent" to) Everyone seems more open minded More awareness- Less fear- More empathetic A better more accurate knowledge base Brought us closer as a result o f shared experience Greater understanding & knowledge. Less prejudice More empathy Most o f staff still do not want to talk about issues of marginalization Most staff members were not pleased with the training contents Regarding accessibility! More knowledge base Greater comfort level with clients, knowledge, topic But I do think some people may be more comfortable as they are no longer misinformed as to the dangers etc of working with those who may be affected More awareness o f conversation & who might be around Initially.. One co-worker acknowledged his inappropriate vocabulary around clients. For a brief time there appeared to be some awareness A bit less o f off-colour joking Many coworkers resented tone o f 1st Nations component- felt (agency...) &workers were being attacked- therefore ears were shut & important info not internalized Total: 28 responses 134 Appendix K. Question O-a-2: Changes in Personal Life Regarding Discussion o f (Client) Groups Stop people from judging others when they don't have the "whole picture"- Be more empathetic More understanding & empathy Way less politically incorrect comments &/or jokes More understanding Has crossed over to my volunteering Amnesty International work Have always been respectful 1 find I advocate for people more (in informal settings) I'm less tolerant o f homophobia & with persons who "blame" HIV/AIDS on the homosexual community. I didn't tolerate it before, but now I'm more likely to give voice to my feelings s/a Advocate Not just this workshop but a combination o f learning Yes, as mentioned above in volunteer work that provides food to people Share HIV information with friends/family Easier to help stop 'myths' etc.... When people make assumptions, or judgements, I address the underlying issues that people may be uneducated too Over the last few years I find myself trying to educate people I come in contact with, because I find most people very stuck on old beliefs Let people in my life know about what 1 learned 1 speak with knowledge & therefore pass on what 1 have learned to stop stigma o f stereotyping. Less prejudice Absolutely- the biggest change in fact I almost never let a negative statement re: HIV/AIDS, gays/lesbians/IDU's etc go by without "gently" commenting on a more generous point of view Total: 20 responses 135 Appendix L Question O-b-2: Changes in Personal Life Regarding Advocacy Wish we could do more, however resources dictate Do not really advocate but have personal friendships with members o f some o f mentioned people 1 still do the same in regards my work see M) c same as above General comment: Received in depth training in social work program at university that addressed marginalized groups, radical strucniral social work, oppression etc thought the workshops re-afrlrmed my beliefs and attitudes- from before Knowing the history, ie. Aboriginals, you can begin to understand why they may be there ,as well as how the systematic marginalization is embedded into our society, and everyone deserves equality Like I said before I have advocated for clients for a long time. That is part of my job As above. People judge out o f ignorance. I just pass on what I learned. My suggestion to all is to take modules Well yes in my work. I have had to address HIV/AIDS issues at many levels- the street to the Board Room. Total: 10 responses 136 Appendix M Question P: Most Liked Aspects o f Workshops I learned that I was homophobic & didn't believe I was Shared info in a relaxed atmosphere that encouraged participation [ enjoyed the knowledge from experts & the chance to examine my feelings. Tolerance is not necessarily a good thing Open atmosphere exposing o f myths taboos Nothing How issues o f racism & homophobia are brought forward Meeting people in the community Education. Good facilitators Putting condoms on woodies Values - Beliefs- systems- Self-disclosures- how it brought people together Information was given in fun with demonstrations & interactive exercises A lot of good discussion was generated. I liked the high interactive environment immensely Openness Group discussions Can't remember Basic easy to understand info Openness of the facilitators The health related information, the impact of HIV/AIDS on people in contact with someone infected General format Resource material. Provided a good knowledge base re: meaning o f acronyms, transmission, protection & definitions Raising issues to awareness. Increased understanding o f what is supportive, what to ask, how to ask, when to listen Education & Direct dialogue around topics many individuals don't discuss Participatory The information I received Facilitator knew the subject It was a rehash o f previous info & knowledge HIV/AIDS fact content Very informative-gave good perspective o f how discrimination, the disease etc affects people we work with It was presented in a clear way that made it much more understandable The way it was presented allowed me to see where I needed work because my values & beliefs play a part in how I analyse & then work with my clients Learning with coworkers The kind o f interaction with other staff (positive) coming away from the workshops feeling good & having learned. Opportunities to explore issues. It was open, personal & not guarded. It was pretty nitty gritty. That was good. Discussions with colleagues. Factual information about the illness The discussion with my colleagues Good discussions & participation. Worthwhile program for public education, nursing staff etc. I think social workers are generally aware- or I would hope so Presenters were very knowledgeable and able to field questions well The facilitators were so knowledgeable & would answer any/all questions The amount o f information that was presented & how it was presented. The 1st Nations workshop as a real "eye" opener The humanness & realness o f facilitators and the knowledge they shared Did similar workshop previously and good to get a refresher The intimacy and sharing Interactive All o f the individuals from this community coming together to increase knowledge Difficult to recall- individuals who were positive, sharing their stories 137 Appendix M Continued Community support Listening to First Nations person with HIV speaking The female native HIV+ individual who talked very openly about her life with drugs & HIV P. Geo. Staff excellent! We had 80+ people attend & almost all stayed the full 2 days. Great for our community It was a flm, informative workshop- lots of participant involvement Very informative Content on marginalized people was thought provoking The facilitators were excellent. They maintained a warm and pleasant attitude despite the weary topics Participatory Very informative, getting alone with others Straight up casual yet informative and interesting Good Instructors - humour, were at ease with the group - good participation from group Total: 58 responses 138 Appendix N Question Q: Least Liked Aspects o f Workshops N/a N/a The thought that we were asked if OUR attitudes towards homosexual people had changed. I think most peoples' beliefs are well entrenched & as long as everyone we affect is treated with respect & consideration- no one can ask anyone to change their attitudes or beliefs I would have liked to participate in all five modules Nothing A slight condescending auitude towards certain groups (eg. Church) - There should be no labeling of other beliefs Can’t remember Having to articulate the groups' work to others The p First Nations workshop That I didn't have the opportunity to take all the workshops-1 was away on LOA Length. 6 - 2 hour sessions Nothing The section on homophobia thought the (perceived) goal of exercise reached a little high. Education does not always bring ACCEPTANCE. Felt that class mates who expressed tolerance but not acceptance were being told they were phobic The fact that the workshop commenced with an exercise that indicated/ accused all participants as homophobic/racist Although recognize difficulty o f doing so with professional/community colleagues- would have liked more emphasis on People confronting/acknowledging bias/ prejudice The section that had us look at identifying with an ethnic group. For 3rd generation and beyond Canadians this can sometimes be impossible to do I appreciated it all Not enough time to discuss the issues that came up I would like AIDS PG to come to my workplace for workshops A large part appeared to be attempted political indoctrination Don't remember Nothing comes to mind Having S parts may mean people are unable to commit for the entire series & so miss out on info N/A all e.xcellent 1 can not think o f anything. Maybe there could be more about how to effectively counsel our clients 2 very snowy days! Hurrah for the PG AIDS society for coming Nothing Not really applicable in work setting or with client population Nothing. I was VERY satisfied. Somewhat repetitive N/A Would have liked more instruction with dealing with AIDS clients in community setting ie. LTC more education in the medications The First Nations woman went off on a tangent about the injustice o f residential schools. Yes, but I didn’t do it to you Total: 33 responses 139 Appendix 0 Question R-b: Usefulness o f Workshops in Work Place Important information for professional development due to client group we work with More understanding from more knowledge All o f the above comments Accurate & current information. Simple booklets for reading Not at this time Not in concrete ways as much as perception The principles of understanding a marginalized group are broad In education us re issues around AIDS Made us realize that we need separate policies regarding HIV. Also brought forward how much work needs to be done on the "isms" in our place Interesting to listen to different ideas We see a wide variety o f people here & encouraging use of condoms Not particularly. It did not expand my knowledge nor change how I viewed the issue Reinforced extant understanding & knowledge- updated statistical info They were useful & enjoyable however I didn't find that they had a lot of new information Added to knowledge base A good review/update in some areas & learned new info in other areas At the time they increased my knowledge More current info- easily accessed Good for staff to get knowledge, ask questions in a safe environment Many people did not seem to know the basics o f universal precautions...how HIV is contacted etc I am the financial controller & do not have an active role with the client base Increased knowledge & awareness Good series. Raised awareness. Saw variety o f views etc. in my workplace For co-workers Ensured we all had a similar base o f info Being better informed gives me a much better understanding & seems to make the client a little more comfortable when They realize I know something o f what they are dealing with. Very informative Great review o f info already aware. Reinforced should not be fearful of ?people? with Partially- good and relevant info was negated in parts due to "accusatory " tone Knowledge. Comfort- increased with understanding As stated previously, it made me more aware o f some o f the issues these people face on a daily basis More education/knowledge = more understanding I can't remember much o f what we did, its been a long time. I remember using info from workshop afterwards, in my Workplace & feeling good about it. Have clients with HIV. We do not have as many as we should I appreciated receiving current medical information about HIV/AIDS Could have been Not particularly- though interesting They answered a few o f my concerns As I deal w/ HIV/AIDS people & with people who live lifestyles that put them into contact with this, the understanding gained from modules helps me deal with issues arising Bring a refocusing on the issues when dealing with my clients and for my own safety First Nations info was very helpful Reinforced many of the positive things that we do at the Health Unit. Reinforced networking for HIV in our community As 1 have already said Provided me with more information to teach/share with my volunteers They could be if we as a hospice group were to encounter HIV/AIDS clientele 140 Appendix 0 Continued Better understanding of how HIV/AIDS affects people As stated in previous answers Greater understanding o f issues-broader knowledge base helps to know what to look for & pay attention to with clients Total: 48 responses 141 Appendix P Question S-B: Usefulness o f Workshops in Personal Life Provide me with more info for people who don't know or understand (eg. It's NOT only gay people who get HIV) Discussing w/fnends & family as many have misinformation or unnecessary fears from lack o f accurate information Am more discerning as to what info I pass on As above See above re Amnesty International work, understanding o f gay/lesbian acquaintances I have discussed the teachings of AIDS PG with friends & family members & the slant that is portrayed by AIDS instructors & the filthy graphic comment made by them I had been doing education in moments already Again, educating people who know little Same as above See R It helped me to better articulate my feelings & beliefs when I've come across intolerant/ignorant people Pass the info on to others Unsure 1 can speak more specifically my knowledge is not hearsay Not really. 1 had informal information on AIDS so I had a base o f knowledge to start with Increased knowledge and awareness Volunteer work Same Good info on HIV/AIDS to share with children Same as above So 1 had educated information that 1 could pass on to family, friends and others Things we teamed at the workshops were useful in many settings and gave you things to think about Understanding o f people in general. Also a great place to send growing children for sex ed. If it comes better from a 3rd party ! 1 did not require consciousness raising or a change in my values and beliefs 1 only was able to attend the introductory presentation, but it gave a good overview Personal understanding & explanations. Passed on to my children and grandchildren Can always use the awareness it brings Just for the general knowledge But not to the same degree as in my former workplace. This is due to my exposure to high-risk clients For educating others Just reiterated what I already knew. I’m empathetic and understanding and open-minded. Total: 31 responses 142 Appendix Q Question T: Other Comments Regarding the Workshops Are they still being offered? These workshops are vaiuable-they didn't significantly impact my knowledge/skill base only because I have previously done HIV/AIDS training, First Nations, & Sexuality/diversity/unleaming racism work etc (F*):To clarify- It's not that the modules weren't informative, its just that I already knew a lot o f it. This does not mean that it wouldn't be more effective for the majority o f people with a lesser knowledge base. Excellent information given in an open way Very good Enjoyed the workshops & feel they were/are worthwhile for our community. It's too bad we can't educate others/general public in our community as well Without participating in all modules 1 don't think 1 should comment Useful information The workshops were very good 1 liked them 1 believe the workshops should be offered on ongoing basis for people who didn't have the opportimity to take them before- & for people just getting in the field A very worthwhile course. Recommend it highly 1 appreciate the chance to take part No About how it is normal to be gay and everyone should embrace their lifestyle: ABNORMAL { table G*) AIDS PG mandate seems to be acceptance o f the gay lifestyle, & if you don't, YOU ARE THE ODD ONE OUT. Should try teaching AIDS education-where-how-what. It was a disgusting experience for me & many others who left the modules or never returned. Problem is they left with more negatives then when they started. I was already aware of this issues & information. I had been involved in an AIDS service organization before so there was little change for me Excellent ! Knowledge, understanding = Less discrimination & fear No I think that these type o f workshops should be mandatory for all workers-medical, helping profession, general public, because there are many uneducated people & they FEAR HIV/AIDS & they act accordingly (M-a*) Confidentiality is utmost for clients that have HIV/AIDS, so it was/is imperative to monitor what I would discuss with coworkers (not so much), the helping professional (especially) due to the reaction if they connected client with agency It has been so long it would be nice to be refreshed to some degree on these (B-year*) Please note: although I have been told that I attended the workshop, I have little recollection, therefore am unable to fill in the survey with any degree o f accuracy or insight This workshop was over 3 years ago. Very difficult to remember specifics (G*) I don't believe my understanding has changed. I have always had an appreciation o f groups listed from S.W. perspective I took this course in April 1997, fortunately I found my old notes to jog my memory otherwise I think the time lag before evaluating it has been too long to ensure people can remember what they learned. I also was able to attend only one session I would just like to say the people who facilitated our training were great & I think follow up modules if possible would be o f great benefit to all agencies. Sorry but its been too long and my memory isn't as sharp Cannot remember workshop/very little Yes- so much time has passed since- lots o f influences since then Difficult to recall workshop. Lots o f education/experiences since '98, various influences Can't remember content. Have done lots o f reading re:HIV/AIDS as well. Have been to other HIV/AIDS workshops, can't remember if knowledge is from this workshop or others attended over the last 2 years. (K) don't work with this client group Great workshop! Well done! Thank you! *(A)I can't recall but maybe (MOD-S) was incorporated into the first 4 sessions. 143 Appendix Q Continued I was impressed by the amount o f information that was covered-& would be interested in attending the modules I missed It’s been many years since I've taken the workshops but the info. Learning has stuck with me (unlike many other workshops). It was well done (F*) I have a lot o f previous knowledge due to involvement in workshops in BCCW & Aurora Treatment Centre for Women Total: 37 responses