1 THE EXPERIENCES OF REGISTERED NURSES CARING FOR PEOPLE WITH SUBSTANCE USE DISORDERS IN EMERGENCY DEPARTMENT SETTINGS by Gwen Keeler B.A., University of Victoria, 2002 BScN, British Columbia Institute of Technology, 2006 THESIS SUBMITTED IN PARTIAL FULFILLMENT OF THE REQUIERMENTS FOR THE DEGREE OF MASTER OF SCIENCE IN NURSING UNIVERSITY OF NORTHERN BRITISH COLUMBIA December 2017 © Gwen Keeler, 2017 ii ABSTRACT Substance use is a phenomenon affecting over 250 million people worldwide, with approximately 27 million people identified as living with a substance use disorder (SUD). This research study addressed the question “what are registered nurses’ experiences caring for people with SUD in Emergency Department settings?” A qualitative descriptive methodology was used in the investigation which consisted of semi-structured interviews with 13 Registered Nurses recruited from three Emergency Departments within northern British Columba. Data was analyzed thematically and three major themes emerged: People with SUD in the Emergency Department; Organizational Barriers to Care and; Beliefs and Attitudes. This research provides insights into the challenges that nurses face caring for people with SUD in the Emergency Department setting, the need for education and resources aimed at improving outcomes for people with SUD, and the varying attitudes and beliefs that nurses hold regarding SUDs and people with SUDs, and how these impact care provision. iii Table of Contents List of Tables ............................................................................................................................. vii List of Figures ........................................................................................................................... viii Glossary...................................................................................................................................... ix Acknowledgment and Dedication .................................................................................................. x Chapter 1: Introduction and Background ........................................................................................1 Background ..............................................................................................................................2 Language and Stigma ............................................................................................................3 Definition of Substance Use and Substance Use Disorder ........................................................5 Diagnosis. .........................................................................................................................6 Incidence of Substance Use Disorders ....................................................................................7 Global incidence. ...............................................................................................................7 National and provincial incidence. ......................................................................................9 Incidence in northern BC.................................................................................................. 11 SUD and the Social Determinants of Health .......................................................................... 13 Social Impact of Substance Use............................................................................................ 14 Access to Care .................................................................................................................... 16 Role of ED and ED Nursing ................................................................................................. 18 Role of the ED................................................................................................................. 18 ED nursing. ..................................................................................................................... 18 Context and Purpose............................................................................................................ 19 Chapter 2: Literature Review ....................................................................................................... 21 Review Methods ..................................................................................................................... 21 Stage One: Development of the Search Strategy .................................................................... 22 Electronic databases and search terms. .............................................................................. 22 Stage Two: Preliminary Review of the Literature .................................................................. 23 Stage Three: Focused Review of the Literature...................................................................... 24 Stage Four: Analysis and Reporting...................................................................................... 24 Literature Review Findings...................................................................................................... 25 Personal Attitudes and Beliefs about SUD ............................................................................ 25 Emergency Department context. ....................................................................................... 25 iv Canadian context and RN specific context. ........................................................................ 29 Pain management in SUD................................................................................................. 32 Literature reviews. ........................................................................................................... 35 Multidisciplinary studies. ................................................................................................. 37 Summary. ....................................................................................................................... 42 Interpersonal Relationships .................................................................................................. 44 Summary. ....................................................................................................................... 52 Organizational Factors ......................................................................................................... 52 Summary. ....................................................................................................................... 58 Overall Summary ................................................................................................................ 58 Chapter Three: Methods .............................................................................................................. 60 Study Design .......................................................................................................................... 60 Selecting a Methodology for Qualitative Inquiry ................................................................... 61 Philosophical Foundations ....................................................................................................... 63 Ontology and Epistemology ................................................................................................. 63 Ontology. ........................................................................................................................ 64 Epistemology. ................................................................................................................. 64 Situation of Self. ................................................................................................................. 65 Role as RN. ..................................................................................................................... 65 Role as an educator. ......................................................................................................... 67 Method................................................................................................................................... 68 Sample ............................................................................................................................... 70 Recruitment..................................................................................................................... 70 Inclusion criteria. ......................................................................................................... 71 Exclusion criteria. ........................................................................................................ 71 Data Collection and Analysis ............................................................................................... 73 Data Collection................................................................................................................ 73 Data Analysis. ................................................................................................................. 75 Ethical Considerations ......................................................................................................... 77 Trustworthiness................................................................................................................... 78 Chapter Four: Findings ............................................................................................................... 81 Theme One: PWSUD in the ED ............................................................................................... 81 v Beliefs about the Role of the ED and the ED RN ................................................................... 83 Challenges of Providing Care. .......................................................................................... 85 Wanting to do the Right Thing. ............................................................................................ 88 Theme Two: Organizational Barriers to Care ............................................................................ 92 Preparedness ....................................................................................................................... 92 Formal and informal preparation. ...................................................................................... 93 Barriers to education. ....................................................................................................... 98 Knowledge deficits and consequences. .............................................................................. 99 Resources and Supports ..................................................................................................... 102 Theme Three: Beliefs and Attitudes ....................................................................................... 110 Personal Beliefs and Attitudes ............................................................................................ 110 Patient and Provider Interface ............................................................................................ 116 Interpersonal Interactions. .............................................................................................. 116 Summary .............................................................................................................................. 122 Chapter Five: Discussion........................................................................................................... 123 Nurses’ Experiences of Caring for PWSUD in the ED ............................................................. 123 PWSUD in the ED ............................................................................................................ 124 Wanting to Do the Right Thing .......................................................................................... 126 Organizational Barriers to Care .............................................................................................. 128 Preparedness ..................................................................................................................... 128 Resources and Supports ..................................................................................................... 131 Beliefs and Attitudes ............................................................................................................. 134 Patient Provider Interface................................................................................................... 136 Stigma. ......................................................................................................................... 136 Recommendations for Education, Policy and Practice, and Research ........................................ 139 Education ......................................................................................................................... 140 Policy and Practice ............................................................................................................ 140 Research ........................................................................................................................... 142 Strengths and Limitations ...................................................................................................... 143 Conclusion ........................................................................................................................... 145 References ............................................................................................................................... 147 vi Appendix A.............................................................................................................................. 162 Appendix B .............................................................................................................................. 165 Appendix C .............................................................................................................................. 166 Appendix D.............................................................................................................................. 175 Appendix E .............................................................................................................................. 177 Appendix F .............................................................................................................................. 178 vii List of Tables Table 1: Participant Demographic Information…………………………………………81 viii List of Figures Figure 1: Progression of Analysis…………………………………………………………...76 Figure 2: Summary of Themes………………………………………………………………82 ix Glossary Compassion Satisfaction Describes all the positive feelings that people derive from the act of assisting others. This can be linked to a caregivers’ experience of job satisfaction (Sacco, Ciurzynski, Harvey, & Ingersoll, 2015). Critical Care It is defined as the specialized care of clients with life threatening conditions. These clients require comprehensive care and constant monitoring. This kind of care usually takes place in an Emergency Department or an Intensive Care Unit depending on their needs (Critical Care Services Ontario, 2015). Dual Diagnosis A term used to describe people with severe mental illness and concurrent substance use disorder (Anderson, 2004). Person First Language Emphasis is placed on the person rather than the issue thus making sure that the diagnosis is not the defining attribute of the person suffering (Jensen, et al., 2013). Role Adequacy Having and having confidence in the knowledge required to carry out a role. (Loughran, Hohman, & Finnegan, 2008). Role Legitimacy Comfort in the knowledge that the role you hold has the right to address particular client needs (Loughran, Hohman, & Finnegan, 2008). Street Involved This term refers to varying degrees of homelessness including living outside or in unsafe, inadequate or insecure housing (Pediatric Child Health, 2013). x Acknowledgment and Dedication This journey has been a long one for my family in particular. They have been unfailingly supportive and I could never have done this without them. I wish to acknowledge their participation and sacrifices individually. My husband, Norman, has been a constant driving force for me; always pushing me to do more and encouraging me to meet my goals, while at the same time picking up the slack at home. In the moment, I was not always gracious, but I do know that without his love, support, and that push now and again, I might never made it. My children, Liam, Fiona and Nora, have been patient and forgiving of the sacrifices they have made in not having me at home much over the last year, and I promise them I will make up for it in spades over the next year. Finally, my parents, John and Meryl, mom and dad, they have looked after my children, fed me, listened to me complain, and supported me throughout this process. I will be forever grateful to them all and I dedicate this work to them. I would also like to acknowledge my supervisory team Dr. Davina Banner-Lukaris, Linda Van Pelt, and Dr. Linda O’Neill for the assistance they provided in creating this document. Further, I have had a multitude of support from my co-workers and friends throughout this process and they deserve an acknowledgment here as well. This really was an endeavor that was made possible by my village. 1 Chapter 1: Introduction and Background Substance use is a global phenomenon that is characterized by the precarious use of psychoactive substances, including alcohol or drugs (World Health Organization (WHO), 2015). It is estimated that over 250 million people worldwide have used substances, with approximately 27 million of those identified as living with a substance use disorder (SUD) (United Nations (UN) Office of Drugs and Crime (2015). SUDs are costly to the individual and society at large, and are linked with wider social impacts including increases in communicable diseases such as Human Immunodeficiency Virus (HIV), drug-related crime, and health care costs associated with hospitalization for substance related health issues (Public Health Agency of Canada, 2013). Thus, SUDs impact not only the individuals who suffer from SUD, but also the communities in which they live (Rhodes et al., 2006). Mental health and addictions (MH&A)-specific health care services are designed to assist people with SUD (PWSUD) to manage their conditions. However, MH&A services in British Columbia (BC) are limited, particularly in rural and small urban settings such as those communities located within the Northern Health Authority (NHA) region (Bellringer, 2016). The disparity of services in these regions, coupled with current drug policy, which makes the procurement and use of certain controlled substances illegal, results in PWSUD experiencing difficulty accessing health care and social services related to stigma and fear of legal consequences (Bellringer, 2016; British Columbia Ministry of Health, 2009; Browne, 2010; Controlled Drugs and Substances Act, 1996; Fischer, 1995; Ford, 2010). For those with limited access to health care, emergency departments (EDs) are often a first point of entry into health care. Within these settings, patients are cared for by an interdisciplinary team 2 including physicians, respiratory therapists, social workers and nurses. However, little is known about the experiences of health care providers delivering care to this population. This qualitative descriptive study responded to this gap in knowledge by exploring Registered Nurses’ (RNs’) experiences of caring for PWSUD in ED settings. This research took place in three EDs located in the NHA. It uncovered the insights of frontline ED nurses and highlighted the challenges and opportunities that exist when caring for PWSUD. Gaining insight into the experiences of RNs within the ED is crucial and will provide vital data to support the development of effective health care services to improve patient care and enhance the experience of providing care for RNs within the ED. This study was guided by the question: What are the experiences of Registered Nurses caring for people with substance use disorders in an emergency department setting? The following sections will explore SUDs in more detail and will provide a background to the research. Background Substance use is a costly and resource-intensive phenomenon that is associated with not only individual impacts but also larger social impacts such as increased cost within the health care system, greater cost within the judicial system and social costs at both the individual and community level (Public Health Agency of Canada, 2013; Rhodes et al., 2006; WHO, 2015). While the rate of SUDs worldwide has remained more or less constant, the incidence is increasing over time and more individuals are negatively impacted due to the ever increasing world population (UN Office of Drugs and Crime (2015). In northern British Columbia, access to specialized care for PWSUD is limited geographically and thus PWSUD must sometimes utilize ED services to meet their health needs. A recent study stated that in the United States, up to 4% of all ED visits could be attributed directly to SUD and that 33% 3 of ED clients have SUD as either a primary or secondary diagnosis (Cooke, 2017). The purpose of this research was to examine ED nurses’ experiences of caring for PWSUD. In order to contextualize the research, I will present an overview of the definitions and impacts of SUD and provide a description of the ED and ED nursing. However, I will first begin with an introductory discussion of the language used in this research because great lengths were taken to use language that did not reinforce the stigma already associated with substance use and SUD. Language and Stigma SUD has been widely studied from many perspectives including, but not limited to, the biophysical study of SUD, the societal impacts of SUD, and the attitudes and beliefs held by health care professionals about SUD and PWSUD (Benyamina et al., 2010; Broyles et al., 2014; Buxton, Tu, & Stockwell, 2009; Ford, 2010; Orna, Yuferov, & Kreek, 2012; Smith, 2012; UN Office of Drugs and Crime, 2015; van der Woerd, Cox, Reading, & Kmetic, 2010; Wakeman, 2017; Xuei et al., 2008; Zhao, Vallance, Martin, Macdonald, & Stockwell, 2012). However, substance use is a highly controversial and stigmatized topic; when stigma is not addressed directly it can have detrimental effects on the stigmatized group. Language exerts a powerful influence over the way societies think about their environments and how individuals think about themselves (Broyles et al., 2014). If not carefully considered, language can have a negative impact on societal perspectives surrounding substance use and the potential for treatment and recovery from substance use (Broyles et al., 2014). With that in mind, the labels necessary to explore RNs’ experiences of caring for PWSUDs have been carefully chosen; a person first approach to language has been identified as the most 4 appropriate and least stigmatizing descriptor (Wakeman, 2017). The aim is to use language that is free of judgment and that does not perpetuate existing negative stereotypes. A variety of terms have been used to describe SUD in the literature. These include, but are not limited to: substance abuse, substance misuse, drug abuse, illicit drug/substance abuse, and problem drug/substance use. Recent changes in medical diagnostic language have occurred in the Diagnostic and Statistical Manual of Mental Health Disorders Fifth Edition (DSM-5) to address stigmatizing labeling. However, the changes have not yet been incorporated throughout the health care system in BC and beyond. In the interest of supporting de-stigmatization of substance use, the person first approach will be taken in identifying those with substance use disorders with the phrase people with substance use disorders in this study. This phrase discourages the use of labels, such as addict or user, that denote the person as the problem and encourages respect and dignity for the individual as more than the disorder they live with (Jensen et al., 2013). People with substance use disorders is a less value laden term and also highlights the medical/psychiatric nature of the illness (Broyles et al., 2014). It is important to note that although addiction is still an accepted diagnostic term that is used in public institutions and programs, there are significant implications of its use including perpetuation of stigma and potentially deterring PWSUD from accessing those services (Jensen et al., 2013). Furthermore, there will be no distinction made between dependency and abuse. Rather, SUD will be considered a continuum which encompasses any substance use that has negative health and social outcomes (Health Officers Council of British Columbia, 2005). The word recovery will be used to describe the processes used by PWSUD to improve health, 5 quality of life, direct their own health care experiences, and to strive for wellness however that is defined by the individual (Jensen et al., 2013). While every effort has been made to use person first language, the language choices of the participants in this qualitative research study have not been changed in order to both preserve the authenticity and credibility of the research process and to further highlight the real world attitudes, opinions and perspectives of RNs caring for PWSUDs. Definition of Substance Use and Substance Use Disorder The World Health Organization (WHO) (2015) defines SUD as “the harmful or hazardous use of psychoactive substances including alcohol and illicit drugs” (para. 1). In contrast, the Public Health Agency of Canada (2013) defines substance use simply as medicinal or non-medicinal use and specifies that it may be legal or illegal use. This is congruent with the American Psychiatric Association’s definition of SUD (American Psychiatric Association, 2013). The DSM-5 no longer differentiates between abuse and dependence but rather defines SUDs as mild, moderate or severe and bases the diagnosis on several factors including control, social impairment, high risk use, and pharmacological criteria specific to individual drugs, including alcohol (American Psychiatric Association, 2013). Once an SUD is established, there is a well-recognized set of behaviours that PWSUD begin to exhibit including “a strong desire to take the [substance], difficulties in controlling its use, persisting in the use despite harmful consequences, a higher priority given to [substance] use than other activities and obligations, increased tolerance and sometimes a physical withdrawal state” (WHO, 2015, para. 1). SUDs have been the topic of much controversy for decades. The American Society of Addiction Medicine has defined SUD as a “primary and chronic disease” (Smith, 2012, p.1). 6 It is presented as a two-pronged health issue related in part to the genetic makeup of an individual in conjunction with a set of physiological changes and some compulsive behaviours that occur with the use of psychoactive substances (Smith, 2012). Psychoactive drugs include prescription substances such as opioids and benzodiazepines, as well as controlled substances such as alcohol, marijuana, cocaine, methamphetamines, and heroin (American Psychiatric Association, 2013; Benyamina, Kebir, Blecha, Reynaud & Krebs, 2010; Health Officers Council of British Columbia, 2005). Smith (2012) suggests that SUDs result from an excess of dopamine in the midbrain that leads to damage to brain circuitry associated with the reward system, as well as systems associated with motivation, judgment, and memory. This disease process can be responsible for a wide range of physical, psychosocial, and spiritual expressions (Health Officers Council of British Columbia, 2005; Smith, 2012). While associations have been made concerning the determinants of health and substance use, there is also likely a genetic factor that plays a small role in increasing the risk for SUD (Benyamina et al., 2010; Orna, Yuferov & Kreek, 2012; Xuei et al., 2008). Diagnosis. A diagnosis of SUD is made based on the presence of various physiological manifestations and a cluster of behavioural characteristics that occur within a specific period of time, usually a twelve-month period (American Psychiatric Association, 2013). The physiological characteristics include increased tolerance to the substance or diminished effect with consistent dose of the substance, withdrawal symptoms related to disuse of the substance, and the inability to stop taking the substance (West & Miller, 2011). A table of commonly used substances, their short and long term impacts as well as withdrawal symptoms, has been included in Appendix A. In addition to the physiological characteristics, the behavioural characteristics of SUD include: increased time devoted to 7 activities related to getting, using or recovering from use of the substance; negative impacts on social life, work life or recreational activities; continued use regardless of knowledge of the negative physical and psychological problems associated with use of the controlled substance (American Psychiatric Association, 2013; West & Miller, 2011). An important aspect in diagnosing SUD is that the PWSUD must be aware of the nature of their substance use, and they must have tried to or expressed a desire to cease substance use (American Psychiatric Association, 2013; West & Miller, 2011). Management strategies for SUD can vary widely but generally appeal to one of two schools of thought: abstinence based approaches or harm reduction based approaches (Ford, 2010). The abstinence based approach embodies survivorship and heroism. This approach focuses on cessation of drug use and the prevention of relapse into continued substance use (van der Woerd, et al., 2010). Conversely, harm reduction programs focus on reducing the harms associated with substance use. Within this philosophy, there is no expectation of cessation of use but rather, a focus on safer practices related to substance use (Ford, 2010; van der Woerd et al., 2010). Incidence of Substance Use Disorders Global incidence. Although substance use is a global issue, estimating the precise rate of substance use is extremely difficult since many countries do not collect data or, among those that do, the number of people experiencing SUD is frequently underreported (Buxton, Tu & Stockwell, 2009; UN Office of Drugs and Crime, 2015). A key factor in this underrepresentation is the type of data collection methods that are typically used such as household surveys, which rely on self-reports of substance use. Furthermore, such approaches do not capture information from certain marginalized populations such as people 8 who live on or near the street (Buxton, Tu, & Stockwell, 2009). Likewise, the social stigma and potential legal consequences likely deter others from reporting controlled substance use. Most often, estimates of the rates of substance use are made using survey data along with more complex and indirect methods of measurement such as morbidity and mortality associated with substance use and the use of recovery programs (UN Office of Drugs and Crime, 2015; van der Woerd et al., 2010). Consequently, the true prevalence of substance use remains unknown. The United Nations (UN) Office of Drugs and Crime (2015) has collated all available information from across the globe to estimate the worldwide incidence of substance use. As previously stated, the estimate is that up to 27 million people worldwide are living with SUD. The substances of interest to the UN Office of Drugs and Crime were opiates, cannabis, cocaine, amphetamine-type stimulants, and new psychoactive substances (2015). Those identifying as living with SUD account for 5.2% of the population. Due to the lack of evidence from many countries, this is a conservative estimate. The UN ranks frequency of lifetime substance use in order of prevalence and, with the exception of alcohol, cannabis as the most used substance followed by opioids/opiates, cocaine, amphetamines, and ecstasy. While the global rates of substance use have remained stable, the number of people affected increases with the population, making this an increasingly significant global issue (UN Office of Drugs and Crime, 2015). Substance use, and in particular injection drug use, is estimated to be responsible for up to 40% of new cases of HIV and Hepatitis C Virus (HCV) worldwide, and there has been an increase globally of convictions for substance use related crimes (UN Office of Drugs and Crime, 2015). Furthermore, there are costs to the health and wellbeing of the individual PWSUD as well as to health care systems across the globe related 9 to overdose, both fatal and non-fatal, as well as other acute and chronic problems related to substance use (UN Office of Drugs and Crime, 2015; United States Department of Justice: National Drug Intelligence Centre, 2011). National and provincial incidence. Canadian rates of substance use have been estimated using the Canadian Alcohol and Drug Use Monitoring Survey (CADUMS) (CADUMS, 2015). The survey collects data on alcohol and substance use in Canadians aged 15 years and older. It addresses not only recent use such as in the last month or year, but also lifetime use of alcohol and controlled substances (Health Canada, Drug and Alcohol Statistics, 2014). This survey is used for both national and provincial estimates (Health Canada, Drug and Alcohol Statistics, 2014). The limitations of this survey in providing a true estimate of the number of PWSUD echo those faced by the UN; it is based on a telephone survey that relies on self-reporting and thus does not capture those who are street involved and does not use other forms of data such as hospital data on morbidity and mortality rates, to support the findings (Zhao, et al., 2012). Substance use in Canada, including the use of cannabis, cocaine/crack, amphetamines, ecstasy, hallucinogens, and heroin was reported at 11% in a 2011 CADMUS survey that measured drug use in the previous year (Zhao et al., 2012). Cannabis is by far the most used substance with 50% of the population having used cannabis at some point in their lives (Health Canada, Drug and Alcohol Statistics, 2014). Use of other substances occurred at such low rates in the general population that they were considered unreliable as data and thus, not included (Zhao et al., 2012). Conversely, a report prepared by the British Columbia Centre for Disease Control (BCCDC) compared substance use by the general population adults and adults living on or near the street and found that the substances of choice different 10 significantly between the two groups (Tanner et al., 2014). According to the BCCDC those living on or near the street are more likely to use crack, crystal meth, and heroin while those who use substances recreationally are more likely to use cocaine, ecstasy, and magic mushrooms (Tanner et al., 2014). This demonstrates that the estimated rates of SUD may not be well represented by surveys that exclude people who are street involved. Currently, BC is experiencing a fentanyl crisis in which overdose deaths associated with the use of fentanyl have increased significantly and thus, on April 14, 2016, a public health emergency was declared (BCCDC, 2017). Fentanyl is a potent opioid narcotic that has been used to treat pain in hospital settings. The British Columbia Coroners Service (BCCS) reported in May of 2017 that unintentional and undetermined overdoses, as the result of fentanyl use, have been rising since 2012 with the steepest increases occurring in 2016 and continuing into 2017. In 2016, approximately 61.8% of overdose deaths were related to fentanyl use (Office of Chief Coroner, 2017). While the highest incidence of overdose deaths occur in the Vancouver Coastal Health Authority region (22.2/100,000 in 2016 and 43.5/100,000 to date in 2017), in the NHA region, the overdose death rates were 17.8/100, 000 in 2016 and to date in 2017 are 14.7/100,000 (Office of Chief Coroner, 2017). The severity of the fentanyl crisis has brought SUD to the forefront of the minds of many people. The issue is not resolving organically and the risk for PWSUD is increasing. The safe injection site on Vancouver’s lower east side reported that approximately 86% of the drugs they test now contain fentanyl, sometimes unbeknownst to the PWSUD (Vancouver Coastal Health, 2016). This results in a higher risk scenario for people already engaging in risky behaviour. The need for increased awareness, resources and support for PWSUD, and the people who care for them is paramount. Because the resources in the NHA 11 region must be dispersed across a vast geography, RNs and other health care professionals must be very capable generalist practitioners. PWSUD in the north have limited access to specialized services, particularly in rural centres across the region (Bellringer, 2016). As a result, PWSUD may access care through other means including EDs which means that education and training for RNs working in the ED need to address best practices for the care of PWSUD. Incidence in northern BC. The NHA has been identified as having some of the highest rates of substance use in the province (University of Victoria, 2011). The commonly used substances in northern BC are crack/cocaine, marijuana, and methamphetamine (Tanner et al., 2014). The high rates of substance use can be attributed to a number of factors including the low average age of the population and the presence of many industrial camps (Northern Health, 2012). Additionally, 17.5% of the population of the NHA region identify as Indigenous. While being Indigenous does not equate to having an SUD, recent data highlights that there are discrepancies in the rates of SUD and other mental illnesses between Indigenous people and other residents of the north (First Nations Health Authority, 2014; Firestone, Tyndall, & Fischer, 2015). Explanations for this are unclear, but the differences could stem from disparities in the social determinants of health such as: poverty, unemployment, poor level of education and health literacy, housing challenges, human geography, and limited access to culturally appropriate health care (First Nations Health Authority, 2014; Firestone, Tyndall, & Fischer, 2015; Northern Health, 2015). Additionally, the ongoing impacts of colonization and the enduring intergenerational trauma could be a contributing factor to this discrepancy (First Nations Health Authority, 2014). For example, the negative impact of residential schools on survivors has been linked to ongoing social and 12 health issues (Paradies, 2016). These disparities, among others, have resulted in Indigenous populations being “five times more likely to be hospitalized due to psychoactive substance use” than other residents of BC with aboriginal youth being a population of particular concern (First Nations Health Authority, 2014; Northern Health, 2015). The NHA region has a population with a lower average age than any other health authority in the province (British Columbia Statistics, Population Estimates. 2015). Since the majority of PWSUD are in the age range of 15-35, this has an impact on the rates of SUD in this region (CADMUS, 2015). Younger people, particularly those who struggle as a result of disparities in the social determinants of health such as food security and safe housing, are at increased risk for initiating substance use and thus suffering from SUD (Bowen & Walton, 2015; Thomas, 2016). Social determinants of health have significant impacts on the overall health of northern BC residents demonstrated by poorer overall health rates when compared to the rest of the province (Northern Health, 2015). Furthermore, the NHA’s geographical region houses a large number of industrial camps with mobile and transient workforces (Northern Health, 2012). It is estimated that in 2012 there were approximately 1809 camps in the health authority but it is unclear how many were active and whether there has been any duplication in the estimate (Northern Health, 2012). They also vary in size from very large to smaller camps. Additionally, there were 38 current or anticipated mines within the health authority region. Due to the rapid population increases that communities often experience with resource based economies, the infrastructure to support the increased population, including those allowing for access to health care services, is often not present (Badenhorst, Mulroy, Thibault, & Healy, 2014). Depression, anxiety, and social isolation from both the worker’s, worker’s families, and the 13 surrounding communities can be considered as an aggravating factor for substance use (Badenhorst et al., 2014; Northern Health, 2012). The prevalence of SUD within work camps can be attributed in part to the culture of the camps; substance use is considered a normative activity for recreational time (Northern Health, 2012). Since many of the people working in camps are from elsewhere, they do not have readily available primary care and thus, utilize EDs for any health care needs including those associated with substance use. SUD and the Social Determinants of Health As highlighted in the previous section, the social determinants of health are evident as important factors and predictors of substance use as well as other adverse health conditions. The 14 social determinants of health include, but are not limited to, homelessness, unemployment or underemployment, trauma, education, childhood development, and familial and social structures; all have an impact on people with SUD related to the initiation of drug use and attempts to cease use (Galea, Nandi, & Blahov, 2004; Fischer, et al., 2005; Mikkonen, & Raphael, 2010; Tanner et al., 2014). For example, adverse living conditions result in increased physiological and mental stress on individuals, which in turn can give rise to coping mechanisms that may result in negative health outcomes (Mikkonen & Raphael, 2010). Coping mechanisms that can result in negative health outcomes can also include harmful health behaviours, such as substance use, tobacco use, and alcohol use. These behaviours may be aimed at decreasing the symptoms, for example the stress, of adverse living situations. However, these coping mechanisms and behaviours do not address the underlying source of stress, which may in turn lead to increased stress and a decreased ability to positively impact the social determinants of health, thus perpetuating the cycle (Mikkonen & Raphael, 2010). 14 Most important is the recognition that the social determinants of health are socially constructed and imposed on the individual by the community in which he or she lives (Mikkonen & Raphael, 2010). The individual may have little control or influence over the social determinants of health with many factors being “determined by decisions that governments make in a range of different public policy domains” (p. 7). The individual is the one who must navigate the social determinants of health to improve health at the personal level. This can be a daunting task and in order to make large scale improvements to the health and wellbeing of those who struggle, government level changes must be instituted. Social Impact of Substance Use Social costs associated with substance use include issues at the societal level such as drug related crime, increased incidence of communicable diseases, such as HIV and HCV, in addition to increased costs associated with hospitalization for substance related health issues (Public Health Agency of Canada, 2013). Currently, there is a strict drug policy in Canada (Canadian Drug Policy Coalition, 2013). Consequences for substance related convictions can range from probation and fines to up to a year in jail for possession of illegal substances and more significant consequences for trafficking (Enforcement, 2014). As a result, PWSUD are forced to acquire their substances through underground transactions and also to administer their substances in secret (Enforcement, 2014; Fischer, 1995). The requirement to hide substance use has a number of significant impacts on the individual, the community, and society as a whole, and can be linked to higher levels of crime. Substance use is directly related to 6.6% of all crimes in BC including crimes such as trafficking and procurement of controlled substances (Sorge, Buxton, Amlani, & Ishuguro, 2015). There is also a correlation between increased crime and 15 substance use. Crimes such as robbery, murder, prostitution, break and enter, and sexual assault have been associated with those under the influence of substances and other activities related to buying and selling controlled substances. (Tanner et al. 2014). Tanner et al. (2014) pointed out that it is very difficult to accurately estimate the true rate of crime associated with illicit substance use and that, according to the BCCDC, up to 40% of people incarcerated for crime have substance use issues. In addition to crime, SUDs are associated with a number of serious health conditions. For example, the increase in new cases of HCV and HIV has been closely linked with controlled substance use, in particular intravenous (IV) drug use. However, use of other psychoactive substances can increase higher risk behaviour such as unprotected intercourse resulting in transmission of HCV and HIV (Tanner et al., 2014). IV drug use is second only to men who have sex with men as the most common source of new infections of HIV and HCV (Tanner et al., 2014). Northern BC has the highest incidence of new cases of HIV associated with drug use next to East Vancouver and of HCV next to East Vancouver and Fraser East (Tanner et al., 2014). This translates into increased costs to the health care system for the management of these communicable diseases. For example, the lifetime cost of medications for a person with HIV is approximately $567,000. This number primarily covers the cost of antiretroviral drugs and hospital admissions for illness directly associated with HIV (Nakagawa et al., 2015). Similarly, in 2013, the NHA reported that 862/100,000 hospitalizations were the direct result of controlled psychoactive substance use in the form of mental health problems, injury and overdose, and issues listed as other (University of Victoria, 2017; Tanner et al. 2014). This does not account for people who presented to the ED and were discharged 16 without being admitted to hospital; this information was not available through the BCCDC for the NHA, however, Tanner et al. (2014) indicated that in Vancouver and Victoria the incidence of PWSUD presenting to the ED was higher than the admissions would indicate. In addition to hospitalizations, the literature further suggests that when accessing care, PWSUD tend to require more extensive treatment with a greater number of interdisciplinary health care providers compared to those that do not use controlled substances (Cenderbaum, Guerrero, Mitchell, & Kim, 2014). Access to Care In the context of this study, access refers to the access to health care and includes physical access, geographical access, access to culturally safe care, and availability of specific services. The obstacles that affect availability of services as well as accessibility for those living on the margins in northern BC must be clearly understood. These obstacles include vast geography, limited health care dollars that must be used efficiently, and the number of people living in rural areas with limited access to larger urban centres (Parker, Jackson, Dykeman, Gahagan, & Karabanow, 2012). The NHA covers 600,000 square kilometers of land and services approximately 300,000 people (Northern Health Authority, n.d.). Most communities within the NHA region are considered small urban, rural, or remote, with Prince George (population 94,000) as the largest urban centre located in the central interior health services delivery area (HSDA) (Statistics Canada, 2014). The northeast HSDA and northwest HSDA each consist of numerous rural communities that are relatively isolated from one another and, at certain times of the year, may be difficult to access due to the harsh climate (De Leeuw, Friske, & Greenwood, 2002). The largest community in the northeast HSDA is Fort St John 17 (population 37,495) and in the Northwest, Prince Rupert (population 13,274). Other rural communities in these regions may range from as few people as 303, upwards (Statistics Canada, 2014). While access to care is an issue for all people with SUD, northern BC has a number of additional barriers to accessing appropriate care in part due to the dispersed geographical region and due to the lack of ready access to specialized care. Given this vast geography and the distribution of people across it, health care dollars must be allocated in a way that maximizes service provision (Parker et al., 2012). This can make it difficult for people living rurally to access specialized care. Additionally, the unpredictable weather that northerners encounter for six to eight months of the year makes access to services even more difficult to obtain. As a result, new and imaginative ways of providing care to those who may be socially or geographically marginalized is necessary, and EDs have become part of the solution for clients to gain access to care. In northern BC, EDs are often a point of entry for PWSUD to access health care (Kennedy, Curtis, & Waters, 2014). EDs in the north vary in the level of care they can provide from Trauma Centres at University Hospital of Northern British Columbia (UHNBC) (Level III), Mills Memorial Hospital and Ft. St. John Hospital (Level V) to EDs that are not designated as trauma centres and thus treat clients with urgent and emergent care needs as they are able and transfer out those patients who have needs beyond the capacity of their departments (Trauma Association of Canada, 2012). RNs working in EDs across the continuum of care will provide care to PWSUD, therefore it is important to understand the intended role of the ED and nurses who work in them. 18 Role of ED and ED Nursing EDs are unlike any other health care setting in that they have client intake 24 hours a day and no client is denied service, “even when the hospital is at capacity” (Quattrini & Swan, 2011, p.40). Clients can present to the ED with illness and injuries that range in acuity from coughs and colds, to higher acuity complaints such as abdominal pain, chest pain, or trauma. In addition to the clients who present with urgent issues, the ED is also used as a portal of entry to the health care system for other patients who lack access to appropriate and timely primary care (Uscher-Pines, Pines, Kellerman, Gillen, & Mehrotra, 2013). Role of the ED. The purpose of the ED is to provide care to those that present with immediate health needs and then move people into areas where their health needs can best be managed on an ongoing basis; this might be admission to hospital or referral to communitybased services for care (Derlet, Richards, & Kravitz, 2001). As a result, professionals working in the ED “have no control over the type of patients who present for care, the pace of their arrival, or the acuity level” (Quattrini & Swan, 2011, p.40). Clients are typically unknown to the RNs and other health care providers and their ailments are commonly undiagnosed at admission, exposing ED nurses to an unpredictable clinical environment (Adriaensens, De Gucht, & Maes, 2015; Hosking, Considine, & Sands, 2014). ED nursing. RNs working in the ED must be able to care for each client’s physical, psychological and social health in a timely way (Kennedy et al., 2014). As a result, emergency nurses must be able to adapt quickly to changing situations and have a broad and varied knowledge base from which to draw when making clinical decisions. People experiencing SUD access EDs for a host of reasons including injury resulting from substance use, infections, mental health support, and other health issues related to, and 19 unrelated to, substance use. RNs working in EDs must be have knowledge related to the specific needs of people experiencing SUD and be skilled in the management of, what can be, challenging situations related to the complex needs of people experiencing SUD (Ford, Bammer & Becker, 2008). Context and Purpose The disparity of services specific to PWSUD, along with other health services and supports, became evident to me through my work as an RN in the ED at UHNBC. In my own nursing practice, I noticed that PWSUD commonly presented to the ED during situations of crisis in relation to their substance use. While their immediate and urgent needs would be addressed, clients were routinely left without specific plans for follow up or SUD treatment once discharged; this would leave them at risk for increased harm related to their substance use (University of Victoria, 2016). PWSUD require specialized care that spans not only acute care settings, but also community follow up care (Bystrek, 2010). Nurses in the ED are well situated to assist PWSUDs to access health care services (Kane et al., 2016). This is due to RNs’ frequent, and sometimes regular, contact with PWSUDs who access health care through the ED. With detailed knowledge of navigating the health care system, the availability of resources and the ability to refer clients to appropriate services as necessary, ED RNs could act as facilitators for PWSUD to access immediate and ongoing care (Kane et al., 2016). Discharge planning is firmly in the domain of the RN regardless of the area of practice and RNs must have the knowledge and ability to direct PWSUD to appropriate and timely resources upon discharge, as they would with any other patient (Sexson, Lindauer, & Harvath, 2017). The purpose of this research was to gain insight into nurses’ perspectives, their beliefs about their role in caring for PWSUD and what can be 20 done to support excellence in ED nursing care of those suffering with SUD. A review of the literature is presented in the next section to provide further context for the study and to provide an overview of the existing literature. 21 Chapter 2: Literature Review The use of substances, including controlled drugs, is creating significant challenges both in Canada and internationally. As health care services struggle to keep up with the demand, health care providers are further challenged to care for patients in the absence of accessible resources and supports. These challenges are further complicated in small urban and rural settings where access to appropriate services may be more limited and supports more sparse. Nurses working in the ED are commonly faced with the need to care for PWSUD typically in a crisis or emergent situation. However, it is unclear how nurses experience caring for those with SUD. The following chapter provides an overview and synthesis of the literature review methods. This provides an important contextual foundation to the research and was used to inform the development of the research study. First, an overview of the review methods and literature search strategy is presented, followed by the review of the findings. Review Methods An integrative review of the contemporary literature was undertaken to explore what is known about RNs’ and other health care professionals’ experiences, knowledge, attitudes, and beliefs toward people with PWSUD and SUD and how these attitudes and beliefs are formed. An integrative literature review approach is adopted here as a mechanism to critically appraise and summarize the existing evidence and to identify gaps and areas for further research (Fink, 2010). While this review methodology is not as rigorous as other highly structured reviews such as systematic reviews and metasyntheses, it allows for the inclusion of a diverse range of research literature from multiple methodological standpoints and can highlight important considerations and innovations from the practice setting 22 (Whitmore & Knafl, 2005). This integrative review was undertaken in four stages: 1) development of the search strategy, 2) preliminary review of the literature, 3) focused search of the literature and 4) analysis and reporting. The stages will now be presented. Stage One: Development of the Search Strategy The purpose of developing a search strategy is to ensure that an organized and thorough search of the literature is completed. An organized literature search allows increased understanding about the subject of interest and ensures that the key literature sources are captured and included. Organizing and documenting the search strategy allows the search to be replicated or amended as needed (Burns, Grove, & Gray, 2011). The purpose of this literature review is to inform the investigation of the research question: what are the experiences of Registered Nurses caring for people with substance use disorders in an emergency department setting? As part of the process of developing the search strategy, time was taken to select the most appropriate electronic databases and search terms for the review. Electronic databases and search terms. A comprehensive review of the literature was undertaken through the University of Northern British Columbia (UNBC) Library. Databases were searched to ensure the greatest breadth of literature was captured. Five databases were selected for this electronic search: Pubmed, Medline OVID, the Cumulative Index to Nursing and Allied Health Literature (CINAHL), PSYCHinfo and Science Direct. Selection of key words and medical subheadings (MeSH) was completed using a trial and error process. I originally intended to limit the search terms to identify literature specific to EDs, however this resulted in very few articles. The search terms were then expanded to enable a broader search of the literature. All databases were searched using the following MeSH or keywords: substance abuse (MeSH), substance use disorder (MeSH), illicit drugs, 23 harm reduction (combined with the Boolean Phrase AND), nurses, and experiences. When these keywords were combined using the Boolean phrase ‘AND’, they produced no articles in any of the five databases. In order to broaden the search, physicians, attitudes, beliefs, and views were added as keywords, and work experiences was added as a MeSH. Nurses and physicians were combined using the Boolean ‘OR’ as were experiences, views, attitudes and beliefs. These combinations were then combined with the MeSH substance abuse OR substance use disorder OR illicit drug use OR harm reduction using AND (see Appendix B for diagram). All keyword searches were undertaken using the keywords as major concepts and in the searches where appropriate, MeSH were used. MeSH were both exploded and searched as major concepts wherever able. Following the preliminary search in early 2015, 390 articles were identified from screening and preliminary review. Stage Two: Preliminary Review of the Literature Once the initial database search was completed, the articles were screened for relevance, duplicates removed and the remaining articles underwent a preliminary review according to the eligibility criteria. To be eligible for inclusion, the articles needed to be available in English, appear in peer reviewed journals, and contain subject matter that addressed nurses’ and/or physicians’ experiences, attitudes, views, and/or beliefs. Articles that were based on North American, European, or Australian populations were included due to their similarities to the Canadian context. Articles written prior to 2000 and those considered to be not relevant to the Canadian context or ED were excluded. Articles that explored nurses’ attitudes and perceptions of specific populations of PWSUD, such as 24 pregnant women and people in correctional facilities, were also excluded to increase the focus on SUD rather than characteristics of subpopulations of PWSUD. Stage Three: Focused Review of the Literature Using the inclusion criteria, 47 articles were selected at the screening stage. A further review of the abstracts was completed to narrow down the articles (32). The full text articles were then retrieved and critically appraised using the processes provided by Davies and Logan (2012) followed by a full text review resulting in a final cohort of 22 articles. An expanded review was taken of the final 22 articles during which I collected a variety of information about each article including the study design, the outcomes and measurements and the findings. These were amalgamated into a literature matrix (Appendix C). In the summer of 2017 the search was executed for a second time to identify new literature emerging from the field. This search resulted in the inclusion of six additional articles. Stage Four: Analysis and Reporting A total of 28 articles were critically appraised for content and then organized thematically. In 19 of the articles, the attitudes, beliefs and knowledge of health care professional related to substance use (Personal) were the focus, six articles focused on the impact of interpersonal relationships between the health care worker and the client in the health care setting (Interpersonal) and four articles addressed the importance of the role of organizational support (Organizational) in providing adequate care to PWSUD. The literature was appraised for its methodological strengths and weaknesses and the key findings identified. 25 Literature Review Findings Review of the literature yielded 28 articles that were selected based on the criteria provided above, and critically appraised. The analysis of the literature led to the identification of three major themes. These themes are personal, interpersonal and organizational perspectives. Personal Attitudes and Beliefs about SUD Personal perspectives emerged as an important theme in the literature relating to substance use. This theme included literature that described health care professionals’ attitudes, beliefs and knowledge about PWSUD, and providing care for SUD. Since the literature focused only on RNs was limited, literature that investigated the beliefs of other health care professionals has been included. Nineteen studies were reviewed and five are presented here in detail, as these were the most robust and relevant studies. The Kelleher and Cotter (2008) study was selected for its focus on the ED, the Chu and Galang (2013) was chosen for its Canadian context and the acute care setting, and the Morley, Briggs, and Chumbley (2015) study was included for its focus on pain management. Two literature reviews were included (Adams, 2008; Kelleher 2007) for their cumulative findings and finally, Mclaughlin, McKenna, Leslie, Moore, & Robinson, 2006) was reviewed in detail for its focus on multidisciplinary health care professionals. The remaining ten studies from the initial search and five from the subsequent 2017 search were discussed in less detail due to their similarities to the four primary studies. Emergency Department context. A single article, the Kelleher and Cotter 2008 study, is presented in this section. It was the only study identified that looked specifically at 26 the attitudes, beliefs, and knowledge of RNs in an ED setting. While a very small number of physicians participated in this study, the vast majority of participants were RNs. Kelleher and Cotter (2008) undertook a descriptive survey study to explore the knowledge and attitudes of ED doctors and RNs toward substance use and PWSUD. A modified version of the Substance Abuse Attitudes Survey was used to assess current and perceived levels of knowledge related to PWSUD and attitudes toward substance use and PWSUD. Further, the authors sought to understand health care providers’ perceived roles in caring for PWSUD as well as the frequency of interactions with clients who use controlled substances. A convenience sample of doctors (n=5) and RNs (n=61) were included in the study. Participants were recruited through managers and word of mouth from three university teaching hospitals in Ireland. The sample was primarily female, with a majority of nurse participants having less than 10 years of clinical experience. Most of the nurses in this sample (73.8%) had no specific training related to substance use and alcohol use; those that had received previous training (19.7%), received this through workplace in-services as opposed to pre-registration educational courses or as part of workplace preparation. Data were analyzed using the Statistical Package for Social Sciences (SPSS) including descriptive statistics to evaluate the characteristics of the study population and the attitudes of the health care professionals. A key benefit of this study was the use of an established tool where the validity and reliability had already been verified. For example, using Cronbach’s alpha test for reliability, they found that participants reliability was high (α = 0.77) particularly related to perceived competence (α = 0.86). Validity was analyzed using Pearson’s correlation and significant correlation between perceived and actual knowledge was demonstrated (r = 0.30; p = 0.018). 27 The analysis of the results of this survey showed that the majority of respondents believed that PWSUD were adequately managed in EDs however, a lack of services was identified as a key barrier to providing optimal care. Levels of knowledge were shown to be adequate, with the majority of respondents perceiving that they were moderately knowledgeable (95%) and competent (90%) in identifying SUD. 41.9% of respondents reported being “a little” competent and 43.5% reported good awareness of specialty services and referral processes. Further, perceived competence was also low with regards to brief interventions with 47.6% of respondents identifying as only a little competent. According to Babor and Higgins-Biddle (2001) a brief intervention can be done in a 5 -30 minute time span and is directed at motivating those with substance use disorders to reduce or cease use of substances. It is not usually directed at those with mild SUD, except to encourage people to access more intensive treatment. 93.7% of respondents agreed that ED health care providers had a legitimate role in the care of PWSUD. The attitudes survey in Kelleher and Cotter’s 2008 study in Ireland measured attitudes in five areas in terms of permissiveness. The majority of respondents held views consistent with an abstinence based ideology. An abstinence-based ideology focuses on the cessation of substance use and preventing a relapse back into substance use and is one of the two primary ideologies that guide the care of PWSUD (van der Woerd, Cox, Reading & Kmetic, 2010). They did however, show some increased levels of permissiveness with regard to cannabis. Respondents recognized the importance of early intervention as well as long term care for SUD. Most respondents agreed with treatment programs (87.6%) and lifelong abstinence (73.9%) as necessary to success in treatment. Despite this, respondents were overwhelmingly in disagreement with statements that demonstrated stereotypical representations of PWSUD. 28 However, only 55.6% disagreed with the statements that depicted PWSUD as unpleasant to work with. Interestingly there were no questions related to non-abstinence based treatments in the article. The key points made through Kelleher and Cotter’s (2008) research were that while ED doctors and nurses have nearly daily contact with PWSUD, they usually have little or no formal training in managing their care. These health professionals identified that the care of PWSUD is inadequate and cite a lack of available services as the primary reason. Finally, Kelleher and Cotter (2008) found that although emergency physicians and nurses in this study were not permissive of substance use, they displayed positive attitudes that aided in developing constructive, therapeutic relationships with PWSUD. Kelleher and Cotter’s (2008) study had some limitations. First, the assumption of an abstinence-based ideology was evident in the study. In limiting the questions to concepts that fit this ideology the research may have failed to capture other important data or perspectives. Second, the study was conducted using a small number of respondents (n=66) almost all of whom were RNs (n=61). The study was conducted in a single county in Ireland, in centres that were largely urban with teaching hospitals. Thus, transferability to other contexts, particularly rural settings, other jurisdictions, or countries may be limited. Third, the survey relied on self-report methods. It is not possible to know if these views are reflective of actual practices or if responses were be impacted by socially acceptable answering and poor insight into personal bias. However, the article does focus specifically on the ED environment and provides some key insights related to the training and support needs of health care professionals and represents the only article that provided this information. Finally, the 29 authors did not compare the demographic characteristics to the wider nursing population making it difficult to assess the representativeness of the sample. Canadian context and RN specific context. The review of the literature yielded only one study conducted in a Canada hospital (Chu & Galang, 2013). Other studies included in this section are used to support the findings of Chu and Galang, in regards to their findings of nurses’ attitudes, beliefs, and knowledge about SUD and PWSUD in an acute care setting. In the Canadian study by Chu and Galang (2013), the attitudes and perspectives of a convenience sample of 73 RNs toward PWSUD in a single medical unit in an urban hospital in Toronto were explored. Using the Drug and Drug Problems Perceptions Questionnaire (DDPPQ), a pencil and paper tool, they sought to collect information on job satisfaction, role specific self-esteem, role legitimacy, and role support in relation to caring for PWSUD. Participants were recruited using convenience sampling with a response rate of 73%. Similar sample characteristics to the Kelleher and Cotter (2008) study, where the sample was primarily female (90%) with an average of 9.3 years of nursing experience were found. The data collected using the DDPPQ survey was analyzed first by the researchers, by hand and then entered into SPSS where relationships between variables were assessed using chisquare, Pearson correlation and regression analyses. Significance was set with a p value of 0.05 due to the potential for type I error. Chu and Galang found that nurses held a basically neutral view of PWSUD. The average score on the survey was 62.5/140 which according to questionnaire norms, indicates the participants held neither negative nor positive views. The authors recognized that the results of this study differed from other similar studies, in which the participant views were more negative in nature, and that the results would be of limited generalizability due to the 30 single location of the sample. They associated the neutral attitudes of the nurses to the influence of the local culture of substance use on the health care system and the daily contact that the nurses had with PWSUD. There were several findings that made this study significant to this review. First, the study highlighted that lack of organizational support was a potential barrier to improving attitudes, beliefs and knowledge about PWSUD and SUD in addition to the lack of education and training in SUD issues. These findings were consistent with other studies captured in this review (Adams, 2008; Ford, 2010; Happell, Carta, & Pinikahana, 2002; Harling & Turner, 2012; Kelleher & Cotter, 2008; Lovi, & Barr 2009; Morgan, 2006). Second, the authors identified that contact with PWSUD may be an important variable for improving the therapeutic attitudes of nurses toward PWSUD. While the study has a number of limitations, including being undertaken in a single unit in a large urban centre and being reliant on self-report; it is the only study that has examined this issue in Canada. Furthermore, it highlights some of the broader organizational issues that help explain some of the challenges faced in managing this population. In a quantitative study of RNs from Australia, Happell et al. (2002), like Kelleher and Cotter (2008), used the Substance Abuse Attitudes Survey to assess the knowledge and attitudes of RN’s. Their sample consisted of RNs working in MH&A settings and they found that although the RNs tested as having adequate knowledge, their reported perceived knowledge was less than adeuqate. The analysis of the findings further identified that the participants did however, have more positive attitudes toward substance use and PWSUD than those in the general population of nursing. They also found that RNs were more likely than physicians to screen for substance use when assessing their clients. 31 Pinikahana, Happell, and Carta (2002) gave a modified version of the Substance Abuse Attitudes Survey to members of a Substance Use and Mental Illness Treatment Team (SUMITT) in Melbourne Australia. Thus, as in the previous study, the focus was MH&A professionals (n=173) from both rural and urban areas. No distinction was made in the results between rural and urban respondents. Interestingly, due to its focus on mental health professionals more of the respondents were male and 134 were RNs. The findings concurred with those identified by Kelleher (2007), in that the majority of the health care professionals demonstrated intolerance of substance use. They were however, optimistic that treatment is effective especially when SUD is identified early and appropriate ongoing care is provided. The two previous studies served to support the conclusion that overall, health care professionals have a demonstrated intolerance towards substance use. In the interest of understanding how nurses first develop their attitudes and beliefs about PWSUD, nursing students’ attitudes were explored in a study by Harling and Turner (2012). Using a qualitative approach, they looked at student nurses and their attitudes toward substance use u. They found that the students at one particular school of nursing in the United Kingdom (UK) had a low regard for substance use and that the influences on student attitudes originated in a variety of sources including personal experiences, societal norms, lack of formal education, and contact with working nurses who exhibited negative attitudes (2012). These findings are echoed in Ford (2010) where survey data from nurses were compared with that of the general public. How nurses’ attitudes develop is significant in that attitudes and beliefs will impact interactions between nurses and PWSUD and thus contribute either positively or negatively to the experiences of nurses who care for PWSUD. 32 Pain management in SUD. While many of the studies from the initial review of the literature assessed the general attitudes that nurses and other health care professionals held toward PWSUD, the subsequent review of articles, from 2014 to summer 2017, yielded 3 articles that were targeted at specific experiences such as the care of PWSUD in pain. A descriptive phenomenological study, by Morley, et al., (2015), examined United Kingdom nurses’ experiences of caring for patients with SUD who are in pain. This was conducted using a convenience sample of RNs from a variety of clinical backgrounds. The participants underwent semi structured interviews. The data from the interviews were organized into several themes including “patient characteristics,” “patient management,” “pressures and targets affecting pain management,” and “psychosocial factors”. While this study was limited to nurses caring for PWSUD in pain, this study lends some insight into the difficulties that nurses experience in caring for this group and the specific needs of this group. Furthermore, this study identified that the educational needs of the nurses are not necessarily being met, resulting in lower levels of care for those with PWSUD. Additionally, the participants in this study noted that PWSUD often have complex social backgrounds that need to be taken into account when planning care. Strengths of this study were that it was very ‘data-driven’ in that the description is rooted in the data, and the authors were diligent in reporting the methods used to ensure trustworthiness. Limitations were that the sample was homogenous in terms of gender and was recruited from a single geographical location (Morely, et al., 2015). In a grounded theory study, Morgan (2014) investigated the attitudes of American nurses caring for PWSUD with pain. The study was conducted using semi structured 33 interviews that addressed the difficulties experienced by nurses caring for PWSUD in pain, problems encountered in interactions with PWSUD in pain, and whether they agreed with a model that had been described by the author in a previous paper. The 2014 Morgan study included a sample of 14 participants, 12 female and two male RNs working in an urban public hospital. Once all the interviews had been completed a final interview was conducted with an expert in the field of addictions nursing. The author described how credibility, dependability, transferability and confirmability were managed throughout the process. The result of this grounded theory study was a model that described nursing attitudes toward patients experiencing SUD and pain (Morgan, 2014). The model described the two primary categories that affected the experiences and attitudes of nurses, these were labeling/not labeling pain behaviour and encountering barriers to the provision of care. These categories described the impact of the label drug seeking and the perceived barriers such as staffing patterns, level of acuity, contact with prescribers, policies, and lack of resources that nurses face in caring for PWSUD in pain (Morgan, 2014). The study also outlined some of the factors that contribute to the nurses attitudes toward pain in SUD. The contributing factors included the nurses own existing attitudes about both pain and SUD, patients’ pain behaviour and the impact of reacting to and understanding the patients’ behaviours. Ultimately this study provided insight into the educational needs as well as the need for further research to assist in improving nursing care for PWSUD who are experiencing pain. The study provides a good grounding in understanding what can impact the experience of nurse caring for PWSUD and pain, but much of this information can be transferred to any scenario where PWSUD are being cared for in a tertiary health care setting. 34 While the Morgan (2014) article and the Morely et al. (2015) article addressed nurses’ attitudes, Korkmyrdal and Andenaes (2015) conducted a study to evaluate nurses’ competence in managing the pain of people with opioid use disorder. The researchers collected a survey from a purposively selected sample in Western Norway. Their only inclusion criteria were that the participants be registered nurses and that they regularly worked with people with opioid use disorder. The researchers collected 98 surveys with a response rate of 54%. All were collected during a two week period in 2010. The surveys collected demographic data including whether the participants worked full or part time, had extra education or specialty training, years of experience as a nurse, and experience of caring for patients with opioid use disorder. Further to the survey, Korkmyrdal and Andenaes looked at nurses’ sources of knowledge, nurses’ knowledge and skills related to recognizing and evaluating pain and pain management as well as nurses’ attitudes about the lifestyles of people with opioid use disorders (Korkmyrdal and Andenaes, 2015). The data were analyzed using frequency analysis, sum scores and Spearman rank correlation. In order to investigate the impact of the different factors impact on competence, a multiple regression analysis was conducted. SPSS Statistics 19 was used for the analysis. The participants ranged in age from 22-54 years, and worked on two kinds of units: medical and orthopedics (37.7% and 65.3%, respectively). They had worked as nurses from 0-27 years. 64% had five years or less work experience as a nurse while 69% had five years or less experience with people with opioid use disorders. The vast majority of the participants felt confident in their ability to identify and treat pain, and evaluate pain management techniques (Korkmyrdal and Andenaes, 2015). 35 Experience treating the pain reported by patients with opioid use disorder was most closely correlated with competence. It was eliminated from the regression analysis (Rs = 0.32, p = 0.001). The results of this study demonstrated that most nurses felt they had inadequate levels of competence when caring for people with opioid use disorders and recommended increased educational interventions to address this. Krokmyrdal and Andenaes (2015) stated that “pain treatment to patients with [opioid use disorders] may be characterized as a complex task requiring a high level of competence” (p. 792). This was a cross sectional study which means that it is a snapshot in time and if it were conducted again, the results may differ. That being said, it brings to light the importance of learning about pain and the PWSUD, and the increased complexity of caring for this group in a hospital setting. Literature reviews. While Kelleher and Cotter (2008) analyzed ED nurses’ perspectives and Chu and Galang (2013) studied the perspectives of RNs on a medical unit, Adams’ (2008) literature review from the UK, like Happell et al. (2002), looked specifically at specialty health care providers; in particular MH&A nurses working with PWSUD. This literature review described the attitudes of nurses working with people with mental illness and other concurrent morbidities in a variety of settings. The study showed that, although regard for substance use may be higher than in the general population of health care providers, it was still low when compared with regard for other client groups such as those suffering from diabetes or heart disease. Interestingly, Adams (2008) found that those working in forensics had the poorest attitudes toward substance use and PWSUD in comparison with those working in other MH&A settings. This contradicts other studies which highlighted contact with PWSUD as the most predictive variable for the development 36 of positive attitudes (Chu & Galang, 2013; Kelleher & Cotter, 2008; Howard & Holmshaw, 2010; van Boekel, Brouwers, van Weeghel & Garretsen, 2014). Similarly, prior to the 2008 Kelleher and Cotter study, Kelleher (2007) undertook a literature review that reviewed evidence related to health care professionals’ attitudes toward PWSUD. Using the key words knowledge, attitudes, drug abuse, drug misuse and substance abuser, Kelleher searched five electronic databases as well as a number of governmental sites, finding 34 articles that were related to this topic. In contrast to the later study by Kelleher and Cotter (2008), the analysis of the articles, Kelleher (2007) found that health care professionals in general practice areas identified caring for PWSUD as difficult and unpleasant. Further, the findings revealed that societal attitudes toward SUD, which in general are quite negative, were also reflected in the literature relating to the attitudes of health care professionals. These findings were supported by the findings of Ford’s (2010) cross sectional study, which demonstrated that nurses’ attitudes in Australia matched fairly closely with those of the general population. Furthermore, Kelleher (2007) identified several papers that commented on the detrimental impact of negative attitudes toward PWSUD in terms of disengagement and avoidance of PWSUD on the part of health care professionals (Chappell and Schnoll, 1977; Fisher, Mason, Keeley, & Fisher, 1975; Lindberg, Vergara, Wild-Wesley, & Gruman, 2006). In Kelleher’s (2007) review, several studies were identified that explored the specific perspectives of physicians. For example, van Boekel, Brouwers, van Weeghel and Garretsen (2014) undertook a study of family doctors as well as MH&A specialists and found that there was generally a low regard for substance use; however unsurprisingly, attitudes were better among MH&A specialists. They found that the most influential variable to account for the 37 difference was frequency of contact with people with SUD. Similarly, Johnson, Booth and Johnson (2005) in their survey of physicians, found that generally, there was a low regard for PWSUD when compared with other client groups. As highlighted, the review was expanded to explore the perspective and attitudes of other health care providers, such as physicians. The findings are generally consistent with respect to provided perspectives of a lack of tolerance for substance use and low regard for PWSUD. Kelleher (2007) noted the paucity of literature related directly to emergency nurses and doctors and went on to address that gap in the body of literature. Due to the lack of nurse specific articles, Kelleher (2007) also focused on studies that evaluated the attitudes and knowledge bases of physicians and other health care professionals; the same has been done in this review. The following paragraphs will investigate physicians’ and other health care professionals’ perspectives to provide a more fulsome understanding of the attitudes toward PWSUD that exist within the health care system. Multidisciplinary studies. Kelleher’s 2007 findings were also corroborated by Raistrick, Russell, Tober, and Tindale (2008) who used a modified Alcohol and Alcohol Problems Perceptions Questionnaire (AAPPQ) to examine the perceptions of a variety of health care professionals. The AAPPQ was modified to include substances as well as alcohol. In this survey study, physicians were found to have the lowest regard for substance use. The authors found that health care assistants were the most tolerant of substance use and that RNs held intermediate positions. The findings of this study are interesting because those with the highest levels of education or responsibility had the least regard and those with the lowest level of education held the highest regard (Raistrick et al., 2008). 38 Mclaughlin, Mckenna, Leslie, Robinson and Moore (2006), examined the experiences and perceptions of a purposive sample of 32 Irish health care providers (including RNs, general practitioners, health visitors, social workers, health promotion workers and health centre managers) in relation to PWSUD. In this focus group study, participants were asked to share their level of experience and training with respect to PWSUD and to explore factors related to role legitimacy. The focus group interviews were transcribed verbatim and analyzed thematically using Burnard’s guidelines (Burnard, 1991). While some key themes were identified, the analysis of the findings revealed significant diversity in the attitudes and opinions held. Role legitimacy was identified as being particularly problematic. For example, some of the participants did not wish to have involvement with PWSUD and avoided education and training related to substance use for fear of being identified as an expert. No participant suggested that primary care was an appropriate setting for the care and treatment of this group. At the same time, education and training was identified as a barrier to providing care to PWSUD. There was general pessimism about the efficacy of treatment as well as a dehumanization or stigmatization of PWSUD as only being interested in involvement in their health care, “as long as they get what they want” (p. 685). McLaughlin’s et al. (2006) qualitative study lends a great deal to the body of literature in that it was able to capture conversations about health care professionals’ care of PWSUD. Furthermore, the number of participants was quite large for a qualitative study. Furthermore, focus groups have some limitations and some dangers in that a dominant personality or a person in a position of power can influence the conversation (Connelly, 2015). However, in this case, the themes were reiterated through six different focus groups 39 and reflected the findings of other related studies (Howard and Holmshaw, 2010). While the aim of the article states that the experiences of health care professionals were of interest, little in terms of actual care of clients was discussed. The focus of the McLaughlin et al. (2006) study differed from the focus of my research study, as my study focused on the experiences of RNs in EDs however, the McLaughlin et al. (2006) study offered some insights into the perspectives and experiences of health care providers working with PWSUD. This was a gap in the literature which my study has addressed. Similar to the McLaughlin (2006) study, in their 2010 mixed methods study, Howard and Holmshaw (2010) examined the barriers identified by multidisciplinary staff in the management of mental health clients who used substances. The participants were recruited from one assessment and admissions units, five mental health treatment units, and three residential mental health units in England. Of the survey participants, who self-identified to participate, ten interviews were conducted with individuals chosen to represent a cross section of the wider population. The Howard and Holmshaw (2010) study survey collected demographic data and also included DDPPQ. The interviews covered the experiences of health care professionals in working with people with dual diagnoses, team work, accountability and responsibility, support and professional training (Howard & Holmshaw, 2010). Participants were able to provide their views on barriers to the provision of care. The questionnaire demonstrated that there was no difference between the groups working in acute or residential care. There was a statistically significant difference in therapeutic attitude between those that had received education related to dual diagnosis clients and those who had not. Those who had received the education were more likely to 40 have a favorable attitude toward the population. The participants identified clinical supervision, team/group supervision, education, and support from the expert dual diagnosis group as areas that needed to be improved (Howard & Holmshaw, 2010). The interviews revealed that the participants identified seven themes related to barriers to working with PWSUD. The seven themes were: working with PWSUD; team attitudes; trust policies and local area protocols; concerns with legality; staff support structures; training; and team communication and problem solving within multidisciplinary meetings. In the community health context, Gasman and Weisner (2005) used semi-structured interviews to assess regard for substance and alcohol use among community-based health care providers including social workers, counselors, physicians, nurses, and dentists among others. Their findings highlighted a discrepancy in definition of abuse or misuse of drugs and alcohol but also that most community health care providers held a lower regard for substance use when compared to alcohol use. According to the authors, this is indicative of a culture where SUD associated with alcohol use is perceived as a social problem and SUD associated with controlled substances is perceived as a personal failing (Gasman & Weisner, 2005). A third article by van Boekel, Brouwers, van Weeghel, and Garretsen (2015) was located during the 2017 search of the literature, this study was aimed at assessing and comparing the stigmatizing attitudes towards PWSUD among the general public, general practitioners (GPs), MH&A specialists and clients in treatment for SUDs. A variety of methods was used to collect the surveys. Three of the sections of data were collected using random sampling; the general public had a response rate of 75.7% (n=2, 793), GPs 23% (n=180), MH&A specialists 74.6% (n=167). Clients with PWSUD were recruited using 41 convenience sampling and a sample consisting of 186 clients participated. All participants responded to the same questionnaire. The survey explored stereotypical beliefs, attribution beliefs, expectations related to rehabilitation and social distance. In order to make the samples from the different subgroups comparable statistically, a random sample of 190 surveys was selected from the large number of surveys from the general public in order to use a parametric analysis. SPSS Statistics 19 was used for the analysis of the data with a p value of ≤ 0.01. Descriptive analysis was employed to examine stigmatizing attitudes. ANOVAs were used to compare stereotypical beliefs, attribution beliefs, expectations of rehabilitation, and social distance. Multiple linear regression analysis was performed to predict social distance toward PWSUD with the variable age, gender, stereotypical beliefs, attribution beliefs, and tendency to answer in a socially desirable way. In total the responses of 723 individuals were included in the analysis. Overall, van Boekel et al. (2015) found that people from all groups held basically neutral opinions towards most of the stereotypes presented. An exception to this, was the stereotype describing PWSUD as self-neglecting and tend to be aggressive where many participants agreed. Most participants believed that individuals could not control their SUD and that SUDs can be successfully treated. Most agreed that SUD is a disease, however all groups reported a high tendency to maintain social distance from PWSUD. Similar to the 2007 Raistrick et al. study, in 2015, Raistrick, Tober and Unsworth conducted a second round of AAPPQ surveys that looked at therapeutic attitudes of nurses (150), doctors(41) and health care assistants(67), working in a general hospital, towards PWSUD. The AAPPQ scale looks at “role adequacy- feeling one has the knowledge and skills to help; role legitimacy – feeling that intervening with addiction problems is a 42 legitimate part of one’s role; positive outcome expectancy - a belief that people can recover from SUD; [and] self-efficacy – a belief in one’s ability to change a patients’ outcomes related to substance use” (2015, p. 1475). The authors distributed 1175 questionnaires to seven wards where a training program aimed at improving identification, and engagement skills as well as encouraging improved attitudes towards treatment outcomes for PWSUD was implemented. The survey had a 24% return rate (288) of which all but 16 were complete (n=258). The authors attributed the low response rate in part to limitations placed on the researcher related to recruitment by the ethics review boards due to the sensitive nature of the data (Raistrick et al., 2015). The results demonstrated negative overall therapeutic attitudes across all three groups of health care professionals with doctors have the lowest regard for SUD and health care assistants having the highest regard. Younger doctors, those under 30 years, scored more positively than older doctors. Nurses scored intermediately. The authors noted that the results of this survey were similar to those of the previous survey and that while the training program that had been occurring concurrently with this was linked to improved overall therapeutic attitudes scores overall attitude were still low (Raistrick et al., 2015). The area where health care professionals continued to score lowest was role legitimacy prompting the authors to recommend that treatment for SUD not be enveloped in all other specialties or general care but be provided by specialists. Given that EDs see many PWSUD for a variety of care needs; this is a significant recommendation that has not been seen prior to this article. Summary. While the studies captured in this review are methodologically diverse and include a range of health care providers, all have identified the need for improved access to education and training as a means of addressing attitudes and perceptions about PWSUD. 43 While higher regard for this client groups was reported in those with more frequent contact (Chu & Galang, 2013; Kelleher & Cotter, 2008; Howard & Holmshaw, 2010; van Boekel, Brouwers, van Weeghel & Garretsen, 2014) and formal training (Adams, 2008; Ford, 2010; Happell et al., 2002; Harling & Turner, 2012; Kelleher & Cotter, 2008; Lovi & Barr, 2009; Morgan, 2006), a lack of knowledge, related to limited education and training, was still seen as a major barrier to providing adequate care to PWSUD, even for specialty providers (Adams, 2008; Ford, 2010; Ford, Bammer & Becker, 2009; Kelleher & Cotter, 2008; Happell et al., 2002; Lovi & Barr, 2009; Monks, Topping & Newell, 2012). Some have related this deficit to a lack of related content in pre-registration education curricula (Harling & Turner, 2012; Howard and Holmshaw, 2010; Lovi & Barr, 2009; Kelleher & Cotter, 2008; Monks et al., 2012). There were some consistent weaknesses observed during the review of this literature. For example, the majority of the studies rely on self-reported data and there is likely and element of socially-acceptable answering. There is also an overwhelming focus on abstinence-based treatment for controlled substance use in the survey tools including the Substance Abuse Attitude Survey which further legitimizes the approach. There were several studies that focused on a single urban geographic area. The use of individual sites for research can highlight the political, social, and other influences that are dominant in a particular area. Addressing this potential is important when conducting research in particular areas such as in a more rural geography. In terms of gaps in the literature, there was only one article by Canadian authors that addressed the experiences of RNs; this article was from Eastern, urban Canada. Rural health care professionals were underrepresented in the literature. A thorough investigation of 44 nurses’ experiences of caring for PWSUD, the attitudes that nurses hold, and related organizational factors, will address some of these critical gaps in knowledge and may in turn promote evidence-based care that can improve health outcomes in this population. Interpersonal Relationships Interpersonal relationships emerged as a significant issue in this review of the literature. Studies included in this section explored the interpersonal challenges faced by health care professionals in caring for PWSUD. This is important background information for the investigation of nurses’ experiences caring for PWSUD for comparison with the results of my study. Five qualitative studies were captured that related to this theme: a grounded theory study by Monks et al. (2012); a cross sectional study by Ford (2011); a grounded study by Morgan (2006); a phenomenological study by Lovi and Barr (2009); and a qualitative study by Spence et al. (2008). These will now be discussed. In a Grounded Theory study of nurses and clients by Monks et al. (2012), the issue of dissonance in the care of PWSUD in acute care settings was evaluated. A purposive sample of 29 RNs was recruited from a single British Hospital. The nurses were recruited with the aim of gaining the broadest possible sample; they were primarily female (82.8%), between 21-58 years old, had undertaken education ranging from Certificate of Nursing to Masters of Science, and had four months to 37 years of experience. As is usual in grounded theory, the data collection and analysis occurred concurrently and the analysis was used to guide further sampling and explore emerging areas of interest. Additionally, a convenience sample of 12 PWSUD was recruited via direct referrals from nursing staff. In this study, all of the client participants regularly used more than one type of substance and had a history of injection heroin use. Furthermore, all of the clients included in this study had been previously been 45 admitted to hospital for substance use-related medical issues. In-depth semi-structured interviews were undertaken with the participants and the data were analyzed in congruence with the Grounded Theory approach. NVivo was employed to facilitate data management and analysis. Rigour was attended to through reflexive journaling and an audit trail. Through analysis of the interview data, one core category emerged: dissonant care management/delivery. This core category developed from two subcategories; lack of knowledge to care, and distrust and detachment (Monks et al., 2012). In this category, both nurses and clients recognized a problematic relationship that impacted access to appropriate care. This difficulty in accessing care produced undesirable behaviours in the clients, which reinforced nurses’ perceptions and attitudes. The relationship was recognized as being related to a lack of knowledge regarding the care of PWSUD and substance use in general, as well as being the result of negative attitudes toward the clients and their life choices. The clients had a lack of confidence in nurses’ abilities to recognize clinical signs and symptoms related to individual drugs. The lack of knowledge negatively impacted clients’ access to supportive education and their care in general. The provision of poorer care to PWSUD is not in keeping with nursing’s values to care without judgment and nurses reconciled this dissonance by behaving in a detached way to PWSUD (Monks et al., 2012). The sub-category distrust and detachment emerged from tense relationships between nurses and substance abusing clients that were conceptualized as being the result of mutual distrust. Nurses reported feeling disconnected from their clients, spending less time with PWSUD, and were less likely to really understand and attend to their needs. The reason most often reported was that managing PWSUD was emotionally draining. Only a few of the nurse participants reported being able to move beyond the described attitude, to perceive the client, 46 and their needs, as unique. Nurses also described a lack of comfort introducing substance related issues with their patients, which reinforces the perceived lack of knowledge. From the client perspective, experiencing nurses’ detachment resulted in frustration related to having unmet needs, and feeling disrespected. These feelings often led to manipulative or aggressive behaviours by the PWSUD in an attempt to have needs met. Conversely, the feelings and behaviours exhibited by PWSUD, at other times, resulted in self or forced discharge and thus, unmet health care needs (Monks et al., 2012). The two subcategories identified by Monks et al. (2012) interrelate to one another to give a more comprehensive picture of dissonant care and how it occurs. One of the themes that emerge from this article is that of othering; “nurses may seek to reduce their disquiet at being unable to fulfil their core caring role or engage in emotion work with [PWSUD] needs by labelling them as difficult, problem and sometimes alien clients” (Monks et al., 2012, p 944). The nurses place PWSUD firmly into the other category and this causes an immediate disconnect between them. Ultimately, the authors argue that care of a PWSUD is often complicated and lacks continuity, and this leads to poorer health outcomes for clients. Nurses who see clients with SUD as difficult or problematic are likely to limit contact and feed into a cycle of distrust that also results in poorer client outcomes. Education and training are crucial to interrupt this cycle and improve nurses’ abilities to care for PWSUD. This study helps to clarify and explain how disconnections in practice may arise. The findings from the study highlight the importance of the attitudes and viewpoints of the health care providers in the care of PWSUD and reflect the findings of literature previously discussed. The findings in the Monks et al. (2012) study were corroborated in a qualitative study by study Ford (2011), who examined how interpersonal challenges impact nursing care 47 of PWSUD. Ford collected qualitative data simultaneously with quantitative data collected for a separate paper that looked at nurses’ attitudes toward harm reduction strategies in treating SUD (Ford, 2010). The Ford (2011) paper analyzed narrative data from 311 nurses from across the Australian Capital Territory. The narrative data was the product of one open ended question in which nurses were asked to “describe any factors that impeded their ability to provide nursing care to clients who use [controlled substances]” (Ford, 2011, p243). Analysis was facilitated using NVivo. The data were reviewed, coded and then analyzed thematically. Peer review of the analysis was undertaken by the researchers and three nurses from the study sample. An overarching theme relating to “interpersonal challenges in the nursing role” along with three subthemes were identified; impediments to care, including “violence, manipulation and irresponsibility” (Ford, 2011, p.243). First, “violence as an impediment to care” was presented in relation to portrayals of PWSUD as aggressive, angry, and unpredictable, with nurses indicating that they frequently felt afraid for their safety during health care interactions with this group (p.243). As a result of this fear, nurses report giving in to client demands in order to protect themselves and other clients from potential conflicts. Second Ford (2011) identified “manipulation as an impediment to care” (p.243). In this theme, the nurses reported feelings of frustration at being manipulated by PWSUD. Nurses shared their experiences and perceptions in relation to substance seeking behaviours, including a lack of trust in the veracity of client’s statements and behaviours. These behaviours caused nurses to have concerns about making client care decisions and to question clients’ motivation for medication. Finally, the nurses identified irresponsibility as an impediment to care (Ford, 2011). The nurses demonstrated a belief that clients refused to 48 take responsibility for their own health and social circumstances as a result of their SUD. Ford commented that this lack of responsibility was perceived to increase the workload for nurses who then had to manage health issues related to substance use and other socially undesirable behaviours. The study by Ford (2011) corroborated the findings by Monks et al. (2012) suggesting that these interpersonal challenges resulted in a detachment between nurses and their clients in the form of restricted time and personal engagement. However, Monks et al. (2012) went one step further to suggest that client behaviours were also related to the treatment they received from nurses and that it was a cycle of dysfunction whose ultimate product was poor outcomes not only for the clients but also for the nurses who often felt a lack of job satisfaction in relation to managing PWSUD. Ford (2011) touches on harm reduction as a potential method for encouraging engagement in relationships between nurses and PWSUD. By using harm reduction to guide care, nurses would be able to focus on health and social well-being without any expectation of cessation of use. There were some limitations to the Ford (2011) study including that it was a cross sectional study that only highlighted one moment in time and also that nurses self-selected whether or not to answer the open ended question on the survey which may have skewed the results. The strengths were that many nurses identified important challenges in the care of PWSUD and how they perceive their role in this activity. Similar findings were identified in Morgan’s (2006) Grounded Theory study of 18 people with SUD (aged 32-60) in acute care settings in a large public urban hospital in America. The analysis of the study data revealed that interpersonal relations and perceptions around substance seeking behaviours were seen to impact upon client care. This study 49 focused on the strategies employed by PWSUD for obtaining pain relief and supports the theory that interpersonal interactions between nurses and PWSUD can have a significant impact on care and care outcomes for clients. While this study corroborates the findings of the Morley, Briggs and Chumbley (2015) study presented in the previous section in that the findings suggested that pain for PWSUD was often poorly managed in the hospital setting, the Morgan study investigated the interpersonal interactions that impacted PWSUD’s strategy implementation to gain relief from pain. This study found that past experiences in gaining or failing to gain adequate pain relief impacted clients’ decision making processes in subsequent encounters. The decision-making processes were largely based on the individual’s ability to gauge the attitude of the nurses and then opt for strategies that they perceived as most likely to assist them in gaining adequate pain management (Morgan, 2006). In the study by Morgan (2006), four client strategies for obtaining adequate pain management were identified. First, when PWSUD felt respected they were able to collaborate with health care providers and this often resulted in adequate management of pain. Second, when clients were unsuccessful at getting pain relief and still feeling respected, many PWSUD strategized by “going back to the drawing board” to try and get relief (Morgan, 2006, p.37). This reflects a level of understanding that some pain relief methods are not effective for some PWSUD. Clients in this scenario were willing to wait and work with the care provider to find a solution. Third, when PWSUD felt disrespected, they were more likely to “challenge the system” as a strategy for gaining relief. Fourth, when still unsuccessful, PWSUD may turn to true antagonism out of frustration (Morgan, 2006, p.37). 50 Other challenges identified by the client population in Morgan’s (2006) study were a lack of knowledge regarding pain management and SUD and negative attitudes toward PWSUD. Through this process, a model was developed that described the process that PWSUD go through to obtain pain relief. This is in keeping with the author’s research method of Grounded Theory, where the goal is to develop theory to explain phenomena (Morgan, 2006). The model was shared with participants during subsequent client interviews and focus groups with nurses to enhance understanding and ensure that their views were reflected appropriately (Morgan, 2006). Another study by Spence et al. (2008) used a qualitative design to examine the experiences of suicidal men with a history of SUD and frequent presentations to the ED at a large urban hospital in Toronto. Spence et al. (2008) interviewed clients and ED staff at a single hospital, employing a maximum variation sampling process. The client participants were identified by the ED staff and then approached by researchers to gain consent for inclusion in the study. Twenty five men between the ages of 18 and 25 were recruited. These men all had SUD as well as other mental illnesses such as clinical syndromes (anxiety and mood disorders) and personality disorders (Antisocial and Obsessive Compulsive Personality Disorder). Seventeen staff participants were self-recruited, however no demographic information was collected. The staff sample consisted of six RNs, five physicians, two crisis team workers, two security officers and two non-medical staff members (Spence et al., 2008) An analysis of the study data revealed three major themes. First, reasons for presenting to the ED; most often the men perceived that they were forced to attend the ED against their will by care givers, family member, or other community professionals. The men stated that they found the ED to cause them increased anxiety. This is consistent with Monk 51 et al.’s (2012) supposition that tense interpersonal interactions have a circular effect on subsequent nurse-client interactions. Spence et al. indicated that nursing staff reported several attitudes that acted as barriers to care including believing that the men are too disorganized, and that the men were using the system. The second theme was client behaviour. Both clients and staff recognized that clients who act out and are disruptive received care more quickly. Often psychiatric issues were deemed less acute than physiological issues and this could lead to delays in care in the context of the ED. The final theme identified was “identification of the repeat visitor and experiences in the ED” (p.343). The clients identified that being labelled as a frequent flier had detrimental effects on timely and adequate care. The health care workers also identified the prominence of negative experiences for this population. Many staff identified feeling pessimistic about the efficacy of treatment and frustrated by the demands on their time. Many were able to identify the difficulty in treating the SUD and mental illness and that there was no immediate solution. Overall, Spence et al. (2008) suggested that given the chronic nature of MH&A problems, definitive care could not be provided in an emergency setting. However, realistic goals could be set and achieved. This research sets the stage for more studies that investigate whether training and systemic changes to client care will impact client outcomes. Interpersonal challenges have also been seen to lead to significant stigma for PWSUD. For example, Lovi and Barr (2009) further explored the experience of stigma in a phenomenological study of Alcohol and Other Drug units (AOD) in Queensland, Australia. A purposive sample of six nurses (aged 35-58) was interviewed. Guided by Giorgi’s phenomenological method, the authors analyzed the data and identified three themes including inappropriate judgment, advocacy and education (Lovi & 52 Barr, 2009). Data related to inappropriate judgment reflected the AOD nurses’ identification of general RN’s as the perpetrators of discriminatory behaviours both inside and outside the AOD. The interviewees identified advocating for their clients as a very important part of their jobs. These nurses held very optimistic and permissive attitudes to treatment and relapse related to SUD. Finally, the nurses identified lack of knowledge as a major contributor to strained relationships between nurses and PWSUD. They also identified a knowledge deficit as a barrier to PWSUD accessing appropriate and adequate care for illnesses linked to SUD (Lovi & Barr, 2009). Summary. Overall, the review captured five studies that explored interpersonal relationships between nurses and PWSUD. The evidence so far suggests that stigmatizing interactions can impact quality of care and that a cyclical relationship exists between nurses (and other health care professionals) and PWSUD that may impact negatively on client outcomes. This cycle of distrust by both health care professionals and PWSUD often results in suboptimal care of PWSUD by nurses, as well behaviour that health care professionals consider inappropriate or unpleasant. The literature also points to a nursing knowledge deficit as a contributing factor to the difficult nature of these relationships. It is critical that a baseline understanding of nurses’ experiences in EDs be investigated in order to help direct clinical guidelines and educational programs aimed at interrupting this cycle and improving nurse and client satisfaction with care. Organizational Factors The analysis of the literature captured in this review found that organizational factors are also important when understanding the experiences of health care providers managing clients with SUD. Four studies were identified and critically appraised as relating to 53 organizational factors (Baldacchino, Gilchrist, Flemming, & Bannister, 2010; Ford, Bammer, & Becker, 2008; Ford, Bammer & Becker, 2009; Koyi et al. 2017). All four studies were selected for review in detail since they were relatively recent and relevant to the Canadian context. In their 2008 article, Ford, Bammer, and Becker sought to examine the association between nurses’ therapeutic attitudes toward PWSUD and a set of variables identified by the authors as pertinent to therapeutic attitudes. These variables were developed based on a study that looked at associations between education, knowledge and client engagement (Ford, 2010). The variables that the authors associated with therapeutic attitudes included personal characteristics, attitudes to substance use and a number of professional practice variables. Finally, the authors sought to examine the strategies most likely to be effective in developing the workforce in relation to caring for PWSUD. Ford, Bammer and Becker (2008) used information derived from the same survey used in the Ford (2010) and Ford (2011) articles described previously to investigate how best to implement workplace changes to elicit changes in nurses’ therapeutic attitudes toward PWSUD (n=1604). This survey included one variable from the National Drug Strategy Household Survey, a study that had been used nationwide. In this case, the information of interest was the not only the nurses therapeutic attitudes and their attitudes toward substance use but also the nurses’ personal characteristics, including age, sex, education, religious affiliation and church attendance as well as professional practice factors, such as role requirements and workplace factors. The authors used a hierarchical method of multi-variable linear regression analysis with blocks of variables (personal characteristics, attitudes to substance use, role support, 54 substance use and alcohol education, experience with the client groups, and workplace factors). The dependent variable was therapeutic attitude. They began by establishing a linkage between therapeutic attitude and workplace/professional practice factors. Other blocks of variables were tested one at a time in the model. A likelihood ratio test (Irtest x 2) was used to compare one model with a more restricted model. When the Irtest x2 demonstrated an improved fit in the model (p=0.05) the block of variables was left in the model. They called their model the Statistical Model of Therapeutic Attitude. Using this model the authors could determine the impact of changes in the variables. They found that improvements in therapeutic attitude were most impacted by an increase in role support. Role support was defined as the availability of other nurses or professionals that the nurse could access easily to “discuss personal difficulties, clarify professional responsibilities and formulate the best response to clinical issues” (Ford, Bammer, & Becker, 2009, p.115). Doubling role support potentiated an increase of 15.8% in therapeutic attitude. The highest increase in therapeutic attitude (17.8%) was seen with the interaction between high role support and workplace education. To further this, in 2009, Ford, Bammer, and Becker worked to explore the impact of role support and drug and alcohol education in the workplace in greater depth. In the previous study, the interaction of role support and workplace education included role support, measured on a 7-point Likert scale, and education, measured in hours from 1-30 or more working in tandem. Workplace education on its own was not a statistically significant predictor in the original model (p=0.492) but was significant in the interaction with role support. 55 In this study, Ford et al. (2009) used a regression model to predict the level of therapeutic attitude with changes to role support and workplace education. For each level of role support from 1-7, the time for education in hours was increased by five hours. With the results from these calculations the authors developed a three dimensional model that depicted impact of role support and education on therapeutic attitude (Ford, 2009). The results showed that without role support, education has little or no effect on therapeutic attitude. Education only became effective once there was a moderate level of role support and this symbiotic relationship continued to grwo from low levels of education through to high levels of education. These findings were significant because other studies had suggested that a lack of education was a barrier to the provision of safe care to PWSUD (Adams, 2008; Ford, 2010; Kelleher, 2007; Happell, Pinikahana & Carta, 2002; Harling & Turner, 2012; Lovi & Barr, 2009; Monks, Topping & Newell, 2012; Morgan, 2006). The authors stated that a lack of role support resulted in low confidence in the ability to engage with and care adequately for PWSUD. Like Monks et al. (2012), Van Boekel et al.(2013) and Morgan (2006), Ford et al. (2009) suggested that nurses’ low confidence in their abilities would result in disengagement from the client and that a negative cycle of interactions would follow. This places some responsibility on the organization to ensure that adequate support for the role of the nurse in caring for PWSUD is present. The limitations of these two studies are that they are based on a cross-sectional survey that was based on self-reporting which does leave some room for socially-acceptable answering. Furthermore the regression model is hypothetical in nature and has not been demonstrated in the research exploring the actual practice setting. 56 From a different perspective, Baldacchino, Gilchrist, Flemming and Bannister (2010) undertook a qualitative study of physicians and their prescribing practices for pain control. Their focus was on clients with non-cancer pain who had a history of SUD. They interviewed 19 individual physicians from a variety of specialties including family medicine, pain and addictions, as well as held two focus groups, one consisting of four GPs and one with six specialist Drug Problem Service Physicians in the UK. The findings were significant in that they identified a bias, particularly by general practitioners, toward under prescribing pain medication for fear of being manipulated or being seen as enabling those with histories of SUD. This is very pertinent to my research study because EDs in rural communities are often staffed by GPs. This study also identified distrust of clients as a primary barrier to adequate pain control and stigmatization of PWSUD, even those who were no longer suffering with SUD and subsequent potential for poorer pain management. The authors also identified poor pain management as a potential indicator of clients returning to the use of nonprescription and other controlled substances to help manage the pain. This theme echoes the article by Morgan (2006), in relation to the cyclical pattern of stigma and poor pain management and clients’ use of strategies to gain adequate pain relief. This article was included under the organizational theme as it demonstrates how pervasive the stigmatization of PWSUD can be and how it might negatively inform emergent care of this population. Caring for a population that has been stigmatized by distrust and suspicion is very difficult and must be well supported through not only front-line practice but also through policy and protocol. Change must be widespread and include management, policy makers, physicians, nurses and other members of the health care team both in the hospital setting and in the community. 57 In order to ensure the literature review was as comprehensive as possible, it was updated to capture any remaining literature up to 2017. This resulted in the addition of one further article that looked at the effectiveness of an educational intervention in second year medical students. Koyi et al. (2017) conducted a study in the United States aimed at determining whether an educational intervention was successful at improving the attitudes of second year medical student towards PWSUD. The medical students completed a pre and post survey that consisted of questions that fit into three categories, treatment optimism or confidence in intervention, moralism, or stereotyping. Once the students had completed the pre course survey, they participated in a 15 hour, three-day workshop where they worked in small groups to demonstrate and practice their clinical skills associated with caring for PWSUD. The students had the opportunity to learn motivational interviewing techniques, interviews PWSUD, and work through cases of caring for PWSUD. The data was analyzed using a Wilcoxon signed rank test that compare the pre and post course survey responses to determine if the medical student’s attitudes toward PWSUD had improved after the educational intervention. The data comparison was executed using W statistic and p value where p < 0.05. The size of the effect was calculated using Cohen’s d statistic. All the analysis was completed using Stata 13.1 software (Koyi et. al., 2017). The results of this study showed that there was an overall positive change in the medical students’ attitudes towards PWSUD following the three-day workshop. At the individual level, the students demonstrated more positive beliefs about the difference that they could make in the lives of PWSUD (Koyi et al., 2017). Some of the limitations of this study were that the effect was not measured over time, as all post course surveys were completed within one month of course completion, and that the results were from a single 58 university in the United States. One of the strengths of this study was conducted over two consecutive classes of second year medical students. This study provides information about the impact that educational interventions can have on the attitudes of health care providers towards PWSUD. Summary. Overall, four articles were reviewed that highlighted the importance of organizational factors, including role support for nurses and workplace education. Together these articles begin to demonstrate how difficult a task it will be to change the culture of care for people experiencing SUD, but how critical it will be to examine this issue on an organizational and systemic level. It must begin at the organizational level with a focus on providing adequate and judgment free treatment with clear guidelines for all health care professionals. Overall Summary A number of gaps and limitations were consistently seen in the literature, including the small scale of many projects and the lack of diversity in settings as many are single centre projects in large urban hospitals. However, a number of consistent messages were seen in the literature overall. First, attitudes and perceptions of PWSUD are generally negative and this has been shown to impact upon the delivery of care and client outcomes. Second, clients feel stigmatized when accessing emergency treatment and are likely to receive substandard treatment in the context of hostile client-provider relationships. Third, organizational factors can perpetuate these stigmatized views. Finally, education and training in a well-supported role, along with regular contact with the client group, was seen to improve outcomes. Further research is needed to explore the experiences of ED nurses, particularly within the context of rural emergency care. Understanding these challenges in the context of limited health care 59 services, vast geography and diverse and disperse human populations further extends the existing literature and provides contextualized insights that are useful for those delivering and planning health care services in rural settings. To address these gaps, this study explored the experiences of RNs as they care for PWSUD in emergency room settings. The following section will provide an overview of the methods for this study. 60 Chapter Three: Methods This chapter will describe the research methods employed for this study. However, initially I will describe how the method was selected and the philosophical foundations of the study. Study Design A qualitative approach was selected to answer the question: what are registered nurses’ experiences of caring for people with substance use disorders in an emergency department setting? Qualitative research approaches inquiry from a perspective that recognizes the dynamic nature of reality. This approach allows increased value to be placed on other sources of knowing and knowledge outside of traditional empiricism and seeks to explore a given phenomenon within the natural context (Munhall, 1988). Qualitative inquiry is an alternative methodology to the positivist paradigm and can generate critical insights into client and health care outcomes (Morse, 1994). As a naturalistic method, qualitative research aims to study a phenomenon in its context through collection and analysis of data that is more subjective than objective and often, narrative in nature (Loiselle & Profetto-McGrath, 2011; Morse, 1994)). Qualitative research can bring a depth of understanding and richness of description of the human experience to the body of nursing knowledge that is not present in quantitative research. As such, qualitative research can bring a complementary perspective to the body of nursing knowledge and uncover tacit knowledge and taken for granted insights that have important clinical implications (Magilvy & Thomas, 2009). This unique clinical perspective can be extremely useful for clinicians in terms of direct practice but also for decision and policy makers so that they can make decisions that will most benefit clients and those providing 61 direct care to them. As highlighted in the review of the literature, little is known about nurses’ experiences and understanding of caring for PWSUD in the ED setting. Utilizing a qualitative approach can be important in situations whereby little is known and can contribute to the existing body of literature (Sandelowski, 2000). Selecting a Methodology for Qualitative Inquiry In order to address the research question a qualitative approach was selected and within this, a descriptive methodology was then selected as it was consistent with the aims and scope of the research. Through this early exploratory process, several qualitative methodologies were considered for this study including interpretive phenomenology and qualitative description. This process of contrasting and critically exploring different methodological approaches was important since the methodology strategically informs research design and the subsequent decision making around the methods, questions, processes, and outcomes (Schultz & Cobb-Stevens, 2004). During the early part of my graduate studies, I considered phenomenology as a potential methodology for this research due to its focus on the lived experience. Phenomenology is considered both a philosophy and methodology that focuses on the human experience and the meaning embedded in the lived experience (Parsons, 2010). Interpretive phenomenology is employed by researchers who are interested in discovering the meaning i n everyday life and investigate the experiences of individuals through the analysis and interpretation of narratives, while descriptive phenomenology is focused on describing the participants’ experiences as they see them (Lopez & Willis, 2004; Parsons, 2010). In phenomenology, the data consists of a narrative account that is reflective of the lived experiences of the subject or interviewee (Lopez & Willis, 2004). In the case of this study, 62 descriptive rather than interpretive phenomenology was considered. The primary focus of descriptive phenomenology is to have a result where the participant’s voice is heard and his or her experience is described faithfully (Lopez & Willis, 2004). Interpretive Phenomenology is concerned with the essence of a particular phenomenon as a lived experience, emphasizing the commonalities that exist among them (Lopez & Willis, 2004). While this method places focus on the voice of the participant, its main intent is on the essence or composite of the experience resulting in this method not being selected. As a novice researcher, I felt I had not yet developed the depth of theoretical knowledge of the phenomenological methodology and philosophical underpinnings required for this type of research. In addition, I wanted to undertake research that would be relevant and easily translatable to the clinical practice setting. Therefore, a qualitative descriptive approach was selected as being the best fit for the research. Furthermore, given that this is a newer area of interest the essence of the experience was not my goal. Rather, I sought to understand the experiences and perspectives from a variety of RNs in the ED setting. Qualitative description, like all forms of qualitative inquiry, is a naturalistic form of inquiry or methodological approach (Sandelowski, 2000; Sandelowski, 2010). This approach has been widely used in health care disciplines. Qualitative description has been used to study the decision making behaviours of charge nurses, stroke care, and patient engagement in primary care to create a rich description of the phenomena (Sheridan et al., 2015; Sorensen et al., 2014; Wilson, Talsma, & Martyn). Qualitative description is most useful for studies that develop or refine interventions, needs assessments, or where the researcher is focusing on the experiences of clients, families, and professionals as they interact with one another or within the health care system (Neergaard, Olesen, Andersen, & Sondergaard, 2009). 63 Qualitative description allows for a variety of theoretical perspectives and like descriptive phenomenology, places value on the voice of the participant, encouraging the researcher to stay close to the data. Because little information is currently available about the experiences of RNs who work with PWSUD in the ED, qualitative description enabled me to investigate and describe this phenomenon. Consistent with a qualitative approach, a description of the philosophical foundations of the study have been included in the following section. Philosophical Foundations Exploration of the epistemic, ontological and methodological underpinnings of any research study is an important means of identifying the position of the researcher within the study. It allows the researcher to have greater understanding of the way decisions are made and thus adds to the dependability, credibility, transferability and transparency of the study (Guba and Lincoln, 1994; Houghton, Casey, Shaw, & Murphy, 2013; Morse, 2015). The following sections will discuss my ontology, epistemology, and situation of self, regarding this work, followed by a section on the methods used for this inquiry. Ontology and Epistemology Transparency around philosophical assumptions is essential in qualitative research as it provides context for the reader about the starting point of the research project and can assist readers in determining the trustworthiness of a study (Leung, 2015; Mesel, 2013). Philosophical assumptions are often communicated to a reader using descriptions of the author’s ontological and epistemological perspectives. Ontology describes how one views the nature of reality, while epistemology refers to how knowledge is acquired (Leung, 2015). Both are important philosophical aspects of research as the way reality is viewed and explored can have a significant influence on the research process. The following section will 64 identify my ontological views and epistemological perspectives and will examine situation of self as it relates to the research paradigm and process. Ontology. Ontology describes the nature of reality (Mesel, 2013). My perspective most closely adheres with Critical Theory in that I do believe that reality exists. However, I also believe that any description of that reality is socially constructed by the describer. Thus, I believe in an understanding of reality as a social construction that is historically situated in a social context and is dependent on the individual experiences of the narrator. Furthermore, critical positions also explore issues of power and dominance, particularly those that are more tacit in nature. Critical theory is complementary to health research focused on stigmatized populations due to the focus on identification of social inequities, and the purpose of using knowledge gained to mediate or eliminate health inequities (MosquedaDiaz, Vilchez-Barbosa, Valenzuela-Suazo, & Sanhueza-Alvarado, 2014). Epistemology. Epistemology is best described as the “relationship between the knower (inquirer) and what is known (knowable)” (Guba, 1994, p.18). Here again, my perspective aligns with Critical Theory (Habermas, 1992). I believe that dialogue and language influence thought and action. I believe that every interaction we have influences our thinking. I believe that while the participants shared their stories with me, there were aspects of the conversation that I influenced, and aspects that the interviewee influenced ultimately resulting in the creation of something that was reflective of us both. Similar to Habermas (1992), I also believe that knowledge is dynamic, in part because what we know about what can be known is historically situated and socially contextualized. 65 Given this perspective, knowledge is a creation rather than something that is discovered to be in existence independently of the inquirer. As such, it is important to provide a detailed description of my own experiences as they related to this project. Situation of Self Since I am a RN with a history of working in the ED and as an RN educator, the following section will address my own positioning and provide some background to enhance the transparency of the research. Role as RN. My professional background and the associated clinical experiences have impacted the way that I approached and understood this work. I came to be interested in this work because I had cared for and observed PWSUD in the ED and felt that their care was often inadequate. On occasion, I witnessed clients with SUD who were unable to gain access to appropriate and timely care or situations where clients with SUD were not followed up. I felt this injustice deeply and wanted to do something that could make a difference. It was these experiences that led me to apply to graduate school and to undertake this research. In doing this, I hoped to increase my understanding about nurses’ experiences and some of the factors that impact upon the care of PWSUD in the ED, and to be in a position to use this knowledge to improve practice. With respect to the research, my clinical background as an RN working in the ED provided some benefits. Principally, I had some insider or shared knowledge of the ED and was able to understand and relate to the participants and their experiences, largely because I was familiar with the environment, language and the mechanisms of care delivery. Throughout the process of collecting data, I felt I could relate to their stories and the context in which they were practicing. Likewise, having this shared understanding and professional 66 background was similarly beneficial as I believe it made participants more comfortable when being open about their experiences and perspectives. As such, many of the interviews were lengthy and very detailed. Overall, this shared professional background enabled me to identify and follow up on nuances that might have otherwise been overlooked in a researcher not familiar with the nursing practice and setting. While my familiarity with the setting was beneficial, there were similarly, some potential drawbacks that I had to consider. First, having worked in this area, I had firsthand experience seeing a range of perspectives that nurses held with respect to SUD and PWSUD. I also knew that I had some assumptions entering into this work. My assumptions included that many nurses had negative beliefs and attitudes toward PWSUD and that these were due to their personal values and backgrounds. I was careful to examine and watch for these assumptions during the data collection and analysis. Through ongoing reflexive practice, I was able to challenge these presuppositions and flush out situations where I was unsure about my position or potential influence on the research. There were occasions where I felt that my own assumptions were a potential influence on how I asked questions, how I approached topics with the participants, and how I engaged in the analysis of the data. One example of this occurred during data collection when I was struck by a reoccurring approach to caring for PWSUD as described by the participants. I noticed that many of the nurses I interviewed discussed how treating PWSUD with respect was integral in relationship building and developing a therapeutic relationship. I also noted that I felt a surprised to hear this with the frequency that I did and had to really look at my own established ideas about nurses who care for PWSUD. I explored these feelings in my reflexive journal. 67 “I am noticing again and again that I am hearing about how ‘treating people with respect’ is one of the most important parts of helping PWSUD in an ED. I was surprised to hear this, even though I feel this way myself. I think I have to be careful to be very open to what I am hearing. I also need to be aware that I have bias toward at least some ED nurses that caused me to feel surprised. I do feel now a bit embarrassed about it but going forward I will be on the lookout for it. I understand what they mean about respect because you have to be able to develop a relationship with clients so quickly and because people have to be able to trust you as the nurse, demonstrating respect is coming up again and again as a way to help develop that therapeutic and trusting relationship very quickly. It is also identified again and again that demonstrating a lack of respect is problematic in terms of building an effective partnership….For the most part, the nurses who selected to be involved in this project seem to have a fairly positive view of PWSUD in terms of acceptance…this is interesting and I think it would be interesting to see if PWSUD’s experiences echoed those of the nurses of if self-perception and the perception of others differs significantly….This really is turning out to be a very complex issue. I also had the opportunity to spend time with an experienced academic supervisor to check my analysis, test out ideas and be challenged around these assumptions. Role as an educator. Further to this, I have a role in educating student nurses at the undergraduate level and so have an in-depth understanding of the pre-registration education that nurses receive at the university where I work. I recognize that there are some deficits related to learning about SUD and caring for PWSUD within the program and that I am part of the system that fails to adequately prepare nurses with respect to this issue. 68 Over the course of the research, I had some internal conflict around being part of the problem. For example, I was aware that I had worked in an environment that has failed clients and in education that has contributed to and potentially perpetuated this issue. This made me especially aware of seeking opportunities to include SUD and PWSUD in more areas of my teaching as well as ensuring that I took steps to try and eliminate stigma and role model effective and appropriate attitudes, knowledge, and strategies to help meet the needs of PWSUD in tertiary care. Again, reflexivity provided an important mechanism through which to identify and critically examine these assumptions. The following sections will describe the methods selected for this project that were used to create a greater understanding of nurses’ experiences caring for PWSUD in the ED. Method Qualitative description methods share some similarities with many other qualitative methods such as increasing understanding of a given context, as well as individual experience of a phenomenon. Essentially, this approach enables researchers to explore things that may be overlooked if utilizing quantitative methods (Colorafi & Evans, 2016). In a qualitative descriptive approach, phenomena are explored through the transcripts of participant interviews or through examination of other data sources. Immersion in the transcript data allows the researcher to identify patterns and understand the events as they are experienced by the participant within the context of their experiences (Neergaard et al., 2009). The expectation of qualitative description is that it will produce a comprehensive summary of events, rather than a highly interpretive or theoretical text (Sandelowski, 2000). Given that the goal is a rich description of the subject of interest to the researcher, the researcher stays very close to the data resulting in lower inference descriptions that will 69 increase the opportunity for agreement among researchers (Colorafi & Evans, 2016). The goal is to ensure descriptive validity, by ensuring accuracy in reporting of events, and interpretive validity, by ensuring that the meaning conveyed by the participants is reported by the investigator (Neergaard, et al., 2009; Sandelowski, 2000). This approach has been employed to study a wide variety of events from clinical nursing interventions to particular phenomena within the health field (Breau & Rheaume, 2017; Chafe, 2017). This is not to say that qualitative description is devoid of interpretation as all description and analysis includes interpretation. Sandelowski (2000) stressed that the investigators’ “perceptions, inclinations, sensitivities and sensibilities” (pp.335) will inevitably impact what is recorded and how it is reported. This makes awareness of the researcher’s theoretical leanings a crucial step when undertaking qualitative description (Neergaard et al., 2009). Reflexive activities are as important in this methodology as any other to ensure that the findings in the study reflect the participants’ interpretations rather than the researcher’s. Researchers undertaking a study using qualitative description do not need to adhere to a single theoretical point of view (Sandelowski, 2000). Aspects of other methodologies may colour qualitative description. For example, constant comparison may be employed in qualitative description, but no theory would be generated through the process (Sandelowski, 2000). Qualitative description was selected for this study for its flexibility related to philosophical underpinning, sample selection, data analysis and for its focus on providing a rich description of the experiences of an otherwise under-researched phenomenon. 70 Sample Descriptive qualitative methods allow for in-depth analysis of data which investigate the meaning in the ED nurses’ experiences caring for PWSUD. To answer the question: what are the experiences of RNs caring for people with SUD in an ED setting?, a purposive sample of RNs working in both rural and urban communities who care for people presenting to the ED with issues related to substance use were interviewed (Milne & Oberle, 2005). I sought to capture a broad range of nurses from a number of different settings. In addition, I attempted to seek variety in the age and gender of participants where possible. A range of ages was represented in the research (25-57years). However, despite considerable efforts to recruit both male and female nurses in the research, all of the participants identified as female. The participants were recruited from three sites in the NHA; UHNBC in Prince George, BC; Prince Rupert Regional Hospital in Prince Rupert, BC; and Fort Saint John Hospital in Fort Saint John, BC. These sites were selected for their location, one in each of the HSDA in the NHA. Within this region, Prince Rupert and Fort Saint John each have high incidences of hospitalizations attributed to substance use (University of Victoria, 2016). The sample size was determined according to the principles of theoretical saturation, where saturation is reached when no new key insights or major themes arise with analysis of new data; in qualitative description saturation is not necessarily a requirement; however, I was able to reach this point in analysis (Bowen, 2008; Sandelowski, 1995). 13 participants were recruited and theoretical saturation was reached during the analysis. Recruitment. Prospective participants were recruited via emails distributed through the NHA intranet and were sent to RNs working part time or full time in the ED at the hospitals identified above. To minimize any potential conflicts, emails including the letter of 71 information and participant information sheet (Appendix D) were provided to the site managers for distribution. Managers distributed the letter of invitation and the participant information sheets to RNs working at the sites as invitations to participate in the study. Connections were made with ED managers across the NHA region to assist in the distribution of emails. Follow-up emails were sent by the researcher to the managers at three and six weeks after the initial email requesting that the original invitation be resent to the RNs until the desired sample was achieved. A third set of email invitations to participate were required to increase the number of participants from nine to 13. Inclusion criteria. The goal of recruitment was to have a sample that included a diverse range of participant RNs that represented a variety of perspectives including gender, geographic location, years of experience and age. Participation in the study required that participants be RNs whose primary positions were in one of the EDs in Prince George, Prince Rupert, or Fort Saint John. This included both full time and part time nurses, as well as participants who were casual nurses but worked the equivalent of 0.5 FTE or more. Participants were all able to communicate effectively in English and were willing and able to provide informed consent. The participant’s demographic information was recorded separately from the data analysis to protect confidentiality (Appendix E). Exclusion criteria. RNs working casual positions in EDs that worked less than the equivalent of a 0.5 Full Time Equivalent (FTE) were not eligible for inclusion in this sample due to the inconsistent work schedules and the possibility of limited contact with PWSUD. RNs holding leadership or managerial positions were also excluded, since the focus of the study was the experience of ED nurses providing direct care for PWSUD in the ED context. 72 Participants in this study were explicitly informed of the voluntary nature of their participation and that they may terminate their involvement at any time without fear of consequence. Participants were asked to provide their signature on a consent form outlining their involvement and the intended use of the data gathered prior to our first meeting and again for verbal consent prior to commencing the interview. The verbal consent was captured on the audio recordings. They were also informed that their permission to use the transcripts could be rescinded at any time. Prior to providing consent, prospective participants were provided with a detailed description of what inclusion in the study entailed as well as any risks and benefits that they might incur as a participant (Appendix D). Participants were encouraged to ask questions or seek further clarification as needed. While this was considered a low risk study, participants were informed in the information sheet and prior to the interview that they may potentially feel uncomfortable with some questions or topics and were informed that they were able to terminate the interview at any time or refuse to answer any questions they did not feel comfortable with. In the event that a participant may have felt upset, the participants were also made aware that resources were available for counseling or mental health support upon request. Confidentiality was maintained throughout the research process by ensuring that transcripts were anonymized, being given only an assigned number and region. Coded transcripts were available only to the researcher and supervisor and were otherwise stored in an encrypted computer file. While confidentiality of the data was maintained, participants were made aware that due to the smaller settings where the research was undertaken, it is possible that anonymity may not be completely guaranteed. In the event that situations were to arise where there was concern about anonymity, I had planned to either not use the data or 73 review this with the participant in question. This scenario did not arise during data collection. In congruence with the conditions of the Research Ethics Board (REB) approval, the transcripts will be securely held for five years and then destroyed. Data Collection and Analysis Data was analyzed concurrently with collection, and was organized thematically. For clarity, data collection and analysis will be presented separately. Data Collection. Qualitative interviews are the conversational process of knowing; a knowledge producing social interaction (Kvale & Brinkmann, 2009). Interviews can differ in form across disciplines in terms of their purpose and goals (Kvale & Brinkmann, 2009). However, all interviews consist of an interaction based on language between two or more individuals (Brinkman, 2013). A semi-structured interview approach was used to collect the data. The use of a semi-structured interview process allowed the participants to offer the information they deemed important and helped to ensure that their voice was present in the study (Milne & Oberle, 2005). A well-developed interview schedule will enable the researcher to increase the opportunities for new knowledge discovery (Corbin & Strauss, 2015) and provides a vital point of preparation for the novice researcher. Questions must be developed sensitively and not be worded in a way that is confusing or influences the participants’ answers; they must be free of language concerned with the researchers’ preconceptions or biases (Rubin & Rubin, 2012). This can be done by using a broadly scoping question to begin and narrowing the field of inquiry based on the participants’ responses. During the early stages of the research process, an interview schedule was developed and piloted to ensure that the questions elicited relevant information and were easily 74 understandable. The pilot interviews were executed with three nursing colleagues recruited from the home institution of the research. The interview schedule was then adapted according to the feedback from the pilot sessions; this included refining the language of some of the questions, ensuring that these were free of jargon that might impede comprehension, and considering the addition of some prompt questions to elicit detailed responses. An interview schedule used in the research has been provided (Appendix F). As the research continued, this research schedule was expanded to reflect interesting themes arising from the preliminary analysis. For example, in early interviews, participants frequently identified that a lack of training and education impacted their experiences. As a result, I sought to explore this in greater detail and asked subsequent participants specifically about their preregistration education and the education they had specifically in the ED. I conducted all of the interviews between August and December of 2016. Prior to commencing an interview, participants were asked to read and signed the informed consent. The interviews were conducted by telephone or in person based on the preference of the participant and geographic location. Sessions ranged in length from approximately 12 minutes to 80 minutes. Interviews occurred at mutually agreed upon times that offered flexibility and ensured the confidentiality of the participants. Sessions were digitally recorded with permission from the participants and then transcribed verbatim by a transcriptionist who signed a confidentiality agreement. The purpose of digitally recording and transcribing the interviews was to ensure that the data was accurately recorded and that the nuances, such as specific vocal tones or silences, could also be captured and included in the analysis. Field notes, documenting ongoing interpretations or non-verbal communication for interviews held in-person, were also collected to contribute to the analysis. 75 In addition to the interview data, basic demographic information was collected to define the study sample, this includes age, gender, years in practice, type of employment (full or part time), education level and time spent working in EDs (Appendix E). This information was collected to help in understanding whether there were similarities between groups with different amounts of life and work experience. Data Analysis. A qualitative descriptive approach was used to analyze the experiences of nurses’ who care for PWSUD and analysis was organized thematically (Braun & Clarke, 2006). This method of analysis is appropriate as it focuses on descriptions of the manifest and latent meanings, intentions, consequences and context of the transcripts rather than looking for hidden meaning (Elo & Kynga, 2008; Vaismoardi, Turunen, & Bondas, 2013). These analysis approaches employ a lower level of interpretation than other data analysis approaches, such as grounded theory or hermeneutic phenomenology, but result in a thick description where the participant voices are evident. Descriptive analysis is “well -suited to analyze the multifaceted, important, and sensitive phenomena of nursing” (Vaismoradi et al., 2013 p.403). This approach fits well with increasing understanding of the experiences of frontline nursing. Talking about substance use and PWSUD, can elicit some intense feelings and reactions from people so remaining close to the participants’ descriptions of their experiences will provide a rich and representative description. A rich description is created through the development of critical themes that emerge from the analysis, using concept categories as vehicles for the description (Elo & Kynga, 2008). An inductive approach to analysis was undertaken in this study. This was consistent with the underpinning methodological approach and the topic in hand: as the experiences of nurses caring for PWSUD in an ED setting had not been studied in depth, therefore there was 76 little in the way of theory to use for comparison. During data analysis, the first step was to become immersed in the data. To gain this immersion, I read and re-read the transcripts repeatedly as a means of gaining familiarity with the data. Once familiar and comfortable with the data, the next step was to identify codes. Codes represent important ideas and responses that provide insight into the research question (Graneheim & Lundman, 2004). The codes were then arranged and grouped into higher order categories or clusters (Elo & Kynga, 2008; Viasmoradi, et al., 2016). While categories and concepts were developed based on prevalence, prevalence of themes was decided based on relevance to the research question rather than purely the number of times it appeared (Braun & Clarke, 2006). The broader codes and categories were utilized to create themes, resulting in a general and rich description of the nurses’ experiences (Vaismoradi et al., 2016). Data analysis in this study resulted in three primary themes. Regular review with the lead supervisor allowed for peer checking and supported supervision until consensus in the interpretation and analysis of the data (Elo & Kynga, 2008). This was then presented to the wider supervisory team for discussion. This process of checking and support helped to ensure that nuances were explored and that the analysis process was trustworthy, authentic, and credible (Lambert & Lambert, 2012; Lincoln & Guba, 1985). 77  )LJXUH 3URJUHVVLRQRI$QDO\VLV Stage 1 Stage 2 Stage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rustworthiness Trustworthiness is typically used in qualitative research as a key concept to help describe and understand the quality and rigour of a study, as opposed to the term validity, that is more in keeping with the values of quantitative research (Morse, 2015). Trustworthiness consists of confirmability, dependability, transferability and credibility (Lincoln & Guba, 1985). It is in applying these concepts to the research process, in addition to ongoing reflexive practice, that trustworthiness for this research was addressed. In the context of qualitative inquiry, dependability addresses whether or not the result will be consistent over time. While this is potentially the most difficult to confirm, it can be addressed using external audits. In my study dependability was addressed by having my supervisors examine the process and the written product (Billups, 2014; Morse, 2015). Meetings with my supervisors occurred at regular intervals throughout the research process from preconception of the study through completion. Agreement among the team was reached regarding methods, execution, analysis and presentation of the findings thus providing evidence of dependability. Transferability addresses whether the results of a study are applicable in similar settings (Billups, 2014). In qualitative research, thick description is used to allow the reader to make determinations about the transferability (Morse, 2015). The more robust the transcripts, field notes and audit trail, the better able one is to make this determination. For this study, the description of the nurses’ experiences was provided in detail. Likewise, a reflexive journal was kept to provide evidence of the decision making processes and the thought processes involved in the analysis of the data. 79 When confirmability is assessed, the accuracy of the findings is evaluated (Billups, 2014). Audit trails and reflexivity are the most common ways to address confirmability (Billups, 2014; Morse, 2015). I kept a reflexive journal throughout the process and this was also how I kept track of my decision making. Keeping a reflexive journal allowed me to practice self-reflection and ensure that attention was paid to my own influence on the process. It also allowed me to track the challenges I encountered and my thought process as I moved through this research study. Through the reflexive journal I was able to explore my own feelings about the research process, the things I discovered about myself through the interviews, and my experience of the analysis process. This was considered central to the analysis process in order to expressly identify my own situation within the research. For example, after a particularly challenging interview I wrote: I just did an interview that was really very challenging. The person being interviewed expressed some perspective about SUD that I found really difficult to hear and some thoughts about nursing that I found difficult to accept. I think as I move forward into analysis, I will have to be really careful that I look at the words used and the things that were said while being very aware of how I felt during the interview. I need to be conscious of looking past my own feelings and developing a way to think about what was said from a variety of perspectives. What could be behind the things she said? Is it bias? Or discrimination? Or is there another explanation? Allowing myself to explore these thoughts not only provided me with a sense of caution or attention to my own perspectives, but also challenged me to consider how peoples’ beliefs and values influence an individual’s experience. 80 The reflexive journal also served to track my decision making and the rationale behind the selection of themes to discuss. I utilized drawings to assist me as I organized my codes thematically. While the end result differed from the initial drawings, they were useful in working out the connections and the meaning present across the interview transcripts. Additionally, at various points in the analysis process, the decisions made were documented using photographs, drawing, and tables to record the process (Figure 1). Finally, credibility must be addressed as a part of determining rigour in qualitative studies. Credibility refers to the internal validity of the study. Credibility of a study can be reinforced in a number of ways including persistent observation, triangulation negative case analysis, referential adequacy and member checks (Morse, 2015). In this study the credibility was demonstrated using member checks and referential adequacy. The members were able to look over their transcripts to ensure the message they intended was conveyed. However, only three of the participants returned their transcripts with any comments and those comments were primarily editing comments. Comparisons in the literature were made to the original texts where no corrections or comments were returned to me by the participant and with the corrected version in the cases where comments were returned. The following chapter will describe the findings and provide a description of the participants’ experiences of caring for PWSUD in an ED setting. 81 Chapter Four: Findings To understand the experiences of RNs caring for PWSUD in an ED setting, semi structured interviews were undertaken with 13 RNs from three different EDs in the Northern Health Authority region. The RNs were all female, aged between 25 to 57 years (mean 42.7 years), and had between 8 months and 30 years (mean 13.1 years) of experience in the ED. Demographic information for the participants is offered in table 1. The interviews were conducted either by telephone or in person and the verbatim transcripts were analyzed descriptively and thematically. From analysis of these data, 50 codes were identified initially. Subsequently, these codes were collapsed into six subthemes that identify and explore the experiences of RNs of caring for people with SUD in the ED setting. These subthemes were grouped into three major themes which are discussed in the following sections. The themes are: PWSUD in the ED, where the participants describe their roles and the role of the ED as it pertains to the care of PWSUD; Organizational Barriers where the participants’ education and perceptions of resources and supports are discussed and; Attitudes and Beliefs where the personal beliefs of the participants are discussed as they related to the care of PWSUD. These will now be presented (Figure 2). Theme One: PWSUD in the ED During the interviews, the participants discussed at length the process and experience of caring for PWSUD in the ED setting. In particular, nurse participants shared diverse beliefs, perspectives and values about their perceived role in caring for this population. 82 Table 1 Participant Demographic Information Interviewee Gender Age (Years) Place of employment Years as an RN Years in ED Level of education 1. Female 55-65 Site 2 35 27 Diploma 2. Female 45-55 Site 3 30 30 Diploma 3. Female 25-35 Site 2 8 7 Degree 4. Female 55-65 Site 2 35 9 Degree 5. Female 25-35 Site 1 4 <1 Degree 6. Female 35-45 Site 2 23 21 Degree 7. Female 35-45 Site 2 19 10 Diploma 8. Female 25-35 Site 2 2 1.5 Degree 9. Female 35-45 Site 2 22 12 Degree 10. Female 45-55 Site 1 33 27 Degree 11. Female 45-55 Site 1 26 14 Degree 12. Female 25-35 Site 1 3 4 Degree 13. Female 35-45 Site 1 22 7 Degree 83  )LJXUH  6XPPDU\RI7KHPHV Theme One: PWSUD in the ED Theme Two: Organizational Barriers to Care Beliefs about the Role of the ED and ED RN Wanting to do the Right Thing Preparedness Resources and Supports Challenges of providing care Formal and informal preparation Barriers to education Knowledge deficits and consequences Theme Three: Beliefs and Attitudes Personal Beliefs and Attitudes Patient and Provider Interface Interpersonal interactions  %HOLHIVDERXWWKH5ROHRIWKH('DQGWKH('51 )ROORZLQJDQDQDO\VLVRIWKHLQWHUYLHZGDWDLWEHFDPHDSSDUHQWWKDWDOORIWKH SDUWLFLSDQWVVKDUHGVLPLODUEHOLHIVDERXWWKHUROHRIWKH('DQGWKH('QXUVH DVLWUHODWHGWR 3:68' 2QHQXUVHLGHQWLILHGZKHQVSHDNLQJ DERXW3:68' WKDW³HPHUJHQF\ QXUVHVGHDO ZLWKHYHU\WKLQJ DQGDQ\WKLQJ WKDWFRPHVWKURXJK WKHGRRUDQG,GRQ¶WNQRZLILW¶VULJKWWRVD\ WKDWWKHDGGLFWLRQDQGWKHDOFRKRODEXVHLVRQO\DVPDOOSDUWRIZKDWZHGHDOZLWK´ 3DUWLFLSDQW1LQH 7KH\LGHQWLILHGFULVLVLQWHUYHQWLRQSDWLHQWVDIHW\DQGSK\VLRORJLFDOKHDOWK DVEHLQJNH\QXUVLQJ SULRULWLHVLQWKH(' 84 Participants described their strong belief that the primary function of the ED is crisis intervention. For the majority of the participants, this meant that “the first role [of the nurse] is to make sure they’re [PWSUD] medically stable and getting …their ABC’s…taken care of…just to make sure that they’re surviving and kind of leaving in a better state than they came in medically” (Participant Five). When addressing the care of PWSUD specifically, a couple of participants identified that at times the immediate needs are critical and that ED nurses “certainly … need to support them [PWSUD] through their immediate crisis” (Participant Six). Overall, the majority of the respondents commented on their belief that the focus of ED care is the physiological health of the client rather than the mental health needs of the client. Some participants agreed that while crisis intervention is a primary role of the ED, nurses must also attend to client needs once the crisis has passed. For instance, one of the participants described, “the kind of very nice thing about critical care nursing is that you’re dealing with people not only in their crisis but also in the aftermath” (Participant Four). Likewise, Participant 13 explained that care begins with more [with] symptomatic care at first, right, and then later on when they’re [PWSUD] fully awake, they stay with us and we kind of like, do our therapeutic thing and then ask them if they want some referrals…so we kind of just liaise with them on the things that need help [with]. Conversely, some participants viewed crisis intervention as the necessary aspect of ED care and identified difficulty in providing the aftercare because “it’s so easy for us to just give the support with the drugs and everything else but to give the emotional and the teaching and all of that, it’s just impossible in the emergency situation” (Participant One). Meanwhile, 85 another participant admitted, “I do not do as much with that because I am not a mental health nurse, but that plays in my mind with discharge” (Participant Two). Challenges of Providing Care. In this context, time emerged as an important concept for the ED nurses when discussing their experiences of caring for PWSUD. The participants recognized psychological care as an essential part of the care of PWSUD. However, many identified that there was inadequate time to provide this kind of care within the ED setting. Several participants stated that they often lacked the time to provide high quality care in this domain. One participant remarked that “emergencies are really a fastpaced place and two hours to sit and talk to someone in one of my areas and stretcher blows down my whole system” (Participant Two). Several nurses commented on being unable to provide the psychological, emotional, spiritual, and social care that people with SUD require due to time constraints and expressed frustration at not being able to meet the needs of the patients. Participant Three shared: we, as nurses, may not necessarily have the time to sit down with somebody and go over options in terms of, ‘oh hey you want to go to a recovery program or you want to access detox? …We may not necessarily have the time to sit down and provide information or support or, just to talk to somebody about what’s going on with them. Overall, participants described feeling frustrated that they were unable to meet the broader needs of this population; that they felt they were not providing the necessary care or follow up that they believed these patients needed and that there simply is not time in their workday to manage all the needs of these complex patients. Other participants expressed frustration when PWSUD presented repeatedly to the ED with non-urgent issues. Several participants believed that the ED was being misused by 86 some PWSUD as a place to “come and get hydrated and you’re good to go” (Participant 10). This sentiment was echoed by another nurse who identified that at times PWSUD are “brought back to the ED because they are intoxicated on the street, because they are laying down, because they haven’t eaten, because they’ve fallen down. Because they’ve been fighting and become a public nuisance…[because there is] really no other place to take them” (Participant Two). While still another felt “these problems can be managed out of the Emergency room or it can be prevented. If we have like steady follow-up and support you know from outside the hospital setting (Participant 10). Several other participants described non-urgent use of the ED in less value laden terms for example, “PWSUD often come in for minor issues like a laceration or a chest cold” (Participant Three). The participants differed in their emotional response to the non-urgent use of the ED by PWSUD. A couple of participants voiced their frustrations at having to manage PWSUD in the ED because “it takes a lot of time away from other patients when it’s busy” (Participant 10). Another participant made similar comments about caring for PWSUD and using time that could be spent with people with other, more mainstream issues. Other examples include Participant Two who was particularly vehement in expressing, “except for Emerg, they have no place else to go,…our department, taking away someone else’s time, they don’t need us.” This participant also expressed feeling frustration at the social issues experienced by PWSUD she admitted, “I find it really difficult, How is that [the social issues] everybody in this department’s problem…I just have a problem when it takes away from other people”. In contrast, one participant voiced frustration but from a different perspective, stating that she felt sorry that nursing staff had to leave the PWSUD to go and manage a patient in a critical situation. Participant Four described that: 87 often times in the ED, you end up getting pulled into more…the more life or death situations so you could be right on the brink of being able to have a wholesome discussion with [PWSUD] about…even the Narcan kits now that we’re able to give out…and behold a cardiac arrest comes in and you get pulled into that other situation. Several participants acknowledged that the ED is an entry point for some PWSUD to access health care and that EDs play an important role in insuring that people who do not have or are unable to access, for whatever reason, health care in other ways are still able to get the help they need. In total, seven of the participants identified that often PWSUD present to the ED because feel they have nowhere else to go. Participant Three expressed her belief that the ED is an “easy access point for them [PWSUD] and a safe place…I feel like if that’s what our department can provide for these people, that safe place for them to come with any question or concern, then that should be our role”. Likewise, two other participants thought that the hospital might represent a safe place to be that would protect them from the stigma of the general population. For example, one nurse thought that for some PWSUD “it’s probably just because the hospital is their refuge” (Participant Eight). Building on this, Participant Four asserted: Most folks are uncomfortable going to a walk in clinic when they’re, when they’ve got active drugs or alcohol on board. People tell me at triage that they don’t go to the walk in clinic because they have to stand in line up or they get laughed at so they come to the ED to receive their care instead. These statements refer to the stigma that some PWSUD suffer and must manage as part of accessing the health care system. Several of the participants explained that the ED is not an ideal setting to provide 88 excellent care to PWSUD post crisis or for non-urgent health care needs. This resulted in clients whose needs were not being met within the ED. When their needs were being not met, several participants described PWSUD choosing to leave the department without a discharge plan or any follow up. A nurse working in one of the smaller sites admitted: if we have somebody who’s a trauma or a code or whatever, then because you only have two staff on nights, those people [PWSUD] end up getting neglected or not seen too often. We’ve had them rip out their IV’s and run away and by the time you get back to the bed they’re gone, no one’s seen them (Participant 12). Similar issues occurred in the larger, more urban site. For example, Participant Eight described that once stable, PWSUD get put into the hallway or under one of our counters [ledge] and then we care for them that way so that they have a safe place to stay before they go to detox…we tend to lose people because who wants to sleep in the hallway? Wanting to do the Right Thing. During the interviews, all of the participants talked about their feelings about how care was provided in the ED setting. There were discrepancies in what some of the participants described as helping. Some believed that helping meant cessation of use while others believed helping to be meeting the expressed needs of the client including cessation of or the reduction of harms related to substance use. Some participants thought that the interventions provided in the ED were sometimes detrimental to PWSUD, principally because they did not explicitly discourage substance use. For example, one participant commented “that we’re just encouraging them to continue on with their addiction when we should be…stopping them from going and doing it again” 89 (Participant 10). Participant One’s response supported this perspective, she explained how the treatment might encourage return visits, “I don’t think we’re helping by giving her a banana bag, you know, multivitamins and the thiamine [because] every time she’ll be here” (Participant 11). This participant thought that by relieving the discomfort of intoxication and withdrawal, the PWSUD would simply come back for more treatment the next time they used substances. One of the participants shared her belief that the provision of care should include mandatory medical withdrawal. This participant suggested there should be “somewhere where [PWSUD] have to go mandatory for seven days or 10 days or however long it takes to get off the alcohol so that you can have a different perspective” (Participant Two). This participant believed that a sober person might make decisions that resulted in abstinence. It is important to note that not all the participants shared this belief and that this participant had several perspectives on providing care that were not simply limited to mandatory detoxification. Several participants spoke about assisting PWSUD to access the help they needed as part of their role as a nurse. An example was provided during a discussion about the role that nurses have in caring for PWSUD which she described as” advocating to getting them to feel better, like physically as well as trying to get them the help they need” (Participant 12). Many of the participants identified the need to develop strong therapeutic relationships. This was explained as a way to create a safe space where PWSUD felt comfortable asking to have their needs met. One participant described it as conscientiously building “that bond so that they [PWSUD] can access the help if they need it” (Participant Eight). A couple of participants indicated that part of building the bond was to offer help. 90 One participant commented that “every time they come, not to give up,…to say can we do anything for you. Not to force it on them. Can we do anything for you?” (Participant Six). Another participant placed a great deal of value on the offer of referrals. She explained: every time I do it [offer referrals], I never feel it’s a waste. It is the only way he can get out of this situation and every time he comes, I’ll always say the same thing, you know man, your life is going nowhere, you’re young and you’re bright and you need to look at that and you need to go to alcohol and addiction counselling and they can get you set up and it’s never, never, never a waste. I don’t care if a guy goes back to rehab 42 times, maybe that 43 is all it’s going to take to change and make a difference (Participant Two). Overall, the participants indicated a desire to help PWSUD through the immediate crises and in accessing ongoing care. Although the desire to help was present throughout the interview transcripts, at times, the participants expressed feeling that intervention was futile for an array of reasons including the lack of availability and appropriateness of ongoing care, and limited patient uptake of treatment. At the same time, several participants also described feeling hopeful each and every time a PWSUD expressed the desire to enter into recovery. One participant described the role of an ED nurse as a role that’s “very fraught with wanting to provide good care but then there’s all these restrictions on what you can do and people deal with that in different ways” (Participant Five). Frequently, within a single section of the conversation, participants would describe the desire to help and some level of frustration at not being able to help the way they would like. This pattern was repeated in many of the interviews. Some participants explained that at times, they feel frustrated by the frequency with which a PWSUD accesses the ED. For example, Participant 10 explained 91 I mean it’s frustrating, if you’re doing something and you’re helping somebody, it’s not that you want a thankyou or whatever, but if you can see oh yay okay that guy was there and now he’s serious about trying to get help. But, then you see them come back time after time again like nothing’s changed. Why? Another participant offered a similar experience of feeling frustrated and frightened on some level with PWSUD who return to the ED on a regular basis with intoxication and overdose. She described her feelings by saying “I wouldn’t be surprised if he’s been in this month again and again. I don’t know what we can do for him...I find that’s the most frustrating. The thing is, the next time somebody may not start CPR” (Participant Two). While some participants expressed frustration with the system or with the patient, some nurses expressed frustration with themselves and their perceived inability to enact change. Participant 12 explained feeling Frustration, like with yourself because you can’t fix a problem, like if somebody has just sort of a medical problem and you know how to fix it, and you fix it, but there’s no like easy fix, right. You just, sort of, think I did everything right and it still didn’t, kind of… well they’re still drinking and whatnot. The beliefs and attitudes of the participants about PWSUD and their core professional beliefs and attitudes at times are at odds. Crisis intervention was identified as the primary role of the ED. This belief resulted from the focus of the ED specific education and training on physiological care. Regardless of this focus, all of the participants stated a desire to make a difference for the PWSUD that they came across. However, many of the participants found it difficult to reconcile the realities of providing care to PWSUD in the ED in today’s climate with their professional values. 92 Many of the participants, particularly those from the smaller centres, stated that many community resources also have rules, Participant 11 described a resource for PWSUD that can only be accessed if they are sober “we refer them to [the resource] if they are sober, cause the [the resource] will not accept them if they are drunk”. These participants were concerned about the continuation of a cycle that they viewed as detrimental to the client. The participants who described concern about the care provided in the ED to PWSUD were concerned about the continuation of a cycle that they viewed as detrimental to the client. Theme Two: Organizational Barriers to Care Organizational support emerged as a key finding in the analysis of the interview data. Participants frequently identified that the availability and presence of organizational supports and resources had a major impact upon their perceived ability to care for PWSUD. Through the analysis, two subthemes were developed to describe the impacts of organizational support, these are: preparedness, and resources and supports. Preparedness A lack of preparedness was a key theme that emerged repeatedly during data collection and was seen by the participants as being a barrier to providing appropriate care to PWSUD. During the interviews, the participants described their education and training and how it served to support them in providing care to PWSUD. Overall, the participants perceived that they received little or no formal education with respect to caring for PWSUD, with much of their learning occurring through informal education processes, such as peer learning, experience in practice and self-directed study. The participants often described that they experienced barriers when attempting to gain access to formal education. It was this lack of formal education and training that led to a perceived knowledge deficit related to 93 providing care to PWSUD and some of the participants identified negative consequences for both nurse and patients resulting from the lack of preparedness. Formal and informal preparation. During the interviews, the participants discussed the formal education they had received including, pre-registration training, specialty RN training courses, local education, and training session and workshops. The majority of the participants identified that formal education, specifically geared toward caring for PWSUD, was limited or often absent from both their pre-registration education and their ED specialty education. When the participants were asked about their education and training in the interviews with respect to caring for PWSUD, many of the participants responded initially with humour, going on to describe that educational opportunities were limited and for the most part inadequate. While reflecting on their ED specialty training, several participants felt that the focus on caring for PWSUD was equally limited. One participant described her formal education about SUD “uh nothing (laughs)” (Participant 11). This was supported by another participant who explained “we had like a three-month long training session and we didn’t even touch on substance abuse” (Participant 12). Instead, the content of the ED training was orientated to the assessment and stabilization of clients with life threatening conditions. While this might include a person with severe mental health disturbances, or a PWSUD who has overdosed, many of the participants recognized that the courses were “very medical focused” (Participant Seven) and were frequently limited to addressing the management of trauma or the unstable acute care patient. One participant described her training as being focused on “A [airway], B [breathing], C [circulation], is A, B, C clear and then to go to next, is the patient safe?”(Participant 11). Likewise, another participant described her ED specialty training as consisting of “ACLS [Advanced Cardiac 94 Life Support], BLS [Basic Life Support], TNCC [Trauma Nurses Core Course], PALS [Pediatric Advanced Life Support] or anything that would certify [her] to be able to work in Emerg” (Participant 13). These courses focus almost exclusively on physiological care of a patient who is at risk of imminent death. In contrast, a few participants recalled a receiving a small mental health component within the ED specialty training, although education specific to SUD was not included substantially for nurses providing emergency care. Participant Eight identified that “the Emerg training I took, it was an in-house course, and I don’t remember anything really focusing on the needs of substance abuse patients. There was a mental health component and I think a small little paragraph on substance abuse”. Similarly, another participant described the education she thought RNs new to the ED were receiving at the time of the interview. I think now they spend one shift with the Psychiatric Liaison Nurse (PLN), four hours with the PLN nurse I think, as part of their orientation and other than that, there’s not a lot directly for addictions and services. So basically it’s just teach them how to manage I guess the aggressive patient and the addicted patient and turn them the other way when they’re going to vomit and wear a gown when you’re helping them to the bathroom so they don’t pee down your leg, that sort of stuff (Participant Seven). Fewer participants spoke about their pre-registration education than their ED specialty education, however when they did, the participants recalled their pre-registration education had addressed substance use, but that it had been limited to a small section within a larger module on mental health. This was identified as being inadequate preparation to provide care 95 to PWSUD because it did not provide sufficient information particularly given how common it is to see SUD in practice. For example, one participant recalled I feel like in training, we’re given…a chapter on mental health disorders and here’s a little paragraph on substance abuse or use concerns and these are what drugs people commonly use, these are what they do and that’s really it” (Participant Three). All but one participant believed that further education and training would be beneficial as a way to enhance preparedness for practice. Overwhelmingly, the participants demonstrated an interest in gaining more knowledge and skills to enable them to provide evidence informed care and to increase their confidence in their nursing care. For example, participant Seven stated a desire to have more in-house training sessions. She stated: I’d like to see somebody in the drug and addictions field that specializes in this area to come in with helpful hints and tips and give us a really good list of the resources available and which ones are appropriate for which patients so it’s clearer than what it is now. Following an analysis of the interview data, it was clear that none of the participants identified that they had received targeted education that focused on the care or management of PWSUD. While the participants stated a wish for more training and education, they also emphasized the important role that experiential learning has in the development of nurses from novice nurses to more expert nurses. Informal education was described, by the participants, as experiential learning, mentorship and self-directed study. For instance, one participant said: “I mean we do learn a lot as you go…you’re always continually learning things within the department” (Participant One). 96 The majority of the participants identified that learning as you go is of importance, with ten participants describing that their clinical experiences helped them to gain skills related to caring for PWSUD. These participants described experiential learning as an iterative process that each nurse engages in based on his or her own pre-existing knowledge and skills, and the ongoing experiences with PWSUD. One process described by a couple of the participants was that of trial and error, where nurses experimented with strategies and learned from reflecting on the outcomes. For example, one noted that it’s trial and error. … I’m still going through it, and they [new nurses to the ED] are going through their own trial and error….And sometimes they’re going to find success in their approach and sometimes they’re not and they’ll tweak it for the next time and it seems like it’s just a repeat (Participant Seven). Similarly, several other participants discussed the patterning of behaviour as a way to plan strategies for managing the care of PWSUD. Participant Nine described her experiences of learning on the job as Day-to-day, like you learn how to deal with it as they come in and it’s just based from your experience, oh, I’ve seen this kind of escalation before, I’ve seen this, you just let them be or your just do this. So it’s just based on your experience. A third participant described her perspective of experiential learning; that of learning from the patients. This highlights the value of contact with PWSUD in the preparation necessary to become proficient in caring for PWSUD. Participant Six explained, “I’ve learned a lot from myself, from walking down the wrong road (laughs). I mean to bail myself out. I think the patients themselves have taught me a lot”. 97 In addition to experiential learning and formal education, the participants also identified that mentors were important in assisting nurses to make sense of experiences in a way that improved their practice. The majority of the participants discussed the relationship between nurses new to the ED and mentorship rather than mentorship as an ongoing relationship. A few participants described this kind of learning as “on the job training, learning from your co-workers and figuring out what works and what doesn’t work” (Participant Seven) and that “the best thing we can do with new people is mentor them with somebody who’s been around a while” (Participant Six). One participant commented on the importance of having strong mentorship and that the reality is that that is not always available on the unit. She said You can hope you have some good mentors on at the time when you’re dealing with a difficult patient and how to approach that…If you don’t have good supports, then you’re just sort of feeling your way in the dark and just the best you can (Participant Seven). Several participants further explained that learning is also based on an individual’s motivation to learn independently about a given topic. For example, one participant said “if we want training, we read online, train ourselves, do it ourselves” (Participant 10). Similarly, another participant described “I have my own personal drive to find out what’s up to date and stuff” (Participant Six). This demonstrates a desire to stay current in their practice, but also suggests that nurses may be more likely to develop knowledge in areas where they have interest. One participant commented that increasing knowledge about a topic will be reflected in the practice of the individual. She said “if you have the inclination, you’ll learn and… kind of your practice will reflect that” (Participant Five). 98 Overall, the participants explained that while experiential learning and self-directed study are necessary, increased access to formal education and mentoring were needed to optimize the nursing care of PWSUD. Barriers to education. Several barriers to education were identified by the participants during the interviews. The barriers that the participants identified included both the availability of education opportunities, as well as the ability to take advantage of opportunities when they do arise. Some participants highlighted that there was a lack of availability of education focused on the care of PWSUD in the context of the underfunding of MH&A as a whole. While other participants, discussed their difficulty or perceived difficulty, in accessing education even when it was available. Several participants perceived that there were barriers to education focused on the care of PWSUD as a direct consequence of underfunding of MH&A services on an organizational level. The participants often inferred that many areas of health care are underfunded, with MH&A being perceived to be more overlooked or marginalized than other areas. For example, one participant spoke about the allocation of funding in health care: “health care in general doesn’t have enough funding, but mental health and substance abuse doesn’t have near enough attention” (Participant Eight). Another participant stated “supports in general around people with mental health and addiction issues are inadequate. …mental health is so underfunded in our community; I don’t know what to say except that it’s completely inadequate. For others, barriers to education were perceived to be the result of local health human resource challenges and financial cuts. For example, Participant 13 explained that, in the smaller centres, sustaining funding for education in the ED was problematic due to the 99 lack of access to learning opportunities “when I came here…there was an educator. They took it because of budget, budget money”. This view was shared by most of the participants from the smaller sites. Overall, these participants highlighted that inadequate and unsustained investment in education within their work setting in relation to PWSUD left them feeling unprepared when caring for this vulnerable population. In addition to a lack of dedicated resources, several participants identified a lack of time during working hours to access the education, whether this means during their shifts or being paid to attend outside of their normal working hours. This barrier was attributed to the increased workload and expectations for care while on shift and the lack of available funding for extra hours, often overtime hours, for education. Participant 1 observed “it’s hard to get people on board to do anything extra other than their shifts” and “how do you incorporate that [education] into your work day? Which is darn near impossible these days” (Participant One). Likewise, another participant commented that the onus is on the individual nurse to seek out information and to learn independently when they have less busy times on night shifts rather than specific training during work hours or paid hours of training. This participant noted that her sources of information are sometimes less academic and more media based. She said: during the nighttime when we don’t have anything to do right, so it’s just like go and browse [the internet]…like an article that you can read also as well about these things, but not much. Sometimes I can see just the article on TV or something and go okay, this is the thing, ya (Participant 10). Knowledge deficits and consequences. During the interviews, the majority of the participants identified that they perceived their knowledge base to be weak in some areas 100 when thinking about caring for a PWSUD. Some believed that they themselves had a knowledge deficit concerning illicit controlled substances, while others perceived that there was a knowledge deficit amongst the ED nurses within their site more generally. Of those that did identify knowledge deficits, several of these also identified that this could give rise to negative impacts for both the ED nurse and PWSUD who access care in the ED. One example, as identified by the participants was centred on a lack of awareness of the different drugs being consumed in their communities and their effects. One participant described this barrier, she explained: there’s an education piece that I think there’s a huge lack of right now in the Emerg department in terms of illicit substances because people don’t really know what those are and what the expected reactions are, so they don’t know what the unexpected reactions are to those … there should be some education on some of the more popular recreational drugs…I’ve seen that over and over where people don’t know what the drug is, they don’t know what is normal, what isn’t normal and.. it takes time to look that stuff up and then, I just think that something like hey, these are the drugs that you’ll see in Emerg that are illicit and what do they present as and what were the concerns with them? (Participant 12). This deficit in knowledge was viewed by some to be a barrier to educating the patient about the use of drugs and the prevention of adverse reactions. For example, the participants were concerned about preventing drug overdoses and about supporting patients to prevent this. For one of the participants, the need to have greater knowledge about substances and their effects was critical to being able to support and educate patients better. This ED nurse explains the need to know 101 “about substance[s], the drugs that patients use, what are the things? What are the possible symptoms that if they take too much, what is the management you know? And then kind of like giving an education to the patient at the end of treatment, like when they’re discharged” (Participant 13) In addition to the knowledge of the actual substances and physiological effects, many of the participants felt that they also lacked preparedness when attempting to manage the psychosocial needs or address the ongoing needs of PWSUD. The majority of the participants talked about how addiction is embedded within a complex range of psychological, social and economic factors. In the interviews, they highlighted that patients frequently experience a myriad of needs that extend physiological aspects of care. The participants discussed the challenge of providing this kind of complex care in the ED. One participant explained that nurses in the ED are “being asked to be social workers in a large part and that’s not something we’ve been trained for, it’s not something we have time for (Participant Five). Several of the participants described consequences for both the nurse and the client resulting from a lack of preparedness. Some participants identified fear as one of the consequences for nurses. Fear of approaching the issue of substance use with clients and fear of more in depth assessments that might reveal issues they do not have the skills to manage. One nurse stated that some nurses thought it “better just to not address - here’s your IV fluids and bye bye, let’s not actually talk about what’s going on for you because we don’t, we’re not trained on how to deal with that” (Participant Three). Similarly, another commented that ED nurses “give them their fluids and … carry on with [their] other, medical patients that need our attention” (Participant 10). The participants identified that the physiological care of 102 the patient is the focus in the ED and that those nurses who are less well prepared to care for PWSUD, are less likely to address the broader social and psychological issues in the context of the ED. Two participants also thought that nurses new to the ED might have fear directed at PWSUD due to their sometimes, unpredictable nature. She stated that, “at the back of their mind, they’re scared on how they are going to deal with these clients…because it’s really kind of scary” (Participant Nine). Another participant described fear in the nurses new to the ED by stating “it’s all so nurse dependent [individuals], on their background…some are totally scared out of their minds at these kind of people” (Participant 12). The participants highlighted that the consequences of this kind of fear are that nurses might either avoid the person, or the issue resulting in suboptimal care for the client and poor client outcomes. Resources and Supports During the interviews, the participants identified that there were a lack of supports and resources present in the ED to help meet the needs of the PWSUD. These included time to attend to the needs and resources within and supports outside the hospital. The analysis of the data revealed that the nurses desired to see the needs of PWSUD met, however they often lacked sufficient time to do so as a result of high patient acuity and workload. As a result, they rely on the supports including social work and PLN within the ED and the community-based resources outside of the ED. All those interviewed stated that the social workers and PLN were invaluable members of the team who assisted in providing care to PWSUD. The participants noted that these interdisciplinary team members helped address housing needs, financial needs in the case of social worker and initial psychiatric assessments and interviews as well as referrals to psychiatry and to community MH&A 103 resources (where available) in the case of PLNs. For example, participants identified that social workers provided vital supports for financial supports, housing and relevant community and health care programs. However, nurses located in the smaller study sites were less satisfied with the availability of supports in comparison to those based in the larger regional centre. One participant from the larger centre noted “we have other services in the hospital like detox which we can attempt to get our folks into and I know those are all unique services that are available only in the big city” (Participant Four). This nurse also identified that a social worker dedicated to the ED is available in the larger centre for a minimum of 12 hours per day. Conversely, some of the participants from the smaller sites were frustrated that there was only one social work role to service the entire hospital, the Aboriginal Liaison Worker “who will always help, even though they’re not First Nations, she kind of like helps them out” (Participant 13). There were no other social workers at this site, and access to social work services was limited to when the social worker was on site. This resulted in other disciplines taking on some of the social work role. This was evident in a statement by Participant Five; she stated: Mental Health is being kind of thrown into the discharge planner, social worker role and it’s not really exactly their job, do you know what I mean? It’s like part of their job but like the amount that they’re doing just, it’s far more than they’re supposed to be. Conversely, a nurse from the other smaller regional site observed that “I have two good social workers [in the hospital], one for [First Nation populations] and one not. And I will activate them almost every day, three or four times a day” (Participant Two). Participant Five 104 stated a desire to have to social worker role expanded because “more social work…would definitely take off a lot of the pressure”. Nurses from the larger regional centre appeared to have greater access to social work services than nurses from the rural centres. One participant stated that “if you come in on weekends, we only have one social worker in the whole hospital. But if you come in on the weekdays, then we have a social worker just for Emerg” (Participant Nine). Participant Eight demonstrated the importance of the social worker to ensuring good discharge planning for PWSUD by saying: I think it’s a really important role for us to connect them with social work and community supports that will help them but that’s not always done. I think it’s done a lot, like it’s done, like most of the nurses I work with try hard to do that and we a lot of times rely on social workers for that. This is seen as such an important service that Participant Eight went on to say that social work is “there every day until 8:00 at night and if they’re not [there], I’ll try to keep them [the PWSUD] in the hallway until the social worker comes in the morning.” The provision of accessible social work support appeared to be a key support identified by the participants and was seen as being critical to providing a high standard of care for PWSUD. Participants also saw the PLN as an important resource and member of the team that cares for a PWSUD. The majority of the participants closely linked mental health services and services for PWSUD in their discussions particularly around the availability of resources. They often cited PLNs as key supports for PWSUD. For example, Participant 12 said “We do have two Psychiatric Liaison Nurses, cause more often than not it’s a combination of mental health problems and substance abuse”. Likewise, another participant identified that the ED 105 has a “psych nurse, for mental health concerns if that’s a component that has to do with their substance issues” (Participant Three). All five of the nurses from two smaller regional sites stated that the PLN role was new within the months before the interviews and one participant stated that they had relied on their psychiatric unit nurses prior to this role. Participant 12 said “we have Mental Health and Addictions that mostly work upstairs [on the psychiatric unit] but they’ll usually come around in the morning on weekdays and check and see if anybody is left over from the night”. While the majority of the participants identified that there were some resources and supports, the participants made clear that there was a desire to have more hours of the day and weekend shifts covered by social workers and PLNs. While many commented that social workers and PLNs are available during weekday and daytime hours, they are more difficult to access evenings and weekends, a key time where PWSUD may access emergency services. The participants identified that caring for PWSUD is made easier and more appropriate by including the right members of the interdisciplinary team. Participant Four, a nurse based in the larger centre discussed at length the challenges she faced when providing care, stating that “24 hour social work would be wonderful and I think 24 hour Psych Liaison Nurse would be wonderful”, while a nurse working in a smaller site identified that “having around the clock support…would be helpful because it’s usually the dead of night when they [PWSUD] come in (Participant 10). Throughout the interviews, the majority of the participants described how they perceived supports outside the hospital to be lacking or inadequate. For these participants, a lack of community supports was a challenge when caring for PWSUD. Participants who 106 commented on the community resources expressed their perception that the lack of ongoing support outside of the hospital was the result of insufficient available resources, their own knowledge deficits about the function of available resources, and organizational barriers. During the interviews, several of the participants stated their frustration about the lack of resources available to meet the needs of PWSUD in the ED. One of the nurses working in a smaller regional centre stated, “it’s just like this huge gap in services that people need that aren’t being provided and then the access is very sketchy in a lot of other areas” (Participant 13). Other services designed to help people meet the larger social determinants of health, such as mental health and addictions counseling, shelter beds and harm reduction based services, were also identified as being overstretched or unavailable. The participants interviewed identified that there are supports outside the hospital setting that can assist in the ongoing post-hospital care of PWSUD. The most commonly mentioned resource was an inpatient withdrawal unit, sometimes coined detox. Participants in the largest regional centre were more likely to identify the detox unit itself as an important resource for PWSUD who are interested in abstinence, while those in the smaller regional settings were more likely to identify that specialized supports such as detox were absent. Despite an awareness of resources, the participants stated that they perceived the availability of inpatient withdrawal services in the larger regional centre as being poor, with all of the nurses from that site identifying that beds were frequently unavailable making this resource inadequate to meet the needs of PWSUD presenting to the ED. Two nurses from the larger regional site spoke about how well the inpatient withdrawal unit is able to serve the need of PWSUD. One nurse described, “we serve a lot of people, so what we have doesn’t meet our demands” (Participant Eight). Another nurse described a similar situation explaining that the 107 inpatient withdrawal unit “is a support when they have a bed available” (Participant Six). Nurses from the smaller regional sites were more likely to discuss their desire to have a closer option for people in withdrawal. For example, one participant stated “I’d love to have [an inpatient withdrawal unit” in our area, I think the closest [is] too far” (Participant Two). Similarly, a participant from another smaller regional site described that if people wish to cease substance use and desire medical withdrawal they have to “send them out to [the larger regional centre] it would be kind of nice to have one here” (Participant 13). This participant identified that at times, the distance to an in-patient withdrawal unit, is a barrier stating “since we are so far…its really kind of hard to get them [PWSUD] on board for their treatment, for detox” (Participant 13). The majority of the participants commented that the lack of sufficient resources resulted in patients with poor discharge plans or poor follow-up plans post discharge. The nurses acknowledged this as a source of frustration as they saw the lack of ongoing post hospital care as a primary reason that individual patients present frequently to the ED. One nurse described that the smaller regional hospital she worked at deals with [people from surrounding communities sometimes] far flung communities and … there’s not many resources in those communities and so they come to us and we have a little bit more, but then we often send them back to the same situation that provokes that problem in the same place, right. So it’s like you really see the cycle in a way that’s hard to deal with because you’re like, yeah, you’re just a small piece in a big machine and the big machine isn’t very responsive (Participant Five). Several nurses stated that they worried about what was next for the patient upon discharge from the ED. They expressed concern for the patients upon discharge. For example Participant Two said “it’s all good for me to say you’re discharged, but to what?” while 108 another explained that the “discharge piece is always fraught with uncertainty” (Participant Five). In addition to availability, three participants described at length that a knowledge deficit regarding the function of each of the community resources available to PWSUD acted as a barrier to directing people to the most appropriate care. One nurse described “we have a card with a bunch of numbers for addiction services. There’s a variety of numbers that they can call to connect when they leave the ED and those tend to be the other supports outside of the ED” (Participant Seven). Similarly, another nurse from the larger centre described that she knew little about the available supports explaining: I find that social workers know a lot more about the programs available…and I can never remember which one does what, but we have a file thing of the cares and I’m just like give them to them [PWSUD] and [say]call them (Participant Eight). The participants described the difficulties they experience directing PWSUD to the most appropriate resource when they are uncertain of the roles of the other programs. In one instance a participant admitted “it’s really hard when you don’t know what each service offers and if they’re going to be a good fit for the patient that you’re dealing with” (Participant Seven). Furthermore, a couple of participants were able to speak about some resources but also identified not knowing all of the resources available to PWSUD within their regions, for example, “I don’t really know what else is in the region available to be honest” (Participant Three). Finally, the nurses identified a lack of support from the health care system. Several nurses commented on a perceived lack of funding and interest in improving and expanding education and services related to MH&A. One notable exception to this is the newly 109 implemented naloxone program; where nurses are being trained to assist people with SUD to learn to administer naloxone in the community and then supplying them with a naloxone kit upon discharge. Several of the participants identified that this is in response to the increase in overdose deaths related to fentanyl that BC has seen over the last two years (British Columbia Coroners Service, 2017). All but one of the nurses commented on the implementation of the program, a program that seeks to support the rapid management of drug overdose. Two nurses described their belief that management had little interest in change, one stated: from my perspective, the management from the hospital has done nothing to improve the state of mental health and addictions in the 10 years that I’ve been there and you get a lot of eye rolling, you get a lot of sighing, occasionally you’ll find a manager that says that’s a great idea but nobody is willing to pick it up and roll with it and try. …The answers were always we have no money for that (Participant Eight). The previously mentioned barriers to providing excellence in care to PWSUD caused frustration among the nurses because they see people returning to the ED repeatedly for similar issues or issues related to their SUD. The nurses described that at times they were unable to provide adequate care and then felt poorly as a result. They worried when people left the ED without a concrete plan, and felt disappointed for clients when they were unable to provide services that both patients and nurses felt were timely. This appeared to result in cognitive dissonance between the care that nurses want to provide (empirically proficient as well as holistically sensitive) and the care that they were able to provide given the identified barriers. 110 Theme Three: Beliefs and Attitudes While training and education influence how care is provided, so too will an individual nurse’s life and professional experiences. During the interviews, the majority of the participants discussed their experiences of caring for PWSUD, the following section describes the nurses’ beliefs and attitudes about caring for PWSUD in an ED setting that arose during the interviews and how the participants believed their attitudes and beliefs influence their day to day experiences. In the first section, I chose two participants’ stories from the interviews to exemplify two very different perspectives; one of tolerance and acceptance and one of no tolerance for SUD. The more general attitudes and beliefs about PWSUD, as demonstrated by the participants, are provided in the second section. The third section explores how the participants demonstrated the desire to provide the best care possible to PWSUD regardless of their beliefs or attitudes. Personal Beliefs and Attitudes During the interviews, many of the participants described their own experiences and beliefs around SUDs candidly. Two nurses described explicitly the way in which their own specific personal experiences had influenced their approach to PWSUD in the ED. They provided examples that demonstrated two extremes of how those experiences have influenced their practice regarding PWSUD. For example, Participant Two commented about her experiences with a close family member: He came to live with me for two years after that [rehabilitation] as his sole guardian. And in my house with my kids and stuff. So I went down there to just get some prep, what should I do, what shouldn’t I do? What’s the bottom line? I need a bottom line of never do this or that. Because we want him to be successful and he obviously 111 stayed longer in order to be successful this time. It was his second or third, maybe fourth time, I’m not sure and each time we’re going to try to make it as successful as it comes to come out. And one of it was removing him from the …area and starting new and so moving him [home] and starting new. She then described how this experience had affected her practice by decreasing her tolerance for substance use and associated behaviours. This participant’s family member had experienced success with treatment for SUD and the participant demonstrated a great deal of hope related to cessation of use for those suffering from SUD. She stated: I lived it with my brother and eventually with driving him away and saying you can’t come around, you can’t be part of my life with your substances, not even for a moment, or my children’s life. And that reminds me of just being that hard line offering the help but not supporting his habit, The participants’ opinions around this could be seen as being consistent with a more abstinence based approach to treating PWSUD. While this perspective is described here using a personal story, other participants’ perspectives echoed the same point of view and appear in the next section. A second participant (Participant Three) also described experiences with PWSUD in her personal life. She spoke about a close friend who had struggled with SUD all throughout his teenage years and into his adult life. This participant’s description of how her practice reflected this personal experience differed from the previous participant because she stated that she gained increased empathy towards PWSUD. Her approach was less vested in cessation of use and more focused on seeing the person in front of her in that moment. 112 I have personal experience...my best childhood friend has huge substance abuse issues. He’s been constantly in and out of treatment his whole life so, whenever a patient comes in with that sort of a history, I try and put it into perspective and think of, okay, if this person were my best friend, how would I treat them or how would they want me to treat them. And, you try and not forget the fact that whatever is going on with their substance issues, that at the end of the day they are still a person. The extremes described in the previous paragraph, one nurse who developed an intolerance for substance use and the other who had increased empathy for PWSUD, were reinforced throughout the interviews where participants’ attitudes and beliefs about the causes of SUD were evident. This binary view of SUD was apparent in the wider interview data. For example some nurses expressed their beliefs about SUD being a process that was complex and many faceted with influences from mental health, social issues and larger societal influences such as colonization and poverty, making it the result of extrinsic factors. Other participants expressed beliefs about SUD being a matter of choice and thus the result of intrinsic factors. When exploring these dominant paradigms purposively in the analysis, it appeared that participants who believed in extrinsic influences as a factor in SUD were less likely to describe SUD as a choice and more likely to perceive it as a disease process. For example, one participant saw SUD as “an illness just like anything else, so that they need to be treated, we can’t say no we can’t do this because, I mean, it’s an illness too, it’s just harder to deal with” (Participant One). Another participant reiterated this saying “I honestly just think of it as their disease process” (Participant Six). Similarly, Participant Eight identified that the 113 perceptions of SUD differ among ED nurses; however, she demonstrated her beliefs about SUD by stating that PWSUD who are withdrawing in the ED are a lot sicker than some people think, or most people think…because [the perception is]it’s like a done to yourself kind of thing…If they’re managed properly, they’ll be fine, but if you have someone coming off of opiates, who is a hardcore opiate user, they’re sick. Like they almost need [an] Intensive Care Unit [ICU] and then keeping them there because they want to use still and like it’s a constant struggle for them and they know if they use they’ll feel better. Another example of this perspective is evident in assertions made during the interviews about larger social issues that can be part of SUDs. For instance, Participant Seven observed that “often there’s many different things involved with people with addictions, as far as psychological factors of why they are addicted. Is it depression? Is it abuse? What has done that?” Several other participants commented on the way in which some PWSUD may also be considered doubly-marginalized. For example, participants explained that PWSUDs may experience stigma as a result of the SUD in addition to other social marginalizing factors; for example, poverty, ethnicity, unemployment, and many of the other social determinants of health. This participant explained: “they’ve got no homes, they go to shelters or they are from other communities…and they have nowhere to go and they end up on the streets and so they just live on the street almost all their lives” (Participant Nine). While these participants recognized that not all people with SUD experience this double marginalization, one participant commented: I find the majority of people that we see with SUD tend to come from backgrounds that are pretty…what’s the word I’m looking for?...they come from broken 114 homes…they were raised on, they’re First Nations, they were raised on reserve where they had limited resources, education levels are usually low, support systems are lacking, they may have been raised by a single parent, they may not even have been raised by their own parents themselves.…Access to health care may have been limited and so it’s almost like that cycle continues. They… they’re exposed to that in their childhood and then they grow and become an adult and they continue in that lifestyle where they probably don’t have a very high level of education, access to services may be limited, um their income may be limited, they may not even have a job, they may be relying on the government for social assistance, welfare whatever it may be. So… they’re lacking in a lot of important… I guess determinants of health. (Participant Three). Some of the participants demonstrated beliefs consistent with an understanding of the cause of SUD as something extrinsic to the client. They placed emphasis on the influence of the social determinants of health and trauma. For example, Participant Nine, a nurse with 12 years of experience in the ED and 22 years of experience in nursing, expressed empathy for PWSUD and described this as a necessary part of caring for PWSUD. She made reference to the difficult situations that patients find themselves in and her belief that SUD is not a choice because people would choose differently. Importantly, this participant also spoke about impact on nurses that seeing people in distress has. They have vicarious trauma because of dealing with all this stuff. So being an Emerg nurse, I think it’s a gift. You need to have passion to be a good Emerg nurse. You need to have humor, cause if you don’t you go insane. Because of the things that you see, and the things that you hear, and the things that you have to deal with, and I have 115 a soft spot with people with addictions and with alcohol abuse, just because I always think that if they have a choice, they wouldn’t be in that kind of situation. So I say they have no choice, they probably really didn’t [ever] have any choice, that’s why they’re in that kind of situation. (Participant Nine) Through the analysis of the data, a smaller group of participants explained how they perceived SUD as a matter of personal choice. One participant provided a very clear example by saying “I look at it as a choice, it’s a choice of his life. He owns his addiction and I have no problem with that” (Participant Two). While others made statements about personal responsibility for SUD and differentiated SUD from other illnesses. For example, participant 12 stated that she thought nurses often differentiated between “people that have real illness not like an illness that they, you know brought upon themselves, which is unfortunate” (Participant 12). Many of the participants commented on the perceived unwillingness of PWSUD to seek and accept treatment. While some of the participants expressed hope, they also identified that in their experience many PWSUD are “not open to like [change], they don’t want to really accept much treatment” (Participant Five). This led some participants to express frustration. For instance, when speaking about PWSUD who use alcohol, one participant stated, “we have people that do [that] to themselves, constantly come in, get you know, rehydrated, get sober [and] leave, [and] don’t seek any counselling (Participant 10). A few of the participants made assumptions about PWSUD and the level of personal accountability that is taken for self-care. For example, one participant described her belief that “they [PWSUD] don’t care, they go off and they drink more and drink more” (Participant Two). Some of the participants expressed frustration due to their desire to 116 provide help but being unable to do so. Participant 10 a nurse from one of the smaller sites with 27 years of experience in the ED stated that “it’s kind of frustrating to think you can help them but they don’t want to be …if you don’t want to be treated, you’re not going to want to seek treatment”. The nurse participants expressed a variety of attitudes and beliefs about SUD and PWSUD that help to inform their practice. They expressed empathy towards PWSUD as well as frustration with the iterative nature of providing care to some PWSUD. The frustration expressed by these participants was often related to not being able to help in the ways in which they would like to help which were informed by their beliefs and values. Patient and Provider Interface Participants identified the interface between the patient and the provider as a significant influence on the experience of caring for PWSUD. The participants described how their approach impacted the interactions they had as well as how client presentation and cooperation impacted the interactions Interpersonal Interactions. Throughout the interviews, the participants commented on their interactions with PWSUD. Building rapport with clients was cited by the participants as crucial for providing for the needs of the client. Some of the common threads through the discussions were focused on the importance of respect and honesty, and a non-judgmental approach to building strong therapeutic relationships. Many participants also identified approaches that did not lend themselves to building rapport. Furthermore, several of the participants noted the interpersonal challenges that often exist in providing care for PWSUD. Two of the participants described approaching PWSUD with respect. One participant stated her belief that “you need to treat everybody respectfully and because of that people are 117 more open with me in terms of why they’re there” (Participant Four). She goes on to say: It’s because I treat them with respect that they would even answer a question when I say you know why did you come to emergency today? That’s the question I get, that’s what I ask them and they tell me well I don’t want to go to the walk-in clinic because people are mean to me or people have laughed at me or they won’t treat me at the walk in clinic. And I think it all has to do with treating people respectfully and not judging them when they’re sitting in front of you. The other participant described how a lack of respect can interrupt the therapeutic relationship because “if they can see that you’re not respecting them or you’re judging their choices or their decisions then that relationship is not going to be able to be appropriately and positively established” (Participant Three). Honesty arose during the interviews as a concept integral to the therapeutic relationship. One participant commented on the role of honesty on the part of the care provider stating that being honest with [PWSUD] is the most helpful approach… often just having an honest conversation with them and saying look, I am here to help you, we’re going to get through this. We’re going to do it together. ..I am not okay with you swearing at me or calling me names or…being mean to me” (Participant Six). This participant did note that her approach was carefully considered with any patient, whose level of consciousness is compromised, not just those with PWSUD. When describing her approach, another nurse denoted belief about honesty being reciprocal she explained “I think just honesty is helpful. If you’re honest with them and then for most patients, they feel that they can be honest with you if you just remain non-judgmental” (Participant Eight). Further 118 to this, a third participant commented on the importance of honesty in developing a therapeutic relationship that benefits the nurse’s ability to complete a thorough and comprehensive assessment. The more a nurse learns about a client, the better able he or she is to plan appropriate care resulting in improved client outcomes. This participant’s approach was to just try to come at them [PWSUD] in an approach of being really real and honest, non-judgmental and just trying to get them to trust me so we can get to the bottom of what’s all the substances they’re using, so you can build that bond so that they can access help if they need it (Participant Seven). Judgment has been included in several of the excerpts in the sections on both honesty and respect. It is clear that many participants believe a nonjudgmental approach to caring for PWSUD is important. Participant Eight commented on the importance of being nonjudgmental. She shared a story of caring for a client that required her to adopt a nonjudgmental approach in order to insure the client could access the care she needed. The following is an excerpt from that story. I had a girl come in who, she was, I forget what she was detoxing off of, but throughout assessing her, getting to know her a bit more…she was a young girl, she was only 19, but then throughout the assessment I got that she had been here… prostituting and she had quite a few sores in her mouth and the issue she came in for her eye was probably STI [sexually transmitted infection] related kind of thing. So in that moment I tried to really withhold my expressions and stuff to be like ya, that’s okay, a prostitute, that’s fine, we’ll get you checked out, maybe we’ll get you some HIV testing, like what drugs have you been [doing]? I try to just be more like 119 unaffected by their story because I find if you’re like “you’re prostituting!”, they’re like oh God, why did I say that? And then it becomes a big deal, whereas if you’re kind of just chill about everything, then they’ll open up to you a lot more and she ended up staying. This was her initial contact with emergency rooms and…initial contact of being positive and not judgmental. This narrative exemplifies how important and how difficult remaining nonjudgmental can be for nurses. Several of the participants discussed approaches that they had tried or had witnessed that they felt were less likely to allow for the creation of a therapeutic relationship between a nurse and a PWSUD. The participants who commented on approaches that were less successful spoke about expectations, and attitude. The consensus seemed to be that expectations of people actively using substances, needed to be adjusted to reflect the individual’s current abilities. One participant simply stated “getting mad at them isn’t helpful, and having unrealistic expectations of what they can accomplish when they’re intoxicated” (Participant Six) while Participant Seven said “never try to argue with a somebody on substances…it doesn’t work, so don’t even try”. The potential outcome of the wrong approach with someone whose cognitive abilities are impaired, was identified by the participants as potentially volatile behaviour on the part of the client. One participant described her observation that at times, nurses new to the ED can be overly “aggressive with [PWSUD]…Being aggressive and not treating them with respect just tends to escalate people who are not fully in control of their mentation” (Participant Four). Challenges in interacting with PWSUD were identified by the majority of the participants and several noted that being skilled at communicating with an agitated patient is 120 important in the management of someone who is actively using substances. Participant One described, “if the [PWSUD] presents cooperative and calm then it’s much easier, of course, to handle… If the situation is out of control and everybody is adding to that agitation, it makes it that much worse”. Since nursing is interactive, it is crucial that the nurse not contribute to the escalation of a patient’s behaviour but rather work to defuse potentially dangerous situations. Many of the participants talked about safety in the context of caring for PWSUD. They perceived that PWSUD who were actively using substances, were an increase risk to the personal safety of the ED staff as well as the personal safety of other individuals in the ED. The concept of safety arose in ten of the interviews. Two of the participants specifically identified their perceived risk to the general public. They described their desire to insure that people were protected from PWSUD at risk for violence. Participant Six talked about her beliefs about her responsibilities. As an Emergency nurse, I do have to be aware of the safety of my colleagues and myself and the public that’re in the Emergency department because I acknowledge that anybody with altered level of consciousness…is at risk for some verbal violence but also physical violence, predictable or unpredictable”. Another nurse affirmed this saying she tries to insure “the regular community …feel safe in our ED” (Participant Two). These participants did not offer specific practices that they use to insure the safety of everyone. The safety of the nurses caring for PWSUD arose as a significant piece of the experience of caring for PWSUD. Aware of the safety concerns associated with caring for PWSUD, many participants developed strategies and plans to maintain their personal safety 121 and their colleagues’ safety when caring for those with PWSUD. There were several examples of this within the data. Examples included varying their approaches to PWSUD from those they might use with other clients, involving outside agencies such as the RCMP and insuring that they have escape plans or safe places they can go if the situation becomes unsafe. One participant from one of the smaller sites, where there are a maximum of three staff on any time, explained “before [I] can help them [the PWSUD], I need to make myself safe…I can lock myself in our med room, it has a lock” (Participant 11). The need to be safe was echoed by another nurse from a rural site who described how she tries to maintain her safety, “the only thing is safety, if they’re going to hit you don’t confront them…step away, make sure you’re safe” (Participant 10). The nurses from the smaller sites were more likely to discuss strategies that they could enact alone while nurses from the urban site clearly recognized they had resources to help. One nurse from the urban site stated that when confronted with a potentially violent client, they can call the code white team or security to help (Participant Four and Participant Six). Five of the participants stated they had received training focused on the agitated or aggressive client such as “code white” (Participant Nine). Nurses from both the rural and urban site are included in that number. Five of the participants talked about PWSUD and the Royal Canadian Mounted Police (RCMP). Three participants described how they felt they could rely on the police to assist with aggressive clients with SUD. Participant 10 described “sometimes they [PWSUD] can become abusive…and we just think…let’s call the RCMP and let them go to cells”. Participant 6 also explained “of course we use the RCMP when we need to …cause there’s no doubt there’s safety issues that come across with this group…[sometimes] it is the right place for them [PWSUD] to go to the RCMP cells for a little bit so that we know they’ll be 122 safe”. This theme described the participants’ beliefs about and attitudes toward PWSUD and SUD. While the participants demonstrated a variety of beliefs and attitudes ranging from intolerance of the behaviour to acceptance and understanding of the deeper issues associated with the behaviour, many participants also noted that approaching a PWSUD with genuine care, respect and the desire to engage in a therapeutic relationship was important to developing rapport. However, many participants also noted that some PWSUD can constitute a risk to the safety of themselves, the medical staff that work with them and the general public and are aware that they need to keep themselves safe. Summary This chapter described the participants’ experiences of caring for PWSUD in the ED setting. The analysis of the interview data resulted in the emergence of three themes including: PWSUD in the ED which outlined the participants’ beliefs about the role of the ED and the ED nurse with respect to caring for PWSUD; Organizational Barriers where participants perceived barriers to caring for PWSUD were described; and Beliefs and Attitudes where the nurses’ beliefs and attitudes about SUD and PWSUD were described. The following chapter will discuss the findings of this study in relation to practice, policy and future research. 123 Chapter Five: Discussion This qualitative description study examined how 13 RNs working in the ED experienced caring for PWSUD. The research has provided insights into the challenges that RNs face caring for PWSUD in the ED setting, the need for resources specifically aimed at improving outcomes for PWSUD, the varying attitudes and beliefs that RNs hold regarding SUD, and PWSUD and how these impact care provision. The following chapter provides a discussion of the key findings as they related to existing literature, as well as assessing the strengths and weaknesses of the research and key contributions to nursing policy, practice, and education. Nurses’ Experiences of Caring for PWSUD in the ED Through analysis of the verbatim transcripts, three major themes were identified as influencing RNs experiences of caring for PWSUD: the role of the ED and the ED RN in the care of PWSUD; organizational factors such as access to education and training and the availability of resources both in the ED and outside the ED; and, personal beliefs and attitudes about SUD. Overall, the nurses identified caring for PWSUD in the ED as a challenging endeavor for which they felt underprepared and under supported. They held a variety of beliefs and attitudes about SUD, as well as what the role of the ED nurse should be in the care of this population. The beliefs about SUD ranged from SUD as a disease process, to SUD as a choice and more closely related to a personal failing. Some nurses were very open to caring for PWSUD in the ED while others believed that PWSUD could be better cared for in other settings. Most RNs demonstrated some frustration in caring for PWSUD, largely related to a lack of resources, challenges in interpersonal interactions, and personal beliefs about SUD. Finally, while few nurses in the interviews identified themselves as 124 having stigmatizing attitudes toward PWSUD, stigmatization was prevalent in the language used, the examples provided, and the nurses’ perceptions of how PWSUD were treated in the ED. Despite all the perceived challenges and barriers to providing good care to PWSUD in the ED, all of the nurses interviewed in this study described an ongoing desire to improve care for this population. Frustration was evident both explicitly and implicitly in the interview transcripts and was often attributed to feeling unable to support PWSUD adequately. Participants identified difficulty in accessing appropriate and timely resources for PWSUD as well as in providing evidence-informed care, resulting in clients who return to the ED frequently with similar issues. The following sections will explore these key findings as they relate to the existing knowledge and literature around SUDs. PWSUD in the ED During the interviews, RNs described how they experienced caring for PWSUD in the ED. They identified that the primary purpose of the ED was to provide crisis intervention, maintenance of patient safety, and physiological health management, perceiving that this did not always match the needs of patients presenting with SUD or SUD-related issues. Whether the participants believed that the ED was the correct place for PWSUD with non-emergent issues to seek treatment or not, they all identified their desire to provide good care and their frustration when PWSUD did not receive the level of care or help they should. This theme raises questions of role legitimacy and compassion satisfaction for nurses working in the ED setting. Role legitimacy was defined by Skinner, Roche, Toby, & Addy (2005) as concerning the “perceived boundaries of professional responsibility and right to intervene” (p.450). The 125 participants felt split on whether the non-emergent care needs of PWSUD really were the concern of the ED and the associated staff. Some felt that non-emergent or non-urgent care needs were not appropriate to the ED, while others felt that ED nurses should treat whoever comes through the door and recognized the limitations that some PWSUD may face when attempting to access health care. In the northern regions of Canada, particularly in the rural north of BC, access to specialized care can be difficult, even for those who are not already potentially marginalized. Distance and climate can make regular travel difficult and expensive, and can mean that some individuals face limited options when attempting to access care (De Leeuw et al., 2002; Parker et al., 2012). As such, many people may choose to access the ED in the absence of access to other healthcare services (Kennedy et al., 2014; Uscher-Pines et al., 2013). As previously highlighted, PWSUDs may lack ready access to regular healthcare services, such as primary care providers, by virtue of their health condition or related behaviours (Cooke, 2017). Thus, it becomes very important that the health care settings that are available are able and willing to assist PWSUD with care. The participants in this study identified that many PWSUDs lacked access to other healthcare services and that this was even more challenging for those located in rural and remote settings. The ED nurses recognized that they must be able to provide diverse services to a wide range of patients, including PWSUD and have organizational support for this. This need for legitimization was also evident in the work of both Skinner et al. (2005) and Ford, et al (2008; 2009), who identified that support in the workplace is the most important factor in legitimizing work with PWSUD. Ford et al. (2009) found that workplace education and training, in conjunction with workplace support for interventions related to caring for 126 PWSUD, was the most effective way to improve therapeutic attitudes towards PWSUD and that education alone was insufficient to enable significant change. Likewise, Skinner et al. (2005) also found that organizational or systems-level interventions were necessary to improve role legitimacy and to create a healthcare culture that supports the management and support of those PWSUD. The need for role legitimacy and support is not limited to the nursing profession and has emerged as an important issue for many other health care providers. Role support is defined as the “belief that colleagues and supervisors provide support in their work” (Loughran, Hohman, & Finnegan, 2010, p.243). For example, an American study by Loughran, Hohman, and Finnegan (2010) investigated role legitimacy by undertaking a survey of social workers (n=147) and social work students (n=45) that care for PWSUD. Data were analyzed using multiple regression models and they identified that experience caring for PWSUD, education specific to the work of caring for PWSUD, and support in the role were important to the development of role legitimacy. Their findings corroborated those of Ford et al., (2008), who also found that increased education combined with greater role support has the greatest impact on the development of role legitimacy and therapeutic attitudes. Moving forward, an increasing focus on organizational and professional supports, including targeted education on SUDs, may provide a viable means of promoting more effective and patient-centred care for PWSUDs. Wanting to Do the Right Thing Participants in this study described at length the frustrations they felt when providing care to PWSUD in the ED setting. A topic that surfaced time and again was that PWSUD often received a level of care that did not meet their complex needs. The RNs in this study 127 perceived that these gaps in care arose due to institutional limitations, such as a paucity of resources and a lack of adequate time and space to provide complex psychosocial care. This left many of the participants feeling a lack of satisfaction with the job they perform and led to many feeling disengaged. Burtson and Stichler (2010) refer to such disconnections between practice ideals and realities as resulting in a lack of ‘compassion satisfaction’, further contending that low compassion satisfaction can result in the nurse “withdrawing emotionally from patients for self-protection” (Burtson & Stichler, 2010, p. 1820). Therefore, increasing compassion satisfaction could be an integral part of improving the experience of caring for PWSUD for both nurses and clients. One way to improve compassion satisfaction and promote nurse engagement with PWSUD is to create care pathways to assist RNs in clinical decision-making around substance use and PWSUD (Demirkol et al., 2017). Clear guidelines will provide nurses with confidence that they are in fact providing optimal care to this group of clients. Care pathways are “designed as recommendations for optimal management plans” that focus on increasing the quality and efficiency of care provided by health care facilities (McCue, Beck, & Smothers, 2009, p.43). Clear guidelines and expectations for the care of PWSUD could have the effects of improving the confidence and competence of ED nurses caring for PWSUDs, reducing variations in care and optimizing the application of evidence-based practices (McCue et al., 2009). Additionally, care pathways assist in directing patient populations to access the most appropriate care, in the most appropriate place, at the most appropriate time (Adeyemi, Demir, & Chaussalet, 2016). Another potential benefit of adding care pathways is that standardizing care and benchmarking care will highlight the need for greater compassion and effective care, while 128 potentially eliminating some of the stigma and effects of personal attitudes and beliefs from nursing care. This may lead to improvements in the experience of care and potential outcomes for clients. Given that the participants in my study identified a desire to help PWSUD when they present to the ED, having improved outcomes and clear pathways may in turn reduce the frustrations experienced by many nurses working in EDs. While it may be unrealistic to change each individual nurses’ beliefs and attitudes toward PWSUD, as these have developed over a lifetime of experiences and may not be easily altered, it may be possible to alter therapeutic attitudes toward caring for PWSUD through care pathways and organizational supports (Ford et al., 2009). Organizational Barriers to Care The second theme that emerged from the data analysis, organizational barriers to care, captured examples of where organizational or institutional structures negatively impacted the nurses’ perceived ability to provide good or excellent care to PWSUD. First, participants in this study described a low level of preparedness to care for PWSUD, with many reporting inadequate educational preparation and training. Second, participants identified a lack of available resources and supports to assist them in providing care to PWSUD. Finally, participants recognized the population distribution of the northern BC region, in concert with less frequently available or accessible training opportunities and resources, as being challenging (Puskar et al., 2016). These will now be discussed further. Preparedness The concept of preparedness encompassed the participants’ perceptions of their own readiness or their perceived ability to provide good care to PWSUD. Overwhelmingly, the participants identified that they felt they had insufficient training and education to prepare 129 them to care for this complex population of patients. Such feelings of being insufficiently prepared or knowledgeable about the needs of PWSUD are consistent with existing studies exploring PWSUD (Ford et al., 2009; Kelleher & Cotter, 2007; Happell et al., 2002; Lovi & Barr, 2009; Monks et al., 2012; Morgan, 2006; Raistrick et al., 2008). For example, in their quantitative study, Happell et al. (2002) conducted a survey of 308 nurses, of which 134 were RNs. Happell, et al. used a modified Substance Abuse Attitudes Survey, the results of which indicated that while nurses regularly screened for SUD, they required more training in the identification and treatment of SUDs. This study identified that increased training was needed not only for specialist nurses, but for all nurses across the continuum of care. My study concurred, with participants identifying the desire for more education on SUD. Similarly, in their qualitative study, Monks et al. (2012) conducted a study of nurses caring for PWSUD in an urban setting. They identified that nurses lacked confidence in managing PWSUD’s health care needs and that increased knowledge and education would be necessary to improve the provision of care and the nurses’ experiences of providing care to PWSUD. Participants in my research identified that their preregistration education did not adequately address the needs of caring for PWSUD. This supported the findings of Lovi and Barr (2009), who identified that SUD are inadequately addressed by general RN education in Australia and that more specific education during nurses’ training could be beneficial to improving health outcomes and satisfaction with health care for PWSUD. Overall, by undertaking this qualitative study, my research offers a more in-depth description of nurses’ day-to-day experiences of caring for PWSUD, that served to highlight this need for further education and training both pre and post registration. Additionally, the rural and northern focus of my study offers a unique view of this issue, thus contributing to 130 the existing knowledge in the field. However, work place training and education in the rural context can be difficult to provide and maintain, largely related to the cost of travel, human resource limitations, and high turnover of health care workers (Ellis & Phillip, 2010; Puskar et al., 2016). Several of the participants in my study described the difficulty they had in accessing education due to its lack of availability within their workplace and the challenges of travelling long distances for educational opportunities. For example, one participant that worked in a smaller site stated “education here, in this area is kind of very less than in [the larger site]” (Participant 13). Thus, innovative and imaginative solutions must be sought to ensure nurses in rural and remote settings feel they have adequate support to care for PWSUD. There have been few studies that examined workplace education for nurses in rural and remote settings. For example, Ellis and Phillip (2010) conducted a course evaluation of a Mental Health Emergencies Course that sought to develop clinicians’ skills in mental health emergencies. The course was attended by rural and remote ED nurses in Australia. Ellis and Phillip used pre (n=475) and post (n=163) workshop questionnaires, as well as telephone interviews with 44 self-identified respondents. The pre and post workshop questionnaires were not linked and it was impossible to estimate improvement in this way. However during the interviews, Ellis and Phillip (2010) found that participation in the workshop improved nurses’ attitudes towards those with mental health issues, feelings of role legitimacy, and preparedness to manage mental health emergencies. This was most evident in the participants’ reports of improved communication with people with mental health emergencies. Since mental health and substance use are often closely linked, it may be that similar workshops aimed more specifically at SUD and PWSUD would have similar effects. 131 Further research could examine how educational supports impact the perceptions of PWSUD and the delivery of nursing care. Resources and Supports During the interviews, participants in my study described numerous barriers that impacted upon their ability to provide high quality care and expressed frustration in relation to these perceived barriers. Frequently, the blame for their frustration was placed firmly on the organizational structure and availability of resources for PWSUD. Lack of resources and supports were indicated as being associated with repeat visits to the ED for SUD-associated complaints. Having people return again and again with similar or identical complaints left the nurses feeling like they were not able to make a difference. These findings were consistent with existing studies in the following ways. First, there are gaps in the provision of services for MH&A, particularly in the treatment of SUD. These gaps exist in rural and remote settings and occur as a result of disparity in access to appropriate treatments between those living rurally and those residing in urban centres (Broffman et al., 2017). My study was conducted in the context of northern BC, where many communities are considered rural by virtue of their distance to a larger metropolitan area. Similar rural impacts were uncovered by Davis et al., (2016) who investigated disparities in access to care in rural South Dakota. They used a cross sectional address-based survey to assess whether people in rural settings perceived themselves as being able to access or obtain care for alcohol and substance use issues. They found that individuals living rurally, and Indigenous people living on reservations, were less likely to obtain all the care they needed. Likewise, Broffman et al. (2017), in their study of rural South Dakota, described a number of barriers, including stigma associated with SUD experienced by PWSUD, that 132 influence the detection of SUD by health care providers. They also identified a high ’needfor-care threshold’ for seeking care by those experiencing SUD as a barrier to care (2017, p. 72). Potential solutions to the barriers to access to care may include the increased use of technology, such as telehealth or health care appointments facilitated with video technology. Further research into the use of peer support networks and increased community involvement as a way to support PWSUD in their home communities could also facilitate improved health outcomes and experiences for PWSUD. In the context of SUD, organizational structure can reinforce stigmatizing attitudes that make it difficult or unappealing for PWSUD to seek assistance. This was identified by several participants in my study. One in particular stated that PWSUD sometimes do not seek care because they feel disrespected or judged by health care providers but also by other patients that are seeking care in other health care settings (Participant Four). These findings are congruent with those of Chang et al. (2016), who emphasized how institutional dynamics can reinforce the stigmatizing process and further increase the barriers to care for PWSUD. Health care workers who do not have the skills and abilities to manage the complex needs of PWSUD, a paucity of community resources for ongoing monitoring and care for those with PWSUD, and low role legitimacy for the care of this population can negatively impact the experiences of PWSUD in the health care system. However, institutional policy and practice can also have very positive influences on the destigmatizing process, thus increasing access and quality of care to PWSUD. An example of this is described by Ford, Bammer and Becker (2008), who found that the most effective interventions to improve nurses’ therapeutic attitudes were to increase role support along with workplace education. Ford et al. (2008) used data from a cross sectional survey of nurses in the Australian Capital 133 Territory. The survey included personal characteristics, attitudes towards substance use, and professional practice factors. Multivariable linear regression of the data was undertaken. They found that workplace education and role support resulted in improved knowledge, comfort, and confidence in ability to care for PWSUD, as well as increased legitimacy of the work for those carrying it out. In settings where it is not realistic to have specialized services in every community, such as northern BC where the population is dispersed across a large geographical area, generalist nurses and primary care providers (physicians and nurse practitioners) must have a good working knowledge of caring for PWSUD as they may be the only resources available in some communities. One institutional approach that has been demonstrated to have positive outcomes is a harm reduction approach (Ball, 2007; British Columbia Harm Reduction Strategies and Services, 2008; Hilton, Thompson, Moore-Dempsey, & Janzen, 2001; Lightfoot et al., 2009). Harm reduction “is characterized by easy access to help and care, help on the user’s terms with few conditions, a focus on how to reduce injury related to health, hygiene, sexual conduct, family and economy, and a focus on an anti-stigmatizing attitude” (Edland-Gryt & Skatvedt, 2012). While harm reduction, as an approach to care, by no means rules out treatment and abstinence as a possible strategy to manage SUD, it does not make it a requirement. Harm reduction may provide ED nurses with a set of tools and interventions that they can implement for every client with SUD. For example, providing education on good practice for injecting, providing clean supplies, or offering testing for blood and body fluid borne diseases are just some of the services nurses’ could champion. This may enhance their compassion satisfaction as they are meeting the needs as described by the client and are helping. Further exploration of ways to develop positive institutional cultures represents an 134 important opportunity for future research that may lead to improvements in patient and health system outcomes. Beliefs and Attitudes The participants in my study discussed or demonstrated a variety of beliefs and attitudes regarding SUD and PWSUD during the interviews. The beliefs demonstrated by the participants about the nature of substance use varied from those who believed SUD to be a disease process, to those who believed substance use was a choice. Some participants recognized the larger social contributions to the issue of substance use, while others viewed substance use as a personal concern rather than a societal issue. These findings were consistent with those described by many of the authors presented in the literature review (Adams, 2008; Chappell & Schnoll, 1977; Chu & Galang, 2013; Fischer et al., 1975; Happell et al., 2002; Harling & Turner, 2012; Howard & Holmshaw, 2010; Kelleher, 2007; Kelleher & Cotter, 2008; Lindberg et al., 2006; Lovi & Barr, 2009; McLaughlin et al., 2003; Morgan, 2006; Morley et al., 2015; Pinikahana et al., 2002; van Boekel et al., 2014; Van der Woerd et al., 2010). For example, van Boekel, et al. (2013) carried out a literature review of 28 articles aimed at discovering the attitudes of health care professionals across western countries. They found that health care professionals commonly held negative views toward PWSUD when compared to attitudes towards people with other disorders such as diabetes or heart disease. However, they found that those with increased contact with PWSUD were more likely to hold neutral views of SUD and PWSUD. Their review consisted almost entirely of quantitative studies (n=26). My study offers a complementary perspective of this issue as it was qualitative in nature and participants had more opportunity to offer their own perspective on their beliefs and attitudes. An example of this is that while many participants discussed 135 the challenges they faced in providing care to PWSUD, they also offered their desire to provide high quality care to the clients. The development of beliefs and values related to any topic is a complex process that is influenced by the individual’s personal values, life histories, and experiences in both personal and professional spheres, as well as wider societal values (Harling & Turner, 2012). As a result, nurses’ attitudes and beliefs in areas related to SUD have been found to closely mirror those of the general population. Thus, it is reasonable to assume that the beliefs and attitudes of RNs in this study may also have similarities those of the general population (Ford, 2010). This is significant because it indicates that in order to change beliefs, a change in society’s perception of SUD and PWSUD will need to occur. This presents another avenue for further research. An interesting addition from my study is that regardless of the attitudes and beliefs held by the individual participant, all expressed a desire to help PWSUD and frustration at not being able to help. That being said, their perspective on what help entailed differed. Some participants perceived help as meeting the expressed needs of the client, while others perceived help as assistance in cessation of substance use. From my perspective, I believe this is an important finding as it indicates a discrepancy in the definition of the concept of help and how it relates to providing care to PWSUD. While helping within nursing care is not a new phenomenon, there is little literature available concerning what this concept means in the context of nursing. The lack of a clear understanding of how helping is defined is significant, as it indicates that the nurses in study sites were not clear on their role in the care of PWSUD. I believe that a clearer understanding of what help means in the context of 136 nursing could lead to better, more patient centered practices that result in positive outcomes for PWSUD. Patient Provider Interface The third subtheme to emerge in this category described the interface between the patient and the care provider, and the impact this had on both role legitimacy and compassion satisfaction. PWSUD and health care providers have often had a relationship that consists of a kind of mutual distrust (Chang et al., 2016; Monks et al., 2012). The participants in this study described this same relationship. Patients were described by the participants as being difficult to manage, sometimes violent and manipulative, and at times unwilling to help themselves. Monks et al. (2012) described a cycle where PWSUD exert negative behaviours as a method of having their needs met, the PWSUD are then labelled by nursing staff as difficult, and are then labelled as difficult on subsequent visits further impacting the care that is provided. This treatment cycle reinforces PWSUD’s feeling that their needs will not be met, resulting in further negative behaviours, and so on. In order to end this negative cycle, one of the participants in the interaction needs to alter their input and I would argue that this falls into the professionals’ purview. Nurses must alter their end of the interaction in order to alter the outcome. The ability to change this cycle will require education to stigmatizing views, as well as operational and organizational support (Ford, 2010; Ford, 2011; McLaughlin et al., 2006; Monks et al., 2012). Stigma. Stigma is defined as “not simply a discrediting individual characteristic, but rather as a social process involving labelling, stereotyping, status loss and discrimination that unfolds when unequal power dynamics exist” (Chang et al., 2016, p.91). Stigma was visible throughout the data collection, particularly in relation to the language used to describe 137 PWSUD and their actions. Participants each provided a description of a time they cared for a PWSUD. Within these reflections, there were many examples of stigmatizing language. For example several participants expressed the need to be wary of clients who were actively intoxicated because “sometimes they can become abusive, verbally and physically” (Participant 10), while another stated: “substances have upped their [PWSUD] violence scale” (Participant 11). Only one of the participants qualified her awareness of the potential for violence by stating her understanding that “anybody with an altered level of consciousness is at risk for some verbal violence, but also physical violence, predictable or unpredictable” (Participant Six). Several participants explicitly identified stigma as a systemic issue, one that was pervasive not only within the ED but also in the rest of the hospital setting. One of the participants provided an example of this and described a situation in which a PWSUD, who was well known to the ED staff, presented with symptoms that were not usual for the person. The ED nurses believed that something more sinister and not directly related to SUD was occurring and the person was admitted to hospital. Attempts to transfer the patient from the ED to the most appropriate clinical unit were made, but the participant recalled that they experienced a great deal of difficulty convincing the accepting unit that a higher level of care was necessary as assumptions were made about the person based on their history of SUD. This resulted in a 12-hour delay in transfer from the ED to the unit. The client was very ill with an issue unrelated to SUD and the client required a high level of ongoing medical intervention to survive (Participant Seven). Other participants characterized PWSUD as not wanting help. These participants perceived PWSUD to be often unwilling to accept help or seek lifestyle changes. Many of the 138 participants who described PWSUD as not wanting help, demonstrated frustration due to the client’s lack of participation or desire to receive care. For example, Participant Five explained “because as a nurse, I’m coming from that compassionate kind of perspective of ‘I want to help you’ and then there’s also that, like, ‘if you keep putting yourselves in these situations, it’s really hard to help you’. Within these examples, stigma is evident in the othering that the participants engaged in. Since beliefs about PWSUD vary across society and include stigmatizing beliefs, it is not surprising that at times institutional values also contribute to reinforcing these negative stereotypes (Harling & Turner, 2012). Recognizing that stigma is a societal issue, rather than an individual issue, is necessary to address stigma at all levels: societal, institutional and personal (Chang et al., 2016). This can be done in a number of ways including raising awareness among the general population about PWSUD, legitimizing SUD as an illness, and placing value on the care of PWSUD both by appropriately funding resources and by implementing policy and practice guidelines (Livingston, Milne, Fang, & Amari, 2011). As stigma toward PWSUD relates to nursing, increasing education about caring for PWSUD in both pre-registration education and workplace education may increase understanding of PWSUD and in turn, may contribute to improvements in health care delivery (Miles, Chapman, & Francis, 2015). This must be done not only in settings specific to MH&A, but also in acute care and community-based settings. This will provide nurses with knowledge and skills for meeting the needs of PWSUD across the continuum of health care services. For example in acute care settings this may include the provision of education to foster effective pain management, an aspect of care that is highly challenging for PWSUD. Increasing nurses’ understanding of how PWSUD experience pain and pain control could enable nurses 139 to better advocate for patients’ needs and thus have better success with meeting the needs of their patients (Morely et al., 2015). Overall, my study has examined the complexities of caring for PWSUD in the ED context and has addressed some of the existing gaps in the literature with respect to understanding nurses’ experiences in caring for this population. In concert, this research has corroborated the findings of other studies exploring SUD and has provided valuable insights of RNs caring for PWSUD in the rural and small urban settings in northern British Columbia. For example, my study was congruent with the findings of other studies that identified that nurses hold some negative beliefs about SUD and PWSUD (Adams, 2008; Baldacchino et al., 2010; Chu & Galang, 2013; Happell et al., 2002; Johnson et al., 2005; Kelleher, 2007; Kelleher & Cotter, 2009; Pinikahana et al., 2002; Raistrick et al., 2008; Spence et al., 2008; van Boekel et al., 2014). However, this study demonstrated that despite some negative attitudes and experiences, nurses still wanted to provide high quality care to improve the health and wellbeing of PWSUD. Furthermore, I found that nurses are cognizant of the impact of organizational and institutional resources on their experiences of providing care, and the need for improved education and support. Recommendations for Education, Policy and Practice, and Research This research has brought to light numerous areas that warrant further investigation as a means for improving health outcomes for clients and nurses’ experiences of caring for PWSUD. These recommendations for education, policy and practice, and research will now be presented. 140 Education All of the participants in this study identified that education and training specific to SUD was limited both prior to professional registration and during their work as an RN. Increasing preregistration education related to SUD is warranted, both within the MH&A content but also within other areas of nursing, such as medical-surgical nursing, perinatal nursing and geriatric nursing. Further educational opportunities may contribute to greater confidence and competence when caring for the population and may also highlight that PWSUD exist in every sector of health care and will be experienced by most nurses. Increased exposure to PWSUD, along with adequate knowledge about SUD, could also serve to decrease the stigma associated with this issue and work to normalize the provision of care for this often marginalized group. Furthermore, workplace-specific educational opportunities geared at improving nurses’ skills within their particular area of practice will further contribute to increased skill and confidence in caring for this population of patients. Educational pathways that are integrated into nurses’ ongoing training may likewise encourage those who regularly come into contact with PWSUD to remain up-to-date in their practices and offer direction for the most current treatment and resources. This will place increased organizational value on the care of PWSUD and serve to legitimize the provision of care in the ED setting. Policy and Practice PWSUD are a highly stigmatized group who often suffer the stigma not only of SUD, but also commonly because of other factors such as mental illness, poverty, homelessness and sometimes racial stigma. It is important to acknowledge the existence of this injustice so that we, as health care providers, who are tasked with providing unbiased care, can begin to 141 create safe and appropriate health care spaces where assistance can be accessed by marginalized groups. Policy and practice guidelines that support this endeavor are imperative. Since PWSUD do present to the ED with both urgent and non-urgent issues, it is important that nurses have not only the education and training to manage PWSUD’s care, but also the organizational support to do so. On a departmental basis, this support could be provided by having local nurse champions who are there to support the decision making and practices of other nurses. This could include role modeling best practices or supporting the development and uptake of best practice guidelines to improve patient care. In addition, ongoing monitoring of outcomes through evaluation would provide useful feedback that could further inform the development of more responsive practices. Outcomes that could be measured include whether nurses and patients report feeling more supported, as well as more objective patient outcomes, including readmission to the ED for the same issue and long term health outcomes. This would serve two purposes, 1) to ensure that the support exists for the nurses, and 2) to legitimize the care of PWSUD in the ED. While nationally there have been some initiatives to improve screening for SUD, more needs to be done to provide appropriate and safe care to this group. On a wider scale, value needs to be placed on the care of PWSUD and this could be demonstrated throughout the health care setting by improving and expanding the available services that are geared specially toward PWSUD. Several of the participants working in the smaller centres suggested the creation of an ED (or section of the ED) specifically geared towards addressing MH&A issues, where people accessing the ED would have access to 142 quality patient-centered care that would address the holistic needs of the individual, including any physiological and mental health concerns. Further efforts are needed to explore more effective and responsive models of care for PWSUD. Currently, many of the community resources that are available across this region are based on an abstinence model. While this has an important role in healthcare for those with SUD, harm reduction may also provide an alternative approach that could be beneficial. In more rural and remote settings where physical services are most limited or not feasible due to cost restraints or low population density, other forms of access to healthcare could be considered including telehealth, peer support networks, and increased community involvement. Research This research explored RNs’ experiences of caring for PWSUD in an ED setting. While important insights were gained from this work, many more questions surfaced as a result. Future research directions informed by this study could include investigating the care of PWSUD in other tertiary health care settings, such as medical units or surgical units. This could include both nurses and patients as participants in order to broaden the understanding of the experiences. A comparison between rural and urban experiences of caring for PWSUD in EDs could be conducted inviting not only RNs, but also physicians and other members of the health care team to participate. This would provide a much needed interdisciplinary perspective of caring for PWSUD in the ED setting. A concept analysis of help in the context of nursing care might highlight how nurses define this concept, allowing for this term to be better understood going forward. Since the participants in my study identified a disconnect between their desire to provide good care and their ability to achieve this due to a lack of 143 knowledge and organizational support, further investigation of the cognitive dissonance that nurses experience when caring for PWSUD could elicit useful information. Finally, with stigma still prevalent in the experiences of nurses working with PWSUD, research aimed at decreasing or eliminating the stigma associated with SUD would be beneficial in improving experiences for health care professionals and PWSUD alike. Strengths and Limitations To understand the experiences of nurses caring for PWSUD in the ED, a qualitative descriptive study was undertaken with 13 RNs from northern British Columbia. As previously discussed, the qualitative approach was congruent with the focus of the research and was appropriate to addressing the research questions. Overall, the study generated a large volume of rich data allowing for detailed and rigourous analysis. In addition, ongoing reflexivity, in combination with sustained engagement with the data, supported the rigour of the study. For example, a reflexive diary was kept throughout the duration of the research that allowed me to situate my own beliefs and assumptions as they related to the data and to track the data analysis. During the research, I examined my own bias and confronted my own experiences of caring for PWSUD in the ED and made conscious effort to make my interview schedule as value free as possible. Throughout data collection, I revisited my reflexive journal and added to it. Analysis of the data also required me to examine my own biases and beliefs, to be certain that I was reliably focusing on the voices of the participants. One way that this was attended to was the use of participant stories and descriptions of their experiences. This speaks to authenticity and to credibility of the research process (Lincoln & Guba, 1985). Additionally, ongoing support from the supervisory team provided an important opportunity for quality checks and guided both the analysis and the data collection. Overall, 144 the study findings have provided a rich description of RNs’ experiences that has addressed gaps in the literature by exploring the experiences of ED nurses in caring for PWSUD, as well as providing the perspectives of rural and northern nurses located in northern British Columbia. The study findings have implications in informing new strategies for caring for PWSUD in the ED, new programs and services that are aimed at reducing stigma toward and improving the care of PWSUD. Despite the many strengths of the study, there are a number of limitations that should be considered. First, this study has undertaken an in depth exploration of the experiences of nurses working in three EDs within northern BC. While these sites range in size and context, the experiences of the participants may not be entirely representative of RNs in the ED overall and it is possible that other perspectives exist that were not captured within this study. Further exploration of this phenomenon within the other ED practice settings, such as larger urban centres or in communities with greater ethnic diversity, may generate further insights. Second, participants were only interviewed once for this study. It is possible that conducting interviews over a longer period of time and at multiple intervals may have yielded different insights. While this is beyond the scope of this program of study, exploring attitudes and perspectives over time, perhaps in response to education, may further add to our understanding of the experience of caring for PWSUD. Overall, the sample size for the study was adequate and thematic saturation was achieved (Sandelowski, 1995); however, greater diversity in the sample composition with respect to demographic characteristics and location would have enhanced this study. First, the majority of the 13 participants were from the urban site (n = 7), and the remaining six were from the smaller sites, (n = 5 and n = 1). Second, while attempts were made to recruit a 145 more varied sample, I was unable to recruit further participants in the smaller study sites despite ongoing efforts. Third, all the participants were female, and while they had a wide range of experience in both nursing in general and in the ED, a more gender diverse perspective is missed. Despite repeated and significant efforts to recruit a more balanced sample, no male or other non-binary gendered ED nurses volunteered to participate. Conclusion Substance use disorders are a health issue that is prevalent in every aspect of health care. Care provided to PWSUD is often inadequate and gaps in treatment exist for this vulnerable patient population. EDs can act as a portal of entry to the health care system for PWSUD and the nurses who work in EDs can act as facilitators to guide PWSUD through the system. Providing care for PWSUD can be a challenging and occasionally daunting experience for RNs in ED. This research was able to highlight how the participants not only experienced this phenomenon, but also how they navigate caring for PWSUD. Nursing is a caring profession where members strive to assist all clients with their health care needs. PWSUD have a unique set of needs that remain subject to stigma. Consequently, nurses working in the ED, particularly in rural settings where the ED may be the only resource for PWSUD, must have skills and knowledge related to the effective management of the care of PWSUD. The research has provided insights into the challenges that RNs face when caring for PWSUD in the ED setting, the need for resources specifically aimed at improving outcomes for PWSUD, and the varied attitudes and beliefs that RNs hold with respect to SUD and PWSUD. This research has several important implications in the planning of management for PWSUD including: increasing education and training specific to the care of PWSUD in 146 tandem with increasing role support; the need for a shift in the culture regarding PWSUD and SUD in general, and increasing knowledge about and availability of resources for PWSUD in the community setting. Furthermore, several opportunities for future research were illuminated, including the need to address the stigma associated with SUD, development of strategies to manage the dissonance experienced by nurses whose ideals of nursing practice are not met by the realities of practice, and comparisons of the nurses’ experiences of providing care to PWSUD in urban versus rural settings.. Furthermore, this study highlighted a gap in understanding of the conceptual definition of help in the context of SUD among nurses. 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Retrieved from University of Victoria, Centre for Addictions Research of BC website www.uvic.ca/research/centres/carbc /publications/index.php 162 Appendix A Common Substance of Use Summary Drug name Street Names Used by: Short Term Effects Long Term Effects Withdrawal symptoms Cannabis Blunt, Smoked Bud, dope Ganga, Eaten Enhanced sensory perception and euphoria followed by drowsiness; slowed reaction time; problems with balance and coordination; increased heart rate and appetite; problems with learning and memory; hallucinations; anxiety; panic attacks; psychosis Mental health problems; chronic cough; frequent respiratory infections; Irritability; trouble sleeping; decreased appetite; anxiety Lowered inhibition; enhances sensory perception; confusion; depression; sleep problems; anxiety; increased heart rate and blood pressure; muscle tensing; teeth clenching; nausea; blurred vision; faintness; chills or sweating; sharp rise in body temperature Long-lasting confusion; depression; problems with attention, memory and sleep; increased anxiety, impulsiveness, aggression; loss of appetite; decreased interest in sex Fatigue, loss of appetite; depression; trouble concentrating. Grass, Green, Herb, Joint, Mary jane, Pot, Reefer, Sinsemilla, Skunk, Smoke, Trees Weed Hashish Boom Gangster Hash Hemp MDMA Adam, Swallowed Clarity, Snorted Eve, Lover’s speed, Peace, Uppers 163 leading to liver, kidney or heat failure and death Opioids (prescription) Varied depending on opioid of choice Varied depending on opioid of choice Pain relief; drowsiness; nausea; constipation; euphoria; confusion; decreased respirations; Unknown diarrhea; vomiting; cold flashes with goose bumps; leg movements Death Hallucinogens Acid, Angel dust, Vitamin K Cocaine/Crack Blow, Snorted Bump C, Smoked Candy, Injected Charlie, Crack, Flake, Rock, Snow, Toot Methamphetamine Crank, Swallowed Chalk, Snorted Crystal, Smoked Restlessness; muscle and bone pain; insomnia; Distortion of perception of time, motion, colours, sound, and self; disrupted ability to think and communicate, recognize reality; results in bizarre and dangerous behaviour; mood disturbances; Psychotic like episodes; respiratory depression; dysrhythmias; Narrowed blood vessels; enlarged pupils; increased body temp, heart rate and blood pressure; abdominal pain and nausea; euphoria; increased energy, alertness, insomnia, restlessness; anxiety; erratic and violent behaviour, panic attacks, psychosis; dysrhythmia; myocardial infarction; stroke seizure and coma Loss of sense of smell; nosebleeds; nasal damage and dysphagia; infection and death of bowel tissue; poor nutrition and weight loss Depression; tiredness; increased appetite; insomnia; vivid and unpleasant dreams; slowed thinking and movement; restlessness Increased wakefulness and physical activity; decreased appetite; increased respirations, heart Anxiety; confusion; insomnia; mood problems; violent behaviour; paranoia; hallucination; delusions; weight loss; Depression; anxiety; tiredness 164 Fire, injected rate, blood pressure and temperature; dysrhythmia sever dental problems; intense itching leading to skin sores from scratching Brown sugar, Injected China white, Smoked Dope, Snorted Euphoria; warm flushing of skin; dry mouth; heaviness to hands and feet; clouded thinking; alternate wakeful and drowsy states; itching; nausea; decreased respiration and heart rates Collapsed veins; abscesses; cardiac infections of lining and valves; constipation and stomach cramps; liver or kidney disease; pneumonia Glass, Go, Fast, Ice, Meth, Speed Heroin H, Horse, Junk, Restlessness; muscle and bone pain; insomnia; diarrhea; vomiting; cold flashes with goose bumps; leg movements Skag, Skunk, Smack, White Horse http://www.drugabuse.gov/publications/research-reports/hallucinogens-dissociative-drugs/director http://www.drugabuse.gov/drugs-abuse/commonly-abused-drugs-charts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ppendix C Literature Matrix Title Author Year Comorbidity of mental health and substance misuse problems: a review of workers' reported attitudes and perceptions. Adams 2008 Originating Country UK Community providers' views of alcohol problems and drug problems Gassman, Weisner 2005 USA An analysis of nurses' views of harm reduction measures and other treatments for the problems associated with illicit drug use Ford 2010 Australia Study Population articles Community health care providers from public and private medical, mental health clinics, and addictions programs as well as welfare criminal justice clergy private therapists, physicians All Nurses registered in the Australian capital territory Study Design Literature Review Outcomes and Measurements Main Results or Conclusions Australia = 5 UK = 10; US =3: Secure forensics; inpatient acute; crises assessment and treatment; assertive outreach; combination in and out pt. teams; MH staffing MH and/or addictions; clinicians. Focus on comorbidity; those who began in MH but have had training in Addictions; All have some MH participants; Mostly Quantitative with only 2 qualitative papers. 1. Negative attitudes most predominant in forensics r/t increased security concerns and policies that forbid use of increased security which can hinder therapeutic relationships 2. Contemporary models of care are not meeting the needs of clients group (shared models of care showing promise) 3. Co morbidity is viewed at difficulty to treat; low optimism for success; lots of systems failures 4. identified lack of training as an issue; 3/4 of articles had nursing staff; willing to work with comorbid patients but lack of knowledge and skills to know what to offer them; paucity of training and structural problems with services 1. Definitions of drug and alcohol problems varied widely: drugs usually viewed as worse: focus on the physical problems. 2. Alcohol was viewed as a genetic problem, whereas drugs as a social problem: extremes were focused on 3. Drug problems carried more stigma Qualitative: Interviews with structured demographic data collection and open ended interview questions Definitions of alcohol and drug problems. Structured questions re: personal and professional background; current work situation; caseload; attitudes and beliefs; experiences working client with alcohol and other drug problems Quantitative: Survey design Variables were taken from the National Drug Strategy Household Survey (amended) assessing views on regulated injection rooms; trials of prescribed heroin; rapid detox therapy, naltrexone; NSP; MMP; Treatment with drugs other than methadone 1. Lots of support for abstinence based measures 2. more support for naltrexone and rapid detox than for MMP 3. more support for NSP than MMP 4.regulated injection rooms and prescribed heroin received least support 5. Nurses seemed to hold either an abstinence based or a harm reduction 167 A survey of substance use by health care professionals and their attitudes to substance misuse patients (NHS staff survey) Raistrick, Russell, Tober, Tindale 2008 UK Health care professionals across Yorkshire region of England: Nurse, Midwives, health care assistants, medical staff in secondary care services: psych, A&E, gen med; liver and obstetrics Quantitative survey design: survey modified version of alcohol and alcohol problem perception questionnaire demographics; personal substance use; work related problems of self and colleagues; attitudes towards substance use patients; role adequacy; role legitimacy; positive expectations, self-efficacy A descriptive study on emergency department doctors' and nurses' knowledge and attitudes concerning substance use and substance users. Kelleher, Cotter 2009 Ireland Doctors and nurses working in emergency rooms in three university hospitals in Ireland Quantitative survey design: modelled after SAAS Collected demographics; current knowledge; perceived knowledge; perceived competence; attitudes toward substance abuse and users; perceived role in management and frequency of interactions. ideology 6. compared well with general population except more supportive of HR NEP and prescribed heroin, less supportive of MMP 7. Nurses form views like rest of society eg: media social norms 8. Identified education and institutional support as imperative to improving nurses’ attitudes. 1. Docs more likely to be nondrinkers nonsmokers; females who drank more heavily. Docs less likely to use drugs (fewer drugs less frequently 2. Cannabis use most common other drug not 3. Doctors and health care assistants differed widely on their views (all believed themselves to be competent and confident) nurses held a more intermediate place 4. low role legitimacy for doctors and nurses 1. History taking for drug use (outside tobacco and ETOH) poor 2. Most have daily contact with users (inadequate management d/t paucity of services; viewed pt. at hard to manage 3. Although knowledge base scored as satisfactory, gaps were identified in ETOH management, benzos, amphetamines and methadone. 4. Most thought they knew enough 5. Most thought they were moderately or very competent in ID/assessment/ management of OD; not competent in specialist services awareness and referral, brief interventions or motivational counselling. 6. Most believed that they had a legitimate role in caring for users in EDs 7.overall not permissive of drug use/abuse; had quite strict beliefs regarding rule for treatment/intervention; were not overly stereotypical; almost 1/2 identified users as unpleasant to work with but 168 Experiences of substance abusing suicidal males who present frequently to the emergency department Spence, Bergmans, Strike, links, Ball, Rhodes, Watson, Eynan, Rufo 2008 Canada From a single hospital: health care professionals in ED and including nurses doctors crisis team workers; security officers and nonmedical staff suicidal substance abusing males in ED Qualitative study Themes: reasons for presenting; Pt's behaviour; identification as a repeat visitor; emergency department experiences Guilty until proven innocent: a qualitative study of the management of chronic non-cancer paint among patients with a history of substance abuse Baldacchino, Gilchrist, Fleming, Bannister, 2010 UK medical personnel from addiction rheumatology and pain services from 2 NHS boards and 1 GP practice Qualitative: interviews and focus groups The interview and focus group schedules are neither included nor described Health care professionals knowledge and attitudes regarding substance use and substance users Kelleher 2007 Ireland Medline, PubMed, science direct, Psychlit and Blackwell synergy; also hand searches of reference lists Literature review Search terms included knowledge, attitudes, drug abuse/misuse and substance abuse Health care Van Boekel, 2014 The Doctors working Quantitative Medical Condition Regard Scale, the used had high confidence that they could be helped 1. Pt.’s were often made to present by family of HCP: ED identified as not an appropriate place as too stressful 2. Pt.’s felt like bad behaviour sped up process: ED staff finds it difficult to manage within the constraints of ED 3. Staff and pt. describe negative experiences; staff feel like there is little they can do and that the patients block beds; some empathy was evident in the comments 4. belief that long term goals of these men cannot be met in ED and realistic goals need to be set 1. Most doc view opioids as a last resort for CNCP and are even more reluctant to give it to PWSUD due trust issues; misuse; re. addiction; not to be seen as feeding a habit; too much temptation 2. Docs were able to identify that their decisions were not always 100% sensible but they worry that addicts are exaggerating their pain (there is this idea re circle of discomfort again) 3. Pain specialists were more trusting and willing to treat subjective description of pain but they too looked for red flags (lost prescriptions, early refills, doc/pharmacy shopping 1. There were few articles that addressed trauma or emergency care 2. HCP find substance using patients unpleasant and difficult to work with 3. Nurses tend to hold moralistic/stereotypical/pessimistic views 4 .Barriers to the ID of SUD are time and knowledge base deficits 5. Pessimistic views may inhibit willingness to receive education 6. Negative attitudes in general population may influence HCP which then impacts the care of SA patients 7. More education in training programs is needed 1. Regard did differ between 3 sectors 169 professionals regard towards working with patients with substance use disorders: Comparison of primary care, general psychiatry and specialist addiction services Brouwers, Weeghel, Garretsen Knowing how to play the game: hospitalized substance abusers' strategies for obtaining pain relief Morgan Mental Health professionals' attitudes to drugs and substance abuse Pinikahana, Happell, Carta Netherlands in general psychiatry HCP; primary care physicians and HCP in addictions specialty areas the Attribution questionnaire and the Attitudes and Beliefs about Alcoholism and Alcoholics Questionnaire 2006 USA users 14 male and 4 female; 16 white and 2 AA; 32-60 years old; all levels of education and employment; majority had use related infections; 1/3 had HIV; 72% had Hep C; all poly drugs; 16 heroin users 2 focus groups with RN staff qualitative grounded theory depth of questioning changed as interviews progressed constant comparison 2002 Australia Health care professionals working in Melbourne Quantitative survey design Questionnaire based on SAAS. 46% return rate addiction had highest and GP's had lowest regard ; sector explained only 40% of variance; attribution beliefs, emotional response and professional characteristics explained a further 57% 2. GP viewed addiction as a character flaw and felt more pity, addictions services felt less anger. 3. Socially desirable answering associated with regard so regard may be overestimated 4. Feelings of role legitimacy may impact level of regard and or impact attitudes toward SA Core Categories "knowing how to play the game": Sub Categories "feeling/not feeling respected" and "strategizing for pain relief" Respect and being believed and worked with to achieve good pain control were themes that arose. Patients identified a knowledge deficit among the nursing staff. Staff felt inadequate (also indicative of knowledge deficit); they would prefer not to work with this group; patients expected negative reactions from health care professionals related to their drug use. Permissiveness: 59.6 no cannabis legislation;; 73% disagreed with pot as healthy teen experimentation; 66.7 disagreed with legalizing use in personal homes; 75% disagreed with daily pot use as not harmful; 93.1 disagreed with smoking in school; 76.1% disagreed with people getting no parole for selling drugs; 59.6 disagreed with lifelong abstinence for addicts; 72.7 agreed with normal for teen to experiment; 81.5 agreed parents should teach safe alcohol consumption Treatment Interventions: 82% agree docs diagnosis early of ETOH increases chance of treatment success; positive views on family involvement in treatment; urine drug screens, group 170 Student nurses attitudes to illicit drugs: a grounded theory study Harling, Turner 2012 UK Student nurses at a school of nursing in UK Qualitative: grounded theory Literature review was combined with results and showed a number of categories including society, the media, culture, individual level, practice environment and nurse education as influencing student attitudes Nurses Knowledge attitudes and beliefs regarding substance use: A questionnaire survey. Happell, Pinikahana, Carta 2002 Australia Nurse in Victoria qualitative survey design based on SAAS Knowledge: most answered all questions in this area correctly except for dx of SA. Skills and regular practice: 24.6 thought dual dx patients adequately managed; 43% saw DD daily; most took substance use history for patients 37.4 took tobacco history for patients. Perceived knowledge and confidence: 62.7% moderately knowledgeable 2307 very knowledgeable Stigma reported by nurses related to those experiencing drug and alcohol dependency: a phenomenological Giorgi study Love, Barr 2009 Australia Homogenous group from one unit n=6 all Caucasian, 35-58 years of age RN 8m -20y experience qualitative 2 unstructured with more structured subsequent interviews with See article for excerpts therapy, long term outpatient treatment and paraprofessional counselling Non-stereotyping: 87.3 disagreed with people using pot not respecting authority; 90.7 disagreed with clean shaven short haired people likely don't imbibe; 67.6% disagreed that pot leads to mental illness; 72.9 disagree that all heroin use leads to dependence; 78.5% disagree that weekend use= drug misuse; 79.1 disagree that hospital is best place to treat; 6406 disagree that recreational drug use = misuse Moralism: most disagreed with all moralism statements Final Grounded Theory: student nurses enter training with a wide range of personal experiences relating to illicit drug use. The influences of society's negative views and the image of drug use presented in the press appeared to be significant factors in developing their attitudes on the subject. In the absence of effective approaches to education, and given that many professionals in the practice environment might appear to view illicit substance users in a negative way, it is likely that interventions with identified drug users will be influenced by negative attitudes. Rn's had adequate knowledge related to ETOH and other drugs and basic knowledge re OD heroin and ETOH dependence. Did not adequately manage due to lack of training and paucity of services Many nurses routinely took ETOH and SA history Nurses need training in ID of SUD; management of ETOH and SUD detox; management of DD clients Three main themes: 1. inappropriate judgements from other units RN's 2. The importance of advocacy: enhanced privacy/safety; they are allowed to relapse and still receive support 171 concurrent collection and analysis Physicians beliefs about the nature of addiction: a survey of primary care physicians and psychiatrists Lawrence, Rasinski, Yoon, Culin 2013 USA American GP's and Psychiatrists Quantitative: Survey design Two version of the questionnaire 1. In your judgment, to what extent is alcoholism each of the following a disease, a response to psychological wound, a result of moral failings. 2. same question with drug addiction rather than alcoholism Stigma among health professionals towards patients with substance use disorders and its consequences for healthcare delivery: systematic review Van Boekel, Brouwers, Weeghel, Garretsen 2013 Netherlands N/A Systematic Review Australia n=12; UK n=7; USA n=5 Canada n=1; Ireland n=1; One cross country comparison of 8 EU countries and I USA/UK. Nurses N=8 MH&A N=7 physicians N=4; 5 also included pts. 20 Quantitative with SAAS and AAPPQ being prominent. % had interviews or focus groups 2 Had implicit association tests and 2 had direct observation. 3. Education: SUD inadequately addressed by general RN's -inadequate specific education in nurses training need more Psychiatrists more likely to believe addiction is a disease. 64% vs 56% of GP's answered a lot. Type of disease marginally significant (alcohol more that drugs) 31% or GP's and 27% of Psych said a lot to addiction as a response to psychological wound. 7% of GP's and 4% of Psych said moral failings (Psych more likely to say not at all to moral failings) 42% gave priority to disease model, 31%rated disease model as the same as another model and 16% prioritized another model over the disease model 1. HCP found generally to have negative attitudes toward SA and users regard was lower compared with other PT groups - HCP unable or unwilling to empathize- MH&A may have more positive and optimistic views. Also those with more experience in working with addicts had more positive attitudes. 2. Reasons for negative attitudes: pts are more challenging and may be unsafe: perceived as violent manipulative, aggressive, rude, irresponsible and poorly motivated. Causal attribution beliefs play a role in how attitudes are formed; HCP often feel they have a lack of knowledge and training in dealing with this group of pt. - Contextual Factors: time, organizational policy, role legitimacy, role support accessibility of support structures for addicts. Education only effective in the presence or role and organizational support. 3. Impact of negative attitudes: Increased stigma = decreased treatment completion: pts judged HCP as better if were more positive: One found no correlation b/w attitude of HCP and satisfaction with care: some found negative attitudes = decreased pt. 172 Physician Beliefs about substance misuse and its treatment: findings from a US survey of primary care physicians Johnson, Booth Johnson, P. 2005 United States Docs from 5 specialties GP Internal medicine; obgyn; peds and family practice Quantitative: telephone survey Perceived prep to dx hypertension, diabetes, depression, misuse of prescription drugs, alcoholism and illegal drugs: perceived difficulty in discussing depression, alcohol use and prescription drug misuse; perceived effectiveness of available treatment methods for hypertension, diabetes, depression, smoking cessation(adults/adolescents), alcoholism and illegal drug dependency The determinants of nurses therapeutic attitudes to pt. who use illicit drugs and implication for workplace development Ford, Bammer, Becker 2008 Australia All Nurses registered in the Australian Capital Territory quantitative survey design Measures: therapeutic attitude Using AAPPQ (adapted to include illicit drugs); personal characteristics (age sex, education, religion, personal use of substance) Personal practice factors (role requirements workplace factors.) The Dissonant care management of illicit drug users in medical wards, the views of nurses and patients: a grounded theory study Monks, Topping, Newell 2012 UK purposive sampling; RN' from a large NHS hospital in northern England MAUs and medical wards qualitative: grounded theory concurrent analysis and collection using semi structured interviews: see article for interview schedule: empowerment; decreased quality of care provided and decreased HCP-PT collaboration. Primary care physicians do not see themselves as very capable of dx and treatment of substance use conditions many also have problems discussing these problems. Don't ask b/c pts lie re abuse (57%), time constraints (35.1%), questioning pt. integrity (25%) uncertainty re available treatments (15.7), personally uncomfortable (12.6%), not being reimbursed for the extra time (10.6%). Authors state some of the responses show a lack of knowledge re substance abuse treatments; leads them to not improve diagnostic skill re substance abuse and not to engage in uncomfortable discussions re substance abuse. Modification of physicians’ beliefs is necessary! 65% agreed role legitimate; 44% believed in their own performance in role; role adequacy and satisfaction were lower; All professional practice fields influenced attitude; attitudes toward illicit drugs significant in predicting therapeutic attitudes; personal characteristics not significant; role support had the biggest impact on therapeutic attitude - education without role support was shown to be ineffective Recommendations were there needs to be a focus on preparation and support in workplace in managing substance abusers in acute care settings; role support is crucial = someone to help resolve personal and clinical issues. Core Category: Dissonant care management/delivery: Sub categories were lack of knowledge to care and distrust and detachment lack of education in nursing programslack of confidence in ability outside physical needs- inadequate care 173 convenience sampling of users Improving nurses' therapeutic attitude to patients who use illicit drugs: workplace drug and alcohol education is not enough Ford, Banner, Becker 2009 Australia All Nurses registered in the Australian Capital Territory the point at which role support potentiates the effect of workplace education and the benefit gained from increasing the level or roles support and the event that workplace education is high subsample of All Nurses registered in the Australian Capital Territory Quantitative: multi variable regression analysis based on results from a survey of all RN's in ACT qualitative one open ended question Interpersonal challenges as a constraint on care: the experience of nurses' care of patients who use illicit drugs Ford 2011 Australia Hospital nurses attitudes toward patients with a history of illicit drug use Chu, Galang 2013 Canada IMU nurses at St Michaels Hospital in TO ON All full or part time nurses invited Quantitative used the DDPPQ (Pencil and paper) Job satisfaction; role specific self-esteem; role adequacy; role legitimacy; role support describe any factors that impede your ability to provide nursing care to patient who use illicit drugs delivery (nurses and patients recognized this) negative opinions were expressed re pt. group. Pts saw this as threat to their care and an opportunity for exploitation. This helped lead to that cycle of lack of education to inadequate care provision to behavioural consequences from pts who are concerned re their care - detachment of nurses from these pt. and their care - no interest in increasing knowledge or understanding from nurses - inadequate care delivery and so on Nurses mistrust pt.'s and pt.'s mistrust nurses; nurses found pts emotionally draining and they had difficulty seeing the person behind the patient Workplace education is ineffective with role support is low Moderate level or role support ae necessary to make education effective in impacting nurses' therapeutic attitudes: education can serve to highlight the complexities of providing nursing care to substance abusers and without role support this can lead to lower confidence levels and disengagement from the patient. Interpersonal challenges as an impediment to care: these included violence manipulation and irresponsibility of or from the patient who uses illicit drugs. Could lead to further disengagement form the already marginalized group; there are limited research studies on pt.’s responses to care author advocates for harm reduction approach the focus of which is to accept the patient circumstances and move forward Nurses on this unit held a basically neutral view of illicit drug users: this differed from many previous studies, they did cite poor role support; drug use is influenced by local economy, HC system and: outlined limitations including small and specific sample (1 unit in inner city to) suggested researching attitudes across HC 174 Inpatient staff perceptions in providing care to individuals with cooccurring mental health problems and illicit substance use Howard, Holmshow 2010 UK all in patient workers from one sector of MH trust invited = one assessment and admissions unit, 5 mental health treatment units and three rehab units mixed methods DDPPQ scores, whether training re addicts had been given Illicit Drug users in Northern Ireland: perceptions and experiences of health and social care professionals McLaughlin, Mckenna, Leslie, Moore, Robinson 2006 Northern Ireland: hospital and community care workers Health and social care professionals Qualitative: Focus groups and interviews Appears to be qualitative description what has been your experience working with PWSUD? Do PWSUD differ from other clients you see? How? Criminalization impact on drug use affecting care and treatment? Who should care for DU? Training adequate? What are your needs? How do you think IDU perceive HP? Are there any other issues you would like to discuss? institutions and geographic settings. Survey showed that profession had no significance on DDPPQ score but training did (those with training had lower scores). They did identify that more role support would be good Interview results: 7 themes a) working with illicit substance users: identified how it differs from caring for non-illicit drug users: safety and engagement b) team attitudes c)communication and problem solving in multidisciplinary meetings: to adapt consistent approaches; trust policies and local area protocols: especially around tolerance to use e) concerns over legality f)staff support structures f) training Health care professionals don’t want to work with users d/t fear or perceived lack of training: feel like users are manipulatives. Avoid education that might draw addicts to you as a provider. Pessimism about the care and treatment (negative expectations. No one thought only primary care providers should take sole responsibility for drug user; should be specialists or at best shared care model. Many held negative views; many admitted to limited knowledge and skill in caring for DU; most professionals thought specialist only should care for DU; a lack of empathy was apparent. 175 Appendix D Letter of Invitation to Participate [Date] Title of Study: What are the experiences of Registered Nurses caring for people with substance use disorders in an emergency department setting? Student Investigator: Gwen Keeler, MScN Student, School of Nursing , University of Northern British Columbia Faculty Supervisor: Dr. Davina Banner Lukaris, PhD RN, School of Nursing, University of Northern British Columbia Faculty Supervisor: Linda VanPelt, MScN, FNP, School of Nursing, University of Northern British Columbia I, Dr. Davina Banner-Lukaris, PhD, RN, from the School of Nursing, University of Northern British Columbia, invite you to participate in a research project entitled “What are the experiences of Registered Nurses caring for people with substance use disorders in an emergency department setting?” The purpose of this research project is to explore how nurses experience caring for people with substance use disorders and produce a description that is representative of the combined experiences shared with the researcher. Should you choose to participate, you will be asked to participate in a telephone interview and to review the transcripts prior to analysis of the data. The expected duration of the interview is 60-90 minutes, once and then to review the transcripts and provide feedback to the researcher on accuracy. This research should highlight the barriers and opportunities nurses experience in providing people with substance use disorders with excellent care in emergency room settings. It will also offer a baseline understanding of how nurses experience caring for this marginalized group. My hope is that through this research, understanding will be developed so that further research into related topics can be planned that will allow us to begin to change practices in order to better serve the population. There is much socially undesirable behaviour associated with substance use and perhaps improved access to care can decrease the impact of these behaviours on the public. Furthermore, it is an area that has not been well researched and the results of the study will add to the nursing body of knowledge If you have any questions, please feel free to contact me (see below for contact information). Thank you, Dr. Davina Banner-Lukaris Dr. Davina Banner-Lukaris 176 PhD., RN, Principal Investigator 250-960-5852 davina.banner-lukaris@unbc.ca Gwen Keeler, BScN, RN, Student Principal Investigator 250-960-6752 gwen.keeler@unbc.ca Linda Van Pelt MScN, FNP, Faculty Supervisor 250-960-52 linda.vanpelt@unbc.ca This study has been reviewed and received ethics clearance through University of Northern British Columbia’s Research Ethics Board and through Northern Health Application for Operational Approval in a harmonized certificate of approval E2016.0622.052.00. 177 Appendix E Participant Demographic Information Interviewee Gender Age (Years) Place of Employment Years as an RN Years in ED Level of Education 1. Female 55-65 (57) Site 2 35 27 Diploma 2. Female 45-55 (53) Site 3 30 30 Diploma 3. Female 25-35 (30) Site 2 8 7 Degree 4. Female 55-65 (57) Site 2 35 9 Degree 5. Female 25-35 (35) Site 1 4 8 months Degree 6. Female 35-45 (44) Site 2 23 21 Degree 7. Female 35-45 Site 2 19 10 Diploma 8. Female 25-35 (28) Site 2 2 1.5 Degree 9. Female 35-45 Site 2 22 12 Degree 10. Female 45-55 Site 1 33 27 Degree 11. Female 45-55 Site 1 26 14 Degree 12. Female 25-35 Site 1 3 4 Degree 13. Female 35-45 Site 1 22 7 Degree 178 Appendix F Interview Schedule Demographic information Experiences Role Legitimacy           Address consent and that the interview is being recorded. Age Gender Place of employment Years of experience in the ED Years of experience as an RN Level of education  Can you give me a specific example?  What do you see as the critical care nurse’s role in the care of people experiencing SUD? What supports do you have to manage people experiencing SUD in the ED Can you give me an example Is there anything you don’t have that you wish you did?    Describe your experiences caring for people experiencing SUD in the ED What is Helpful/Unhelpful When a person comes in with issues associated with SUD, what do you see as the focus of care? How does the reality of experience measure up to your ideal. Training/Education     What training do you have to manage people experiencing SUD in the ED? Is this training adequate What is helpful/unhelpful  Is there anything I haven’t asked that you think is important